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Author Topic: HELP: My leg is like a puzzle  (Read 10797 times)

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Offline Lyndsey

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UPDATE!!!
« Reply #15 on: February 07, 2008, 02:04:41 PM »
Hey everyone,    8)

I went to the doctor yesterday. It was a really interesting visit. The doc was telling me the details about the surgery to rotate my femur. Then he brought in a couple of other OS's to look at me as well. They all agreed that my right femur is rotated 50 degrees inward. They looked at the MRI and CT Scans and it showed that even though my femur rotates in, my kneecap dislocated medially because my body built up a ridge on the lateral side of my groove, so that it doesn't dislocate laterally. So in a way I am lucky that I have that wall built up that doesn't let it dislocate completely.

 The one OS brought up the point that my knees themselves are alike in both legs, the way the angles of the patella and the muscles line up. He wondered why the right one tracks wrong. Then I showed him how flat my foot is, and how my ankle rolls over. He said this is interesting. I thought oh crap, here we go, another problem. When I walk on the outside of my foot the angles in my knees, not my femur, correct themselves, and my knee doesn't do the pop thing. So we are going to try a prosthetic arch support that I am going to put in my shoe for 3 weeks to see if that will stop the pain. It will simulate me walking on the edge of my foot. This won't solve the problem of the rotated femur, but if that isn't what is causing the pain, I really don't care if it is crooked! I really hope that this works, a shoe insert would be alot less painful than a derotation surgery. :D However, I am not getting my hopes up to high. My doc said he thought the other doc was crazy when he brought that up, because medically, there is no support backing up why this will work. He said it just might work because it looks like it might stop the problem. As to why raising the arch and the inside of my foot stops my knee from dislocating and popping when I walk, he still isn't positive.

So, all in all, the femur is rotated 50 degrees, the tibia not quite as bad, but rotated outward. Hopefully this insert thing will work, who knows!!!

Any thoughts or ideas, Please post them!!! ;)
I love to hear from everyone!!! ;D


5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline fitnesskitty

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Re: HELP: My leg is like a puzzle
« Reply #16 on: February 07, 2008, 02:41:54 PM »
Hi Lyndsey,

This is interesting.  Will the arches stop the patella from dislocating medially?  Did he think that would work for that part of the issue?  Stopping the pain is only one part, it sounds like to me.  Did he say that he would want to do the derotation surgery anyway so you don't develop new problems in the future?  I don't know much about this sort of issue, but I hope that the arch support helps!

Good luck and let us all know how it goes for you! Take care!

Sarah ;D
Aug 17 07 Injured
Aug 23 07 Open surgeryOct 18 07 No progress made at PT for awhile - stuck 52/53 degrees
Oct 23 07 Saw OS, wants second opinion from partner-ROM stuck 30-35
Nov 1, LR, LOA, MUA
PT 2X/week now, was 3X
Jan 8: ROM 134
Rest In Peace, Lucky!  I love and miss you so much!!!!!!!!

Offline cat

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Re: HELP: My leg is like a puzzle
« Reply #17 on: February 07, 2008, 10:40:13 PM »
Hey Lyndsey,
I know that walking on the outside edge of my foot helps with my knee pain but my femurs are not nearly as twisted as yours. (You win the prize on that one. ;)) And there are activities like swimming- flutter kick- where I think it's the rotation of the femur and not the pronation/supination of my foot that causes pain. Anyway, I guess I should say that I walk on the outside of my R foot and that swimming bothers the R knee as my L femur has been rotated. Does your L knee ever bother you? How does your OS surgically correct the anteversion? Thanx for sharing,
 ;D cat  ;D

"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline Lyndsey

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Re: HELP: My leg is like a puzzle
« Reply #18 on: February 08, 2008, 03:47:31 AM »
Hi Cat,

Lol, I'm not sure its a good thing I win the prize on femur rotation, but hey, I'll take what I can get. lol. I haven't really been swimming in a while, so I haven't been able to see if that bothers me alot. So far walking on the outside of my foot has helped some. My left knee rarely bothers me, sometimes a tiny bit, but not often. The OS said he would correct the antiversion with a derotation surgery on my femur first. He said he would use a rod to stablize the bone. Then, if my tibia was really crooked and bothering me alot, he said we may have to rotate it as well. Who knows, maybe the whole arch thing will work, and I won't need to be cut. I am not sure I'd bet on it though. lol.

Thanks for the reply, I love to hear from someone who has the same problem as me! This board is awesome! Us twisted folks need to stick together!
Talk to you later,
Lyndsey
5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline The KNEEguru

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Re: HELP: My leg is like a puzzle
« Reply #19 on: February 08, 2008, 11:15:27 AM »
Just thought this might be of interest to you all - http://www.kneeclinics.co.uk/limb-reconstruction-case-study/

This is, of course, a tibial derotation, not a femoral one but you can see the difference between the one leg where attempts were made to resolve the symptoms without using derotation and the more recent procedure with derotation and the use of an external ring fixator.
« Last Edit: December 20, 2017, 11:14:32 AM by The KNEEguru »
--
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Offline cat

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Re: HELP: My leg is like a puzzle
« Reply #20 on: February 08, 2008, 01:13:23 PM »
Something else that was suggested I try was walking with my foot turned out so that my knee faced forwards instead of inwards. That seems to help my R knee out though, again, it doesn't work for things like swimming or skating and sometimes I just plain forget.

Your twisted friend,
 ;D cat  ;D

PS
Does bike riding bother your knee?
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline Lyndsey

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Re: HELP: My leg is like a puzzle
« Reply #21 on: February 08, 2008, 04:09:48 PM »
Hey cat,

I am not much of a bike rider, but I think one of the reasons i'm not is becuase yes it does bother my knee. Also, I am an avid horse rider, and sometimes like when I jump, and have to put all my weight in my stirrups it really hurts. Just riding period doesn't bother me too awful much, and I think part of that is because when you ride the stirrups turn your toes out, and because of that my knee straitens out as well. I know all about forgeting things, because my mom ever since I was little has told me turn your toes out, and I forget that too!

Talk to you later!
Your twisted friend,
Lyndsey
5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline Dale

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Re: HELP: My leg is like a puzzle
« Reply #22 on: February 17, 2008, 11:57:52 PM »
I agree with cat and Lyndsey that walking on the outside edge of your foot helps - I think this stance derotates the inwardly rotated knee.  None of the papers about inwardly rotated knees (Teitge, Cooke, Meister & James, Delgado et al etc)  have noticed this.  (I am the patient in the Kneeguru's link above.) 

However I think if you do this long-term you might start to mess up your ankle.

Offline Lyndsey

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UPDATE
« Reply #23 on: March 11, 2008, 03:11:42 PM »
Hi everyone!

I know its been a while, things have been pretty crazy. I got a prosthetic insert/ arch support for my right foot that the docs thought may help. It has helped keep my knee from buckling, sort of, but the pain is still as present as ever. I guess I sort of got my hopes up about this, but it isn't working as well as I would have liked. I actually went on a college trip to Ireland this past week for 10 days. It was amazing! Belfast and Dublin are beautiful, and the countryside is breathtaking! I absolutely loved it! However, there was a definite downside. We walked everywhere! I thought I was not going to make it sometimes. Thank goodness I had my tens unit on me almost all the time. That seems to help with some of the sharp pains.

There was another definite downside to the trip, in the pics I have posted my left knee looks pretty strait. Now, after all the walking we did, my left knee is almost as crooked as my right one! And it has started to hurt as much! I am sooo frustrated! The docs say that my condition doesn't worsen, well I am definitely getting worse! I have an appointment tomorrow to show him my left knee now! We'll see how that goes.

As always, I would appreciate any comments or information anyone has to give!

Take care!

Lyndsey
5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline cat

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Re: HELP: My leg is like a puzzle
« Reply #24 on: March 11, 2008, 10:52:00 PM »
Hey there,
I wondered how you were doing. Thanx for the update. So now your other knee looks more crooked? Wonder how that happened or is it possible that the arch support makes the R leg appear more straight? Guess you're working towards a matching set. ;)

Glad you had a good trip despite the knees. Let us know how you're next apt goes.
 ;D cat  ;D
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline Lyndsey

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Re: HELP: My leg is like a puzzle
« Reply #25 on: March 19, 2008, 12:56:10 AM »
Hey guys! :D

Well, I went back and saw the OS again. Unfortunately I didn't get what I was looking for, although I am not even sure what exactly I am looking for, answers I suppose. lol. He sent me to a knee doctor that I am going to see in a week. He wants me not to tell her about him or the diagnosis, just so I can get an unbiased opinion. That sounds good to me. He said if he straightened my legs right now there is about a 50 percent chance that would relieve the pain. Unfortunately those aren't very good odds. He said after I see the knee doctor I will hopefully have some more answers that would support the derotation, or not. He said he doesn't deal with the finer mechanics of the knee, he just does the twisting of the legs. He said the knee doc may want to do some minor procedures instead of the derotation. I don't know. With the way my knees are twisting they may be backwards someday! LOL~ I have to laugh about it or it'll drive me insane.

My mom actually called Dr. T's office in MI to see if we could get an opinion from him. I think he is going to take a look at the pics I have posted and then call us. I am hoping since he seemed to help Cat he may have a better idea of what is going on. We had all my scans and x rays sent to his office. We'll see how that turns out.

I am just trying to stay positive about everything. As soon as I get the chance I am going to post some more recent pics of both my knees so you guys can see how crooked the left one is now too. The arch supports seem to help stabilize the knee, but not take away the pain. Now, even with the arch support both my knees are still crooked. I am at loss as to what next, hopefully the docs will be able to help there!

As always, I love hearing what you guys think!
This board is amazing and I am so glad I found it!

Take care everyone!

Your twisted friend Lyndsey ;D
5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline cat

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Re: HELP: My leg is like a puzzle
« Reply #26 on: March 19, 2008, 02:33:29 AM »
Hello fellow twistee,
 Dr T is well published. (Let me know if you or your mom wants to read some of his stuff. Some of the pics are pretty cool.) The PF specialist who referred me to Dr T said he was one of the top derotation experts. You would do well to get his involvement. He has seen alot and he's such a nice guy too. I just wish I had seen him before I had someone else messing around with my knee. I might have gotten a better result.

Do you have any idea as to why your other knee seems more crooked now? Are you doing any kind of therapy?

Keep us posted.
 ;D ;D
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline Dale

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Re: HELP: My leg is like a puzzle
« Reply #27 on: March 19, 2008, 12:36:02 PM »
Lyndsey I think you should see Dr Teitge.  If I was in the US, I would see him.  (I am the twistee in the Kneeguru's link above.)

brianne

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Re: HELP: My leg is like a puzzle
« Reply #28 on: March 20, 2008, 02:37:43 AM »
Lyndsey,

I have not have a femoral osteotomy, but I have had two surgeries with Dr Teitge and visiting him would be WELL worth your time.

Brianne

Offline Silkncardcrafts

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Re: HELP: My leg is like a puzzle
« Reply #29 on: March 20, 2008, 10:47:52 AM »
Hi there,

I would encourage you to see the best you can. It's a lot to put your body through. Will be interesting to see what the knee specialist says.

Good luck. Let us know how you go !!!
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty















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