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Author Topic: HELP: My leg is like a puzzle  (Read 10796 times)

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Offline Lyndsey

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HELP: My leg is like a puzzle
« on: January 12, 2008, 06:25:18 PM »
Hi.

I am an 18 year old, with a diagnosis of miserable malalignment. I am constantly in alot of pain. I have been to about three different OS' now, and I have done PT for 8 months. Nothing seems to be working. All three of the OS' conclusion was I need some kind of surgery, but they weren't sure what to do. The first guy had no clue. He pretty much said he wouldn't touch me with a ten foot pole. lol. The other OS, who is a knee specialist said it is miserable malalignment, but he thinks there is more going on than that. He wasn't sure what though.

If any of you have any information or advice I would really appreciate it. I am really desperate about now. I just need help, and so far have not received much from the medical community. I found this site and am hoping to get some info! Thanks!!!

I am in need of a good OS who will accept the challenge of helping to straighten me out.
My right knee is turned in and I have squinting patellas, but the rest of my bones are kind of crooked too!



This is me as I walk. I have no idea what is going on with my leg, my knee kind of buckles and turns in.
HELP



I have some more pictures posted on photobucket if you would PLEASE take a look and just comment, I would appreciate it! Any information or advice would be awesome!
The link is:
http://s266.photobucket.com/albums/ii244/Lyndsey200/

Please Reply!!!
Thanks so much! I really am so glad I found this site! There is hope! lol!
Lyndsey
« Last Edit: January 12, 2008, 06:34:57 PM by Lyndsey »
5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline maurice41

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Re: HELP: My leg is like a puzzle
« Reply #1 on: January 12, 2008, 06:32:24 PM »
Hi Lyndsey, welcome to the boards. I don't have any advice other than too keep your head up. If I find relief with anything I'll let you know.

Have you seen a chiropractor? How about orthotics?

Good luck!
Sean
Synovectomy, L-knee, Feb. '08

brianne

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Re: HELP: My leg is like a puzzle
« Reply #2 on: January 12, 2008, 06:38:37 PM »
Lyndsey,

Wow, your right leg is really crooked!  You are in need of someone who can help straighten this all out.  My OS is considered one of the top OS's in the country when it comes to straigthening out legs.  I assume you are in the US.  If you are in the US then my OS would be the one to go see.  Basically, you need a top level OS and that means being willing to travel to find one.

E-mail me and I will give you my OS's name.

Brianne

Offline cat

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Re: HELP: My leg is like a puzzle
« Reply #3 on: January 14, 2008, 02:42:18 AM »
Hey Lyndsey,
I got legs like you- sort of. I believe yours are worse. Anyway, I sent you an e-mail. You might look for it so it doesn't end up in the junk mail.
 ;D cat  ;D
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline Dale

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Re: HELP: My leg is like a puzzle
« Reply #4 on: January 19, 2008, 11:28:30 PM »
Dear Lyndsey

I think you need a derotation osteotomy on your right leg.  I am like cat above - I have the same problem as you but much less extreme, and in the end when I was 36 I had to have the derotation osteotomy.  I had a lot of earller operations, but none of them helped.

http://www.kneeclinics.co.uk/limb-reconstruction-case-study/

Look for papers by Robert Teitge, Stanley James, Derek Cooke (Canada).  Also Dror Paley has done a lot of these.
« Last Edit: December 20, 2017, 11:10:48 AM by The KNEEguru, Reason: Fixing broken links »

Offline celinenj03

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Re: HELP: My leg is like a puzzle
« Reply #5 on: January 22, 2008, 03:53:08 PM »
I would say you are in need of surgical intervention so keep looking for a good OS who can perform surgery.  It doesn't appear that your left leg is affected that much, but your right leg definitely is. I have the same thing in my right leg, though not to that extreme and I know how uncomfortable it is. Mine is probably due to my injury though and loss of cartilage that was damaged. Do you have any pain in your foot? My right foot arch seems to hurt a lot all the time because of my rotation or crooked leg. Please keep us posted. I know someone gave you the name of a doc who might help, so please let us know how you are doing. I am concerned for you because you are so young, but at the same time this is a good thing if you can get it corrected early on. God bless,
« Last Edit: January 22, 2008, 03:58:58 PM by celinenj03 »
Terrible Triad - 1/16/06 - Basketball
3/15/06 - Scope/Cleanout of to achieve full ROM
5/3/06 - Surgery-ACL Reconstruction-Allograft
9/12/07 - Large Loose body removed;Grade 4 Lesion on LFC
9/17/08-Microfracture, Lateral Release (all right knee)

Offline Lyndsey

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UPDATE: HELP: My leg is like a puzzle
« Reply #6 on: January 25, 2008, 04:26:04 AM »
Hi All! Thanks for the replies!

I went to an OS in Pittsburgh PA yesterday, and he seemed like he really knows whats going on, and has treated miserable malalignment before. He said that along with the malalignment my right knee dislocates medially.  I am going back for a full standing x-ray of my lower extremedies, a CT Scan of my right knee, and an MRI of my right knee tomorrow. Hopefully those scans will confirm his suspicions and we can move on from there. He has been really great about everything, although he did let me know all the risks I may incur if I decide on surgery. I have to say all those things that can go wrong, like dead nerves, and other things did make me nervous. I think I would be better off later in life if I do have something done now, instead of living with the pain. It just hurts so much. He did give me a script for a TENS unit, as at therapy that seemed to help the pain. So maybe that will help ease it a little.

-Lyndsey
« Last Edit: January 25, 2008, 04:39:39 AM by Lyndsey »
5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline cat

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Re: HELP: My leg is like a puzzle
« Reply #7 on: January 25, 2008, 01:18:40 PM »
Hey Lyndsey,
Good for you. ;D I'm glad you found someone who knows what he's doing.  Did your OS say what kind of surgery he would do?
Keep us posted,
 ;D cat  ;D
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline Lyndsey

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Update: HELP: My leg is like a puzzle
« Reply #8 on: January 25, 2008, 04:00:42 PM »
Hi,
He said he didn't want to say which one exactly he was going to do until after he reviewed all the scans and tests. So we'll see what happens then. I will definiely keep you posted! This board is the best board ever! Everyone is so helpful!

Best wishes,
Lyndsey
5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline lenorem9

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Re: HELP: My leg is like a puzzle
« Reply #9 on: January 29, 2008, 09:18:43 PM »
Hi Lyndsey,

I'm just going to jump in here.  Glad you found the boards.  Aren't they great? 

I can't believe they made you go to PT for 8 months with a leg that looks like that!  Clearly PT is not going to fix the problem.  How long has it been like this?

I'm so glad to hear you found a good OS and he's on a mission to straighten you out. 

Lenore
07/07  Injured @ Taekwondo
11/07  ACL allograft, Posterolateral corner recon
01/09  Scope for scar tissue, notchplasty
02/09  Diagnosed w/arthrofibrosis/IPCS
04/09  Scope for scar tissue, lateral/medial release
05/09  MUA
11/09  Scope for scar tissue, chondroplasty
Learning to "live with it"

Offline The KNEEguru

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Re: HELP: My leg is like a puzzle
« Reply #10 on: January 31, 2008, 10:03:29 AM »
Hi Lyndsey
Please tell us more about your story. Has your knee been like this since you were a child? Other than the bony abnormalities, do you have any symptoms related to the kneecap (patella)? Do you have any muscle spacticity?
KNEEguru
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Offline The KNEEguru

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Re: HELP: My leg is like a puzzle
« Reply #11 on: January 31, 2008, 10:06:29 AM »
This list is being developed and some names may come off it, but the ones linked though to the surgeon site are all acknowledged as having a special interest in rotational deformity of the lower limb - http://www.kneeguru.co.uk/KNEEnotes/primers/whos-who-knee-surgery/whos-who-osteotomy-knee-pain-angular-realignment
« Last Edit: December 20, 2017, 11:12:48 AM by The KNEEguru, Reason: Fixing broken links »
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Offline Lyndsey

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Re: HELP: My leg is like a puzzle
« Reply #12 on: February 01, 2008, 02:00:40 AM »
Hi everybody!

      As far as my story goes, I can honestly say I didn't notice the real crookedness of my leg until about a year and a half ago. My leg has always hurt me for as long as I can remember, but the doctor said it was just normal growing pains. I am an avid horse rider and show competitively. Before I started college last year I was riding up to 5 horses a day. I was really muscled and in pretty good shape. I think that since I have been riding since I was about 8 that helped keep my knee strait.When you ride your feet are turned out in the stirrups, and so that inturn pulled my knee to the outside as well. The muscles were helping to hold it in place. When I started college I went down to riding maybe once or twice a week if I am lucky. I think my muscles deteriorated and my knee and legs caved from there.

       My knee dislocates medially when I walk, and my patella is pretty much all over the place. My OS said it may be because my knee just doesn't have a natural notch to hold it in place. He also said that with my bones being crooked, that it could have worn the notch in a different way, causing the patella to move different.

       My knee pain gets worse with movement, and when I walk on it alot. However, sometimes, like when I couldn't move at all in the MRI machine, my muscles will spasm. Nothing too major though. Just some random short spasms.

       My OS is going to assemble his team to all come together and look and talk with me on Wednesday. I will keep you guys posted about what is happening.

        Thanks for all the support and comments!  ;D
                   Lyndsey
5/15/08      R femoral derotational osteotomy
1/19/09      L femoral derotational osteotomy
12/17/09  hardware removal (L&R femoral blade plates and screws)
10/28/10 removal of bone chip and cleanup of scar tissue on left
4/2014 15 deg. Re-rotation of L Femur
9/2014 L. Plate Removal & Fix Fracture

Offline The KNEEguru

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Re: HELP: My leg is like a puzzle
« Reply #13 on: February 01, 2008, 03:56:11 PM »
I can see that this is a complex issue. It is extremely unusual for the patella to dislocate medially (it is usually laterally) unless there is a structural problem as you indicate (the abnormal groove is called 'trochlear dysplasia' and it may be associated with an abnormal patella, which is called 'patellar dysplasia'). I wonder if your patella is also high-riding ('patella alta')?

Here is an article (scroll down to the picture) which shows a knee with a shallow trochlear groove. The knee has been opened and the surgeon has marked out where he will deepen the groove - http://www.orthosupersite.com/view.asp?rid=23876

Just for interest and to help you build up a vocabulary.
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Offline The KNEEguru

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Re: HELP: My leg is like a puzzle
« Reply #14 on: February 07, 2008, 10:17:24 AM »
Do you think you also have patella alta on the right? The kneecap looks to me to be riding very high.
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