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Author Topic: Help required - maybe not knee related though  (Read 1399 times)

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Offline Doc79316

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Help required - maybe not knee related though
« on: January 09, 2008, 03:24:02 PM »
Hi All,

I'm still having problems with my left knee which I think will be a lifetime thing now. But now I'm also having problems with my medication, or so my GP seems to think anyway.

Recently, I've been feeling really sick. Not just sick as in being aill for a few days. I mean REALLY sick. As is 1000 x as bad as when I was pregnant! And I didn't think it could get any worse than that.
I'm still taking all the major painkillers, anti=inflammatories, anti-convulsants for the deep rooted nerve pain and other drugs to try to help with the ongoing RSD. However, now my GP thinks I'm having adverse reactions to the morphone. Not the Oramorph which I don't need all the time, but the MST. Now I'm building up a tolerance to it I need to increase teh does even though I take 100mg 2 x daily (which apparently is a hell of a lot?!).

I've been having some strange symptoms ir rash (no itchiness), chest pain, problems breathing at times (really tight feeling in chest), left leg swells up to twice it's usualy size, achy joints and muscles, headaches and stomach problems. I recently have started passing out (although I do get a little warning) but I'm putting this down at the moment to the lack of food thanks to the nausea and sickness.
I seem to be going round in circles and if the problems are stemming from my use of the MST, what other alternative drugs can I take? Is it possible to substitute such a drug for antoher without withdrawal symptoms? My GP doesn't seem to think anything else will work.

I have considered calling my pain management specialist as he said to contact him in the event of any major problems but he's so busy even as an emergency I probably wouldn't get to see him straight away. Then there's still the mechanial problem with my knee.

So between my own GP and 2 consultants, I am stuck with taking class A drugs which don't agree with me (assuming that this is the problem) and even if they worked effectively, I still have the dodgy knee.

SO what I need to knwo is this - as I've had breathing problems before (including 2 x DVTs) when do I sek more specialised medical help? When do I go to hospital? The pain is the same as when I had the last DVT at times in my chest, back and leg and I feel the same tiredness too but if it's down to the drugs, I can't distinguish one from the other.

What do I do? SHould I try to cut back on the MST? Although this would be sifficult as I get withdrawal symptoms within hours of not taking it. Please help. Any suggestions are welcome.

Take care,

Laura x
Left knee surgery
08/06/02 - L/Release
13/08/03 - Fulkerson TTT
05/06/05 - Stabilisation & Medialisation/Tendon Transfer
13/01/06 - Proximal Hamstring Superior Stabilisation
06/03/06 - RSD/CRPS diagnosed
20/07/06 + 03/04/07- Excision of scar tissue
30/07/07 - PKR suggested by OS (no date yet)

Offline Nettan

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Re: Help required - maybe not knee related though
« Reply #1 on: January 09, 2008, 06:48:13 PM »
Like I have said before Laura you should need to cut down on your meds. Are they helping anything at all ?
For me everything seems to be effects that come with high levels on meds. I can recognize myself in this.
I would strongly recommend you to get hold of your paindoc. Meanwhile keep the meds..but try cut back some of them, but not totally. To stay on top over withdrawals.
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline Doc79316

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Re: Help required - maybe not knee related though
« Reply #2 on: January 10, 2008, 01:09:28 PM »
HI,

Thanx Nettan. If you recognise the same sort of thing with yourself then that puts me at ease. At least I know it's nothing drastic - other than being a pain med junkie!   :'(

I'm calling my pain specialist's secretary this afternoon to try to sort this out. I'll let you knwo if anything constructive happens, although I doubt it.

I really need to start feeling a littel better soon as I have big assessments at Uni the weeks after next. I won't be able to concentrate properly if I can't get this under control.

I have already cut down a little on the anti-convulsants. But the MSt is the problem I think. I can't cut it donw - I have tried desperately before to to this. However, some days I don't have any Oramorph at all, then other days, maybe up to 350-400ml over the course of a day. Teh Oramorph does help with at least taking the edge off the pain, but this is all it does. I don't know anymore if the MST is helping or not but I'm afraid to stop using it altogether just in case it is making a big difference. Catch 22, no??!!


Take care,

Laura x
Left knee surgery
08/06/02 - L/Release
13/08/03 - Fulkerson TTT
05/06/05 - Stabilisation & Medialisation/Tendon Transfer
13/01/06 - Proximal Hamstring Superior Stabilisation
06/03/06 - RSD/CRPS diagnosed
20/07/06 + 03/04/07- Excision of scar tissue
30/07/07 - PKR suggested by OS (no date yet)

Offline plantgeek58

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Re: Help required - maybe not knee related though
« Reply #3 on: January 10, 2008, 04:34:06 PM »
Hi Laura,
I recognize some of those symptoms you describe. I had an allergic reaction to a sulfa drug once that caused a painless rash over my chest, neck, armpits and back of my knees, as well as that tight-chested feeling and a heaviness when trying to breathe. I also started running a low grade fever. My doctor took me off the drug right away, as this type of reaction can get serious very quickly. Please do seek help as soon as you can, and keep trying to reduce the amount of meds you're taking.
Terre
RK 7/04 part. m. menisc., plica resect., MF
    3/05 part. m. menisc., open OATS
    1/07 part l. menisc., MF, patellar chondroplasty
    9/08 MF
LK 11/04 & 8/06 part m. menisc.
     7/07 LR, patellar tendon debrid., part m. menisc.

Offline Nettan

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Re: Help required - maybe not knee related though
« Reply #4 on: January 10, 2008, 04:51:39 PM »
Laura, don't be afraid of the pain, I doubt that can be worse. Often we fool the body with getting higher and higher levels of painmeds. And if the pain get worse you can always go back on the meds. Your paindoc should be able help you cut down to make the withdrawals less. Worth a try though to get a more comfortable life.

Terre, I understand the fears you have about this being a serious allergy reaction. Though I don't think this is the issue.
Morphine and heavier drugs have this effect on you and can come after a longterm use. Been there and had that... .
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline Doc79316

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Re: Help required - maybe not knee related though
« Reply #5 on: January 11, 2008, 02:13:14 PM »
HI,

Thanks both. My GP said that this type of reaction is typical of long term use of morphine and other opioid drugs when you take higher and higher doese over a long period of time. Teh reaction itself isn't dangerous, just uncomfortable, inconvenient and downright frustrating.

I've tried desperately before now to reduce my morphine intake, particularly the MST but I don't seem to be able to do it, even with medical help. I don't know why.

Beofre I started taking the meds in large amounts I had what can only be described as the worst pain I'd ever experienced. The RSD pain began as soon as I awoke from surgery in January 2006 but I didn't have any decent pain releife for some months after that. I can't go back to that position. I can't be in that much pain again and what bothers me is that if I reduce or stop taking the meds, I'll end up in so much pain that the next lot of meds I take won't work. I can';t go back to chasing the pain the way I was before. There has to be another way.

Take care,

Laura x
Left knee surgery
08/06/02 - L/Release
13/08/03 - Fulkerson TTT
05/06/05 - Stabilisation & Medialisation/Tendon Transfer
13/01/06 - Proximal Hamstring Superior Stabilisation
06/03/06 - RSD/CRPS diagnosed
20/07/06 + 03/04/07- Excision of scar tissue
30/07/07 - PKR suggested by OS (no date yet)

Offline stgiles16

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Re: Help required - maybe not knee related though
« Reply #6 on: January 23, 2008, 09:19:22 AM »
Laura, i have a stupid question for you, are morphone and morphine the same thing? what exactly is MST?  i take 100mg of morphine twice a day and if i miss a dose, the withdrawal symptoms are horrible. my morphine is called MS Contin but the generic is morphine sulphate, is that the same thing that you are taking? if it is a different version of morphine, could you get  your doc to maybe switch you to a different type?  also, is Oramorph the same thing as Oxycontin? since we live across the pond from each other, not sure of the drug names.

hope that you can find some help soon.
thinking of  you
missy
2 ligament recons right ankle
2 arthroscopic,
5 open knee procedures
2 Plica removals
bone spur removal
2 microfractures
4 debridements
2 open LOAs all on left knee
Arthritis,both knees, ankles, shoulders, elbows, hands,spine
Fibromyalgia
Arthrofibrosis
LOA & PKR 2/15/06
RA
in pain mgmt
TKR JAN 2012















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