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Offline jan uk

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« on: December 30, 2007, 01:13:51 PM »
 Hi i was recently diagnosed with crps after 18 months post op and suffer pain every day my question is has anyone suffering crps actually gone back to work ??? i have been out of work since my op june 2006.
r/k patellar chrondroplasty,patellar debridement,lateral tear micro fracture.nerve problems l/k full dislocation lateral tear meniscus tear.twice.

Offline Audice

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Re: crps
« Reply #1 on: December 30, 2007, 02:06:23 PM »
Hi Jan ~ What a terrible thing CRPS is. I hope you'll find a way to get past it. You might also research it by its older name 'reflex sympathetic dystrophy' (RSD). I know there's been talk of it on Kneegeeks so there might be something in the archives that will shed some light. Wishing you the best...Ellie
April, 2005 - ACL rupture, medial meniscus tear within posterior horn to articular surface, abnormal signal within lateral meniscus, partial tear MCL, bone contusions tibia/fibula, Baker's cyst.
No repairs.

Offline Doc79316

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Re: crps
« Reply #2 on: December 30, 2007, 02:20:10 PM »
Hi Jan,

I have suffered with RSD/CRPS since surgery in January 2006. I have been back to work but have had an extendive and excessive amount of time off because of the RSD itself rather than the original knee problem. I'm at risk of eventually losing my job if he situation gets any worse - although I doubt there would be any financial help (whether from my surgeon, NHS, employer, government etc).

It's different for everyone and everyone deals with it differently. Were you only diagnosed with it after suffering from it for 18 months? Were there no tests? Bone scans? If you have the characteristic "burning" pain then testing should have started more or less straight away after your last lot of surgery. It may be that even afer this length of time you may recover or at least cope with it quite well, but at this late stage you may be stuck with it for a long time. However, it can just as easily go into remission of it's own accord for no apparent reason also.

My advice to you is to try to gain as much info as possible, look at all the relevant websites (google will pull them up for you), go back to your doctors and insist that they treat you and then, advise your employers as best you can. They can't discrimminate you for reducing your work, workload or working capacity and if you haven't already, it may be worth applying for  a blue badge.

I don't really know what I can tell you. As I said, everyone copes differently with it. However, one thing for sure is that you should never use ice on the affected part. You've probably already found out for yourself through excessive pain but in case you haven't, don't ever use ice on the RSD affected part of your body. Aside from putting you in complete agony, it can cause irreparable damage to your skin. However, it take a lot to get to that stage.

If you have any specific question please feel free to ask. There are others on this site also who suffer with RSD, some worse than I do and some for longer than I have. You'll be able to get a lot of information from people here but also try to get some of the leaflets and paperwork from your doctors. You should also see about getting referred to a pain management specialist if you haven't already. They will be able to give you a lot of info about what treatment may or may not be available depending on what stage of the RSD you're at, what tests are available and how you may be able to cope with it. They should also be happy to write the report (unless your GP will do it for you) for Social Services to consider your blue badge application.

If I can help in any way, please let me know. And let us know how you get on.

Take care,

Laura x
Left knee surgery
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
02/03/20-Left transfemoral amputation

Offline Nettan

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Re: crps
« Reply #3 on: December 30, 2007, 05:48:05 PM »
Hey Jan !!

I have RSD/CRPS and have had that for quite many years. I had my diagnose too late to get any benefit from treatments.
I can live fairly well with the problems, though I am in wheelchair both because of this leg and also cause I have spinal damage.
I work some right now, but need to adjust life after painlevels. Travel a lot. Out a lot doing things.
My painmanagement right now is cause I have another knee problem..the other knee.
Despite for that I live without meds and manage OK.
Somehow I have adjusted to pain and also the levels have gone down some the latest years.
If you want any feed back at all just let me know and I will try answer as much as I can.
You hang in there and be sure get a good painmanagement doc and if you have possibility rather try get a painmanagement team.

Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline jan uk

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Re: crps
« Reply #4 on: January 02, 2008, 01:59:47 PM »
Hi thanks for all your replies,i start pain management next week so hopefully this will help.I already have the blue badge thats a big help when i go to the supermarkets i dont have to do alot of walking,but cant follow my useuall occupation of screen printing i do find the pain severe at other knee needs attention but im so fed up with hospitals and have lost abit of faith in them that im taking time out.I will certainly look up the crps web site thanks everyone.jan
r/k patellar chrondroplasty,patellar debridement,lateral tear micro fracture.nerve problems l/k full dislocation lateral tear meniscus tear.twice.