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Author Topic: chronic nerve damage  (Read 1067 times)

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Offline ianpiper

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chronic nerve damage
« on: October 14, 2007, 12:45:30 PM »
Hi, I'm new on here, but its comforting to know that there are other people who can sympathise with my condition. I had my first Arthroscopy 10 years ago to, remove torn cartiliage in my right knee. I then had another 2 years later and I had my last Atheroscopy in 2001. Ever since the last operation I have been in severe pain continuously. I saw my Gp and was referred to the pain management clinic and was prescribed a apinkiller that I longer remember the name of as I was given so much above the recommended dose that it has given me some short term memory loss and I had to be taken off it when my GP said that I was having 1000mg per day over the recommended dosage. I was diagnosed with Peroneal nerve damage. I have been on loads of medication in the last 6 years including antidepressants. I had to give up my job in 2001 as I was a taxi driver trying to make a living and supoport my wife and 2 boys. I am now registered disabled and have very little mobility due to the chronic nerve pain and referred pain to my hips back and feet. My knee constantly loscks solid and I have to get my wife to straighten it and it is unbearable. I wear a sheepskin knee support and I am now on Fentanyl (Morphine ) patches for the pain but unfortunately these do not really touch the pain. It is always swollen and I have a permenant cold spot which feels like dead flesh the GP said. I have been to a support group and was advised to use anything to kill the pain that worked, even alcohol and illegal drugs, but I dont want to go down that road. Is there anyone out there that can suggest anything else that might just have some effect for me because the GP, Specialist and Physio have all released me saying that basically I just have to grin and bare it, thats ok for them to say. I would like to hear from other sufferers that may have some other ideas I could try.
Thanks for letting me have a moan.
Ian

Offline Nettan

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Re: chronic nerve damage
« Reply #1 on: October 14, 2007, 01:15:27 PM »
What about surgery to destroy nerve, blocks, any spinal treatment like spinal cord stimulator ?
Is your painmanagement doc a neuro specialist ? Have you seen any neurosurgeon ?
I am dealing with RSD myself.
Don't give this up..maybe you haven't met the right persons yet.
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline Doc79316

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Re: chronic nerve damage
« Reply #2 on: October 16, 2007, 03:32:18 AM »
Hi Ian,

I think with nerve damage, to be treated properly with some of the available methods (as Nettan stated) you should first see a range of doctors who will assess exactly how your injury/problem affects your life and what they can do to alleviate it for you.

I also suffer from RSD so the nerve pain is nothing new to me, although when I attended my Pain Management Clinic I was told I had to see other doctors too. It wasn't a case of seeing one doctor, taking a boat load of drugs and hoping for the best. They really did try to assess the problem as a whole.

I think that maybe you should see a Pain Management Specialist, an anaesthetist (maybe the same person), a neurologist, a physiotherapist and maybe a psychologist. I saw all of these whilst being prescribed drugs for the pain and ultimately I was told I met the criteria for the spinal cord stimulator.

I now take MST (Morphone Sulphate tablets) 100mg 2 x daily, Oramorph (liquid Morphine) as and when I need it up to 400ml per day, Lyrica (gabapentin) 300mg 2 x daily, amitriptyline 25mg 1 x daily, Brufen/Indometacin (anti-inflammatoy) as and when needed and paracetamol as and when needed. What you should know is that because of the way morphone works, then taking other strong pain killers such as co-codamol may not work and that's why I take Paracetamol. It works with Morpine. This reduces pain to a certain extent.

I think you should see your GP/family doctor to see what medications, if any, would be beneficial to you. I'm not saying you should take the same drugs as I do but clearly you're in pain and it needs sorting out sooner rather than later.
One thing I can tell you for sure is that you certainly do not have to grin and bear it. There is treatment out there for all types of condition, your included and I think you need to find other doctors to help you.

Take care,

Laura x
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation















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