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Author Topic: A 30year old Knee problem  (Read 1526 times)

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Offline Eggtastico

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A 30year old Knee problem
« on: September 10, 2007, 07:52:10 PM »
Dont know where to start, except I'm new here & wish I found it years ago!!! Ill start from the beginning & ramble on from there

Anyway, Im 32yr Old & have had a knackered knee all my Life. The knee has never been right & I last seen a specialist when I was about 10 & I'm guessing procedures & information sharing
has come a long way in the last 20 years  :o

When my leg is straight, it looks fine (well not anymore - but it used to when the problem was first noted when I was about 4 - just over they years due to wear & tear, it dont look right anymore)
Where was I? Right, the leg (left leg) looks normal, but when I bend my leg, the knee-cap (patella) moves left, I dont mean a little to the outside, but the whole thing slides over. There hasnt been any
popping of the pattela, but somthing does seem to strain/give for it to move. When I was younger, I saw various quacks. Even went to Great Ormond Street to see a specialist. Also looked at alternative therapy,
who just said they couldnt do anything.. which was obvious as it wasnt & isnt discoloated.

The Specialist I saw at the time said that he wasnt sure what was wrong without opening me up to have a look.. obviously this was before the magic eye was in everyday use & the kind of news a Sport Mad 10yr old
doesnt want to hear. It caused some arguements in my house. I didnt want it done, but my Mother had my bag packed ready for the op. My Dad wanted to leave the decision to me as it was my Knee & I would be the
one who'd have to live with it. Anyway, nothing got done because the Specialist at the time said that he's seen somthing simlair before & it took 2 years for the procedure to complete & the person ended up with a permenent straight leg... But as I was still young, he was confident that at worse I'd end up with a bad limp. I have a bit of a limp now, but nothing that bad. He thought it was down to my Tendons/ligaments
or some other part of the knee being different sizes - at this point, I should mention that I suffered from Meningitus as a Baby. - Supposedly one of the deadliest forms as well & it's alway been put down to that.

So, over the years, my body has grown & developed. My muscle deffernition in my left leg is seriously under developed. Especially my thigh. Infact, my Right Leg is about 2/3rd the size bigger because of all the extra work they have to do.

I can walk, I can run, skip, jump, etc. Easily enough.. albeit with a little limp.
I cant drive a manual car with a clutch.
If I sit on a high chair/table/ledge where my legs can dangle.. I cant stretch my leg out.
I cant do anything with my leg that needs control from the knee.
My knee bends, it straightens.. I cant hold a partial bend in my knee.

Also I can bend my knee up onto my Lap & have my lower leg level - without feeling any straining or nothing.. infact, Im sitting like that while I type as its the most comfortablest.

Recentley, my knee has been getting worse. Its never caused me pain until recently. I had a dull ache in my Thigh (outside of my thigh) & this has now moved to the outside of my knee.
This has only happened in the last month.

Anyone have any ideas what could be wrong with me? I am self employed, so getting it fixed is somthing I'd have to weigh up, as a botch job would ruin me, physically, emotionally & Financially.

Sorry for the rambling, but I dont really know what to type as I havent had an expert opinion for 20yrs+

Offline Nettan

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Re: A 30year old Knee problem
« Reply #1 on: September 10, 2007, 09:07:32 PM »
You should have a OS (orthopedic surgeon) specialized in knees looking at you.
Probably he/she needs to do a proper exam, look at previous history and maybe do x-rays and Mri to see in what shape your knee and leg is and what can be done. As you more or less are born with some of this and had it for so long I really would advice you getting more opionions if surgery is suggested.
Hope you can find out the cause of your pain soon.
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline Eggtastico

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Re: A 30year old Knee problem
« Reply #2 on: September 11, 2007, 07:24:18 PM »
Doesnt that mean Im pretty much stuffed in the UK unless I go private?
As I would see my Doc, he would send me to hospital. They would do bits n bobs.
Call me back, eventually decide that I would need (or should that be kneed ;p) to see a specialist.

All that would take a good few months on the NHS :-(

I want to find out what is wrong with my knee. Dont actually want it repaired as O cant afford the time off work.
I would lose my main contract & income for starters.

Was wondering if anyone else has had somthing simlair.

Offline jathib

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Re: A 30year old Knee problem
« Reply #3 on: September 12, 2007, 12:21:13 AM »
If you're not planning to have your knee fixed, what difference does it make if it takes a few months to find out what's wrong? Seems like knowing what change anything.

Offline Eggtastico

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Re: A 30year old Knee problem
« Reply #4 on: August 24, 2010, 05:40:01 PM »
Sorry to dig up my old thread, after a lot of pain recently, as well as being unable to walk!
I decided to go back to the docs to see what is new about my knee, as I am unable to work or anything.

I have been diagnosed with the same thing they said 20 years ago....
permanent subluxation of the patella - as well as now having arthritis and muscle wastage - which I was aware of.

I am being referred to a orthopedist, but I was wondering what option I have outside of the general NHS we have in the UK.

My doctor asked if I was in a rush to have surgery, as he said I will need a knee replacement, but because of my age, it would
be a big decision to make....

Do I have any alternative options? like a private practice, etc. - or is it a case of knee replacement being my only option?
I was wondering if Stone's Clinic in SF would be an option? does anyone know the cost.. I assume $20-$30k US?
« Last Edit: August 24, 2010, 05:51:25 PM by Eggtastico »

Offline Lottiefox

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Re: A 30year old Knee problem
« Reply #5 on: August 24, 2010, 06:48:39 PM »
Ah another malaligned patella and early arthritis.....welcome, I feel your pain!

Are you UK based? Private consults usually are around 150-200. You need a patella specialist - I was recommended a good one in Norwich that I can send you details of, I haven't seen him yet though but other KG members have had good results. Do you have a decent PT who can help at all in the interim? Knee replacements - well, BUPA seem to quote between 12 and 15K but they do all inclusive packages!  :P But you may well not be at that stage, there are other options surgical and non surgical that might help. If you are, people on here have had TKRs in their 30s - not ideal but better than spending 30 years in pain and then finding you only want to go on Saga cruises and weed the garden....in my view anyway, and I'm 41...

Pursue your NHS route but I would hazard a guess you won't get a patella specialist and you might find someone who is scope happy and decides to do something a little....hasty.....and then your current function could be even more compromised.

Take time, seek a proper opinion. Kneecaps are darned complicated.  :(

Good luck and let me know if you want more details etc

Lottie  :)

Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....

Offline Eggtastico

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Re: A 30year old Knee problem
« Reply #6 on: August 24, 2010, 08:14:55 PM »
hey, thanks for the reply, any details re patella specialist would be appreciated.
Im in Wales, so Norwich would be bit of a trek & we dont have the right to choose on the NHS
like our neighbours in England.

As for myself, TKR is not something I want at this age and would prefer to see what other
treatments are available.

I would say my kneecap is misaligned, when bent my knee cap moves about 40 degrees to the outside,
but my knee cap has never given me severe pain, its only recent that severe pain has started, and I am putting that
down to arthritis as the pain is in different places all the time.

We supposed to have a decent orthopedist at my local trust, so I will start there & at least try and find out his opinion.

Offline Vickster

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Re: A 30year old Knee problem
« Reply #7 on: August 24, 2010, 08:22:49 PM »
Don't know where you are in Wales, but there is a list of knee specialists here http://www.kneeguru.co.uk/KNEEnotes/node/396  See if any are local and ask your GP to refer you to him/her

Good luck :)
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline Eggtastico

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Re: A 30year old Knee problem
« Reply #8 on: August 25, 2010, 06:00:17 PM »
Thanks for the list, I have been given names of specialist in the vale of glamorgan as well. They supposedly does the knee work
for the Welsh Rugby Team.
http://www.vale-healthcare.com/knee-clinic/knee-consultants/

Offline weirdknees

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Re: A 30year old Knee problem
« Reply #9 on: August 25, 2010, 07:02:32 PM »
I've had knee problems all my life too.  I have a slight disability which causes weak muscles, and as a result caused similar knee problems to yours.  I can do most things too, but that's just due to the fact that I've found my own methods, if that makes sense.  I see a physiotherapist on a regular basis and it helps a little.  Thinking about knee replacement surgery at your age is a huge decision!  Have you tried physiotherapy?  If you manage to build up the muscles in your thighs, it may prolong the time before you feel the need to have a knee replacement.  Also, do you find that your feet roll inwards a bit when you stand up, if so, then a pair of orthotics might help.
knee pain since very young
2008 - diagnosed with patella tilt
2010 - partial meniscectomy