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Author Topic: don't know anymore...  (Read 1184 times)

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Offline FindnNemo91

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don't know anymore...
« on: July 27, 2007, 09:51:27 PM »
the doc just called me and told me that she couldnt read the results to me, but she did say that the MRI looked fine. its good news, but also bad. now they have no idea what is wrong, and that may mean an immobilizer for a couple weeks. that was an option if the MRI turned out okay. i am crying cuz i am so sick of this. maybe i am just going crazy and this is not real. i dont know anymore.

please, anything would be great at this point, any words from anyone.

jak :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'(
TTT/Lateral Release/Chondroplasty: May 15th, 2009
Brostrom Reconstruction: Oct 16th, 2009

  ~United States Army~
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Offline Nettan

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Re: don't know anymore...
« Reply #1 on: July 27, 2007, 09:57:00 PM »
Jak, that is really good news. You don't want to have back problems too.
I live with a spinal injury and believe that is no fun. So cheer up..this is great news.
You will know more after the appointment which will be the next step. Waiting is hopeless, but this will be solved sooner or later.
Hang in there.
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline costumer

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Re: don't know anymore...
« Reply #2 on: July 27, 2007, 11:03:22 PM »
Hi Jak,

      yep, it's frustrating. But, on the bright side: if the MRI is ok that at least means there's no soft tissue problem that might need surgery! Believe me, once something goes bad and needs surgery it often continues to be a weak spot. You're better off not needing it!

     If all it takes is a couple weeks in an immobilizer, it's annoying (and hot), but that's so much easier than rehab. You'll be ok. Just take it easy and listen to your OS. And if you feel that the rest is really not helping, there's nothing wrong with getting a second opinion.

      -Judy
Dx: bi-lat subluxating patellae w/chondromalacia 4/1977
6/78 LR - LK
1/80 TTT-Hauser LK; 12/80 Proximal Realignment Mystery- RK
1/82 Maquet TTT- LK
11/06 Meniscectomy; Mild OA- RK, 12/06 Meniscectomy; Mod OA- LK
3/07 Bi-lat severe arthritis
9/18/07 bi-lat TKR

Offline FindnNemo91

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Re: don't know anymore...
« Reply #3 on: July 27, 2007, 11:54:47 PM »
thanks for the replies.

i have a followup appt on monday with my pain manager's NP. i will talk to him about the immobilizer, or whatever. my mom wont take me to anymore docs after this, so........there is like nothing else to do. ive been to 3 GPs, 1 OS, 1 PT, and 1 PM. not really helping.



thanks again,
jak
TTT/Lateral Release/Chondroplasty: May 15th, 2009
Brostrom Reconstruction: Oct 16th, 2009

  ~United States Army~
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Offline jathib

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Re: don't know anymore...
« Reply #4 on: July 28, 2007, 03:04:33 AM »
I agree with the others. This is good news. Back problems are the worst. Mine causes pain in my hip and is the reason I'll probably be in pain management forever. You don't want that. Some things take a long time to figure out.

Offline mhsflute07

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Re: don't know anymore...
« Reply #5 on: July 28, 2007, 06:26:28 AM »
Hey Jak,

Please don't give up. I know it can be incredible frustrating, but don't believe it's all in your head. You know you're in pain, and that's what matters. I've had a similar experience, though it's not knee-related. For the past several years I've had chronic stomach pain. The first specialist I went to said it was all in my head. A couple weeks ago I finally went to a new specialist who recommended doing an endoscopy (like knee arthroscopy, exect for the stomach). I had that done yesterday and it turns out that I have two ulcers and severe gastritis. No other tests or blood work indicated that this is what was wrong.

Somewhere there is a solution for you. Just don't give up.

Erin
June 2, 2005 TTT/LR  R.
July 26, 2005 TTT/LR  L.
June 6, 2006 Microfracture R.
June 5, 2007 Microfracture & Screw Removal R.
March 12, 2009 Scope and ACI Biopsy R.
May 12, 2009 TTT, Trochleoplasty R.
December 15, 2009 ACI (patella) & bilateral hardware removal
December 21, 2010 LOA and LR

Offline ATsoccergirl

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Re: don't know anymore...
« Reply #6 on: July 30, 2007, 05:33:30 PM »
I know you've been through a lot but don't start giving up.  I went through 5 OSs, 2 GPs, 3 PTs, until I finally found someone who was able to correctly diagnosis a posterolateral complex injury.  Until I found him, and he is still my OS I was really starting to think it was all in my head.  I also had two outstanding athletic trainers who helped me get into see him and supported me through the entire thing. 

What made the difference was that my OS was the head of sports medicine at a large teaching hospital (U of Iowa).  He had the expertise, experiance, and resources to make the diagnosis which eluded the top OSs who were closer to home.  Yeah, I still complain about the hour and a half drive, but everytime I'm out on the soccer field playing instead of watching in on TV, I realize how it was it all worth it.

I would high suggest finding an OS to see at a large teaching hospital, a great place to start is to look up the Orthopedic rankings from various sources.  Here is a list I found from Harvard's Med school  http://www.health.harvard.edu/newsweek/Hospital_report_cards_Making_the_grade.htm

Here is also a link to a hospital in Oregon that has recieved the top spot in Orthopedic Rankings for the past three years.  http://www.samhealth.org/shs_facilities/physician_clinics/clinic_info.html?index=205

In terms of your Mom, make sure she understands how much this is affecting your life.  Maybe you could print off some of the responses to your various posts and show them to her to help her understand more what is going on. 

BTW- I will send you an e-mail at your address listed in your profile.
« Last Edit: July 30, 2007, 05:35:11 PM by ATsoccergirl »
1999 LR, 2002 ACL/PLC recon, reversal of LR, 2004 ACL revision, 2006 Car accident torn PCL and small fractures resulting in bone chips in my knee.  Torn MCL 3 times.  Wicked screws under IT band and Pes Anserine.  June 2008-Hip Arthroscopy.

Offline Linds

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Re: don't know anymore...
« Reply #7 on: July 30, 2007, 07:50:23 PM »
Hang in there Nemo..
You have been through alot.. and you aren't very old to be dealing with all of this.  But please hang in there... just because they can't find the cause of your pain, does not mean you're going crazy or that it's all in your head.  It takes the right doctors, radiologists, physiotherapists to put all the pieces together and figure these things out.  The GREAT news, although I know it's frustrating is that the MRI would seem to have ruled out all the nasty stuff... and that is fantastic news.   The bad news is you still don't know what the problem is... Try to be patient!!! I know it's difficult...

It's heart breaking to be struggling and experiencing such pain and the doctors to just shrug their shoulders and say.. I dunno!  I've been there, many times.. but it doesnt' mean they don't think you are in pain, it's just that they can't yet find a cause for your pain.

Try to keep your chin up, though I know it's hard... and i'm keeping my fingers crossed that some answers are coming down the pipe soon, for you. I also wanted to say that AT Soccergirls idea of printing off some posts to show to your Mom might be a good idea, or let her surf on kneeguru with you. I had to deal with parents that kind of went with what the OS said and though I was being dramatic, but in time they came ot see I'm living in my body and I know when something isn't right. Just the same as you know when something isn't right. HANG IN THERE

HUGS
Linney
« Last Edit: July 30, 2007, 08:52:10 PM by Linds »
1997 Scope RK
2002 LR RK
2002 Scope and hematoma evac RK
2004 LR LK
May 06 Fall from Horse, partial ACL tear and meniscus injury, Tibial plateau injury
2007 Scope, Plica Excision and Debride LK
2009/2010- Possibly Ankylosing Spondylitis?















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