Banner - Hide this banner





Author Topic: "Just deal with it."  (Read 1701 times)

0 Members and 1 Guest are viewing this topic.

Offline stickshifty

  • Forum Faithful
  • ****
  • Posts: 451
  • Liked: 0
"Just deal with it."
« on: July 19, 2007, 03:33:33 AM »
Ok........ so I went to my rheumatologist today. My appointment was at 3:30, but they might have called somewere around 4:45. They took my blood (me: ho shat ho shat needles and blood!!!!). And then I got to wait again. So by now, I'm really grumpy because I live in an instant-gratification world where "instant" meals take too long to microwave. So my rheumatologist finally comes in and in so many words, tells me that I need to do more physio and build up my quads. And then at the end of his visit, he tells me, "This is just something you're going to have to deal with for the rest of your life. You can still march if you want, but you're just going to have to deal with the pain." NO. NO. NO. NO. NO. NO. FOR GOD'S SAKE I'M SEVENTEEN! YOU CAN'T F-ING TELL ME THAT I'M GOING TO GIVE UP ON MY KNEES BECAUSE YOU CAN'T FIGURE OUT WHAT'S WRONG WITH THEM! DON'T RUIN MY WHOLE LIFE BECAUSE YOU WON'T LOOK HARDER! I'm extremely frustrated right now. I have no clue how I'm going to get through marching season if my knees are hurting just by sitting on my bed typing (like right now). I'm getting a hard-core brace for marching and my rheumatologist did give me some different anti-inflamatories (since the old ones stopped working). Part of me really wishes that I could get some cortisone for band camp, but I doubt that that could happen. I'm just so angry in addition to all of this. Why did I get the messed up knees that have stumpped :counts on fingers: SEVEN doctors. What did I do to deserve to get this????
7.22.2004: horseback riding accident :(
5.9.2008: scope + plica removal on left knee.
12.16.2008: de-plica-tize my right knee.
3.14.2011: lateral release + medial plication on left knee.


It's great to be a Tennessee Vol!!!!

Offline supersquiggly

  • MINIgeek (20-50 posts)
  • **
  • Posts: 29
  • Liked: 0
Re: "Just deal with it."
« Reply #1 on: July 19, 2007, 03:55:43 AM »
Hang in there.  I don't know anything about your condition, but I'd be frustrated too. Seventeen is too young to give up on yourself. 
Good luck.

Offline rrg091

  • MINIgeek (20-50 posts)
  • **
  • Posts: 26
  • Liked: 0
Re: "Just deal with it."
« Reply #2 on: July 19, 2007, 07:19:30 AM »
i definitely know how you feel - in fact i'm sure a great many of people here do. especially for younger people, doctors don't always take us seriously when we tell them it hurts. i've been to two PTs and an OS. my os said this was "just the way god made me" and suggested i try tylenol (note: told me this while i'm already getting prescription nsaids). and i was super frustrated too but i came on here and got lots of encouragement to keep on trucking and now i've got an appointment with my GP and am working on getting set up with a new OS. I know its horribly frustrating when you're in pain and you feel like no one is paying any attention to you but we're all here for you and we more or less know what you're going through so don't give up! you just keep on going to doctors until you find someone who gets the fact that your in pain and don't give up until you've found him. it may take several tries but you'll get there and until then, we're all here to listen to you and keep you going.
good luck

Offline Silkncardcrafts

  • SuperKNEEgeek
  • *****
  • Posts: 3916
  • Liked: 6
Re: "Just deal with it."
« Reply #3 on: July 19, 2007, 08:52:08 AM »
Hi there,

I know exactly how you feel. Just been told by my knee surgeon that he doesn't think he can do much more unless things drastically change with my knee or he hears of some new techniques. He has suggested a new Donjoy brace. It hasn't been released in Australia yet, but my orthotist is looking into it for me. I have had patella instability in both knees since I was about 20 and am now 33. When It first happened it was like having my leg cut off as I used to play a lot of sport. I am able to minimise the pain by keeping regularly active by going to the gym, doing clinical pilates and doing some exercise in a hydro pool. Just so sick of it and want an end to it all.

So, back to the drawing board. I am going to work with my sports physician, sports psychologist and my shoulder and knee physios to work out what other things may help. A different type of strengthening program may be tried for my knee and perhaps an Osteopath.

Have you thought about going to see a sports physician ? They have a much better idea on what medications work for joint related problems. I'm currently taking Prexige in the morning, an anti-inflammatory, panadol during the day as needed and Tramol at night when the pain is the worst. It seems to be working well for me and can still function during the day. Stopped seeing a GP as they had no idea how to manage my joint problems. One of the reasons I never went to a rheumatologist is that they just tend to prescribe drugs and don't give you any practical solutions. My OS and sports physician have both said it's important for me to keep active to keep my knee more stable.

Keep us posted !!  :D
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline cat

  • SuperKNEEgeek
  • *****
  • *
  • Posts: 1575
  • Liked: 0
Re: "Just deal with it."
« Reply #4 on: July 19, 2007, 04:56:58 PM »
Hey,
I was checking out some of your previous posts. You mentioned having twisted femurs. Has anyone ever mentioned femoral anteversion or miserable malalignment to you? You are not too old to have a derotation surgery but it is a very specialized surgery with a LONG recovery and there is a risk of non union. Anyway, it's something to inquire about.
 ;D cat  ;D
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline dstevens

  • MINIgeek (20-50 posts)
  • **
  • Posts: 30
  • Liked: 0
Re: "Just deal with it."
« Reply #5 on: July 19, 2007, 05:11:02 PM »
Hi Stickshifty, cat and kneegurus

welcome to the frustration club Stickshifty. 19years old boy with Miserable Malalignment here.

cat, I was told about the "risk of non union".

Is it really a big issue? how serious is it? do many people have problems with bones not reuniting and what if the bone doesn't reunite? what then?!

Sorry for hijacking the thread. But I think its relevant?

Stickyshifty, you're almost taking the exact same path that I went through, many told me "live with it, its not severe, get physio to build up muscles", until I finally met one who knew that there is something seriously wrong with my legs (check my posting in this section for pics). I hope things turn out fine for I know exactly how you feel.
A hint: try to find local organizations or associations related to orthopaedics, and email them. someone might respond showing interest in examining you. I think you might find the OS you need through such channels.

keep us posted®  :)

Offline Leentje

  • SuperKNEEgeek
  • *****
  • Posts: 2114
  • Liked: 2
  • ER nursing rules !!!
Re: "Just deal with it."
« Reply #6 on: July 19, 2007, 06:07:56 PM »
Never stick to the sentence "live with it"!

Been there, done that, luckily I found a dr who "saved" my knees. Hope you find one real soon too!

Btw, If you do have rheuma, it flares up. When this happens, usualy cortisone (prednisolon) is given, not good for other parts of your body,n but it can help you deal with pain from rheuma. Only use it for short term flare ups.

Don't let them treat you bad, you deserve better. Stand up for your rights, firstly find another dr. And last but not least, think positive.

Helena
Bilat patellar malalignment/PFdysplasia
00/06/83 L wrist #
11/12/00 L knee LR + chondroplasty
21/08/02 L knee TTT
02/03/04 L knee stretched PCL
11/09/07 L ankle dislocation/medial avulsion #
25/05/09 L ankle medial avulsion # AGAIN!
05/06/13 R ankle dislocation

Offline stickshifty

  • Forum Faithful
  • ****
  • Posts: 451
  • Liked: 0
Re: "Just deal with it."
« Reply #7 on: July 20, 2007, 01:52:12 AM »
Hey,
I was checking out some of your previous posts. You mentioned having twisted femurs. Has anyone ever mentioned femoral anteversion or miserable malalignment to you? You are not too old to have a derotation surgery but it is a very specialized surgery with a LONG recovery and there is a risk of non union. Anyway, it's something to inquire about.
 ;D cat  ;D


All of my doctors, including my pediatrician and my rheumatologist, have high discouraged it. If it would help, I don't care. I just want my knees fixed. But I don't think it would be easy to get my parents to consent.

Quote
Have you thought about going to see a sports physician ? They have a much better idea on what medications work for joint related problems. I'm currently taking Prexige in the morning, an anti-inflammatory, panadol during the day as needed and Tramol at night when the pain is the worst. It seems to be working well for me and can still function during the day. Stopped seeing a GP as they had no idea how to manage my joint problems. One of the reasons I never went to a rheumatologist is that they just tend to prescribe drugs and don't give you any practical solutions. My OS and sports physician have both said it's important for me to keep active to keep my knee more stable.

Three of my seven doctors are in sports medicine. My first OS is the leading pediatric sports medicine OS in the area.
7.22.2004: horseback riding accident :(
5.9.2008: scope + plica removal on left knee.
12.16.2008: de-plica-tize my right knee.
3.14.2011: lateral release + medial plication on left knee.


It's great to be a Tennessee Vol!!!!

Offline cat

  • SuperKNEEgeek
  • *****
  • *
  • Posts: 1575
  • Liked: 0
Re: "Just deal with it."
« Reply #8 on: July 20, 2007, 03:34:29 AM »
dstevens ,
I don't know much about nonunions. I prefer to deny any possibility that it could happen to me.
 ;D ;D
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline Silkncardcrafts

  • SuperKNEEgeek
  • *****
  • Posts: 3916
  • Liked: 6
Re: "Just deal with it."
« Reply #9 on: July 20, 2007, 09:27:50 AM »
Hey Stickshifty,

That's great some of your doctors are in sports medicine. Like any profession there are those that are useless and those that are at the top of their field. I'd recommend seeing a sports physician at the top of their field. They will be able to give you some practical solutions. An OS that specialises in sports medicine is good, but they only give advice on physio or surgical options.

Good luck !!! :D
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty