Advertisement - Hide this advert





Author Topic: Recurrent dislocations/subluxes  (Read 2304 times)

0 Members and 1 Guest are viewing this topic.

Offline Silkncardcrafts

  • SuperKNEEgeek
  • *****
  • Posts: 3916
  • Liked: 6
Re: Recurrent dislocations/subluxes
« Reply #15 on: July 19, 2007, 08:59:48 AM »
Hi Tanya,

Thanks for your kind words. They really helped me. I am feeling a lot better today but still can't believe my OS can't do anymore. He said he's not closing the door, but said unless my knee drastically changes or he sees something that can help me there's not much more he can do for me. He did suggest a new brace that Donjoy have just released. I spoke to my Orthotist today and is looking into it for me. So, that's a plus. He was nice about it and knows what I've been through. He just doesn't want to put me through more surgery if it's not going to work. It's also a fairly rare condition and there's not much research out there.

This morning I saw my sports psychologist and can see that it is really wearing me down. She said I have to leave it in their hands to do all the research. So, she is going to work with my sports physician, knee physio and shoulder physio to work out some other things to try. I don't believe in giving up. There has to be something that will work. I am seeing my sports physician on Monday and will ask about a referral to another OS that specialises in knees. My knee surgeon recommended a number of different surgeons that specialise in knees and said he had no problem with that.

Will let you know how we go. Again, thanks so much for your support. It is so helpful right now. 8)
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline tanyap

  • SuperKNEEgeek
  • *****
  • *
  • *
  • Posts: 2902
  • Liked: 0
Re: Recurrent dislocations/subluxes
« Reply #16 on: July 19, 2007, 09:40:53 AM »
hi kjwilkin,
you know something - there are so many positive things in your last post - you have such a brilliant attitude - thats going to take you further in life than a knee ever will!!
Thats great about the new brace - i like braces, an external non invasive no risk way of helping out!!
The OS is right about not wanting to put you through more surgery unless he thinks theres a chance of it working. Ultimately every surgery is risky, takes a lot out of the patient and its better if it can be avoided. I understand that you or me or anyone would want a surgery if it was gonna fix the knee(s) but if the surgeon is dubious about another surgery working then he is right to tell you that - surgeries can make things worse too.
Its great he is giving you names of other knee specialists - someone else may have seen your problem before and know how to tackle it. one OS is never going to know everything there is to know or experience patients with every possible condition.
Im so glad youre of the mindset of not giving up - youre dead right, there is always something more to be done. With your positive attitude you will definitely find the way forward. It sounds like you have a great team working with you as well!!
Try not to worry - view all this as a necessary step on the journey, you need to hit a few dead ends to make you turn round and find the right road.
xx
tanya


1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Silkncardcrafts

  • SuperKNEEgeek
  • *****
  • Posts: 3916
  • Liked: 6
Re: Recurrent dislocations/subluxes
« Reply #17 on: July 20, 2007, 04:03:09 AM »
Hi Tanya,

Thanks for the kind words. They really help me. How are you doing with yours ?

I am starting to feel better each day. Guess it's just really hard to accept that my knee surgeon can't do much more at the moment unless my knee changes dramatically or he sees something that he think will help. Initially I was very upset and angry but can see where he's coming from. I'm seeing my sports physician on Monday so will see what ideas he has. Will also ask about getting a referral to another OS who specialises in knees. That way I know I've covered every option.

Have a good weekend !!  :D



11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline tanyap

  • SuperKNEEgeek
  • *****
  • *
  • *
  • Posts: 2902
  • Liked: 0
Re: Recurrent dislocations/subluxes
« Reply #18 on: July 20, 2007, 11:54:50 AM »
good for you - youre keeping an open mind and checking out all options available!!
something will come of it, someone will know where to go next.

Its hard when you are really hoping for good news and then the surgeon just tells you what you dont want to hear. I had to fight hard not to just collapse in tears on my OS last time because I wanted him to tell me he could fix me but instead he told me I had to fix myself. I dont mind fixing myself but it just hadnt been working with the phsyio Id been seeing.
Big difference with the new physio!!

Yeah Im getting on good. Still building strength, I notice small differences like I can walk on my tiptoes again.... Im less wobbly in everyday life, but Im still slow and sometimes limpy. But Im only 6 weeks into my new physio program, and in 6 weeks I notice considerable difference in how my leg feels, so hopefully in a number of months therell be a HUGE difference!
Ive a sore area on my right lower back/upper buttock. The physio isnt sure is it a back pain or a glute pain - she thinks because I have weak glutes I might be unconsciously compensating during some of my exercises and straining myself. Unfortunately it never hurts while i exercise but its tender afterwards :)
Its not killing me though - I only notice it now and then.

Have a good weekend you too - next week is another week to review options!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Silkncardcrafts

  • SuperKNEEgeek
  • *****
  • Posts: 3916
  • Liked: 6
Re: Recurrent dislocations/subluxes
« Reply #19 on: July 22, 2007, 04:03:20 AM »
Hi Tanya,

Thanks for your kind note. I'm feeling better each day and putting things into perspective.

Glad to hear you are progressing so well, that's fantastic news !!!

I have decided at this point I want to try things that are least invasive. So, am going to suggest trialling clinical pilates together with a different strengthening problem to see if that helps as well as the knee brace my knee surgeon recommended. Don't feel like introducing too many new people at the moment. Just had enough for a while. It's very draining seeing new people and trying new things all the time. My left ankle has still been very stiff since I had surgery last year and think that's part of my problem. This year I've already a couple of hydrodilation injections and my ankle specialist said the next thing would be an arthroscrope. So, am going to see him in a couple of weeks. Also, the sports kinesiologist I saw last year suggested I had pelvic instability. Didn't quite agree with it but my left hip has been sore for a long time. It's the same side as my bad knee so am going to ask my sports physician about it tomorrow. Never mentioned it before as I've had enough to deal with.

Once I've totally rehabbed my right shoulder I have decided to see my knee surgeon to work out what sports I can do. He's known me the longest and I trust his judgement more than anyone. The suggestions he's already made about not wearing the zimmer splint at night and bending my knee when I sleep have already helped a lot.

I've had a nice weekend catching up with friends, which has been really nice. This morning I went to one of the local markets.

Speak soon !!  :D

11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline tanyap

  • SuperKNEEgeek
  • *****
  • *
  • *
  • Posts: 2902
  • Liked: 0
Re: Recurrent dislocations/subluxes
« Reply #20 on: July 23, 2007, 09:34:13 AM »
hi kjwilkin,
Im glad to hear youre doing well.
That sounds like a good plan - less invasion the better. I know what you mean about it being draining seeing new people and trying new things, it can be easy to just want to throw in the towel rather than chase yet another 'possible' helpful idea.
But its important to keep on trying and keep positive - you certainly seem to be doing that!
My right hip used to get very sore - they tell me it was from compensation, I was walking and swinging my leg 'around' the hip rather than 'through' the hip - and not using my quads at all - my hip didnt like that - it used to ache all the time. I must admit, I really noticed the difference in how my hip felt when I started physio (2 years ago now - unfortuantely that physio program only worked for a short while but at least it solved some problems!!)
Its amazing how one damaged joint in the body can have such an impact on the rest of them. My boyfriends dad had a bad motorcycle crash when he was 18 years old (he's 60 now) and one of his ankles was pretty much destroyed. From years of walking differently because of his damaged ankle he managed to destroy both of his hips and just last year had both replaced - he needed it done for at least 5 or 6 years but they kept holding off as long as they could. His hips are fine now - but only for that ankle they probably never would have needed replacing!
I had a 'ooooh' moment over the weekend - I was doing my exercises as usual and suddenly I realised that my knee 'felt' different - in a good way. Doing the squats I always felt a nervous moment going down where it almost felt like my knee was gonna go out but then through sheer force of concentration and will on my part and contracting the muscles as hard as possible - it never did. But over the weekend I suddenly realised that that feeling of it 'almost gonna go' wasnt happening!!! So hopefully this physio program is starting to really show a difference!!
I also went shopping for a couple of hours on saturday morning - before the 'shopping walk', stop, start, turn, stop, go slow, stop, start... would have me feeling unstable within half an hour. Now it just made my leg feel stiff and fatigued - but not unstable!!! now thats real progress for me!!!
xx
Tanya



1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Silkncardcrafts

  • SuperKNEEgeek
  • *****
  • Posts: 3916
  • Liked: 6
Re: Recurrent dislocations/subluxes
« Reply #21 on: July 23, 2007, 11:08:07 AM »
Hi Tanya,

That's awesome about your knee. Hopefully you won't need anymore knee surgery.

Feeling very relieved after seeing my sports physician.

We are going to simplify things even further. Am going to concentrate on my shoulder rehab and just maintain my knee and ankle. My sports physician said not to worry about any knee physio and just do as much as I can in the gym and the home exercises. He said to not worry about seeing my ankle specialist as ankle arthroscopies don't work all that well and can cause further problems especially since I had a problem with an unstable ankle. So, that's one less thing to think about.

At a later stage we may introduce an Osteopath once I start back at work, but will wait and see.

I was due to start pilates in just over a week and a half but my sports physician wants to wait until I see him in 2 weeks before we embark on that. Frustrating, but I just need to be patient.

So, I'm feeling much better about things. Still waiting to hear back from the Orthotist about the knee brace.

Speak soon !! Keep up the good work at physio !!  :)



11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline tanyap

  • SuperKNEEgeek
  • *****
  • *
  • *
  • Posts: 2902
  • Liked: 0
Re: Recurrent dislocations/subluxes
« Reply #22 on: July 25, 2007, 10:23:21 AM »
hi!
how are you feeling about things? good i hope?

i have to say i agree about the ankle arthroscopy - my current mantra is : if you can avoid surgery - avoid it!!!!

im doing fine - just plugging away at the physio - i get the 'test' again on monday - so the results of it will be sent to my OS - he can see the comparison of strength from 3 tests over 8 weeks.

hope all is good with you!


1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Silkncardcrafts

  • SuperKNEEgeek
  • *****
  • Posts: 3916
  • Liked: 6
Re: Recurrent dislocations/subluxes
« Reply #23 on: July 25, 2007, 12:02:40 PM »
Hey Tanya,

Feeling much better about things. Thanks so much for your kind words of support over the last couple of weeks. Has really helped me get through the tough patches. I guess because my knee surgeon has always been able to fix it I was in a lot of shock. Just hard coming to terms with it all.

Glad to hear you're doing well. Pleased I don't need to bother about seeing my knee physio. Spoke to him today over the phone about riding my road bike again and how much I need to build up in the gym before doing that, which is good. Forgot to ask about the running though and if it's safe to do. My sports physician has agreed for me to get another opinion on my knee from another top knee specialist in Melbourne once things settle a bit. He really trusts my knee surgeon's opinion and is one of the surgeons he recommended. So, I feel happy about that.

Made a silk painted scarf for my Mum's birthday for tomorrow. Was a lot of fun to make.

Chat soon !! :D

11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline tanyap

  • SuperKNEEgeek
  • *****
  • *
  • *
  • Posts: 2902
  • Liked: 0
Re: Recurrent dislocations/subluxes
« Reply #24 on: July 25, 2007, 12:40:31 PM »
hi ,
Oh Im so glad youre feeling better, its a HUGE shock to hear a surgeon saying things you dont want him to be saying!!! I felt a lot like that last time I saw mine as well - I just wanted him to tell me he could fix me!!!
I think we get hardwired by people in general who dont have knee problems. A lot of my friends say things like 'oh theres loads they can do with knees these days - cant they just give you a new one?' and Im like 'eh, no, it doesnt work like that - sure there is a lot they can do - but there is also a lot they CANT do!!' - but we only find these things out when we research it!!
Its great that you have a new path to follow also - perhaps the new knee surgeon will have some new answers for you? And even if he doesnt - he may be able to suggest next steps. I do believe there is always more that can be done.
Wow - thats great about the bike - well done you!!
that sounds lovely for your mums birthday - fair play to you - to get enjoyment from making a gift is fantastic!!
I spent some time in Melbourne a number of years ago - stayed with friends in St Kilda, did the Great Ocean Road trip, went to Phillip Island, saw Ramsay Street - I loved it! Great climate - and a nice laid back city too.
We've been rained out of it here in Dublin for the past few weeks - I cant remember a day it didnt rain in over a month!!
Talk soon!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Silkncardcrafts

  • SuperKNEEgeek
  • *****
  • Posts: 3916
  • Liked: 6
Re: Recurrent dislocations/subluxes
« Reply #25 on: July 31, 2007, 08:50:32 AM »
Hi Tanya,

Just thought I'd drop you a quick line. Been busy with other stuff and not spending much time on this site.

Things are going well, my knee has improved a lot over the last couple of weeks and starting to get my confidence back again. My shoulder has also improved a lot of the last couple of weeks. Seeing my shoulder surgeon tomorrow and hoping to get the all clear to return to my sports trainer role on the weekend.

I am spending less time at appointments and feeling so much better about it. How are you going with your knee rehab ?

How is the weather in Dublin ? Is it still raining a lot ? It is getting a bit warmer here now.

Anyway, must run. Not literally ! Off to the hydro pool.

Speak soon.  :D

11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline tanyap

  • SuperKNEEgeek
  • *****
  • *
  • *
  • Posts: 2902
  • Liked: 0
Re: Recurrent dislocations/subluxes
« Reply #26 on: July 31, 2007, 04:17:52 PM »
hi,
Im so glad to hear all is going well for you!!! That will be fantastic if you get the all clear from your shoulder surgeon!
It can be very depressing going to all these appointments in sterile hospital type athmospheres!!! When I was in college I used to have to go to physio in a local hospital, the only time that suited my schedule was the time when they had their geriatric physio class, so I used be down the back on an exercise bike with a bunch of old ladies and gents up the front doing extremely mild exercises - i looked like a top athlete in the room - then id go back over to my college and look like a girl with a gammy knee again :)

knee rehab is going fine, the physio has told me to go away until after I see the OS (9th Aug), to see what he recommends, will he want to do a surgery, or send me for more physio etc... she said regardless of what he says that i need to just carry on at the level Im at now for 3 or 4 weeks - before moving onto anything more difficult - to be sure that i have the best control i can have on the exercises im doing now. ive the technique fine, but ive less control on some.

they strapped me in the machine for testing again. i was very happy about the results. theres 3 different speeds of test, and each one measures both extension and flexion - so 6 different results.
first time round my right leg was weaker on my leg leg for all 6. the deficit was 44% for the first test on extension, getting increasingly worse for the faster speeds. (a little less on flexion).

this time the deficit is 18% for the first test - increasingly worse on the faster speeds but same overall improvement. but get this - my flexion on my right leg is STRONGER than my left on ALL tests!!! so i dont need to do any hamstring work :)

the physio said that to close that 18% gap I need to just carry on working the program - maybe 2/3 more months before its closed. the higher speed tests should improve too -but apparently that might take a little longer.

so ill see what the OS says next week with all that info in front of him - including MRI, X-Rays etc... I still FEEL quite unstable - but actually - mostly at higher speeds, i dont feel unstable slowly moving - so that matches with the test results.

my stamina isnt great either - but once i get full strength up stamina can be worked on.

we've had 2 days so far where there hasnt been rain - TWO!!! must be a record!!!

talk soon!

1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app















support