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Author Topic: Please Read This  (Read 1130 times)

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Offline FindnNemo91

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Please Read This
« on: June 24, 2007, 03:59:26 AM »
For those of you who know, this is my story (more in depth). For those of you who don't, it's kinda long.

I hope that someone here can give me some insight.

I am 15 years old. I have played many, many sports, my best ones being hockey and softball. When I was 8, I was diagnosed with tendinitis. I just kinda shrugged it off and continued with my sports. I moved to Florida when I was 13, and the knee pain started to get worse. When I left Florida, right before my 14 birthday, I was wearing a brace everyday. I then moved to Oregon, where the pain has been unbearable. I went to a doctor, and she did x-rays, which she told me that I had a higher than normal patella. She gave me a prescription for Naprosyn. I was then sent for and MRI. That came back negative for anything. They even said that my patella was not higher than normal. I was still in a lot of pain, so I went to a different doctor. He diagnosed with ITBFS and Generalized Ligament Laxity. He "disproved" the tendinitis. He told me to start PT, but never gave me a referral for the place, which my insurance company needs. I was still in amazing amounts of pain, so I again went to a different doctor. I finally filled the Naprosyn. I started taking it and it made my neck so sore, that I wasn't able to turn my head at all. This third doctor, took a look at my knee, and along with the ITBFS and Generalized Ligament Laxity, he diagnosed me with Chondromalacia. He also took a look at my neck. He got behind me, and without permission or warning, quickly cracked my neck twice. He tried to crack my back, but I refused. He gave me a referral for PT, and gave me a prescription for Lodine, saying that the Naprosyn was too strong for me. My mom and I were very disappointed with his attitude with me, he acted like he needed to be somewhere right then. I tried the Lodine, and it made my heart "flutter." My mom took me to an OS. I was in unbearable amounts of pain by now. He diagnosed me with ITBS and said that PT was my treatment. Before I started PT, I was in his office quite a bit. The pain was just too much for me. I was someone would couldn't be stopped, and now I am someone who can't be moved. I am in pain 24/7. Anyway, there was one time that I came into his office, because my calf and ankle and foot were so swollen, I was scared. My calf was hard, cold, and tender to the touch. He sent me to the hospital for an ultrasound to check for a blood clot. There was no blood clot, but also no explanation for the swelling. After that time, my foot and ankle constantly feel swollen, and my leg is tender to the touch. I started PT, but the only difference was more pain and more flareups. About one hour after each PT session, I would have a very severe flareup, that would last for about 4 hours. I had PT twice a week, with 7 exercises to do at home twice a day. They tried the TENS unit on me, and about one hour after it, I was crying in pain, for about 2 hours, then just the typical flareup. At my fifth visit, my PT contacted my OS and together they decided to quit the PT. My PT said that by the fifth session there should be some sort of change, even the slightest. There was nothing, only worsened pain. I was on crutches for 5 weeks and in pain 24/7. I still am in pain. I can't function normally. I have developed insomnia, and fatigue that I haven't been able to shake off. I slept for 14 hours, and when I woke up, I still was so tired that I felt like I hadn't slept in a couple days. I have 2 or 3 headaches everyday, and did I mention that I was in pain??? pain pain pain pain pain pain pain 24/7. No OTC or Lodine/Naprosyn have touched the pain.
                 Thanks for listening to me vent and to the long story. I am currently trying to get into a pain management center, where my OS referred me. I am currently not able to walk more than 4 blocks, and I am in a brace. Please, please. Anything will help, even if it is just a couple of inspiring words.


Thanks,
Jak
TTT/Lateral Release/Chondroplasty: May 15th, 2009
Brostrom Reconstruction: Oct 16th, 2009

  ~United States Army~
Wheeled Vehicle Mechanic

Offline trish85

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Re: Please Read This
« Reply #1 on: June 24, 2007, 05:19:58 AM »
Hi
I'm sorry that you've had such a hard time with your knee.  The only thing that I can think that it might be is a pain disorder because I don't remember you mentioning a specific injury.  For that you just have to wait for the appointment with pain managment.  The only advice I can really offer you is ice and elevate. 
Good Luck
Trish

PS
Have you ever tried pool therapy?  I know you can get much more from your knee in water then on "dry land"
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Offline FindnNemo91

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Re: Please Read This
« Reply #2 on: June 24, 2007, 06:14:14 AM »
Thanks for responding.

well, ive had my share of sprains and strains, nothing serious though. The only time that i went to the Er for a knee injury, was when i was like 10, and i got hit in the knee with a 55mph softball. i had catcher pads on, but i felt it. thats the only "major" or close to major injury that i can think of. I am still trying the pain center. I was thinking about RSD, but wasnt sure. I will ask them about it.


thanks again,
jak
TTT/Lateral Release/Chondroplasty: May 15th, 2009
Brostrom Reconstruction: Oct 16th, 2009

  ~United States Army~
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Offline FindnNemo91

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Re: Please Read This
« Reply #3 on: June 24, 2007, 06:15:02 AM »
and one more thing....



ice makes the pain much worse, and elevation makes it a bit worse.




thanks though,
jak
TTT/Lateral Release/Chondroplasty: May 15th, 2009
Brostrom Reconstruction: Oct 16th, 2009

  ~United States Army~
Wheeled Vehicle Mechanic

brianne

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Re: Please Read This
« Reply #4 on: June 24, 2007, 01:10:23 PM »
Jak,

I am so sorry you cannot find an answer to your pain.  This just sounds so much like RSD to me because you said it makes the pain much worse.  When I had RSD ice made my ankle feel like it was on fire and would bring me to tears.

Keep pushing getting into pain management.  Call every five minutes if you have to.  No one deserves to be in that much pain.

Good luck and try to stay positive.

Brianne

Offline plantgeek58

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Re: Please Read This
« Reply #5 on: June 24, 2007, 04:06:50 PM »
Jak,
Have you been to see a neurologist? This sounds like a lot more than a simple knee problem and I'm wondering if it's some sort of autoimmune disease or a nerve disorder. I don't know much about this stuff, but you have an awful lot going on here and it wouldn't hurt to get it checked out some more.
Terre
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brianne

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Re: Please Read This
« Reply #6 on: June 24, 2007, 05:17:43 PM »
Jak,

I agree with Terre.  This sounds like it could be a lot more than just a knee problem.  The body is interconnected and so the source of your problem could be from another part of your body and the pain is being manifested in your knee.  It could be that possibly there is nothing wrong in your knee and that it is something in another part of your body that is wrong.

Please don't give up, I know it seems frustrating right now, but there is an answer somewhere. 

Brianne

Offline FindnNemo91

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Re: Please Read This
« Reply #7 on: June 24, 2007, 06:36:59 PM »
Thanks so much for your responses!!!!

i havent been to a neurologist. I hope that i can see one. I will look in my CIGNA book for one in my area. I sometimes thought that there is nothing wrong with my knee, only something that is causing pain in my knee. I am gonna keep trying everything. I went to the zoo yesterday, on crutches, but still had a good time. (they didnt let me go to the front of the line :) 


thanks again,
jak
TTT/Lateral Release/Chondroplasty: May 15th, 2009
Brostrom Reconstruction: Oct 16th, 2009

  ~United States Army~
Wheeled Vehicle Mechanic