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Author Topic: Tips for reaching the floor!!  (Read 7013 times)

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Offline Berta

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Re: Tips for reaching the floor!!
« Reply #15 on: June 22, 2007, 10:33:49 PM »
How did the MRI go, did they give you the results? Sorry I but won't be any help in translation, I'm still learning this new language, the language of the knee, but I will read other peoples interpretation with interest. I agree with you that the physios have a lot better range of people skills, and I think mine is far more clued up than the doctor when it comes to joints. My mum suffers from pheripheral neuropathy, which has killed the nerves in her feet, so she can't balance properly, so I have some understanding of how that feels, I really feel for you there.

It's been a good news bad news day, bad news I am not on the list for an MRI, despite the doc saying I was, have to go to the OS first. Made some more phone calls and found surprise surprise I'm not on the list for the OS that I was originally referred to, I'm told that he doesn't deal with injuries like mine ??? I'm going to have to follow that one up, he is an OS who specialises in knees, but not mine????????????

Any way manage to track down the guy that I'm now listed for, he's based at the University, not the hospital, not sure what to make of that either ??? So now have confirmed OS date 26th September, which seems ages away, but have put my name on the cancelation list. I have to go and get new xrays done before I see him, which is a joke as the last ones were clear, but now I'm really tempted to contact him and see if he will accept a private MRI, for $750 I can have my knee scanned in the next province, that would maybe mean a diagnoses in September, if not it will mean another wait I suppose.
6th Dec 2007 arthoscropy, major debridement and meniscus trimmed
Jan 08 2008 Arthritis grade 2/3 told to wait until TKR needed.
August 2010 Left knee arthroscopy

Offline tanyap

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Re: Tips for reaching the floor!!
« Reply #16 on: June 22, 2007, 10:42:13 PM »
hi,
they didnt give me the results - just the films - but sure i might as well be looking at spagetti :) would you believe i fell asleep in the machine!! i posted an x-ray on another post though - my kneecap looks so squashed!! dont know what that means.

yeah loss of balance is not good - i think i seize up a little if people are hurrying alongside me or im in a crowd too - and then when im tense my leg just wont move for me!! my physio says these are all compensatory actions - so hopefully they can be fixed.

oh - that is bad news and good news for you - i dfefinitely think its good news that youre listed with a university guy - he would only be a university guy if he was good enough to be able to teach and pass on skills - so thats a good thing!!

26th september DOES seem ages away - but at least its a definite date. and if you are lucky you'll get a cancellation.
Absolutely contact him and see will he accept a private MRI - his secretary should be able to tell you that. and if you cant get any joy by phone write to him. i definitely think you should do that - nothing ventured nothing gained and all that!!
check that he needs an MRI - they never MRId me before my surgery alt hose years ago - didnt need to - it was obvious to them what was wrong, so dont waste the money if he doesnt need you to have one.
i will send 'cancellation' vibes to you!!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Berta

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Re: Tips for reaching the floor!!
« Reply #17 on: June 29, 2007, 05:12:13 PM »
How are things going, have you found out what your films mean yet? I just got through written confirmation of my appointment, and it looks like more good news, the guy I have been sent to is based in the sports medicine department at the university, which I think, from reading the other posts here, is the best place to be, so that sounds like a lucky break, and it's only a bit scary that his specialities are listed as 'lower limb reconstruction and trauma' ???
I treated myself with a visit to a massage therapist yesterday, and that was a brilliant way to spend an hour, she was worried to do to much to the leg without a firm diagnosis, but what she did do has made it feel better. I was shocked at how many knots and tensions she found, I knew about the left leg and my lower back, but hadn't realised that my upper back, shoulders and neck were so tense, in fact the only bit of me that seemed to be clear of hot spots was my right leg, but I really feel better for it today.
6th Dec 2007 arthoscropy, major debridement and meniscus trimmed
Jan 08 2008 Arthritis grade 2/3 told to wait until TKR needed.
August 2010 Left knee arthroscopy

Offline tanyap

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Re: Tips for reaching the floor!!
« Reply #18 on: July 08, 2007, 09:01:14 PM »
hi!!
im doing good. was away for a week in Sicily, did nothing much but lie on the beach and eat great food :)
actually i did my physio every day and i swam and climbed round rock pools and uneven surfaces and my knee was GREAT!! i was actually shocked at how well it seemed to handle new territory.
then i came home and went to bed, got hot during the night, kicked about a bit and dislocated it again in my sleep!!! arrrggghh!!! think i tangled it up in the covers and twisted it somehow. but its not too bad today - little bit unstable as always after dislocation, but still did all my physio - not hurting too much now.
am seeing my physio tomorrow after work so she will do the ultra sound and tens stuff and hopefully take away inflammation. am not too freaked out - am only 4 weeks into new physio - still have a while to go - quads not near top strength yet!!! hopefully physio will also have mri results for me.

thats GREAT news about your appointment - thats not scary about his specialities - its excellent - if he is good enough to be a reconstructor then he will surely be able to help you out!!!
when is your appointment?

thats lovely about your massage - so glad it helped you out!!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Berta

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Re: Tips for reaching the floor!!
« Reply #19 on: July 09, 2007, 05:44:18 AM »
Right, lets try this again I had a reply all  typed up once, was just typing the last couple of words, when the dam computer ate it :'( :'( :'(

SO

Good to hear from you, glad that no posts = being on vacation, mmmmmmmm laying on a beach and great food, I think I could deal with that. I think that sun bathing and swimming is an excellent holiday for a poor knee. I'm glad it stood up to walking on the beach and rock pools as well.

Beds are dangerous places, I once managed to put my back out turning over in the night, severe pain is a very effective alarm clock, it jusy goes to show that you can't leave your body to itself ;D

Things have been up and down, and the biggest down was going up some stairs. I got fed up with the old 'mummy walk' you know lead with the good leg, catch up with the bad, then lead with the good again. Well for some reason I thought that it would be a good idea to take the stairs like 'normal folk' well 3 stairs worked well and the 4th one didn't, so it was back to RICE for a couple of days until it all settled down again.

I don't get to see the OS until September, so figure I best spend the time sensibly by trying to lose a few pounds, and get my leg muscles as fit as possible. To help yhis I bought myself a recumbent bike, which arrived on Friday, at the moment I'm doing a couple of 10 minute sessions a day, and hope to build it up from here. The muscles are certainly feeling it, which is great, but the knee has swollen a bit, and have increased pain today. I'm off to physio tomorrow so I'll get it all checked out then, I need to find a way of keeping going, I'm sure that it will help in the long run.

Good luck with your physio tomorrow, I hope that she gets all settled down for you, and you get the inflamation under control.
6th Dec 2007 arthoscropy, major debridement and meniscus trimmed
Jan 08 2008 Arthritis grade 2/3 told to wait until TKR needed.
August 2010 Left knee arthroscopy

Offline tanyap

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Re: Tips for reaching the floor!!
« Reply #20 on: July 09, 2007, 09:23:15 AM »
hi there!

dont you just hate it when the computer eats the words!!! darn computers!

beds ARE dangerous places!! ive had a number of dislocations while asleep - its not a nice alarm wake up :)


sorry to hear about your stairs experience, i also do the mummy walk - or else i kind of 'fall' down the stairs and just keep catching myself on my good leg - cant seem to get the bad one to take the strain of steps at all - even with the new physio one of the exercises is step downs and its the only one i feel im showing hardly any improvement in.

that is a GREAT idea about the bike. a couple of 10 minute sessions a day is loads to start with. bikes are excellent for non impact exercise. do check with physio about swelling - you may need to adjust saddle height so you are not going to full extension when you pedal - or else that you are - whichever way will suit you best. i always find the exercise bike slightly boring, so i set my last one up in front of the tv and would pedal my way through Friends or something similiar. much easier to pass the time on it!!

I got my real bike fixed but still havent had a chance to try it out - what with being away and all - im hoping to take it for a test run this week sometime - ill probably pedal 10 feet and decide its too hard :)

knee feels pretty much ok today - still a bit achey so hopefully physio will help that out later on, but didnt seem to lose my stability to the same extent.
always makes me wonder if its my brain telling me its unstable or is it really unstable after a dislocation??? can never seem to figure out which it is....

september sounds like its miles away but itll pass quickly. youre doing the right thing to keep exercising between now and then. just be careful not to overdo it - but your physio will be able to dvise you on that.







1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Berta

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Re: Tips for reaching the floor!!
« Reply #21 on: July 09, 2007, 09:22:29 PM »
Well physio not happy today :(, leg is more swollen than usual, and have lost some flexion, we've decided that some of it may be due to the stairs, and some due to the bike, have been told to RICE today, then start again tomorrow with one session on the bike a day, for a while. Also have the seat a little to far back, so am forcing the extension to much, that's always my most painful exersise. So need to shorten the distance a little and go for a little more flexion and less extension, then once I'm back to longer sessions like that then can try extending again.

I have also bought a cryo cuff, because it was really cheap, so have been advised to spend the evenings with that on and my leg elevated to see of we can control the swelling a bit more. So hopefully that will turn up in a few days and I can try that one. We are off travelling for a few days next week, and I'm hoping the cuff will turn up before we go, being in the car for to long is one of those things that causes problems.

I know what you mean about trying to work out if your really unsteady, or if your brain thinks you are, it's kind if the same thing as the physio telling me too listen to my body when I excersise, I'm never sure if it's body pr brain that's in charge.

Glad the knee is improving, hope that the physio helps it along further and that they have your MRI results for you. I think I'll take your advice and get the bike moved so I can see the TV, not so bad at the moment, I tend to read as I ride, but for longer sessions it would be good to watch something to pass the time. This bike is very quiet as well, so hopefully wont annoy the family to much ;D
6th Dec 2007 arthoscropy, major debridement and meniscus trimmed
Jan 08 2008 Arthritis grade 2/3 told to wait until TKR needed.
August 2010 Left knee arthroscopy

Offline tanyap

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Re: Tips for reaching the floor!!
« Reply #22 on: July 10, 2007, 09:13:50 AM »
hi,
yeah maybe you took on a lot all together with the 2 sessions a day on the bike, best to start small and build up. I find doing the hot/cold thing helps with sswelling - ice for 10 minutes, then hot towel for 10 minutes, then ice again etc.... its gets the circulation going and helps take down inflammation. Good that the physio was able to advise you with the position of the seat of the bike relative to the pedals - thats an important one to get right. I also spoke to my physio about the bike - she said Ive to try and get as much extension as is comfortable cos Ive a lot of grinding and the less extension I have the more Ill grind. Still havent managed to try it out yet :)

Let me know how you find the cryo cuff - I keep hearing about them - Ive never used one, Ill be interested to hear how you find it. I hear you about the car  - I find it difficult to sit in the same position for a long time also - I stiffen up.

The physio didnt have my MRI results - Ive to wait to see OS to get them. So thatll be august 9th. not too long to wait. The want to do the isokinetic tests on me in physio again next week - she thinks im improving a lot (more than she expected) so she wants to test again to get a gauge of how much strength ive actually recovered in 5 weeks. It was kinda weird yesterday in physio cos id been away so id missed a week there. and everything she was asking me to do seemed so easy compared to 2 weeks ago!! she put me on the usual torture machine for leg extensions and i actually said to her 'have you made this easier' - she just laughed and said no that my leg was making it easier :) so that was a good sign. she was disappointed id had a dislocation but just said that there are going to be mishaps and we just have to get on with it.
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Berta

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Re: Tips for reaching the floor!!
« Reply #23 on: July 11, 2007, 07:23:05 PM »
I'm glad physio went well, congratulations on yor improvement, I'm realising more than ever that improvements have to be won, they don't usally just turn up, but maybe a vacation is a good recovery thing ;D ;D I'll see if I can get improvements while I'm away then ask for a script for regular ones after that.

Yikes August 9th seemed like ages, but actually it isn't is it, what is happening to the year, it feels that summer hasn't actually arrived properly yet, we have had a few days at nearly 100 degrees, but on Monday evening we lit the wood stove becase it was cold wet and miserable.

I'm lucky I only have a couple of 'clicks' in the knee, I'm glad I don't get any of the grinding, cruching or squelghng that peoiple describe here, that just horrible. I hate it when I lie flat on my front and relax my back, it snaps back into place, it doesn't hurt, but it's just the noise of whatever goes POP, that sets my teeth on edge. It's difficult to get enough relaxation to let it happen, when you know it's going to, if you see what I mean.

Stay safe, try not to do anything mad, like turning over in bed!
6th Dec 2007 arthoscropy, major debridement and meniscus trimmed
Jan 08 2008 Arthritis grade 2/3 told to wait until TKR needed.
August 2010 Left knee arthroscopy

Offline tanyap

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Re: Tips for reaching the floor!!
« Reply #24 on: July 12, 2007, 09:25:26 AM »
hehehehehehehe - i laughed out loud at my desk at that - youre dead right - stop the madness, we all must sleep flat on our backs and not move all night!!!!!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline ex-gymnast

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Re: Tips for reaching the floor!!
« Reply #25 on: July 12, 2007, 05:36:13 PM »
my morning starts with wake up and put my knee cap back in place.  This is so I can get out of bed.  Every day for the last 9 years I have started teh day by relocating my knee cap. 

To clean my bath, I sit in a chair and us one of the cleaners on a stick thing.  To much pain to do it anyother way.

Becky
If I knew I'd be like this now, I'd do it all again.
1998- Lf ACL replace (failed)
1998- Lf ACL replace (worked)
1998- Rt LR
1999- Rt Scope
2000- Rt ACL replace
2001- Rt hardware replace
2002- Rt Scar Tissue Removal
2005- Rt Pattella Scraped
2009- Rt clean-out the mess
To Come: 2 Replace

Offline tanyap

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Re: Tips for reaching the floor!!
« Reply #26 on: July 12, 2007, 06:32:32 PM »
oh my god - ex gymnast - how do you cope with that!! isnt there anything can be done? you must suffer a lot of pain!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Berta

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Re: Tips for reaching the floor!!
« Reply #27 on: July 12, 2007, 07:08:43 PM »
Hi Becky, what a great way to start the day :o I suppose having got that bit over you must be nearly ready to think well that's the worst over, the day can only get better. It's suprising how much you can get done round the house sitting down when you have to.

I'm feeling good today, I managed to get all my down stairs windows cleaned inside and out yesterday, I started  in the morning and didn't actually finish until supper time, cos I had to keep having a rest, but at least now I can see the outside world clearly ;D

Tanyatap, I think my hubby would finally leave home if I took to sleeping on my back, I have to admit I snore :-[ But I have to say I think I'm sleeping better now that I'm spending some time on the bike, he hasn't said if I keep him awake!
6th Dec 2007 arthoscropy, major debridement and meniscus trimmed
Jan 08 2008 Arthritis grade 2/3 told to wait until TKR needed.
August 2010 Left knee arthroscopy

Offline ex-gymnast

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Re: Tips for reaching the floor!!
« Reply #28 on: July 12, 2007, 07:09:49 PM »
The pain only hits if I try to stand up without putting my knee cap back in place.  The back off both knee caps are rotting away.  

I spend most all of my time in pain.  Nothing will help without a tkr and that is still 10 yrs down the road.  I only turned 30 last month.  I cant have a pkr because of the acl replacements.
« Last Edit: July 12, 2007, 07:11:41 PM by ex-gymnast »
If I knew I'd be like this now, I'd do it all again.
1998- Lf ACL replace (failed)
1998- Lf ACL replace (worked)
1998- Rt LR
1999- Rt Scope
2000- Rt ACL replace
2001- Rt hardware replace
2002- Rt Scar Tissue Removal
2005- Rt Pattella Scraped
2009- Rt clean-out the mess
To Come: 2 Replace

Offline tanyap

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Re: Tips for reaching the floor!!
« Reply #29 on: July 13, 2007, 09:18:46 AM »
rm185western,
well done you on getting the windows done!! its amazing the difference clean windows makes on a bright view of the world!!
thats great that the bike is helping you sleep better! a bit of exercise is great for that!!
im sleeping better the past couple of weeks now too - when i first started the new physio i was very achey at night and couldnt get comfortable at all. but now im settled into it and have tweaked the areas that bothered me, so now i just have a moderately tired leg at night - but no aches thank god!


ex-gymnast - thats awful for you - do you manage to get around ok? do you have to do a lot of physio to keep the muscles strong?
do your kneecaps pop out during everyday life as well? i do wish theyd improve the materials for joint replacements so that they wouldnt have to keep putting them off until people are older!!!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app