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Author Topic: OS Finally Blames Hypermobility!!!!!  (Read 6226 times)

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Offline bex1708

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OS Finally Blames Hypermobility!!!!!
« on: May 30, 2007, 04:35:21 PM »
Hi Everyone

I only seem to come on here to moan and I am very sorry, its just this is now doing my head in!!!!

I saw my OS a couple of weeks ago for a check up after my VMO advancement (I think thats what it was) and LR.
Oh I had Elmsie before this surgery but it didnt work. Ended up with full dislocation ouch

Anyway since this last surgery i have noticed my knee moves all over the place.  My left knee also moves quite a bit but not as freely as my right.  Its my new party trick :)

Because of this my knee comes out on a fairly regular basis, mainly when drunk and I forget myself teeheehee.
OS said that this should hurt alot but because my tendons are so lax it doesn't.  Now this is the bit I dont understand.  Since I have had 2 "tightening" surgeries my knee seems to be as loose as ever. He blames in on my hypermobility (which he has flattly denied for the past 4 years) and said he couldn't do anything as it would be like stitching tissue paper. Odd it wasnt like that before I had the surgeries. 

So he told me to forget ever dancing again and use a brace when I go into town drinking.  At this point I burst into tears.  The thought of never dancing again ripped my heart out  :(

I have to go back in 2 weeks to talk about it again without emotion Yeah Right! Am absolutly gutted.

I just cant understand how your knee can get looser by doing a tightening surgery, he said he overlapped the VMO as much as he possibly could.

I dont know what to do anymore, i cannot live my life day by day scared my knee will come out.  Has anyone else with Hypermobility had any other surgery that I could ask about.  Or am I stuck like this for the rest of my life.  I am so unhappy. I know I dislocated my knee which may have made it worse but the second surgery just seemed like a waste of time.

Really Depressed

Becci x

Offline Silkncardcrafts

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Re: OS Finally Blames Hypermobility!!!!!
« Reply #1 on: June 09, 2007, 10:24:06 AM »
Hi there,

I would find a knee surgeon that understands hypermobility and loose ligaments a lot more. If you find a knee surgeon that specialises in sports medicine they'd probably understand these problems better.

Having had patella instability for over 12 years I can understand how frustrating it is. My knee surgeon is fantastic and has a great understanding of my loose ligaments.

With hypermobility and loose ligaments it's very important to remain active. I regularly attend the gym and also do clinical pilates. That has made the world of difference.

The are quite a few different operations for patella instability. What have you had so far ?

Good luck !! 8)
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline gymnastchris01

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Re: OS Finally Blames Hypermobility!!!!!
« Reply #2 on: June 10, 2007, 04:33:09 AM »
Hey,    I am sorry to hear about all of your troubles, Ive been in your boat for a while now, I am a 22 year old and have had 7 knee surgeries and yestaurday I had a manipulation cuz it wouldnt bend from the privious surgery that was for an infetion I had 7 weeks ago (septic arthtritis) I was a gymnast for 18 years and I did dance company in high school for a 4 years.  I also have the hypermobility and yes you do want to stay strong and keep building your muscles, you may have to wear a brace to protect it from further damage. to answer your question about the tightening surgery. the reason it will get loose again is because since you are hypermoble when they tighten your joint over time it will just get loose again, but there are different forms they can do, they are usually more involved and tougher surgeries but that are for us who are just natrually flexable.  I hope this helps keep us informed, and goodluck, hang in there WE ALL KNOW HOW FRUSTRATING IT IS.

Chris
8/03 LR left knee, 2/04 med men repair,debridment, condroplasty, 9/04 med men removal,debridment, condroplasty, 3/05 fulkerson osteotomey,debridment, condroplasty, 1/06 screw removal, debridment,condro, 9/06 med men removal, debridment, condroplasty

Offline rkd1987

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Re: OS Finally Blames Hypermobility!!!!!
« Reply #3 on: October 16, 2008, 05:46:06 AM »
Hey... I know this thread is kinda dead, but maybe you'll see this.

I have joints that are so hypermobile that i actually walked around for about a year on a subluxed patella with little to no discomfort. anyways, i had a procedure called a tibial tubercle osteotomy. Basically they sawed off my tibial tubercle (the chunk of my tibia that's about the size of a pack of playing cards where the patellar tendon meets the tibia), and they moved it over a bit to better align the joint before bolting it in place. In my case, they did this as well as a lateral release, and i couldn't be happier with the results i've had.

I also strongly agree with whoever said to go for a doctor with a background in sports medicine.

living in fear that your leg isn't going to be there to hold you up the next time you take a step really sucks I've been there for a while now. Hang in there, strengthen the joint, and be careful.
============================
3-2003 Left Knee scope for OCD. LR & sever/realign/repair patellar tendon

5-10-2006 TTO Left Knee.

11-20-2008 TTO Right Knee

Offline Linds

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Re: OS Finally Blames Hypermobility!!!!!
« Reply #4 on: February 27, 2009, 11:45:50 PM »
Find a surgeon who knows about hypermobility. I'm not sure that's a sports physician necessarily as previously suggested.  Just a surgeon who knows more about Hypermobility.  A hypermobile knee can't be approached the same as a normal one. The connective tissues don't work the same...  it's like bubble gum , my physio says.. it just stretches and stretches...

That being said.. i'm not sure surgery is necessarily the answer.. and it may be that dancing won't be a big part of your life anymore.. if you are hypermobile.. you risk really doing damage to yourself.
1997 Scope RK
2002 LR RK
2002 Scope and hematoma evac RK
2004 LR LK
May 06 Fall from Horse, partial ACL tear and meniscus injury, Tibial plateau injury
2007 Scope, Plica Excision and Debride LK
2009/2010- Possibly Ankylosing Spondylitis?

Offline Silkncardcrafts

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Re: OS Finally Blames Hypermobility!!!!!
« Reply #5 on: March 04, 2009, 11:19:24 AM »
Most knee surgeons that specialise in sports injuries will have a much better idea of hypermobility than an OS that doesn't deal a lot with sports injuries.

I would start with a sports physician/doctor first though. They have a much better understanding of hypermobility syndrome that GPs do.

Being active is a really important part of managing hypermobility syndrome. When all other treatments have been exhausted, surgery is definitely an option. It has finally worked in my case.
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty