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Author Topic: what's the point??  (Read 3805 times)

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Offline maile433

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Re: what's the point??
« Reply #15 on: April 22, 2007, 04:18:56 PM »
Maria,

I'm glad you're feeling a little better!  Have fun getting your hair done!   It should be a good distraction from everything else.  I hope the appointment on Tuesday goes well!

I'm doing OK - I think I pushed my knee a bit much yesterday so I'm paying for it today, and I have to go to a friend's wedding this afternoon.  No dancing for me, I suspect.  At least the rain stopped here so there's hope of a sunny wedding!

Enjoy your day off!
Sarah
7/03 RK medial meniscus repair & partial lateral meniscectomy
2/04 RK partial medial meniscectomy & microfracture
1/05 RK medial & lateral partial meniscectomy & microfracture
8/06 RK OATS autograft LFC + LR

Offline maria1985

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Re: what's the point??
« Reply #16 on: April 23, 2007, 07:36:46 PM »
hi sarah
how are you? how are you feeling with your knee today as you said you pushed it too much yesterday.
so how did your friends wedding go were you able to do abit of dancing?

i am feeling better today i went and picked my letter up from the gp to take with me tomorrow but i'm am really nervous about going to the pain clinic i'm hoping that i'll come out of the app abit happier than previous app.

wish you well and hope you feel better with your knee soon

maria.xx
chronic knee pain since 10 years old.
lateral release in 2000
goldwaithes in 2002
2 weeks intensive physio in 2005
nowhere near to finding the course of the problem.

Offline maile433

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Re: what's the point??
« Reply #17 on: April 23, 2007, 11:44:20 PM »
Hi Maria,

The wedding yesterday was so beautiful - they did a Hindu ceremony followed by a traditional ceremony - both were so gorgeous.  My knee was still quite sore from the day before, so I stayed off it and didn't dance, but I enjoyed myself anyway.  The knee is feeling a bit better today - I'm hoping that it just needs a little more rest and nothing more.

I'll keep my fingers crossed for you tomorrow!  Glad you're feeling better today. 
Sarah
7/03 RK medial meniscus repair & partial lateral meniscectomy
2/04 RK partial medial meniscectomy & microfracture
1/05 RK medial & lateral partial meniscectomy & microfracture
8/06 RK OATS autograft LFC + LR

Offline maria1985

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Re: what's the point??
« Reply #18 on: April 24, 2007, 07:11:05 PM »
hi sarah
i'm glad you had a good time at the wedding,sometimes you need something different to take your mind of everyday going ons.

i went to the pain clinic today and left feeling really down and upset so now i feel my mood has gone back to what it was last week.
they have basically said that there aren't any pain meds that they can offer me as i can't tolerate them and i should consider the pain management program and i'll get a follow up app for next month. i was in my app for an hour and by the end of it i was in tears. i asked her what would happen if this pain management didn't work and she just said that i would then have to learn to deal with it as there aren't any other routes for me to go down.

i haven't got my hopes set on this pain management because i have spoken to previous patients from my 2 week stay in hospital for intensive physio and there were about 2-3 people doing the PMP and none said that they benefited from it.
i now feel like i'm at the end and there is nothing else for me to do with it, other than to just suffer.

maria.xx
chronic knee pain since 10 years old.
lateral release in 2000
goldwaithes in 2002
2 weeks intensive physio in 2005
nowhere near to finding the course of the problem.

Offline Nettan

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Re: what's the point??
« Reply #19 on: April 24, 2007, 07:50:48 PM »
Maria, what about something in your spinal..like spinal cord stimulator ?
Is that something that have been brought up ?
Don't give up girl..here's for you...


NETTAN 8)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline maile433

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Re: what's the point??
« Reply #20 on: April 25, 2007, 05:02:45 AM »
Maria, I don't have any suggestions for the pain issue, but I'm so sorry the appointment didn't go well.  I hope your day brightened up a little bit towards the end!

Have you ever done any yoga?  I have been doing it for a few years and it has been very helpful helping me get through the recovery.  There are a bunch of articles that I've read about how it has helped people manage their pain, both physical and mental.  I'll search around and see if I can find some links for you. 

I'm sending all my best thoughts your way!
Sarah
7/03 RK medial meniscus repair & partial lateral meniscectomy
2/04 RK partial medial meniscectomy & microfracture
1/05 RK medial & lateral partial meniscectomy & microfracture
8/06 RK OATS autograft LFC + LR

Offline maile433

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7/03 RK medial meniscus repair & partial lateral meniscectomy
2/04 RK partial medial meniscectomy & microfracture
1/05 RK medial & lateral partial meniscectomy & microfracture
8/06 RK OATS autograft LFC + LR

Offline maria1985

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Re: what's the point??
« Reply #22 on: April 25, 2007, 07:14:06 PM »
thanks for the articles they made interesting reading. i might give yoga ago and stop the other exercise classes i have been doing.
nettan no one has ever mentioned anything about spinal cord to me, they have checked my hips which they said were fine but never mentioned or have looked at my spine.
i have been doing alot of thinking and crying today and have decided to discharge myself from the hospital because i feel that they have given up so i no i will never recieve the correct treatment from that hospital.
i was discussing with my family about the possibility of going to see a surgeon in italy in the summer when we go back home for a holiday, i have heard that they are meant to be good, but at this precise moment i feel i haven't got anything else to lose at this stage and so think its worth looking into.

maria.xx
chronic knee pain since 10 years old.
lateral release in 2000
goldwaithes in 2002
2 weeks intensive physio in 2005
nowhere near to finding the course of the problem.

Offline Nettan

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Re: what's the point??
« Reply #23 on: April 25, 2007, 09:37:44 PM »
Make them look at your spine..also painmanagement can be done trough spine...read here...
http://www.ans-medical.com/patient/basicsofscs/index.cfm
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline maile433

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Re: what's the point??
« Reply #24 on: April 26, 2007, 02:13:55 AM »
Maria,

If you do decide to try out yoga, just make sure you tell the instructor about your pain and any other injuries.  They can make modificatons to poses that will help protect your knee and avoid other pain. There are a lot of different types of yoga - some may be better than others.  I'd recommend a gentler Hatha or Iyengar style yoga as opposed to a more rigorous Astanga-style yoga. 

Definitely a good idea to talk to some other people about other options.  Hope it helps!

Sarah
7/03 RK medial meniscus repair & partial lateral meniscectomy
2/04 RK partial medial meniscectomy & microfracture
1/05 RK medial & lateral partial meniscectomy & microfracture
8/06 RK OATS autograft LFC + LR

Offline bella287

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Re: what's the point??
« Reply #25 on: April 26, 2007, 03:16:44 AM »
about the friends thing. i get the" i want my old friend back" maybe if you went off your meds you would be like you used to be.....wrong i,d be a blubbering baby  at I try to tell them that its the pain that affects my personality not the meds   bella,
11/06 meniscus repair, microfracture, 3/7/07 medial femoral chrondyle carticle implant. 8/27/07 arthroscope dedride overgrowth, 1/14/08 T.K.R., Current R.O.M. extension 9, flexion 90 5/5/08 M.u.a. 8/20/08 tkr revision, loose implant,patalla to large and heavy scar tissue removed

Offline maile433

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Re: what's the point??
« Reply #26 on: April 26, 2007, 05:56:02 AM »
I hear you, bella - folks who haven't dealt with injuries or pesistant pain just don't understand how much it affects your mood and your ability to handle everyday tasks.  Sometimes it doesn't take much to make any of us a blubbering baby!  I realized today how much my frustration with my knee is affecting how I'm dealing with things at work.  I had a complete meltdown in my boss's office today.  I've been working with him for 5 years now and we have a good friendship as well as a great work relationship.  I get frustrated with work a lot but I always manage to avoid letting that out when I'm talking to him, but for some reason today I couldn't hold back the tears and unfortunatley they kept coming and coming.  I think I caught him a bit off guard. :-[  We worked out some of the issues at worked and I had recovered and was ready to get up and get back to work, then he asked if I had been swimming or doing yoga or anything else that I typically do to work through my normal stress and then I just started up all over again!  I realized then that the knee thing is affecting me mentally much more than I thought it was. 

I don't have the awful pain like some folks have, just more of the frustration that the past four years I have been basing my life around my knee and it's still causing me problems.  Story of all of our lives!!! 

Hmm, didn't mean to turn this around to me - back to Maria...I'm sending you all kinds of well wishes.  I sincerely hope you are able to find some relief for your pain, whether through other medical help or alternative methods, or a combination of both.  The spinal stim looks interesting...

sarah
7/03 RK medial meniscus repair & partial lateral meniscectomy
2/04 RK partial medial meniscectomy & microfracture
1/05 RK medial & lateral partial meniscectomy & microfracture
8/06 RK OATS autograft LFC + LR

Offline maria1985

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Re: what's the point??
« Reply #27 on: April 26, 2007, 10:04:47 PM »
alot of mates don't really understand what it is we go through, even the doctors don't. the other day when i went the first thing she asked me was "am i depressed" which sent me on a ranting moment as i was annoyed by this question, i don't see myself as depressed just absolutly frustrated and fed up with it all. yesterday one of the older women i work with ask me how i got on at the hospital and as i was trying to tell her i just started crying, i think this being part because of my moods lately and part because of what they were saying that irritated me.this whole knee thing has affected me mentally more than i relised but i definatly wouldn't class myself as being depressed. 

i have decided to go to italy in the summer with my parents and see a specialist out there, my family who live there book me an app so that as soon as i arrive i will be seen within a couple of days and go from there, i have given up with the medical system in the uk and so have decided to discharge myself from the hospital i'm at.

sarah i hope you are feeling better after your conversation with your manager but if you need to talk or just want to vent then i'm here for you, you have helped me so much in the past couple of weeks along with everyone else when i have been feeling really low and i wanted you to know that.

bella i hope your friends begin to understand that they have still got there friend in you, its just that you have other things going on in your life, and you might need there support every now and then (if that make sense).

nettan thanks for the link i will look at it soon asap. hope you doing well.

best wishes to you all

maria.xx

maria.xx
chronic knee pain since 10 years old.
lateral release in 2000
goldwaithes in 2002
2 weeks intensive physio in 2005
nowhere near to finding the course of the problem.

Offline maile433

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Re: what's the point??
« Reply #28 on: April 27, 2007, 07:04:36 AM »
maria - are there other medical facilities that you can try in the UK for the time before you can get to italy?  I don't know much about the medical system in the uk, just the stories I hear on this board.  The place in Italy sounds like a good option but I hate to see you in pain for so long until you can get there.  how soon until you go?  Hopefully some of the other options can help you out and you can deal with the pain once and for all.  I'll cross my fingers!  How as the pain been in the last week?  Are you feeling any better than last week?

Bella - I hope your friends start to recognize your pain and help you in whatever way you need to deal with your pain.  We'll do everything we can as well! 

I generally had a good day today - most of the day my knee felt great and I was finally able to get some work done and feel like I accomplished something, but I'm still having some pretty crazy mood swings.  One minute I'll be just fine, then the next I am fighting back the tears.  I don't really know why they're coming - in general I still feel pretty good about things, but maybe i"m just really supressing the frustration with the knee and it's running out of places inside to hide.  I know that i should be focusing on the fact that the knee feels good and not the fact that it will just feel worse later, and generally I'm pretty good about that, but right now I'm not.  Kind of ironic - one of my friends is always commenting that it's actually annoying how positive I normally am, probably becuase I'm always trying to remind her of the positive things when she's focusing on the negative.  I guess sometimes it's just hard to practice what you preach.  Hmm, I think hormones are getting in the way of things too, but I also feel like this has been building for a while...

Ah, well, I hope your Friday is a good one.  It's supposed to be a gorgeous day here (I'm in northern California) - maybe I'll wear a skirt to work and show off my beautiful scar.   :)   Are you still chopping off your hair saturday?

Hugs to all,
Sarah
7/03 RK medial meniscus repair & partial lateral meniscectomy
2/04 RK partial medial meniscectomy & microfracture
1/05 RK medial & lateral partial meniscectomy & microfracture
8/06 RK OATS autograft LFC + LR

Offline maria1985

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Re: what's the point??
« Reply #29 on: April 27, 2007, 07:23:52 PM »
hi to everyone
hope you're all keeping well. i'm feeling better mood wise but the pain is still really bad but i have my brothers engagement party tomorrow night so that's keeping me busy at the moment and obviously getting into the spirit of things has helped alot, and i am still getting my hair cut short i need a change which i think will cheer me up aswel, i will let you know if i do actually go through with the drastic hair change tomorrow though.

i'm off to italy 31st july and my app will be booked for around the 6th august just so it gives a couple of days to settle in at home.i'm hoping i will get alot more help or advice or even some sort of clue about whats happening to my leg there.i have had alot of people say to me that i should try either italy or germany, so i'm trying italy and fingers crossed. in the mean time i'm just going to do what i have done for the past few years and put up with it for a few more months till i get there, there's not really any other option for me here so the doctors have told me and nothing they can prescribe me for the pain so i think its bit pointless in attending any more clinics.
whilst on the subject does anyone know how i would go about discharging myself from a hospital clinic, do i just ring them or do i go through my GP?

sarah you were commenting on the "friends" and mine tend to say that either i'm being to positive or to down about things, yet they have always said to me that they don't understand how i cope with the pain 24/7 as they generally complain about their pain that comes and goes.i find it amusing as i see it as either i get on with life the way it is and if i hadn't done that for the past 12 years then i would have lead a very miserable life.sure i have my bad moments but lucky for me i have more good ones as i have hated the person i have been the past couple of weeks so i would've hated it even more if thats how i was all the time.

i hope you're ok sarah and if you want to talk i am here to listen and offer advice where i can. sometimes you will feel down and fed up its natural as we have a lot to put/cope with on an everyday basis so we won't always see the positive in things.just remember i'm here for you.

all the best

maria.xx


chronic knee pain since 10 years old.
lateral release in 2000
goldwaithes in 2002
2 weeks intensive physio in 2005
nowhere near to finding the course of the problem.















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