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Author Topic: My search for a recommended OS/hospital on the NHS  (Read 1510 times)

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Offline maggiethewaggie

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My search for a recommended OS/hospital on the NHS
« on: April 17, 2007, 11:26:55 AM »
Hi,

I am relatively new to this board and have spent numerous hours sourcing for specific information, I have preivously posted my full story and background but as a quick breakdown I have had 15 years of knee problems and im currently 32.  Started with re-curring dislocations in 1990 then was referred for re-alingment surgery which I had on both knees in 1992, I then had re-curring pain and discomfort in my knees in 2000 which lead to knee washes done via arthroscopies.  2002 I was referred to my original surgoen and he claimed that all I needed was physio what a laugh!!!  2006 I was left with really bad pain and finding mobilisation a real problem, and general day to day activities, my original surgeon again from x-rays stated to carry on with physio, which I refused to accpet. 

I was then referred to Glasgow for a second opinion, and had arthroscopies of both knees,  to be told that my left knee is so badly damaged its beyond repair and its also worn out part of my femur and the whole back of my patella, my right knee is heading the same way but claims that there is nothing they can do to prevent it getting into the same state, the only cure is TKR and finally in Glasgow worse case scenario was wheelchair bound or possible amputation if they would try to start doing TKR at such a young age, so was sent home and no follow up was put in place as that OS didnt want to take me on.  I live in the western Isles and all Im looking for is someone that can recommed an OS or hospital so that I can have my GP refer I refuse to beleive that this is the end of the road just because of my age Pleeeeeeeeaaaaaaaassssssssssseeeeeeeeeeeee HELP !!!!!!!!!!!!!!!

Offline Little Ally

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Re: My search for a recommended OS/hospital on the NHS
« Reply #1 on: April 17, 2007, 06:48:37 PM »
Blimey!!!! Are you sure your knees are yours and not mine!!! My history sounds exactly the same!!! The hospital told me exactly the same thing! I'm 30, said if they did a TKR now I would have to have an amputation by the time I was 60!! I can understand that, but neither you or I should have to suffer until they decide to treat you!!

I have heard of a scheme called 'choose and book' that the lovely NHS are running and this has been topped up with an addition scheme called 'extended choice'. This means your GP can send you anywhere suitable for specialist treatment, even covers BUPA clinics. However, my GP is stoopid and I'm not so fortunate in my area. The scheme hasn't reached Greater London and my GP doesn't know how to fill in the online application!! NUTS!!!

Hopes this helps!!

Ally xx

Offline maggiethewaggie

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Re: My search for a recommended OS/hospital on the NHS
« Reply #2 on: April 18, 2007, 10:56:56 AM »
hI,

Its great to know that Im not the only person that has been fobbed off with doctors and surgeons up to now, when you have had ongoing knee problems for as long as we have i.e half our lives then the last thing I want to hear or accept is that there are limited options just because of our age, you would think the younger you are the more technology and procedures there would be available to us, the funny thing is my OS said to me that if I was prepared to go abroad and pay someone loads of money they could maybe do something for me how bizarre is that, why are the NHS and the UK so far behind in technology??  is makes my blood boil, I am going back to my GP to see what other avenues are avialable to me and my previous referral was through the hospital, but that leave me back to square 1 now so will mean probably a long wait, will keep you posted if I hear of anything new.

Many thanks for taking the time to reply.

Maggie

Offline Lyndsay

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Re: My search for a recommended OS/hospital on the NHS
« Reply #3 on: April 18, 2007, 12:23:44 PM »
Hi there,
What medication do you take for your knee problem?
Best regards.
Lyndsay
Never try and teach a pig to sing. It wastes your time and it annoys the pig.
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Offline maggiethewaggie

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Re: My search for a recommended OS/hospital on the NHS
« Reply #4 on: April 18, 2007, 02:19:06 PM »
Hi,

Taking cod liver oil daily, but on a bad day will have to resort to co-codamol & ibuprofen and if they are particullary swollen diclofenac anti-inflammitories but they really upset my stomach if on for more than a few days.  Most of the time I just learn to live with the discomfort and pain think I have quite a good pain threshold over the years.

Maggie

Offline Lyndsay

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Re: My search for a recommended OS/hospital on the NHS
« Reply #5 on: April 18, 2007, 03:58:41 PM »
Hi there,
I found a lot of relief in Arthrotec 50 or 75 which is basically diclofenac with something added to make it gentler on your tummy. This is best taken everyday. I also found some pain relief using strong magnets (actually on my knee.) It's a difficult milestone to pass but there must come a time when you know you'll need to take regular medication everyday. My advice would be keep your knee as strong as possible, take the pills and avoid surgery as long as you can. I am 39 and I do speak from harsh experience involving total knee replacements.
Best regards and hope you find some relief.
Lyndsay
Never try and teach a pig to sing. It wastes your time and it annoys the pig.
http://www.myspace.com/lyns_

Offline maggiethewaggie

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Re: My search for a recommended OS/hospital on the NHS
« Reply #6 on: April 19, 2007, 09:36:34 AM »
Hi,

Thanks for that, I will certainly give that a try because im all for putting of surgery that is my ultimate ace card and I dont was to use it to early but then you have decide what out of the 2 is the best quality of life i.e being on medication every day and in pain or going for surgery im not quite at that decision stage yet but I know its round the corner.  So have you had knee replacements??  and if so what complications did you have ??

Maggie

Offline Lyndsay

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Re: My search for a recommended OS/hospital on the NHS
« Reply #7 on: April 19, 2007, 10:07:24 AM »
Hi Maggie,
I would certainly avoid total knee replacement surgery as long as you can. You may be offered other procedures before you reach that point but always remember you are never guaranteed to be pain free and the strength you get is only as good as the work you put in yourself afterwards. The bend you get is a bit hit and miss, and depends on the quality of the surgery and how you scar internally etc. Not much you can do about that.
I have had left knee trouble since age 14. Various bits of surgery since then including lateral release, carbon implants on patella. Total knee replacement 2005. Resurfaced patella Oct 2006 and contracted MRSA in hospital  :o  It was a low grade infection that didn't become obvious until Xmas but by then had spread into the bone. I have had a two stage knee revsion, 6 weeks in hospital with IV drugs. Its now been 5 weeks since I had latest knee put in. Everything is hard work, its painful, it won't bend and I am miserable  :'(  My story is extreme though.
Interestingly enough the surgeon said that in general, knee replacements are disappointingly unsuccessful in younger people. The original knee replacement was never great and the bend was limited to about 90 degrees. Still, I would have preferred to have kept that one! I have come to this web site myself to find advice from anyone who may have had the same experience and to find out what I have to look forward to  ???
Anyway, keep your knee strong and investigate what medication you can get. It will help you hang on longer.
Lyndsay

Never try and teach a pig to sing. It wastes your time and it annoys the pig.
http://www.myspace.com/lyns_

Offline j.simm

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Re: My search for a recommended OS/hospital on the NHS
« Reply #8 on: April 19, 2007, 12:02:25 PM »
Hi Ally
any chance you could pass on the details of the 2choose and book" you talked about and the on line application form--i want to give it a go with our GP

THanks

Jenny

Offline Little Ally

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Re: My search for a recommended OS/hospital on the NHS
« Reply #9 on: April 19, 2007, 07:28:21 PM »
Hi

The choose and Book scheme basically allows you to go to other health trust in other areas of the country for specialist treatment. It was introduced a while ago in the hope it would reduce the waiting list in the NHS. Every GP has had training as they have to fill in an online application. It is worth doing some homework and finding out what hospitals are involved in the scheme as not all have signed up yet, even though it supposed to be up and running!!!! If you go on the NHS website and use their search engine it will take you to the 'choose and book' homepage. There is quite a bit of information there and it tells you what to do and how to apply etc...

I had difficulty with my GP and my lack of choice in the surrounding area. It would seem my health trust is so far ahead!!!

Hope this helps!!

Ally xx

Offline garth

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Re: My search for a recommended OS/hospital on the NHS
« Reply #10 on: April 20, 2007, 09:05:25 PM »
I can't speak for what the gp has to do with choose and book, but from the patient side it is all very easy. I booked a recent OS appointment using the online service. All in all, it took under 5 mns. My GP's surgery sent me the login details. When you are logged in, you get a list of hospitals to choose from (if you are lucky, I didnt) after that, you get a list of appointments to choose from. The only thing that didn't work, was a few of the images ::)

Garth
Knee troubles since 1997
Dec 07 - Scope, just a clear up.
Feb 09 - Plica removal
Nov 09 - Lateral release
Mar 11 - More done to LR and some 'tweaks'
Nov 12 - Fulkerson and possible vmo advancement, dont know yet!















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