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Author Topic: Pleased to be on board! Hopefully someone can help?  (Read 7320 times)

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Offline johnmac1979

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Pleased to be on board! Hopefully someone can help?
« on: March 03, 2007, 01:19:45 PM »
Hello all! I cam across this forum through a web search and hope that some of the members may be able to give a little advice?

A bit about me...... I'm 27, 6ft 4inches tall, 12 stone (or 80 odd kilo's in new money!) and i am a very fit and healthy person, with the exception of my right knee!  :(

I live in Scotland and my occupation is fish farming, which is quite a physical job involving heavy lifting (up to 40kilo's) often over the course of a whole day.

My long injury  :(  :(

Eight and a half years ago i was playing football (soccer! ;)) and when i tried to kick a ball with my right foot my knee over extended causing my foot to come up to my face!!  :'(  Severe pain!! and lots of it and terrible swelling with black bruises. Hospital next day, told that there was no problems on the x-rays just a bad twist/sprain.

On crutches for a few weeks, but no better so back again. Was decided that fluid would be drained from the knee, which involved a big syringe and no anaesthetic  :'(

Another two months on crutches but still no better.... so back to my G.P. were i was prescribed anti-inflammatories and pain killers..... swelling reduced over the next few months but still not much movement. Problems with locking then followed and crunching in the knee with a feeling of someting moving about, if i went on my kness then i could feel it and push it about with some pain! Back to doctor and reffered to hospital, two months later appointment came and i was back at hospital

Doctor put up original x-ray and even i could see that something was wrong with the knee  ::) More x-rays taken from different angles and two or three pieces of bone/cartillage were in there floating about. Apparently i'd fractured the bottom off my patella?

Operation (key hole surgery-athroscopy) two months late (the NHS doesn't move very fast!) and doctor presents me with a piece of bone! but only one??? Its all they could find and they think it was the same piece moving about between x-rays?

So..... over the next few years problems with moving pieces? or thats what it felt like... grinding...swelling....bruising and locking of the knee joint... all in all not good. Visited the doctors surgery on several occasions, but only got pain killers.

Two and a half years ago, things started feeling worse, something was on the move and getting in the wrong places! locking, bruising and swelling so back to a different surgery (i'd moved North) and the doctor didn't like what he saw. Told me i'd been let down by the NHS...blah blah blah and he'd make an emergency appointment for me at the hospital. A month passed... no news and then the inevitable happened... it locked, and it wouldn't unlock. Phoned the doctors surgey, turns out the doctor forgot to send off my referal to the hospital  >:(  >:( go straight to Accident and Emergency.

At the hospital got roughed up and abused but the knee didn't unlock, x-rays showed nothing and i was basically told it was all in my head. Sent home on crutches and phoned the next morning. "Is it still locked?" yes i replied, come in and we will operate. Knocked out again and another athroscopy with another piece recovered! yippeeee...i'm fixed... or so i thought! Six months later... back to the same old way... pain discomfort swelling bruising and some locking!

Back to the doctors surgery in September when it started to go downhill, got a letter two weeks later saying i'd be seen in the next six months in line with rules laid down by the Scottish Parliment! Yipeee!  :(

Beginning of November at work, step over a two foot high fence and my knee buckles with an all mighty crunch, instant bruising and sweeling to the left of the knee cap. Agony, pain.... just the usual! Three days off work ice, elevation and compression but still buggered! go to the Doctors surgery again, he takes one look at my case and is shocked!  :o Asks me how many times i've had physiotherapy? i reply never...he's disgusted! Have you had an MRI scan before?? no never i reply, just x-rays. They'll never find anything on x-rays it must be cartillage!

He phones the hospital and tells them i'm being sent there now for immediate help, so off i go! Get to hospital..... More x-rays!!! but no change from last time, but i do find out that i have a calcified piece attached to the inside left of my knee, but its in the same place it was in 2004... news to me!  >:(

Discharged and given an appointment for Orthopaedics Outpatients the following Tuesday. Turn up they have a look, say its probably a dislocation and send me for more x-rays! I'm going to glow in the dark!!! no change they say, i ask for an MRI and thinking i'll have to argue for it, he says no probs! as if he wasn't allowed to offer it, but i'd be given it if i asked??

three weeks later, MRI then another 2weeks for results, results indicate a dislocation and taping and physiotherapy are seen as the answer so off i go to physio a few weeks later. Lovely women, very helpfull but over the next three weeks of physio i suffer three dislocation and my physio refers me for a second opinion to the hospital the next morning.

So off i go, the hospital physio (another lovely woman!!) agrees that this needs urgent Orthopaedics attention and physio is pointless, she says i need a splint and probably put in plaster to keep the knee stable, she sends me to one of the wards, were i'm seen by the doctor, who sends me for x-rays! yipeeeee!!

The results, no different, and he hasn't even looked at my knee yet!! Goes away, comes back, we can see you Tuesday morning at Orthopaedics..... suppose i better look at your knee... hmm not so good, right see you Tuesday, "sorry i can't do any more just now, im really busy"

SUPERB!!!!

So in relation to my story does anyone have anything similar??? Same injury? same long term problems? same failings off parts of the NHS?? I'd love to hear from you all!!!

Sorry its such a long story! but this is the short version! :D


Offline johnmac1979

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #1 on: March 03, 2007, 01:47:39 PM »
I've been trying to post a copy of my MRI results, but it keep coming up tiny??

http://s42.photobucket.com/albums/e340/johnmac1979/

here is a link to a copy on another site..... just click the first pic top left to view it!

Many thanks, i'll really appreciate and feed back!

Best wishes, John.

Offline shortyclairebear

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #2 on: March 03, 2007, 06:07:04 PM »
hi john im really sorry to hear of the total lack of care you have had from the nhs,it seems to becoming oh so frequent with them and i must admit i also feel they have let me down!
my story is alot different to yours but ......... i had an accident nearly 2 years ago where i landed directly on my patella after coming off my motorcycle.
the a and e department told me i had firstly,broke my leg,shattered my kneecap and sent me home potted to my middle!
the next day i had an appt with a specialist who told me that there was no break! took the pot off and advised that the a and e department had misread the x ray.
 i went on to have physio (this physiotherapist was good and actually told me id have been better off breaking my leg!)i also had further x rays and an mri scan all that brought back no break,but problems internally that were diagnosed as conditions such as tendonitis,(and words i cannot spell!) etc by specialists.
i was somewhat relieved there was no break but was confused as to what the problem was as it was so painful and did not look right.
i was told by x 2 specialist that there was nothing they could do for me and that i would basically have to live with it,i could not kneel,could not stand for long periods of time,exercise without my leg swelling to the size of a football ...........all this and i was only 27 at the time!
i got another opinion and eventually the specialist/surgeon that i have now decided the best cause of action would be an athroscopy he advised that this may be more as a exploritary op rather then a cure but if they could rectify them problem then they would but at least would know what they were dealing with.
i had this done and as soon as i came round from the drugs the surgeon came to see me and advised there was a lot of damage inside and i would need a further operation done.(this was nearly a year after the accident)
i was put on the waiting list for this 2nd op and in the meantime had more physio to try and help,the physio i had this time was a nightmare! he never actually gave me any exercises to do and spent the whole time measuring my knee and telling me how much more it was in inches then the other and telling me how many millimetres my patella was out of place! (i later found out id been put in the care of a trainee)
the next one i was given after the trainee moved on was brutal,he prodded and poked and to be perfectly honest i feel he made the situation worse.
i was eventually discharged from physio and told that id be best waiting for the op as i was in constant pain whenever i went!
i am now 5 and a half weeks post op after the second op, my surgeon, i have been told is exceptionally good and has a very good success rate, he seems to have a very conserative/laid back  approach (i feel) to recovery from this op (compared to some other "posters" on here).i am in a brace and have to be for 6 weeks from the op,i hope to have this taken off next week when i see my surgeon for the follow up appointment.
i was starting to fully weight bear round the house and only used my crutches if i went out,i had the brace set to 45 degrees ,2 weeks post op and was only achieving about 30 degrees ROM (range of motion)but was doing ok to say it was "early days" ..............and then disaster! i fell down our whole flight of stairs!
i landed in a very awkward angle and my knee was bent in my brace at 90 degrees,(the man in a and e said it had been set to 90 degrees but my day surgery department said it hadn't)so i don't know if the impact of the fall damaged it or what!!
so............i went straight to a and e - they had never heard of the procedures i have had but thought it best to set the brace back to the "straight" angle again so if i have damaged something inside it will not make it worse and told no weight bearing again.
i was made an emergency appointment for the next day with a specialist (not mine though as he only works in my city a few days a week) i waited about 2 and a half hours in a waiting room with over 60 people in it to see him.the first half hour i had to stand,then an old lady gave her seat up for me then we were move to another room where i managed to get another chair to rest my leg on,by this time it was purple and swollen like hell (im supposed to keep it elevated) .... the emergency "specialist" .........mr sattan (or should that be satan(!!) knew nothing of my op (what he specializes in i don't know-but definatley not my kind of op)he asked me what id had done (operation wise) and when i told him asked what that was and looked at the nurse quizzically who shrugged her shoulders.
i explained to him what it was i've done and he was looking at my x rays from yesterday and said "well there are no breaks!" (i knew that already!)
i voiced my concerns with the internal problems the fall may have caused and he said "well theres a strong chance of that"  and mumbled that as i was seeing my specialist next week , he'll leave it up to him to sort of the best course of action!
so here i am now laid up worried i may have damaged my knee and that i may be making it worse everytime i move etc! :'(
oh well theres nothing i can do now til tuesday!! sorry this is abit novelish!

take care, claire



« Last Edit: March 03, 2007, 06:28:30 PM by shortyclairebear »
i had a motorcycle accident-landed on right knee!(mar 05)
...arthroscopy - 4th feb 06.
...VMO Advancement,LR+JMedial reefing - 24th jan 07.
...28 feb 07 i fell down 14 stairs.....more pain and stress!
...now at PT working on ROM and strenghening

Offline shortyclairebear

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #3 on: March 03, 2007, 06:31:03 PM »
sorry can't make out the mri rsults!
i had a motorcycle accident-landed on right knee!(mar 05)
...arthroscopy - 4th feb 06.
...VMO Advancement,LR+JMedial reefing - 24th jan 07.
...28 feb 07 i fell down 14 stairs.....more pain and stress!
...now at PT working on ROM and strenghening

Offline johnmac1979

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #4 on: March 03, 2007, 06:44:26 PM »
Hi Claire, thanks for the reply! and your story! I also have a motorbike, and i'm beginning to wonder how easy its going to be for me to ride unless my knee improves?? I may end up giving it up..... i'd hate to have an accident and further damage my knee!

As for your story and that of others on the site, there seem to be a lot of "sorry we can't do anything" stories from the people at Orthopaedics, i was kind of hoping to read other peoples stories and be re-assured that i've just been unlucky, but no such luck!!  :'(

I hope that all works out for you! and thanks for looking at my MRI scans! even if you couldn't figure them out! I think i'll need a medical dictionary to try and solve them, but apparently my patella is bleeding? or at least thats what the guy at hospital said?? "but it's okay...it'll stop in five or six months" lovely! and so much for his idea..... three dislocations in three weeks, plus several subflexes is far from healing!

I just cant believe that there is nothing that can be done?? they can put a man on the moon and drop a smart bomb on Baghdad from 100 miles away... but cant fix a knee? whats the world coming to? Maybe it's the "war on terror" stealing all the NHS funding?? shocking!

Thanks again Claire and let me know how you get on!  ;)

Anyone else got any input on my mistifying injury?

Many thanks, John.

Offline shortyclairebear

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #5 on: March 03, 2007, 07:02:31 PM »
hi john have you tried looking at the dictonary on the homepage??? (in the topics listed down the left side/section above where the forums are)
if there are any technical sounding terms in the mri results then alot of them are explained in there.
hopefully you may get some more positive responses from people on here aswell!! most the brits on here seem to have had pretty bad care though!
i can't believe (or should i say well it is the n.h.s!) that they said to you "it'll stop in five or six months!" thats terrible!
i personally have a car now and feel so much safer..............wondering if i'll ever drive it again at the moment though!  :'(
i don't think it is just the orthopedics departments either to be honest.......my mum had her gallbladder removed as an emergency op in november 05 and she has never been written to with her follow up appt.


take care and good luck with the other responses!

claire x
i had a motorcycle accident-landed on right knee!(mar 05)
...arthroscopy - 4th feb 06.
...VMO Advancement,LR+JMedial reefing - 24th jan 07.
...28 feb 07 i fell down 14 stairs.....more pain and stress!
...now at PT working on ROM and strenghening

Offline johnmac1979

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #6 on: March 03, 2007, 07:10:22 PM »
thanks for the info about the medical dictionary Claire! I shall have a lookie!! Ah bless the NHS... generally nice people, just totally over stretched, i can understand why i'm always forgotten about, people with broken bones take priority, it would just be nice to be noticed! I think with a bit of time and a lack of care i'll break something in the near future.... might be a blassing in disguise!  :-X

Offline shortyclairebear

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #7 on: March 03, 2007, 07:12:48 PM »
hi anything i couldn't find in the dictionary i just "googled" it on the net!!
i had a motorcycle accident-landed on right knee!(mar 05)
...arthroscopy - 4th feb 06.
...VMO Advancement,LR+JMedial reefing - 24th jan 07.
...28 feb 07 i fell down 14 stairs.....more pain and stress!
...now at PT working on ROM and strenghening

Offline Audice

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #8 on: March 03, 2007, 11:46:49 PM »
John ~ Welcome to the board. Hopefully there are people here who can help you out. What I've found from reading your MRI reportthen using the Kneeguru dictionary accessible from this site is that the damage seems to be with the medial patello-femoral ligament


The dictionary says...

The medial patello-femoral ligament is a small but important ligament stretching from the inner aspect of the patella (knee cap) to the femur bone.

--------------------------------------------------------------------------------
It acts as a passive restraint, helping to keep the patella properly aligned. It has an anatomical relationship, too, with the important VMO muscle (part of the quadriceps), and tearing the medial patello-femoral ligament makes the VMO incompetent.

Is this of any help?...Ellie


April, 2005 - ACL rupture, medial meniscus tear within posterior horn to articular surface, abnormal signal within lateral meniscus, partial tear MCL, bone contusions tibia/fibula, Baker's cyst.
No repairs.

Offline johnmac1979

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #9 on: March 03, 2007, 11:52:43 PM »
thanks for the information Ellie! thats a big help! Basicallyi want to know as much as possible about my results so i can ask all the right questions on Tuesday! Eight and a half years is a hell of a long time for a 27yr old to have knee problems, which in effect prevent me from doing anything bar walking, as work uses all the strength my knee has to offer!

I basically need as much info as possible so i'm not baffled by their talk on Tuesday and so i can offer all the right questions!

Thanks for your help! and keep it coming! Also if anyone has or had similar injuries i'd like to hear from them!

Many thanks again Ellie!

John.

Offline Audice

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #10 on: March 03, 2007, 11:59:58 PM »
John ~ If your Google medial patello-femoral ligament you might find a whole lot of information...Ellie
April, 2005 - ACL rupture, medial meniscus tear within posterior horn to articular surface, abnormal signal within lateral meniscus, partial tear MCL, bone contusions tibia/fibula, Baker's cyst.
No repairs.

Offline shortyclairebear

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #11 on: March 04, 2007, 12:06:13 AM »
hi john sorry you havent had many replies yet!!
i would ask them when you go for the technical names and the translations!! my os gave me all the info in "my language" but when i came on here its all the proper technical terms or abbreviations that are used so til i had my fall i never actually knew what the technical name of my procedures were!! its difficult for people to help aswell whaen you don't know yourself!!

i personally write down a list of questions before i go and start it a few days before so i remember when i get there.my os i think felt abit like i was interagating him but id had enough and though its my knee and i want to know what you are going to do to it!!
by ellies translation i will be interested to know what they will advise the course of action will be...........were she has mentioned the "vmo" and the "medial patello-femoral ligament" and how it works it sounds very similar to the op i have just had to correct my problem,mine wasn't torn though!
keep us posted.
claire x
i had a motorcycle accident-landed on right knee!(mar 05)
...arthroscopy - 4th feb 06.
...VMO Advancement,LR+JMedial reefing - 24th jan 07.
...28 feb 07 i fell down 14 stairs.....more pain and stress!
...now at PT working on ROM and strenghening

Offline johnmac1979

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #12 on: March 04, 2007, 09:36:24 AM »
Thanks again Claire and Ellie!! I shall have a read up on the medial patello-femoral ligament today and see what it says and what symptoms of pain you will get as my pain is very specific to the left side of the knee..... although when i dislocate, or sub-flex, it hurts all over!
 ;)

Thanks, and keep the info coming!!

All the best, John. ;D

Offline johnmac1979

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #13 on: March 05, 2007, 12:29:07 AM »
Appointment Tuesday morning! lets see what happens?? Huge bruise about the size of an apple on inside left knee... crunching noise when i walk or flex.... sub-flex today..... and plenty of swelling!  .......................surely they must realise that something is wrong?? please god!!!!!!!!!

Another night lack of sleep beckons, so goodnight all... hope you get more sleep than i will!

John.  ;) (staying strong...but only just!  :'()

Offline shortyclairebear

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Re: Pleased to be on board! Hopefully someone can help?
« Reply #14 on: March 05, 2007, 10:04:01 AM »
hi john good luck with the appt on tuesday morning!! thats judgement day for me too!!
i had a motorcycle accident-landed on right knee!(mar 05)
...arthroscopy - 4th feb 06.
...VMO Advancement,LR+JMedial reefing - 24th jan 07.
...28 feb 07 i fell down 14 stairs.....more pain and stress!
...now at PT working on ROM and strenghening