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Author Topic: Going to doc on Thursday...  (Read 1635 times)

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Offline pinklovefuzz

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Going to doc on Thursday...
« on: January 02, 2007, 11:14:22 PM »
for knee instability, dislocations, and subluxation...

I was looking at my kneecaps earlier and they are shifted towards the middle...if I push them laterally, they look normal.

I've been to the dr before...got sent to a specialist...got MRI...couldn't tell me anything, was told to go to PT.  Went to PT for a year and did nothing except drain me $300.

What kinds of questions should I ask my doctor on Thursday (this is just my regular doc....I'll probably get a referral to another specialist)?  I don't want to leave anything out...get all I can out of my co-pay..lol.

Thanks in advance :)
4/05 - MRI, nothing serious shown
5/05 - Sent to PT
1/07 - Patellar Realignment recommended
2/6/07 - Surgery Day!

Offline lohalloran

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Re: Going to doc on Thursday...
« Reply #1 on: January 02, 2007, 11:26:28 PM »
Honestly a GP is going to have nothing but a cursory knowledge of knee problems. Your questions should center around getting recommendations for good O/S who can get something done. You can ask him some specifics but he probably won't be able to give a very thorough answer.

Good luck.

Offline paulgrech

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Re: Going to doc on Thursday...
« Reply #2 on: January 03, 2007, 12:12:28 AM »
Hi- What exactly is worrying you about your knee? You say they don't look right but if this is the only problem you need to stay away from O/S. The problem is that if you ask an O/S he is always going to veer on the side of invasive investigation and treatment and, if you don't have much wrong when you start on this path you will in the end.

The body is not like a car- you can't just fix things and replace them if they are beyond fixing. Surgery really is a last resort when nothing else has helped and there is seldom advantage in having surgery early.
Paul
www.uk-radiology.co.uk

Offline pinklovefuzz

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Re: Going to doc on Thursday...
« Reply #3 on: January 03, 2007, 12:51:58 AM »
Hi- What exactly is worrying you about your knee? You say they don't look right but if this is the only problem you need to stay away from O/S. The problem is that if you ask an O/S he is always going to veer on the side of invasive investigation and treatment and, if you don't have much wrong when you start on this path you will in the end.

The body is not like a car- you can't just fix things and replace them if they are beyond fixing. Surgery really is a last resort when nothing else has helped and there is seldom advantage in having surgery early.
Paul
www.uk-radiology.co.uk

Well, for about 10 years, my knees dislocate at any given moment...getting up from the couch, out of bed and has done it a few times just walking.  I have a lot of instability ie: buckling, bowing, hyperextending and the like. It has gotten to the point that it affects my gait and is often quite painful when walking.  It aches and hurts so bad some days I cry.  I get swelling around the kneecap, along with plenty of fluid that builds up around it.

I'm hoping someone can tell me something or give me a way to alleviate the pain and be able to walk normally for a change.
4/05 - MRI, nothing serious shown
5/05 - Sent to PT
1/07 - Patellar Realignment recommended
2/6/07 - Surgery Day!

Offline pinklovefuzz

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Re: Going to doc on Thursday...
« Reply #4 on: January 04, 2007, 06:00:54 PM »
Got back from my doctor a bit ago.

I have to see an orthopedic surgeon.  My GP said surgery is likely.  Also have to go see a cardiologist to have a preliminary test done for Ehlers Danlos and my GP is checking on genetic testing for it.

Ugh.
4/05 - MRI, nothing serious shown
5/05 - Sent to PT
1/07 - Patellar Realignment recommended
2/6/07 - Surgery Day!

Offline paulgrech

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Re: Going to doc on Thursday...
« Reply #5 on: January 05, 2007, 10:19:25 AM »
Sounds like your symptoms are pretty severe- sorry I doubted you. Did you know you had Ehlers Danlos? This is a genetic disorder of connective tissue and explains the problems with your knees as the ligaments and tendons will be slack and, because of the excessive mobility of the joints, arthritis occurs early. Your dislocating patella may be helped by surgery to tighten the joint capsule on one side (the outside in your case) and maybe transpose the patellar tendon attachment.
The reason for seeing a cardiologist is because the collagen in arteries and heart valves is also involved and the valve ring and aorta can dilate.
Good luck I hope things work out OK for you.
Paul
www.uk-radiology.co.uk

Offline pinklovefuzz

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Re: Going to doc on Thursday...
« Reply #6 on: January 05, 2007, 01:54:03 PM »
They aren't for sure if it is Ehlers Danlos, no one in my family has ever been diagnosed with it before, but then again, I think it is something that is pretty new and tough to diagnose.

I'm hoping that the tests come back ok because it is a genetic disorder and I don't want my kids to have to go through what I have.

Thanks for the support...my head is swimming lately and I have to wait another week for the cardiac ultrasound, but see the OS on Monday.
4/05 - MRI, nothing serious shown
5/05 - Sent to PT
1/07 - Patellar Realignment recommended
2/6/07 - Surgery Day!

Offline pinklovefuzz

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Re: Going to doc on Thursday...
« Reply #7 on: January 05, 2007, 06:12:09 PM »
No cardiac ultrasound now...they're just going to send me straight for genetic testing.

4/05 - MRI, nothing serious shown
5/05 - Sent to PT
1/07 - Patellar Realignment recommended
2/6/07 - Surgery Day!

Offline paulgrech

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Re: Going to doc on Thursday...
« Reply #8 on: January 06, 2007, 11:35:27 PM »
Hi again,

I mentioned you to my Rheumatology consultant colleague yesterday and he said that surgery would be bad news if you have Edlers Danlos as the collagen in the skin is fragile and the scars would be very obvious. There are other causes of hypermobility too which are less serious so don't  be too pessimistic. He recommended going to a hypermobility clinic- there was one at St Thomas's in London but places like Bath and Harrowgate probably have them too. It may be possible to treat the knees with strapping and muscle strengthening exercises to stop the patella dislocating.
Paul
www.uk-radiology.co.uk

Offline pinklovefuzz

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Re: Going to doc on Thursday...
« Reply #9 on: January 07, 2007, 12:32:11 AM »
Thanks for your advice :)

I wonder about the Ehlers Danlos though...I don't have any other characteristics of it, my skin isn't lax anymore so than anyone else and no one in my family has loose joints.  I guess my GP just wants to be careful about it and that's ok, from what I've read, most doctors in the US won't even recognize it to suggest testing.

Hopefully I will find out about the testing soon though, I'm ready for a diagnosis and start on the road to getting better.

Thanks again for the kind words :)
4/05 - MRI, nothing serious shown
5/05 - Sent to PT
1/07 - Patellar Realignment recommended
2/6/07 - Surgery Day!

Offline pinklovefuzz

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Re: Going to doc on Thursday...
« Reply #10 on: January 07, 2007, 07:20:52 PM »
Also, my skin does heal very well after injury...almost a year ago I had second degree burns on my chest from scalding water and I have no scarring at all from it.  Also from various stitches and stuff as a kid, all have healed with very minimal scarring (no more so, if not better healed than any one else I've seen with stitches).

I guess we'll find out soon enough.
4/05 - MRI, nothing serious shown
5/05 - Sent to PT
1/07 - Patellar Realignment recommended
2/6/07 - Surgery Day!