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Author Topic: What to do now??? (long)  (Read 1034 times)

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Offline Spencer1006

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What to do now??? (long)
« on: September 16, 2006, 11:08:12 PM »
I've had knee pain for over 18 months now.  It started out of the blue after I'd stepped up my workout routine in preparation for my wedding.  It hurt going up & down stairs, then swelled & was tender to the touch.  I rested it for a week, then started back up at a slower pace...same thing again.  Went to orthopedic surgeon & he said to rest it for 2 wks.  I did - same results when I went back to working out. 

I then did PT, got a cortisone injection, and rested it more...it never went away after that, just got worse.  Eventually I had it scoped to have a plica removal & was told that should take care of it.

8 months later...still in pain.  Still making crunching, popping sounds when I go up/down stairs, still hurts like hell.  Some okay days, some really bad days.  There never seems to be any rhyme or reason to it.  I know it will be a bad day if I try walking/eliptical, etc. as exercise (running is totally out of the question now), but even when I do NOTHING it still hurts!

My ortho said he will not seem me anymore because he clearly hasn't been able to help.  The last thing he ordered was a bone scan & it suggested osteoarthritis.  He referred me to a rheumatologist.

Went to the rheumatologist & had a very thorough exam.  He did tons of bloodwork, etc.  Everything came back clear & normal.  He diagnosed Restless Legs & gave me a prescription for a muscle relaxer (Flexeril).  It definitely helps me sleep, but does nothing for the pain & keeps me groggy well into the next day, which I just can't deal with.  I need to be alert at work, not groggy all day.  I called his office to ask what to do & they said take it earlier in the evening.  Regardless of when I take it, it still kicks my butt. 

Prior to the surgery, I got a 2nd opinion & that doctor agreed on the surgery.  He suggested possibly doing a lateral release, but I agreed with ortho who did surgery that I didn't want that done...he didn't see a definite cause for it & I wasn't up for something so big. 

Any suggestions on what I should do now?  I refuse to accept that I will have to live with this pain & inability to work out the rest of my life.  I just want to be active again & have my "normal" life back!  I am so tired of always hurting, always being the gimpy one who can't do anything...I'm tired of even THINKING about it. 

I don't know if I should bother going to another rheumatologist or find another orthopedic surgeon?  I almost don't see the point in it, but I'm NOT ready to give up.

Any thoughts/ideas/suggestions would be greatly appreciated!  If nothing else, thanks for letting me vent to some folks who can understand what I'm dealing with.

Offline kittent1211

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Re: What to do now??? (long)
« Reply #1 on: September 17, 2006, 04:32:06 AM »
I would deffinately see an OS.  If you tell us where you live maybe some one may be able to suggest a good doctor for you. 

Offline stgiles16

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Re: What to do now??? (long)
« Reply #2 on: September 17, 2006, 06:03:33 AM »
Why were  you sent to  a Rheumy? Do they think that you have an auto immune disorder? I would definatley find a new OS. Yours is out of his league. He admits that he cant help you so find another one. It may take you two or three different interviews or appointments with different OSs until you find one that you trust and that thinks that he can help you.

good luck and keep us postedl
missy
2 ligament recons right ankle
2 arthroscopic,
5 open knee procedures
2 Plica removals
bone spur removal
2 microfractures
4 debridements
2 open LOAs all on left knee
Arthritis,both knees, ankles, shoulders, elbows, hands,spine
Fibromyalgia
Arthrofibrosis
LOA & PKR 2/15/06
RA
in pain mgmt
TKR JAN 2012

Offline Spencer1006

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Re: What to do now??? (long)
« Reply #3 on: September 17, 2006, 07:37:27 AM »
Thank you for responding!  I was sent to the rheumatologist b/c of the results of the bone scan (suggested osteoarthritis by whatever doctor read it).

I am in Dallas, TX...so if anyone can recommend a great OS here that would be wonderful! 

Thanks again.  :)

Offline stgiles16

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Re: What to do now??? (long)
« Reply #4 on: September 17, 2006, 04:51:57 PM »
You can also do a doctor search here on kneeguru. There are some people on here from texas that I hope will respond but if no one replies, check out the research section , OSs are listed by where they are located.

good luck
missy
2 ligament recons right ankle
2 arthroscopic,
5 open knee procedures
2 Plica removals
bone spur removal
2 microfractures
4 debridements
2 open LOAs all on left knee
Arthritis,both knees, ankles, shoulders, elbows, hands,spine
Fibromyalgia
Arthrofibrosis
LOA & PKR 2/15/06
RA
in pain mgmt
TKR JAN 2012

Offline Spencer1006

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Re: What to do now??? (long)
« Reply #5 on: September 17, 2006, 05:59:41 PM »
Thanks, Missy.  I will check that out...hopefully someone from TX will see this, too.

Offline emphatic

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Re: What to do now??? (long)
« Reply #6 on: September 17, 2006, 08:29:36 PM »
I was sent to the rheumatologist b/c of the results of the bone scan (suggested osteoarthritis by whatever doctor read it).

This is quite the leap! Possible osteoarthritis means needing to see a rheumatologist?? It doesn't add up at all. Either there was something else in the scan, or your orthopedist was seriously clutching at straws.

At any rate, since he can't help you anymore, it really is time to see someone else. I'm confident there is a good knee specialist in Dallas. Do check the listing on this site, and also use the search function -- there are probably posts on other boards about doctors in the area.

I'm curious -- did you ever get any photos taken during your scope?

I do hope you can get in to see someone much better very soon.

Meg

Offline Suzeeknee

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Re: What to do now??? (long)
« Reply #7 on: September 17, 2006, 09:08:58 PM »
Hi there,

Just thought I'd let you know that I had an MRI that showed up nothing wrong. I was still having pain, excersing or still. My OS said that sometimes MRI's do not always show a problem. I had an arthoroscopy 2 weeks ago and they found out that they had to remove some of my meniscus tissue and do a lateral release. So if no one can give you a diagnosis it may be worth just  having an arthroscopic investigation.

Take care and good luck x