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Author Topic: What symptoms apart from Hypermobility do you have  (Read 14175 times)

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Offline Riciamarn

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Re: What symptoms apart from Hypermobility do you
« Reply #15 on: August 04, 2003, 01:07:59 AM »
Osteoarthritis - knees & spine

Fractured Sacrum 1987 & it wasn't discovered until few years later, so I live with the consequences of this

Exhaustion, don't think it's ME

Depression - but am ok @ the moment

Offline wriggley

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Re: What symptoms apart from Hypermobility do you
« Reply #16 on: September 15, 2003, 03:29:20 AM »
hi guys!

No i didnt go among the missing just been way busy, ask sl.
Anyway this is my lot start with the stuff that bothers me most:-

Spinal cord injury - incomplete at L5/S1 due to ruptured scar tissue from a previous motorbike accident

constently subluxing vertabrae and left shoulder and hip

difficulty maintaining body temp

photophobia

mild asthma

lots of large scars caused by small injuries

Flat feet (somebody in my family was diffinitely a duck!)

Insomnia

Constant reoccurent ear and chest infections

Some hearing loss

DVT and cramping (They love me on planes hehehehehehe)

on anti depressants until recently

and of course the standard joint problems/pain

oh and just to top it all of unrelated to the other stuff im epileptic to which can make life really interesting in oh soo many ways!  ;)

Wriggley ;D ;D ;D

Paraplegic(inc. L5) due to a spinal cord bleed along with previous knee and hypermobility problems

Offline firefly

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Re: What symptoms apart from Hypermobility do you
« Reply #17 on: March 14, 2004, 12:51:41 PM »
Urm I'm either a hyperchondriac :-[ or I've stumbled across something a little worrying :o. When I was 7 I was diagnosed as hypermobile by my GP and have never seen one particular specialist at all. However this is a list of symptoms I either put up with or have been to see various doctors throughout my teens and childhood. (I'm only 21)

scholiosis (was seeing some back surgeon but mum thought he was taking too many x-rays and its not that bad)
word blindness
photophobia
headaches
No dislocations quite bad pain from joints being in the wrong place all over my body, I have to put them back myself (even my ribs) - sorry for the lack of medical terminology
flat feet - docs amased at how flat they are and that I still walk normally.
Thought back pain was normal till I was 12 and was told its not
mild IBS symptoms when stressed
asthma
ear and chest infections almost constant as a kid
difficult to keep warm or cool depending on temp
easy bruising & scarring
muscle cramp - have fallen down stairs because of it
twitches
depression
dizzyness - GP told me it was "in my head" and thats a quote ::)
some blood sugar thing that no one can tell what it is
can read upside down even though I am dyslexic

Is this just a bunch of stuff? I know your not doctors but they often mess up anyway, or is that just hte NHS

Offline meses

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Re: What symptoms apart from Hypermobility do you
« Reply #18 on: March 27, 2004, 08:20:11 AM »
i just found this board today for the first time.  my doctor has recommened knee reconstruction.  I am amazed that there are more people out there with hypermobility.  my knee pops out at the slighest.  it has popped out when i have been sitting on the couch.  I never even imagined that it coudl be related to other problems I may have.  I have chronic asthma and allergies.  socilosis, one leg is almost am inch off from the other.  I have already had bunion surgery at 25, and the doctor told me that I had really bad problmes.  he called it "Z feet"  all my joints in my feet are off basically.  and the knee problems I have had for over 20 years.  I am amazed that it could all be realted.  please let me know of any information about this.

Offline meses

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Re: What symptoms apart from Hypermobility do you
« Reply #19 on: March 27, 2004, 08:25:12 AM »
i failed to mention my flat feet or my depression.  ok, I am not the only one??

Offline Femin3m

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Re: What symptoms apart from Hypermobility do you
« Reply #20 on: March 27, 2004, 11:39:08 AM »
Mine are:
VERY VERY Flexy
dislocations
Depression
rolly eyeballs
i always crack
really long fingers
bad back (i think that has more to do with my big boobs lol)
slow runner
broken bones easily
long legs

i think thats it
Meses your not the only one with depression
and also what is IBS
Kristyna
I dislocate every thing and have had two operations one on each knee

Offline stgiles16

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Re: What symptoms apart from Hypermobility do you
« Reply #21 on: May 11, 2004, 06:15:50 PM »
are "really loose joints" the same as hypermobility? PT also says that I hyperextend every step that I take. Just curious. I thought everyone had "loose" joints.
Missy
2 ligament recons right ankle
2 arthroscopic,
5 open knee procedures
2 Plica removals
bone spur removal
2 microfractures
4 debridements
2 open LOAs all on left knee
Arthritis,both knees, ankles, shoulders, elbows, hands,spine
Fibromyalgia
Arthrofibrosis
LOA & PKR 2/15/06
RA
in pain mgmt
TKR JAN 2012

Offline tiggy

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Re: What symptoms apart from Hypermobility do you
« Reply #22 on: August 28, 2004, 09:19:43 AM »
It is amazing to find other 'rubber people' like me, people ask whats wrong and after 5 words they tune out.  Anyone been to the Hypermoblity Syndrome Association Website, alot of great information and forums. http://www.hypermobility.org/phpBB2/index.php.

Now for my 'gifts':

I can do everything on the scale (can't think of the name at the moment) for testing for HMS.
Dislocated 2 ribs (costochondral separation) at work.
Everything from my pinkey, to my jaw, to my toes sublaxs, just about daily.
My husband says "I'm like a bowl of Rice Crispy's" with the Snap Crackle and Pop I do.
Frequent jaw lockups, usually when I'm eating.
Heart Murmer
Possible Mirco Value Prolapse
Pinched Nerve in my left shoulder
Missing cartilage between 1 & 2 bone in my left wrist (on the top), my thumb is permentaly numb on the side, and part of my index finger as well. Always dropping things.
Spatical (spell?) Awareness, this is a HMS thing most people don't relize, you don't know where 'you' are in reference to other things. I.E. running to corners of doors, or tables.
Bone deposits on the top of both hands, both shoulders, and inside of both ankles.
Normal temp of about 95, I'm always cold and almost never sweat.
In my wrists I have 1 normal size vien, and one that is half the size it should be, causing cold hands.
I can move several bones in my neck in and out.
Cronic hip sublax, severe pain in my hip at age 12 from running long distance.Growing plates banging against each other is what I was told.
Tilted right knee cap
Tendontis in both knees (patella), and my left wrist.
Can sublax shoulder at will, pop in or out. Same with pinky and ankle.
Ankle mal-alignment (sublax not going back in place) lasting for weeks or more.
Plica tissue removal right knee
Solf MFC right knee
Insomnia
Can read backwards and upside down
Don't need a back scratcher   ::) No parts I can't reach
Elbows that bend 5-10% backwards (or more depending on if it is in or out)
Bending over sometimes my lower ribs hit my hips (not something that feels good)
Strechy skin, tissue paper scars (some that don't heal beyond the skin level)  I have one that I did at age 8 that sometimes bleeds under the skin on my right knee.
Horrible teeth, just up and decided they didn't want to stay together (loosing enamal)
And last but not least (most painful surgery ever) Posterior Colpoperineoplasty at age 22.

Forgot to add high tolerance to pain meds and usually takes 2 or more doses of anthesia to knock me out.
« Last Edit: August 28, 2004, 09:24:22 AM by tiggy »

Offline smelton5

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Re: What symptoms apart from Hypermobility do you
« Reply #23 on: September 15, 2004, 03:21:34 AM »
I can definetly relate to many of the problems that you all have listed!  Even being able to read upside down!  But I suffer from very severe TMJ, does anyone else suffer from this too?

Stacy
bilateral dislocating kneecaps, since 6 yrs. old, shallow grooves and lateral tracking patellas,  PT not helping L knee, VMO advancement L knee scheduled 1/10/05

Offline Vudija

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Re: What symptoms apart from Hypermobility do you
« Reply #24 on: October 23, 2004, 09:09:29 AM »
I found this through searching for something that recently happened to me.

I haven't been diagnosed for any of my symptoms, so I can't really tell you WHAT I have, or do not have. I can just tell you that I understand all of this very well. Maybe I'll get checked out now; I've never found something that encompasses all that is wrong with me.

I have a lot of these issues, but I don't see the connection. Does anyone know why all of these symptoms might be related to a joint problem?

Offline scinarie

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Re: What symptoms apart from Hypermobility do you
« Reply #25 on: November 05, 2004, 11:36:00 PM »
I was searching for information on dysautonomia and something brought me to this site.  I read many of the posts on this line, and was struck with how many people had similar symptoms to mine which seem to be all appearing under the umbrella of Dysautonomia.

In response to one poster, if you are experiencing fainting, and don't have a dx for it yet, be sure to check into having a tilt test.  This is for diagnosisning Pots, but is also for other types of syncope (fainting).


Also, another symptom that I have been having for a long time that I recently found some other people to be suffering from is a pain in the area of the liver.  It comes and goes and changes in severity.  Sometimes it feels like I might have a tumor the size of a cantaloupe, and others it doesn't bother me.

I found a group of others with it in an IBS board.

I hope this helps someone.


Offline HK_Aubie

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Re: What symptoms apart from Hypermobility do you
« Reply #26 on: December 15, 2004, 10:03:29 AM »
I think a couple of people mentioned iron deficiency, which can cause faintness (so presumably fainting as well? I don't know), and it can cause depressive symptoms.

I am amazed at how many others list depression.  This is something I have battled since I first began having knee problems at age 8.  

It never occured to me that other health problems could be related to my hypermobility. That's something new to chew on.
patella realignment (LR, medial reefing and tubercle plasty) on left, trillat on right, not that I fully know what all that means, having been a teenager trusting my doctors at the time.

shadehawk

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Re: What symptoms apart from Hypermobility do you
« Reply #27 on: December 15, 2004, 02:32:26 PM »
Some of the things I have noticed over the years

hypermobility
food allergies
sinus problems
miagraine headaches
eczema
asthma
tibial torsion
flat feet
chrondomalacia patellae
tore ligaments in both ankles
hypoglycemia(sp) low blood sugar count (when this was discovered my count was 2 and dr said I should be unconscious, I had just driven to hospital)

I always run a low temperature instead of the norm (my father always was this way also) usually freaks out nurses at the hospital.