Banner - Hide this banner





Author Topic: I'm new here  (Read 1386 times)

0 Members and 1 Guest are viewing this topic.

Offline DeniseC

  • Regular Poster
  • ***
  • Posts: 100
  • Liked: 0
  • Life is good.
I'm new here
« on: August 26, 2006, 06:42:12 AM »
Hello - I fell into this site and love it!  I thought I was unusually preoccupied with how much pain, trouble and worry I experience about my knees but one night when poking around to find some information on Hyalgen injections, since that's apparently my next step, I found this site and spent over an hour just reading various posts.  I have two bad knees, had 2 scopes last year that cleaned out 20+ years of shredded meniscus.  Before the scopes I had lots of pain, swelling, stiffiness pretty much constantly, with painful catching and locking daily.  I fell once, which is what pushed me to have the first scope.  Once the shreds were cleared out and I didn't have the catching and locking it was better, but of course still painful.  I felt good enough about it to do the second knee and so now I just have pain, stiffness, some swelling on both sides but no catching and locking.  Now I have bone on bone on my left knee with arthritis and a little more cartilage left on my right knee, but have arthritis and a bone spur on that side.  Pain with walking, splinting on both sides, I just flat don't do stairs, lots of ibuprofen that doesn't really help much, feeling glitchy stuff in both joints, wake up every night with pain, etc., etc.  I so miss being able to go shopping, take walks, climb stairs.

But - after PT on the second scope last year I started going to the gym and now I go to the gym three times a week and have greatly strengthened both legs by working with a trainer for almost a year.  I take fish oil and glucosamine/chondroitin and drinking a lot of water - seems to help a little.  The OS I loved closed his practice so I'm still trying to find someone who feels like a partner rather than a slam-bang guy in a hurry.  I'm on my second one and am not liking him so much.  Are all surgeons odd?   
It was just great to read so many posts from people that have so many of the same issues I do.  I really really thought I was totally neurotic and messed up because I think about my knees all the time  and sometimes get very down about being so limited and knowing that it won't improve; will only deteriorate further until I need replacements (I'm 53).  I don't know anyone else with the same level of difficulty, so it was WONDERFUL to know that I'm not alone with this. 

I'm waiting on insurance authorization for the injections to see if that will help any, even for awhile.  I'm moderately flipped out about the idea of some guy sticking needles into my knees but reading others' experiences, for the most part it sounds as though it's not terrible.  I plan to premedicate.
Anyway.  So glad I found the site.
1/2005 first meniscectomy
6/2005 second one
severe osteoarthritis both knees
10/06 Hyalgen injection series
8/07 Synvisc injections
Pain meds, exercise, massage!
2/27/08 bilateral TKR's plus a bonus emergency arterial graft
5/14/08 doing better, ROM R124 and L138!

Offline Kai

  • SuperKNEEgeek
  • *****
  • Posts: 912
  • Liked: 0
Re: I'm new here
« Reply #1 on: August 26, 2006, 03:52:46 PM »
Thank you for posting and introducing yourself...  what ripped up your meniscus in the first place if you dont mind my asking ? 
ACLR - (patellar BTB autograft) left knee - May 31, 2006
Partial Lateral Meniscectomy right knee Feb 20, 2008
Partial Lateral Meniscectomy right knee Aug 11, 2008

Offline Linds

  • SuperKNEEgeek
  • *****
  • *
  • Posts: 4097
  • Liked: 3
  • worry about what you can change!
    • Linney and Kitty's Website
Re: I'm new here
« Reply #2 on: August 26, 2006, 05:48:10 PM »
Hey, WELCOME to kneegeeks. :) I am sorry that you are in so much pain.. but you're right..people here uderstand. :) And having people that understand can make a real difference.
I hope that you find THE surgeon for your soon so you can get help and get into a less painful life.
WISHING YOU some less painful days very soon
Linney
1997 Scope RK
2002 LR RK
2002 Scope and hematoma evac RK
2004 LR LK
May 06 Fall from Horse, partial ACL tear and meniscus injury, Tibial plateau injury
2007 Scope, Plica Excision and Debride LK
2009/2010- Possibly Ankylosing Spondylitis?

Offline Doc79316

  • SuperKNEEgeek
  • *****
  • Posts: 1766
  • Liked: 1
  • OSCAR
Re: I'm new here
« Reply #3 on: August 26, 2006, 06:12:53 PM »
Hi Denise,

Welcome - You've definitely come to th eright place. People here are so supportive, no doubt because of having ongoing knee problems. I found more support here than frrom my family in general.

I'm sure your injections will help. I've not have this sort of treatment myself so I can't advise you but make sure you are being treated by an OS you like. Personally, I love my OS to bits, which is just as well 'cos a few procedures I've had turned out not to be so successful, but that's another story.

Let us know how you get on.

Take care,

Laura x
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Offline DeniseC

  • Regular Poster
  • ***
  • Posts: 100
  • Liked: 0
  • Life is good.
Re: I'm new here
« Reply #4 on: August 27, 2006, 07:12:28 PM »
Thanks to those of you who responded.  In answer to Kai's question, the problems with my meniscus were the result of an ill-advised downhill hike about 30 years ago, too many years of racquetball, one deep squat that I know tore my right side about 15 years ago, and then just continuous, unchecked inflammation that culminated in a spontaneous tear that made me fall - fortunately for me, my friend was between me and the china cabinet.  I scared her to death when I pitched over onto her but at least neither of us went through the glass doors!  it was only after that that I screwed up my courage for arthroscopic surgery.  After reading so many of the posts from those of you with sooo much more damage and surgeries and problems I realize I'm fortunate to be as mobile as I am and with pain that is certainly annoying and tiring but not immobilizing.
Laura, I think you're right about finding the right OS - the more I think about it the more I don't like the idea of being followed by someone that I don't care for.  I need a partner in my care since I'm in this for the long haul.  I guess I just have to keep seeing MD's until I hit on the right one.  The guy I went to before this one was recommended by someone I saw for massage who said some of his clients really liked him, but he was so diffident, with shrugging shoulders and a hurried manner, that I was really turned off.
I'm going off for a week's vacation to an area in California that I love - Sea Ranch.  Houses right on the ocean bluff, beautiful meadows, flora and fauna all over the place.  I used to be able to hike the bluffs, which I miss dreadfully, but will manage a saunter or two.

--Denise
1/2005 first meniscectomy
6/2005 second one
severe osteoarthritis both knees
10/06 Hyalgen injection series
8/07 Synvisc injections
Pain meds, exercise, massage!
2/27/08 bilateral TKR's plus a bonus emergency arterial graft
5/14/08 doing better, ROM R124 and L138!

Offline Jadeswan

  • MICROgeek (<20 posts)
  • *
  • Posts: 7
  • Liked: 0
Re: I'm new here
« Reply #5 on: August 30, 2006, 08:26:41 PM »
  Thank you so much for posting. I'm new here too. My husband has knee pain similiar to how you describe yours. It somehow helps so much to hear someone else's story. It makes it seem less lonely. I'm sure he could really identify with what you said about always being focused on your knees. He often says he wishes he could just forget about his "stupid knees" for a while. Since he's only 25, the doctors don't seem to take his pain seriously which makes it feel even more lonely. I hope he'll come on here too.
   I'm hoping to get my husband to take glucosamine chondroiton too. He says he takes too many vitamins already. :P The one thing we've found helps so far is coral calcium. It really makes a difference although the pain is still there. I don't know if it would help you but I thought it was worth mentioning. :)

Offline raquetball1

  • Forum Faithful
  • ****
  • Posts: 493
  • Liked: 0
  • RACQUETBALL--WALL TO WALL--INSANITY
Re: I'm new here
« Reply #6 on: August 31, 2006, 01:03:53 AM »
Hi Denise,    Sorry to hear of your ongoing problems and hopeful you will find a doc you can work with.  Wanted to welcome a fellow racquetballer.  Don't seem to be many of us these days, so WELCOME :)
autopatellar acl recon Nov. 2004 at age 51

Congress shall make no law...abridging the freedom of speech.

Offline luckygrandma

  • Forum Faithful
  • ****
  • Posts: 359
  • Liked: 0
Re: I'm new here
« Reply #7 on: September 01, 2006, 02:22:03 AM »
Hello - I fell into this site and love it!  I thought I was unusually preoccupied with how much pain, trouble and worry I experience about my knees but one night when poking around to find some information on Hyalgen injections, since that's apparently my next step, I found this site and spent over an hour just reading various posts.  I have two bad knees, had 2 scopes last year that cleaned out 20+ years of shredded meniscus.  Before the scopes I had lots of pain, swelling, stiffiness pretty much constantly, with painful catching and locking daily.  I fell once, which is what pushed me to have the first scope.  Once the shreds were cleared out and I didn't have the catching and locking it was better, but of course still painful.  I felt good enough about it to do the second knee and so now I just have pain, stiffness, some swelling on both sides but no catching and locking.  Now I have bone on bone on my left knee with arthritis and a little more cartilage left on my right knee, but have arthritis and a bone spur on that side.  Pain with walking, splinting on both sides, I just flat don't do stairs, lots of ibuprofen that doesn't really help much, feeling glitchy stuff in both joints, wake up every night with pain, etc., etc.  I so miss being able to go shopping, take walks, climb stairs.

But - after PT on the second scope last year I started going to the gym and now I go to the gym three times a week and have greatly strengthened both legs by working with a trainer for almost a year.  I take fish oil and glucosamine/chondroitin and drinking a lot of water - seems to help a little.  The OS I loved closed his practice so I'm still trying to find someone who feels like a partner rather than a slam-bang guy in a hurry.  I'm on my second one and am not liking him so much.  Are all surgeons odd?   
It was just great to read so many posts from people that have so many of the same issues I do.  I really really thought I was totally neurotic and messed up because I think about my knees all the time  and sometimes get very down about being so limited and knowing that it won't improve; will only deteriorate further until I need replacements (I'm 53).  I don't know anyone else with the same level of difficulty, so it was WONDERFUL to know that I'm not alone with this. 

I'm waiting on insurance authorization for the injections to see if that will help any, even for awhile.  I'm moderately flipped out about the idea of some guy sticking needles into my knees but reading others' experiences, for the most part it sounds as though it's not terrible.  I plan to premedicate.
Anyway.  So glad I found the site.
From what you are saying you need to find a good surgeon and consider TKR. I can tell you from experience that is where you are headed. read my story:
MY STORY

My OS sent me to  Pain Specialist for my back as I was constantly complaining about my back. An MRI revealed I had Spinal Stenosis.  I had complained about my knee to my OS but he was sure it was because of my back that I was having the pain. Afrer going to the Pain Specialist for awhile and the knee not getting any better the pain specialist told me that I had a knee problem and that was not his specialty and I needed to talk to my OS about it. I went back to my OS and he said I needed to strengthen the muscles and sent me to PT. I went to PT for a couple months but the pain just kept getting worse. I quit PT and went back to see my OS and he ordered an MRI. The MRI showed I had a torn meniscus. He said I needed an arthroscopy to correct this. When he did the arthroscopy he said the cartridge was hanging on by a thread but that my knee was also filled with arthritis and looked pretty bad. He did a debridement. He wanted to send me to PT again but I said I would do it on my own. As time went on I noticed I couldn’t put any pressure on my knee to stand. I called the OS office again and once again he told me I need to go to therapy.  After going to therapy a couple more months and the pain continued to increase, I went back to my OS. This time he said he tried all the conservative treatments and since nothing worked I need a TKR. I went through all the preop stuff which takes sometime as you knee and a week before my surgery he took another x-ray, now remember I’ve already had an arthroscopy where he was inside my knee and is a much clearer picture then an x-ray. In fact an x-ray was the first thing I ever had done that didn’t show the problem.  A week before the surgery on one last visit to his office he said to me “I’ve looked at you x-rays again and I had to do a TKR if you tore the cartridge again. This made me so mad. He wanted to start over. I had done nothing to tear the cartridge again. In fact the pain was so bad I had to quit my job. I told him that I was going to wait until I had one foot in the grave to have this done, and the surgery was back on. Seconds before I was wheeled into surgery my OS came to the holding are with some pictures of Partial knee replacements and told me “he looked at my x-rays again and he feels I could get by with a Partial knee replacement. I was in no position to argue and told him I trusted him to do what was right. Never once was I free of pain in fact the pain still continued to get worse until I could hardly walk.  I went back to him every 2 months for the next 8 months complaining that I was still in so much pain. He wouldn’t give me anything for pain and he continued to ignore me. He told me to swing my leg often to work the arthritis away from my kneecap. How idiotic can you get? Finally I had it and after 14 years I told this Doctor where to go and went for a second opinion. The new OS said the prosthesis had come lose and that I should never have had a Partial as the arthritis was too advanced.  Nine months from the date of the Partial I had a TKR, which I am still recuperating from but getting there. The other Doctor screwed me over so bad that he made my recovery from the TKR more complicated.  Anyway thanks to that other Doctor I had three operations on the same knee within 10 months. [/color]
Quote