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Author Topic: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help  (Read 1664 times)

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Offline comeonaussie

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Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« on: August 26, 2006, 02:53:02 AM »
Here's my tale of woe.  Sound familiar to anybody?

1-Twisted knee at home stepping over bag of old clothes.  No bruising or swelling.  Very little pain.   RICE.  Back on feet in 3 weeks.  Weight bearing issue though. 
2-Aggravated knee doing yard work outside house 3 weeks later.  Knee locked.  Some swelling.  Saw OS.  Diagnosis:  Knee Sprain.  Referred to PT.
3-Aggravated knee in PT.  Seated Leg Curl Machine.  Saw OS.  Ordered  MRI.  Noted findings:  bipartite patella, some thinning of the hyaline cartliage compatible with grade 2 chondromalacia with no evidence of a tilt or subluxation, thickening of patelar tendon, chronic partial tear of ACL*
Second opinion.  Consulted ligament reconstruction specialist about ACL tear.  Said ACL is fine  Diagnosis:  Compressed Patello Femoral Syndrom.  Sent back to PT.
4-Aggravated knee after returning from gym.  Upper body routine only.  Two days after PT eval.   Sent back to PT after several days of RICE
5-Aggravated knee in PT about one week later on treadmill.  Nine days off feet.   Knee is quick to swell upon weight bearing.  Just starting to walk again with minimal swelling.   

Does this sound familiar to anybody?   Surgery scares the heck out of me and I don't have health insurance.  Advise regarding Medicaid applications would be appreciated as well.  I'm pretty sure I'm not eligible.  Any tricks?

Offline Teresa_S

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Re: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« Reply #1 on: August 26, 2006, 04:51:43 AM »
Unfortunately, in most places, without health insurance, there will be few , if any, doctors that will see you unless you pay cash up front. ERs, in hospitals, take everybody, and then bill, but only if they are federally funded. Offices and hospitals will give you estimates up front of projected costs, but they are not usually right on. As far as Medicaid, there are elgibility guidelines as far as income, based on the number of people in the family. I don't know what they are, but those are available for the asking. IN MO, where I live, they have recently made several cuts, according to the news, in Medicaid funding, and no longer cover many braces, PT, and assitive devices, some dental services, etc. I don't know about other states. I used to be a credit manager for a clinic, years ago. But I can tell you that even if you acquire health insurance now, the condition would be pre existing and not covered under commercial insurance for at least 18-24months, and the knee might actually be excluded from coverage in the future. Many times, the companies, will not cover conditions you have consulted about in the 18-36 months prior to applying for coverage.

I guess if you had a MRI, etc, you have already encountered several thousands of dollars worth of tests, and the PT etc. Do you have an OS. ?
On going instrumentation failure, chronic infection,
Arthroscopes Left 11 Right 2, MRSA, L TKR  ,  Revision, LR x5, Medial and lateral meniscus repair, Broken prosthesis
Osteochondral Fracture,untreated 6 mths. Revision new tkr 01-07 awaiting new hip and right knee
R TKR pending

Offline Audice

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Re: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« Reply #2 on: August 26, 2006, 01:40:13 PM »
May I ask where Lyme fits into the scheme of things? You've got enough problems w/o the addition of Lyme Disease. Are you also dealing with that?...Ellie
April, 2005 - ACL rupture, medial meniscus tear within posterior horn to articular surface, abnormal signal within lateral meniscus, partial tear MCL, bone contusions tibia/fibula, Baker's cyst.
No repairs.

Offline comeonaussie

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Re: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« Reply #3 on: August 28, 2006, 07:05:56 PM »
May I ask where Lyme fits into the scheme of things? You've got enough problems w/o the addition of Lyme Disease. Are you also dealing with that?...Ellie

Lyme Disease might explain the swelling and  why I'm off my feet for so long when I aggravate the knee.   I live north of New York City.  It's not Lyme, CT or anything but it is summer and there's heaps of dear around here. 

Offline comeonaussie

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Re: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« Reply #4 on: August 28, 2006, 07:11:51 PM »
Unfortunately, in most places, without health insurance, there will be few , if any, doctors that will see you unless you pay cash up front. ERs, in hospitals, take everybody, and then bill, but only if they are federally funded. Offices and hospitals will give you estimates up front of projected costs, but they are not usually right on. As far as Medicaid, there are elgibility guidelines as far as income, based on the number of people in the family. I don't know what they are, but those are available for the asking. IN MO, where I live, they have recently made several cuts, according to the news, in Medicaid funding, and no longer cover many braces, PT, and assitive devices, some dental services, etc. I don't know about other states. I used to be a credit manager for a clinic, years ago. But I can tell you that even if you acquire health insurance now, the condition would be pre existing and not covered under commercial insurance for at least 18-24months, and the knee might actually be excluded from coverage in the future. Many times, the companies, will not cover conditions you have consulted about in the 18-36 months prior to applying for coverage.

I guess if you had a MRI, etc, you have already encountered several thousands of dollars worth of tests, and the PT etc. Do you have an OS. ?


I'm waiting on my blood work.  So far I've paid out of pocket for consultations with doctors, MRI, and PT.    I'll most likely have a second MRI and follow up consultation up the doctor.  If I'm lucky enough to get the OK for more PT I'll do the exercises on my own or perhaps consult with a PT privately to monitor form, help with stretching and modalities.  Good news is I'm back on my feet.  Bad news is I have a burning sensation on the inside portion of the knee. 

Offline Audice

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Re: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« Reply #5 on: August 28, 2006, 08:54:37 PM »
Have you been tested for Lyme, by chance? I'm from CT so am very Lyme conscious. I lost one dog to Lyme & have a second who's chronic so I know how devastating the disease can be. It certainly could account for some of your aches & swelling...Ellie
April, 2005 - ACL rupture, medial meniscus tear within posterior horn to articular surface, abnormal signal within lateral meniscus, partial tear MCL, bone contusions tibia/fibula, Baker's cyst.
No repairs.

Offline comeonaussie

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Re: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« Reply #6 on: August 29, 2006, 11:31:00 PM »
Have you been tested for Lyme, by chance? I'm from CT so am very Lyme conscious. I lost one dog to Lyme & have a second who's chronic so I know how devastating the disease can be. It certainly could account for some of your aches & swelling...Ellie

The blood test is borderline.  The doctor is going to tap my knee Friday.  Um, does it make sense to tap the knee if there's little to no swelling remaining by Friday?    I'm meeting with the doctor in Old Greenwich at HSS.     Gosh, I'd be pretty unlucky to injure my knee then get Lyme Disease.  The good news is I haven't noticed a bulls-eye or had any problems with fatigue over the last several months.    No joint pain either other than the right knee.   Personally I think the test is overkill but I can't just dismiss it either since I live in Westchester County.     Let's hope the doctor has good things to say on Friday upon examination of the knee.  Happy to report I'm walking again.  Bummer is the intense burning sensation when sitting down which I believe is consistent with patello femoral syndrome.  The last thing I want is exploratory surgery.  Of course there's the out of pocket expense to worry about as well. 

Offline Audice

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Re: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« Reply #7 on: August 29, 2006, 11:52:00 PM »
Good luck Friday & do keep us posted, please...Ellie
April, 2005 - ACL rupture, medial meniscus tear within posterior horn to articular surface, abnormal signal within lateral meniscus, partial tear MCL, bone contusions tibia/fibula, Baker's cyst.
No repairs.

Offline comeonaussie

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Re: Lyme Disease/Compressed Patello Femoral Syd/Medicaid Help
« Reply #8 on: September 05, 2006, 11:22:34 PM »
The latest.  The doctor didn't tap the knee but ruled out Lyme Disease based on the blood test alone.  The doctor is having doubts regarding the quality of the first MRI.  I'm having a second MRI at a different facility.  In the meantime I'm back on the crutches for a sixth time.  Ho-hum.  What else is new?