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Author Topic: Arthritis in feet- Surgery to fuse big toe joint- anyone else had this?  (Read 115634 times)

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Offline Lottiefox

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Re: Arthritis in feet- Surgery to fuse big toe joint- anyone else had this?
« Reply #15 on: October 06, 2010, 01:56:30 PM »
Hi Andy and welcome

Sorry to hear about your impending op. RA is no fun, and you've been through it from the sound of it. I can't give personal foot op experience (yet) but my cousin has RA (had it all his life too) and a few years back he had all his toes operated on, one foot involved removing the joints and leaving them kind of floppy and on the oher fot I know he had some graft work done. He was driving in his ortho shoes in 2 weeks!! (This was probably not recommended but he is a subborn one!). I know the recovey was painful but he has NO regrets, his job involves international travel and he now deals with life far better than the constant foot pain he had prior. I think the key with foot surgery is to do things right in those first weeks. Elevate, ice if required and rest. The more you can keep the feet up at first the faster the healing progresses and the less the swelling gets a hold.

Tod - thanks for the info. I have a good specialist foot and ankle OS in Birmingham; he runs the Birmingham foot and ankle clinic after many years heading up the foot and ankle service a the RNOH in Birmingham. he's done the necessary X-rays etc and I trust his judgement and skill. Decent bloke - didn't sugar wrap things but told me honestly what he'd recommend for the path of fewest surgeries. I think Im just scared of never wiggling that big toe again - despite it hurting to wiggle it anyway! I'm curently in a bad flare of the foot pain, so I may be scheduling it for later this year after our hols in November. I bottled it in July and of course, things settled for while. Ive now got real bad pain from the spur on the top of the joint, I think its impinging a nerve so soner or later....it will be chop chop pin...

Good luck Andy - keep us posted on how things go,

Lottie
Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....

Offline coonsanders

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Re: Arthritis in feet- Surgery to fuse big toe joint- anyone else had this?
« Reply #16 on: October 24, 2010, 10:15:10 PM »
hi gang
when i was a kid in camp this stupid horse stepped on my foot...he just put the hoof on my big toe joint for a second and lifed it up...but the damage was done.
im thinking of a fuse.i basically know what to expect except i heard from a lady
who has this toe fuse and she said they dint give any pain pills,,she had to end
-ure all that pain.is that true?

coonsanders

Offline marns

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Re: Arthritis in feet- Surgery to fuse big toe joint- anyone else had this?
« Reply #17 on: November 01, 2010, 09:08:33 AM »
Hi,  I had a big toe fusion 5 weeks ago, it has been very much more painful than I anticipated. 

I had hallux rigidus which has been a problem since my early twenties (I'm now 43) and caused knee disalignment, hip bursa, torn tendons and stress fractures.  Most of the damage was caused because I was very active and refused to listen to the GP and consultant when they advised me to moderate my activities.

I'm now in a cast which is due to come off on Friday when I have an xray to see if the toe has fused.  The cast has pretty much fallen off anyway and there is a large hole in the heel area - it's now very uncomfortable and I have a sock inside it instead of the wadding (I'll find that very hard to explain when they come to take if off).

I think that the tendon on my missing toe joint is causing the pain whenver I move my foot, hopefully that will settle down soon.  I'm signed off work for 8 weeks although the consultant said he will extend this, I can't imagine going back soon as I have to wear uniform shoes, drive some distances and walk and kneel a lot (I'm a district nurse).

Wish me luck and I would love to hear any other post op stories I especially liked Todtottys but how on earth can she run and walk so far - I'm still on crutches and can only weight bear minimally on my heel???

Offline Andy4

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Re: Arthritis in feet- Surgery to fuse big toe joint- anyone else had this?
« Reply #18 on: January 31, 2011, 01:19:14 PM »
Hi everyone,
I've had the surgery now, it was postponed in November so it was Dec 2010 when it was done. (see my post earlier on this thread). Just up to my 7th week now. All going well apart from irritating tornique wound caused by the hospital.
Pelvic bone graft, to fasten the metal work to, then all new toes fitted, with the big toes plated. Its all gone well really. Looking forward to having my pots off and pins removed this coming Thursday. I then have to start learning to walk properly again... should be fun.
Good luck all,
Andy.

Offline Bendy1

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Hi im new to this site but just read your post.
I had surgery 3 years ago to trim spurs off big toe on left foot and second toe on right foot.
I had both feet done at the same time BIG MISTAKE!  It was so so pain full i did say never again
but here i am sat at home 4 weeks post opp after haveing my big toe on left foot foot.
Befor the opp i walked on the outside of my left foot as could'nt put pressure on big toe.
My surgen said the best way was toe joint replacement but when i went in to have opp the joint was too bad so they fused it.
I have a 5 year old so i hope this wiil not stop me running , jumping and having fun with her.
I hope you find your opp  helpfull and do you or any one else have any tips post opp for me.
I am 52yrs young and had childhood arthritis in most joints ,knees mostly.









Offline Pugsley

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Re: Arthritis in feet- Surgery to fuse big toe joint- anyone else had this?
« Reply #20 on: September 10, 2011, 09:41:35 PM »
Hello All

Back in February of this year I had a replacement toe joint in my left big toe which went very well hardly any pain after a couple of days and the wound healed nicely.  However after 6 weeks of wearing a surgical boot and back in normal shoes (well flat wide things) I was in a lot of pain each time any pressure was applied to my toe.   After 3 months I had a check up with my consultant advising him of the pain I was still having.  Upon investigation he noticed that I have 2 accessory sesamoid bones in my big toe which were causing the pain.  Even though these bones have been there all my life they have reacted to the replacement toe joint.  I have now had a CT scan and awaiting another appointment to see my consultant as he is not sure of the next step.  Meanwhile the pain is increasing and the left side of my body is out of alignment as I limp when walking and have to make regular visits to my osteopath.  I have put on 1/2 stone in weight and emotionally I am very low as unable to walk at all without severe pain. 

Wondered if anyone was out there who has had the same problems and have now had a fix.

My advice if you are thinking of having a MTP toe joint replacement - DON'T if you have accessory sesamoid bones in your toe.  I was in less pain prior to the surgery. :-[

Offline Lottiefox

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Re: Arthritis in feet- Surgery to fuse big toe joint- anyone else had this?
« Reply #21 on: September 14, 2011, 11:22:18 AM »
Is your doc SURE it is the sesamoids causing the problem, not the replacement? I have to say my foot doc won't do replacement big toe joints if you want to be active. He says they are simply not robust enough to cope with the stress they get placed under and quickly fail. I had a 1st MTP fusion in April. I am 42 and fit and active. I have had some complications that have had nothing to do with the fusion itself, and I could not be happier with the fusion results. I don't limp, the toe is fused at a perfect angle for me to toe off and even to wear a low heel, and I cannot feel the hardware. You must get a surgeon who does a lot of these, understands your foot inside and out and can deal with complications should they happen. I can even stand on kind of tip toe, do push ups with weight through the big toe, and walk fast. None of my difficulties now come from the actual fusion!

I'd be seeking a second opinion. I can see why accessory sesamoids may cause issues but I have also read a huge amount about replacement big toe joints causing more pain than they solve....

Good luck. Foot pain sucks, I feel for you,

Lottie
Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....















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