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Author Topic: Please help - need new OS recommendation in NYC!  (Read 1870 times)

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Offline willp

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Please help - need new OS recommendation in NYC!
« on: July 25, 2006, 05:49:54 PM »
Hi everyone,

I'll try to keep this short. I ran a marathon in 2004, and had a nagging pain in my patella afterwards. I saw three OS's before finally settling on one who seemed to take the time to talk to me and listen to my symptoms.

The pain I had was an irritant, not something that seriously intefered with my life. Running would make it flare up, and sometimes it would ache for no identifiable reason, but I was able to ski, and cycle without much problem. It wasn't 100% though, and it frustrated me ( I posted here about it if anyone's interested.)

Anyway, my MRI showed nothing wrong, so the OS I liked suggested surgery. He suspected Plica syndrome. I asked him about the downsides, and he guaranteed that while I might not get better, I'd not be worse off. So I'd be able to run 5 or 10 K, ski, cycle etc. (Running was my sport, something that I was naturally good at and made me feel  great). I had the surgery in April, and he said I'd be doing a triathlon I was aiming for in August. I was a 'worried patient' before the surgery, and was even phoning him the day before surgery for reasurance. Supposedly there was no downside. Stupidly (how could I have been this crazy?) I didn't get a 2nd opinion.

I was able to run 5 miles on a treadmill 2 days before the surgery with no pain. I told my doctor this, and his respsonse was that I should look at the last 3 or 4 months, not the last 2 or 3 days. Was there an improvement? If not, then have the surgery.

In the operating room he removed my plica (supposedly swollen) and shaved a 5% tear in my meniscus.

Anyway, I haven't healed properly. The OS is now saying that I have arthritic lesions on my trochlear groove, and that I need to strengthen my quad and wear a brace. (I spent the best part of a year strengthening my quad to no avail). I'm 4 months out of surgery now, and if I'm not better in 6 or 8 months afer surgery then there'll be no improvement. He seems so much less interested in me than when we was recommending surgery. He's not sure if I can return to sports, and doesn't seem to care too much either.

How could I have been so stupid and let a good bedside manner fool me? I'm looking at the end of my athletic career (I can barely walk down the stairs now) and everything I dreaded has come true.

Can anybody recommend a good OS in NYC who I can get a 2nd opinion on my surgery and it's prognosis from?
Someone who understands the needs of athletic people, specialises in patello- femoral problems and who won't rush you through in 5 minutes. I'm desperate, angry, and feel so foolish for having surgery without getting a 2nd opinion in the first place.

Thanks for your time in reading this and for all the support that this board offers.

Will


Medial plica removal 4/12/06. Not referred to PT. Increasing pain and quad weakness. Diagnosed with scar tissue by Dr Steadman 10/12/06, LOA and AIR in Vail 12/15/06. Returned to high level activities 4 14 years.
2020 - flare up with medial joint line pain and occasional collapse. Currently baffled

Offline Pansy

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Re: Please help - need new OS recommendation in NYC!
« Reply #1 on: July 25, 2006, 06:56:35 PM »
I wish I had a reccomendation for ya...But I live in Ohio...So no help there...

I just wanted to say...It sucks...But I know what you mean...My surgeon was the same way...Seemed to care before the surgery...But after the surgery...Hah...I still don't even know what happened with my surgery and I am getting no answers from them...And I seem to be getting the cold shoulder...It is very shocking and it hurts...

I have no experience with the surgery you had...But I did have a LR 2 years ago...I would say that 4 months out of surgery is too soon to know if it has failed or not...And he should not have lied to you and told you any different...I was told they would not know either way for at least a year...And they were right...I was not "totally normal" until about a year later...It is a long battle...And I am impatient so I know how you are feeling...I wanted to be back to normal right away...But the sad truth is...It takes time and lots of patience...

My advice is to search and search and search and find anything and everything you can about the procedure and the diagnosis' you were given...And see if you can find a "normal" healing time...If it is true that you should have been better by now then get a 2nd opinion...You may want to anyhow just in case...But I,personally,would give it a few more months...At least a year...Exercise and get it strong...And hopefully you will be right back in no time...

I wish I could help you more...I hope you find a reccomendation...Good Luck!
26 y/o
7/2004-L Knee LR,Plica Removed,Scar Tissue Removed,Crack in Kneecap,Shallow Femoral Groove,Deep Fissuring and Fraying of Kneecap
7/2006-Fulkerson-Maquet TTT,Partial medial and lateral meniscectomy,Tibial osteotomy proximal bone graft,Chondroplasty,Debridement
2/2007- Hardware Removal

Offline willp

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Re: Please help - need new OS recommendation in NYC!
« Reply #2 on: July 25, 2006, 07:18:23 PM »
Thanks for your encouragement Pansy - it's kind of you to reply, and your experience is good to hear. I'm going to get my surgical report from the doctor this afternoon and then search for a 2nd opinion.

Hope you're doing well,

Will
Medial plica removal 4/12/06. Not referred to PT. Increasing pain and quad weakness. Diagnosed with scar tissue by Dr Steadman 10/12/06, LOA and AIR in Vail 12/15/06. Returned to high level activities 4 14 years.
2020 - flare up with medial joint line pain and occasional collapse. Currently baffled

Offline Pansy

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Re: Please help - need new OS recommendation in NYC!
« Reply #3 on: July 26, 2006, 12:59:20 PM »
Hi Will...I hope you are doing well today...

I have been watching your post...I see you have no more replies...I do not know if you posted elsewhere in the forums and got some more help...But I decided to do a little research on my own to see if I couldn't help ya out some...


My 1st search included the 2 procedures you mentioned from your surgery...And as you said...You should have been healed by now...You can read what I did here... http://www.kneeclinics.co.uk/html/what%20is%20an%20arthroscopy.htm

I hope my links work...I am a little rusty haha

I then searched on the lesions...Here might be your problem...The one page I read...The very first line says...

Articular cartilage damage can be one of the most debilitating of knee injuries.

So I hope you can find out what you need to know to get this fixed...As far as I read it seems to me like another surgery is inevitable...I could be wrong and I hope I am...Cuz I know...Surgeries suck!

Good luck in your search...Have you found any reccomendations yet?

You may get more help if you try posting your story in another part of the forums...Maybe...In the general section so the pros can direct ya to the right place to post...I know that placement is a lot on here...If you post on the right board you will get tons of help and info...They never let me down...

Good luck...Let me know how it goes...
26 y/o
7/2004-L Knee LR,Plica Removed,Scar Tissue Removed,Crack in Kneecap,Shallow Femoral Groove,Deep Fissuring and Fraying of Kneecap
7/2006-Fulkerson-Maquet TTT,Partial medial and lateral meniscectomy,Tibial osteotomy proximal bone graft,Chondroplasty,Debridement
2/2007- Hardware Removal

Offline Quill

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Re: Please help - need new OS recommendation in NYC!
« Reply #4 on: July 26, 2006, 08:51:51 PM »
Will, that OS sounds like a charleton. I can appreciate how furious you are and justifiably!

I am in White Plains which is 30 minutes on the train from Grand Central. I have a terrific OS who did my patella femoral joint replacement. He actually invented a way to improve the prosthesis and is well respected around the country. My surgery was a year ago March and while I'm not perfect, that is because I have bursitis as well. I am also 63 so that makes a difference and certainly no athlete to begin with.

If you would be interested, I'll give you his info.


Nancy
OA both knees, confined to patella. Arthroscopy 1998, cortisone both knees,  Halygan shots both knees. Had PFR 3/28/05. Recovery on schedule according to OS but lots of pain radiating up thigh and to lower back.

Offline emphatic

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Re: Please help - need new OS recommendation in NYC!
« Reply #5 on: July 27, 2006, 04:54:28 AM »
Will,

Something about your story sounded familiar --- in that I'd written what I thought was a pretty helpful post to someone in a similar position. So, I just spent a few minutes looking back through my old posts and I found it. I was going to post part of it again, because I thought it really applied here.

And guess what? It was a reply to you, for a post you made back in early June:
http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=27307.0

This was my reply back then:
http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=27307.msg208584#msg208584

I know you're really frustrated. I can sense it, clear across the country. I also think that what I posted the first time still applies.

You can go find another doctor, and that might be a great idea. However, what if he says the same thing? That you still have some healing to do, and that you need to concentrate on strengthening or PT or whatever. You're just going to be even more frustrated.

It is certainly possible that you have something really wrong. To be really honest, it doesn't sound like it from what you talk about, but it could be the case. It might be helpful to have another doctor take a look at your knee, just to make sure... that definitely can't hurt. You also might be able to establish a more beneficial relationship with a new doctor -- it certainly sounds like things have gone downhill with your current doc.

Did you go back and find a really good physical therapist? Doing the same old exercises the same old incorrect way only gets you the same old, bad results. It could be immensely helpful to you to find an excellent sports medicine physical therapist and spend 6-8 weeks really concentrating on healing and finding a way to exercise correctly and without pain. This can make such an incredible difference!

I know how hard this is to hear... I'm just hoping you might find a way to give it more time. And I do hope that a new doctor will be helpful.

Hang in there. I am hoping for the best for you.

Meg

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Re: Please help - need new OS recommendation in NYC!
« Reply #6 on: July 27, 2006, 05:22:36 PM »
If you are talking NYC . Use the Hospital for Special Surgery.   You are lucky you are in the metro area and we have a ton of great doctors . Even hackensack hospital

Offline Quill

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Re: Please help - need new OS recommendation in NYC!
« Reply #7 on: July 27, 2006, 06:37:03 PM »
Will, I left the information for you in a private message.  As for hospitals, the Hospital for Special Surgery has a fairly high rate of infection. I know two who got MRSA there. My OS says it's all about the ability of the surgeon to run a clean operation. Also, you are likely to be attended by residents there since it is a teaching hospital and who knows who is actually involved in the operation when you are passed out. I had mine done at White Plains Hospital which has a good reputation and had no problem.

Good luck!

Nancy

OA both knees, confined to patella. Arthroscopy 1998, cortisone both knees,  Halygan shots both knees. Had PFR 3/28/05. Recovery on schedule according to OS but lots of pain radiating up thigh and to lower back.

Offline Cari

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Re: Please help - need new OS recommendation in NYC!
« Reply #8 on: July 28, 2006, 01:27:30 AM »
My Friend had her surgery at The Hospital for Special Surgery in NYC and I had mine at The Hospital for Joint Diseases also in NYC and YES both are teaching hospitals BUT...the surgeon you use is the surgeon who operates on your knee unless it is authorized by you in writing prior to the surgery. For each of my operations my OS who was Chief of Sports Medicine had me sign a notice allowing the residents to observe the operation . As mine is ONE in a small number of TTT's that was 100% successfull even 7 1/2 years later I know my OS completed the surgery on his own as his expertise and experience is one of the reasons mine worked.
open lateral release 10/85, various scopes 1994-1998 for debridement, medial release 11/98,  TTT(Fulkerson)& lateral release 11/30/99, screw removal 6/27/00, tibial repair 2/13/01, dx RSD 6/25/01

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Re: Please help - need new OS recommendation in NYC!
« Reply #9 on: July 28, 2006, 02:25:16 AM »
interesting.. I had residents observe my operation and I do not recall signing a release or the doctor mentioning it for that fact.  Not that I would have really minded.   The resident was chatting me up in pre op and told me the bad news post op..  and was sent by the OS to tell my family .. while the OS remained with me in post op

Offline soozles

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Re: Please help - need new OS recommendation in NYC!
« Reply #10 on: July 28, 2006, 05:09:13 PM »
I actually think that getting treated at a teaching hospitals is actually better than a private place. Even if the resident does the surgery, they are always watched very closely by someone more senior. Not to freak anyone out, but at the hospital I used to work at, the residents would say they are assisting the surgeon, but in actuality, they'd be doing the bulk of the hands on work while the surgeon is watching. But, because the doctors are constantly being observed by someone more senior, it's less likely that mistakes would happen. After a while, doctors might become cavalier and start taking shortcuts or becoming lazy. Having to wach over residents forces the attendings to stay sharp. So don't rule out teaching hospitals because of that.
May 2005: Torn PCL, misdiagnosed as chondromalacia
April 2010: pain worse, lots of instability
Nov. 23, 2010: PCL reconstruction
progress here: http://pclrecovery.blogspot.com/

Offline Quill

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Re: Please help - need new OS recommendation in NYC!
« Reply #11 on: July 28, 2006, 05:51:05 PM »
Well, I want to know for sure that my OS is actually doing the op. This knee business is so delicate, the slightest bit off and you can have pain for life. I like the idea of a doc who has done hundreds of these procedures and has learned from each one. 

Good luck to all.

Nancy
OA both knees, confined to patella. Arthroscopy 1998, cortisone both knees,  Halygan shots both knees. Had PFR 3/28/05. Recovery on schedule according to OS but lots of pain radiating up thigh and to lower back.















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