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Offline Little Ally

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What?!!
« on: June 28, 2006, 06:07:42 PM »
Hi!

Just got back from the GP's and I'm really angry!! She said I should consider having my patella removed so then my knee will stop dislocating! I'm really not sure what to think?!

Should I trust my knee with these people?

Ally xx

Offline jennifer_in_clyde

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Re: What?!!
« Reply #1 on: June 28, 2006, 07:03:34 PM »
Honestly before I'd even think about knee surgery of ANY kind - much less having my patella removed I'd be seeing a VERY good OS who specializes in knees - I would not be trusting a general practitioner for that sort of advice...honestly I know my GP would be referring me to a specialist if I was having that sort of problem!

Good luck! Hopefully others have more input.
Jennifer

May 2006 ruptured right ACL and tore medial meniscus
July 14 2006 allograft ACLR and meniscus repair
July 2011..reinjury - is my ACL okay??
December 2011- surgery - turned out to be a articular cartilage tear - MFX and lateral menisectomy

Offline Little Ally

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Re: What?!!
« Reply #2 on: June 28, 2006, 07:17:48 PM »
Hi,

Thanks for your post. I've managed to calm down alittle. I should have mentioned I've already had one operation. I had a LR two years ago. I really don't want another one, I have a healthy fear of NHS hospitals.

I've been in PT on and off for 2 years now and I'm worried my options are limited. Many of you talk about a TTT?! But this has never been mentioned in any of my hospital appointments. They have discussed realigment surgery, guess that could be it. Just seem to be hitting so many brick walls lately!!! I really need a abit of luck!!

Aly xx

Offline Janet

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Re: What?!!
« Reply #3 on: June 28, 2006, 11:24:55 PM »
Aly:

It may sound harsh, but here goes. Don't listen to your GP. He/she is not a knee specialist. You obviously need to be seeing an OS....and not just any OS, but one who specializes in knees. And even within that category, there are different knee specialists. Some are really good with ACL repairs, for example, while others deal with patella-femoral problems. You need to do some research, make some phone calls, and find someone with the right credentials to care for you. Removing the patella is just not done anymore (at least very rarely), and I wouldn't trust anyone who said that was an option unless I had multiple opinions saying the same.

Don't give up! It's hard to keep fighting, but it's your knee, so it's worth it! Good luck.

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline sharon74

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Re: What?!!
« Reply #4 on: June 28, 2006, 11:42:41 PM »
I agree, do not listen to your GP for serious knee issues, especially when they talk about something so radical as removing your patella!   :o

I had never heard of TTT until I went to see my OS after having recurring pain even with 2 LRs (the second was due to built up scar tissue).  There can be other issues causing your pain, and an OS would be the best person to give you an accurate diagnosis.

Keep us posted!
1990 - left knee exploratory - removed scar tissue
1991 - left knee LR
1993 - right knee LR
2002 - left knee LR
2006 - left knee TTT/LR

Offline Heather M.

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Re: What?!!
« Reply #5 on: June 30, 2006, 12:12:36 AM »
What Janet said!

In fact, to show how little your GP knows about knees...the knee (actually the extensor mechanism) CAN and often WILL continue to dislocate even after the patella is removed.  And an unstable knee--one that dislocates, for example--really needs strong muscles surrounding the joint to help provide as much stability as possible.  And when you remove the kneecap, you instantly remove about 40% of the strength of the quads.

It's a barbaric and backwards approach to PFS/patello-femoral syndrome.  Patellectomy may still be necessary in the case of traumatic fractures or bone cancer or something, but for an unstable knee joint it is ridiculous and short-sighted to recommend this procedure!  And you've only had one procedure--and not a particularly good one at that--done for dislocations.

I really don't think it's time yet to throw the baby out with the bathwater....

Read up on distal realignment surgeries--TTT's, Fulkseron, osteotomies, HTO's, Maquet procedures, and so forth.  There is so much out there that a specialist could still do for you. 

Finally, your GP is simply not trained to deal with mechanical knee issues.  You wouldn't let your GP treat you for or diagnose you with cancer, would you?  Of course not.  Same thing here....you need an uber-specialist....

Take care and hang in there.  Many people are very happy with their results from the open realignment procedures.

Heather
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
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Offline Slimfish

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Re: What?!!
« Reply #6 on: June 30, 2006, 08:21:47 PM »
Ally,

If it's any help, I can recommend an OS in Huntington Beach that has done wonders for my boyfriend and myself.  My boyfriend has had a meniscus tear repaired, and a torn rotator cuff repaired.  Both surgeries were very successful, and he recovered in record time.  As for me, I had a L5-S1 fusion done in 12-04 by this doctor (he is also a spine specialist) and I was back on the soccer field exactly 6 months later.  I have had no problems at all, and neither has my boyfriend.  This doctor takes as much time with you as you need, and his record so far is perfect!  Good luck, and let me know if you would like his name and number.

Kelly
L5-S1 Anterior Lumbar Spinal Fusion (12/04)

Offline Little Ally

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Re: What?!!
« Reply #7 on: July 01, 2006, 08:24:46 AM »
Hi!

Thank you so much for your replies! I think I would go mad if it wasn't for this website. I am actually booked in for an exploratory operation in August. I only went to the GP's for some pain relief and that was her response, 'take out the patella because you don't need it anyway'. For me that the cherry on top, I have been in the NHS system for so long now, I paid for some treatment privately as I was told I couldn't leave it untreated. That's when I had the LR done. The OS also found OA and said that was because I hadn't had treatment when I first dislocated my knee. Trouble was, I did go to A and E, was dragged there by my friends. It was a busy friday night and the doctor said it was twisted, he didn't x-ray or touch it. So here I am 2 years later, finding it difficult to do the basic things in life. My nan walks better than me and she is 90!

Anyway, sorry for the rant. I get so frustrated, and I know you guys do too. There are not many people that understand and it just gets to me now and then!

Thanks again!

Ally xx















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