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Author Topic: medial patellar displacement anyone?  (Read 1099 times)

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Offline devylcat

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medial patellar displacement anyone?
« on: May 04, 2006, 06:24:33 PM »
Hey all,  I'm new here, and just thought I'd like to hear some other people's experiences.  I am 25 years old and have suffered from chronic knee pain since I was about 8.  I have very loose kneecaps in both knees(you can slide them around all over) which displace medially.  I dislocated my left knee medially when I was 21.  If I tighten up my knees while standing, there's often a pop at the back of them and then they give way.

I've been to loads of different doctors and specialists over the years, and they all seem to tell me something different: it's femeropatellar pain, it's chondromalacia, I'll get arthritis by the time I'm 30, I'll grow out of it, etc etc.  Whatever it is, it's not going away, it's slowly getting worse, now I occasionally have days when I can't even get up.  I take Tramadol every day for pain.  Most doctors seem more interested in pawning me off to physiotherapy than in actually investigating my knees properly.  It doesn't help that I'm studying to be a vet, and spend long hours on my feet.

I would love to get the opinion of anyone who has similar problems, or is just as frustrated with doctor's as I am.
devylcat

L dislocation - 2000
L LR - Mar 07
R LR - Jun 07
pain relief - transdermal fentanyl 24/7

Offline devylcat

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Re: medial patellar displacement anyone?
« Reply #1 on: May 04, 2006, 06:27:52 PM »
PS - I used to ride horses and fence.  I stopped both after dislocating my knee, but since they're not getting any better I figured what the hell, I might as well enjoy my life on painkillers and have been fencing again for the last 2 years.

Funnily enough, while I can't ride a bike anymore (I get this infernal clicking in both knees, and they both get really uncomfortable), I don't seem to have much of a problem with rollerblading.
« Last Edit: May 04, 2006, 06:34:27 PM by devylcat »
devylcat

L dislocation - 2000
L LR - Mar 07
R LR - Jun 07
pain relief - transdermal fentanyl 24/7

Offline khaley80

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Re: medial patellar displacement anyone?
« Reply #2 on: May 04, 2006, 10:03:10 PM »
I have similar issues and can't seem to get any answers either. I have just decided to continue living my life and do the thing I enjoy until I can't anymore.  I am seeing a new doctor on May 24 so hopefully I might be able to get some answers then. Keep searching and if you find anything please let me know.
plica removal 11/2000
lateral release 7/2004
arthroscopy 7/2005
TTT/VMO 6/29/06
Hardware removal 5/24/07

Offline Doc79316

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Re: medial patellar displacement anyone?
« Reply #3 on: May 05, 2006, 01:20:28 AM »
Hi,

I have lateral dislocations so my problems are a little different to yours. Have either of you tried bracing? Unloader braces are very useful for some - but you speak with your doctor first or your physio just in case it's advisable to have a custom fit brace. Then you can do as you please until a suitable surgical options has been found for you.
Have either of you considered an osteotomy? I may not be suitable for you but basically whatever forces you're putting through you're knee joint, these can be changed by surgery to prevent more damage and hopefully dislocatons too.
Why not ask your OS about it?  The worst he can say is no, but he may be able to come up with something else. If not, I think you should get a second opinion.

Take care,

Laura x
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Offline doublea21

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Re: medial patellar displacement anyone?
« Reply #4 on: May 05, 2006, 02:41:31 AM »
I am not going to be of much help because I have lateral dislocations.  I know medial dislocations are larder to deal with mostly because it is rarer.  You should look down at the Rehab Department in Post Op diaries.  Shade just had a TTT and she had medially subluxing patellas.  You might want to try and talk to her.  Also, I am a big proponent of trying do do as much as I can do with my knees knowimg my limits but still wanting to enjoy my life and be a normal 20 something.

Hope you find a solution to help your knees.

Amy
Dec 98 - R and L knee LR and VMO advancement
Dec 00 - L knee TTT
May 02 - R knee TTT and VMO advancement
Dec 04 - R knee screw removal
still too many subluxations and dislocations
July 06 - R knee MPFL Reconstruction

Offline devylcat

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Re: medial patellar displacement anyone?
« Reply #5 on: May 05, 2006, 11:42:10 AM »
It's so hard because I go to school in the UK, but I'm originally from the US.  When I'm in the UK, doing anything through NHS is hopeless, and they seem more interested in sending me to physio (which I've been in and out of my whole life with no real results) then in taking further xrays or god-forbid an MRI.  When I'm at home in the states, now I only have catastophic insurance, so any real testing and I'm paying loads, not to mention the fact that I don't have a designated orthopedic surgeon right now.

I guess I'll just have to wait till I finish my work over the summer and get back to the UK, get rereferred to the knee clinic at the hospital and force some proper investigation other than physio referrals.  For now, I'm talking to Donjoy and Breg about what kind of braces they can recommend (at least when I'm home in a month I can stop by their offices and be fitted properly). 
devylcat

L dislocation - 2000
L LR - Mar 07
R LR - Jun 07
pain relief - transdermal fentanyl 24/7

Offline shade

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Re: medial patellar displacement anyone?
« Reply #6 on: May 05, 2006, 01:09:58 PM »
Devylcat

Hi there.....

I've known the frustration.  I've been to so many surgeons & even though I knew my kneecap was in the wrong position doctors kept telling me nothing was really wrong.  Finally I went to a patello-femoral specialist in the US and right away I was told what could be done to fix my leg to try to relieve the pain.
I'd recommend you get an assessment from a patello-femoral specialist.  

About bracing - very important to not get a severe brace.  I tried the breg PTO brace but found it way too severe & caused swelling.  The only flexible brace that allowed me to walk without pain was the DonJoy Tru-Pull wraparound brace.  It is a very comfortable brace & I could wear it 16 hrs a day without problems.  It is just a buttress that goes against your kneecap and then there are staps that wrap around the top and bottom of your knee.  I'd also recommend wearing it with a brace sock or brace sox, stops brace slipping or chafing issues.  This brace is very cool and breathable.   I'd recommend it to anyone for Lateral/Medial Subluxation.  It's a Great Brace!!!

http://www.djortho.com/products/donjoy/patient/detail.asp?id=64

Here is a brace sock from DonJoy.  I like these lycra ones as there is no seams, but there are many brands.  

http://www.donjoystore.com/ProductInfo.aspx?ProductGroup_ID=63

Good luck.  ~Shade


« Last Edit: May 05, 2006, 01:18:35 PM by shade »
July '05 (RK) - LR/debridement
Mar '06 (RK) - Open LR + Allograft w/OBI TruFit Plug + Fulkerson TTT
 Feb '07 (LK) - LR + Fulkerson TTT