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Author Topic: New, Suffering subluxtions following ttt  (Read 951 times)

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Offline no-knees25

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New, Suffering subluxtions following ttt
« on: April 03, 2006, 10:27:47 PM »
I have suffered from knee dislocations since i was 16 and am now 30 and was diagnosed as having Hypermobility Syndrome five years ago, and got to the point two years ago where i was having at least one dislocation a week.
In Jan 05 i had a ttt on my left leg which was the worst of the two and in Sept 06 i had the right leg done, however due to lack of funding from my local health authority, the second operation Sept was performed by a different surgeon.
The left leg has given me no trouble what so ever, althought the screws are very near to breaking through the surface of the skin, but the knee is now more stable than its ever been.
However the right leg which had the most recent surgery in sept has started to sublux again, and are getting more regular and more painfull especially around the area where the surgery was performed.
Both legs look different too, the left leg has a 6-8 inch scar, whereas the right leg only has a 3-4inch scar.
i am awaiting to see the surgeon who perfomed the successfull surgery on my left leg, but am curious to find out weather anyone has suffered similar problems and what their outcome was????
Look forward to hearing from anyone who can help!!!
Stuart (U.K)

Offline doublea21

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Re: New, Suffering subluxtions following ttt
« Reply #1 on: April 04, 2006, 12:33:10 AM »
i can't be of much help other than to tell you that you are not alone.  My left knee is still doing well after the ttt and my right is still having a lot of subluxations.  I am still in search of an answer to help my right knee.  It is continually getting worse and is becomming more painful.  I was supposed to have an MPFL (medial patellofemoral ligament) reconstruction in July to try and fix it, but I just cancelled it because of indicision from my OS who changed what needed to be done 3 times.  So I am now in search of another opinion.  Hope your previous OS can offer you some ideas on what can be done to help your knee. 

Dec 98 - R and L knee LR and VMO advancement
Dec 00 - L knee TTT
May 02 - R knee TTT and VMO advancement
Dec 04 - R knee screw removal
still too many subluxations and dislocations
July 06 - R knee MPFL Reconstruction

Offline Doc79316

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Re: New, Suffering subluxtions following ttt
« Reply #2 on: April 04, 2006, 02:11:13 AM »
Hi Stuart,

My left knee was dislocating approx 1-2 times per week until I had mt TTT (Fulkerson) in August 2003. Everything was OK for a while but my kneecap decided it didn't like staying put and derailed itself on an avergae of 2-3 x week.
After that, I had a tendon transfer (patella transfer) with the assumption that alongside the previous TTT, this would prevent any more dislocations.
Well, it didn't. Within weeks of taking the splint off, it was dislocating again on average 5-6 x week. My surgeon decided on 7th. December 2005 that I needed more surgery and this was done on 13th. January. It was basically the Galeazzi procedure (hardly ever done now but apparently incredibly successful) but after a stupid accident at physio, the dislocations have returned with a vengeance. Had the accident not happened, my knee wouldn't have dislocated.
What Trust are you under? May be worth getting a referral from your GP to see a different surgeon who works for a better managed Trust. Or, at least get a second opinion if you're not happy with what you've been told.

Hope this helps some,

Take care,

Left knee surgery
08/06/02 - L/Release
13/08/03 - Fulkerson TTT
05/06/05 - Stabilisation & Medialisation/Tendon Transfer
13/01/06 - Proximal Hamstring Superior Stabilisation
06/03/06 - RSD/CRPS diagnosed
20/07/06 + 03/04/07- Excision of scar tissue
30/07/07 - PKR suggested by OS (no date yet)

Offline no-knees25

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Re: New, Suffering subluxtions following ttt
« Reply #3 on: April 04, 2006, 08:03:06 PM »
Hi Laura,

Thanx for your reply, i've managed to get an appointment on Thursday with the surgeon who performed the surgery on my left leg which has been so successful, so i'm hoping he will come up with some solutions to fix this troublesome right leg. However it is reassuring to know i'm not alone, i've chatted to plenty of people whose ttt's have been successful, yet your the first that has been experiencing similar problems to me following a ttt.
I'll let you know what the surgeon has to say on Thursday, so how are you progressing at present, are you still dislocating?


Offline Amanda82032

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Re: New, Suffering subluxtions following ttt
« Reply #4 on: April 05, 2006, 09:24:48 PM »

I am also one of the few who has subluxing after the TTT. I've had it done in both legs and both legs continue to sublux, on good weeks, about 10 times a week or so. I went to my surgeon and he has no clue how to help and has never seen a condition like this before (that the TTT didnt fix the problem). Now I am awaiting an appointment with a world-renoun knee specialist to see his opinion. I also should tell you my PT told me that I should get a second opinion and that I was strong so it had to be my bone structure. My OS did talk about a patellectomy and a femur osteotomy but wanted to do neither until I had a second opinion. Sorry that I couldn't have more promising news for you. I hope everything works out great! If you need anything feel free to message me. And keep us posted!!

Jan. 04=LR=R
Mar. 04=VMO Adv=R
Jul. 04=VMO Adv=L
Jan. 05=Chondroplasty=R
Jul. 05=TTT=R
Nov. 05=TTT=L
Jan. 06=Goodbye staple=R
Jul. 06=Patella ligament recon&shortened patellar tendon=R
Dec. 06=Goodbye staple=L
May 07=diagnosed w/EDS
Jul. 07=MPFL recon=R&L