Advertisement - Hide this advert





Author Topic: nightmare OS appointment  (Read 3367 times)

0 Members and 1 Guest are viewing this topic.

Offline katuc

  • MINIgeek (20-50 posts)
  • **
  • Posts: 42
  • Liked: 0
  • Just wanna smile
nightmare OS appointment
« on: March 01, 2006, 10:04:01 PM »
Hi not sure if this classifies as a crisis but it feels like it to me so here goes.

I saw my OS for the first time today, after knee pain of i don't want to think how long, and well it didn't go too well, I don't know what to think
I had some x-rays done and he prodded and poked and basically he doesn't believe me. He says there is nothing wrong with the knee although he is sending me for an MRI scan just incase, but he thinks it's all muscular. AAAAGGGGHHHHHH, I know there are muscular problems but thats because of the knee pain not the cause of it.
He hasn't given me any idea of what happens if the MRI does come back clear and he hasn't given me any idea of how long the MRI will take but i'm fairly sure it will be at least a couple of months.
I can't cope with this level of pain for that long, so I asked about painkillers, his reaction was what are you taking, so I told him nothing, i was taking Co-drydomol and Ibuprofen but they weren't touching it and were messing with my stomach so I stopped taking them, his reaction was well thats all i'd give you as well you don't need anything stronger.
HOw can he say i dont need anything more when i'm in this amount of pain and it doesnt get touched by them.
I don't know what to do next, I guess I just have to wait for the scan but I'm just so devestated that it's all being dragged out even more and I still don't have any answers.
Sorry that was a bit of a rant, i've just had one of those days.

Kat: (
Will anyone ever believe me :(

Offline Sarahreindeer12

  • Forum Faithful
  • ****
  • Posts: 287
  • Liked: 0
  • User's Text
Re: nightmare OS appointment
« Reply #1 on: March 01, 2006, 10:23:41 PM »
I would request a consult with a pain management specialist.  Pain can be crippling and prevent you from healing.  Sarah

Offline deejay30

  • Regular Poster
  • ***
  • Posts: 51
  • Liked: 0
  • User's Text
Re: nightmare OS appointment
« Reply #2 on: March 01, 2006, 11:26:09 PM »
Kat,

I'd find another doctor.  Is there another OS near you that you can go to?  Ask your current doctor to give you copies of all of your medical reports and take them somewhere else.

Don't let him dismiss your concerns like that - remember you are paying him to do his job. 

Good Luck!
10/03 LK Scope & Lateral Release
06/04 LK Fulkerson Osteotomy
10/04 Tibia fracture
12/04 Left ankle/foot pain
03/06 diagnosed with posterior tibialis dysfunction, Currently in physical therapy

Offline hopalongcasualty

  • Forum Faithful
  • ****
  • Posts: 277
  • Liked: 0
  • Today is a gift.That's why it's called the present
    • Left knee surgery
Re: nightmare OS appointment
« Reply #3 on: March 02, 2006, 05:27:20 AM »
Kat, the others are right, you should see another OS.

check out the article http://www.orthosupersite.com/default.asp?page=view&rid=5312, MRI are good tools, they will not be of any use in a dynamic PF mal-ailgnment issue since the image is made while you are immobilized.

Have you had other surgeries?

Have you posted yuor history on another page? 
 
R Knee
83-LCL,ACL&Medial Meniscus tear
86-Debridment
87-TTT Houser Manuver
89-TTT Maquet Procedure*
92-Meniscus Tear
04-Supartz Injections
05-Contusion
L Knee
05-tibia & patella dislocation w/MCL tear & large lateral condyle defect
2-15-06 Lateral condyle osteochondral Allograft ::)

Offline katuc

  • MINIgeek (20-50 posts)
  • **
  • Posts: 42
  • Liked: 0
  • Just wanna smile
Re: nightmare OS appointment
« Reply #4 on: March 02, 2006, 09:37:15 AM »
Hi all

Thanks for your words of advise, as for my history here goes, sorry it's a bit of a long one.
When I was about 8 I started getting a lot of knee pain, I went to the doctor and they just fobbed it off as growing pains, this lasted into my mid teens when it started to ease. Then at 16 I had a motor bike accident only a tiny one and i didn't do any damage to my knee but i hurt my achilles. This wasn't fixed properly, very long story, no physio, high heels for 4 years, this is when my knee pain started to get really bad again, I saw a doctor who said I had to get out of the heels cos that was making my knee worse, so with still no physio but a lot of painful excersise and forcing myself into flat shoes, I know wear flat shoes for most of the time and have pretty much for the last 4 years, doesn't seem to have fixed my knee any though, just keeps getting worse. About 3.5 years ago, I was in such agony when I was on uni vacation that my mum took me to A&E, they said it was my cartlidge and I needed surgery, so 3 weeks later, having as far as i know never seen a specialist they did an arthroscopy, when I went for my follow up appointment they weren't exactly useful but at this point i still just had blind faith in doctors, they said it's good news we didn't do anything becuase there was nothing wrong with your cartlidge but your knee cap is rough, it will either get better or it wont. And that was pretty much it, so I went home, went back to uni and when the pain just kept coming I went back to my GP and he was worse than useless, he said that it was nothing and i was still just having some post op pain and gave me some painkillers.
Well I kept going back saying it wasn't getting any better and he kept saying it's nothing.
After about a year of this I finally gave in and went to a private physio which i really couldn't afford but i wasn't going to get it any other way, he did lots of stretching excersises and sstrengthening of my quads and taped my knee cap and just kept trying everything he was fantastic but after 6 months of twice a week, i was out of money and it didn't seem to be doing any good. So i stopped.
I moved a couple of years ago and about 6 months ago it started to get really bad again so I went to the doctor told him my history and reluctantly he sent me to an OS, which is where yesterday came in. So thats the story so far.
As for exactly what the pain is it's so hard to describe, there is a lot of muscular pain in my thigh and calf but that gets worse the worse my knee gets so i'm presuming it's because of the knee not the cause of it like he seems to think. The pain in the knee itself varies every day, sometimes it's a dull ache all around the knee area, sometimes it's pulling of the ligaments at the back, and teh most common and worse pain is like knitting needles being stuck through my leg underneath my knee cap.

Sorry that was a bit of a ramble but it's my story so far.
Will anyone ever believe me :(

Hop skip n jump

  • Guest
Re: nightmare OS appointment
« Reply #5 on: March 02, 2006, 11:35:37 AM »
Hi Kat

We believe you. If it hurts then something isn't right! Definately get another opinion. You're in the UK too right? If you are then you have the option under the NHS to choose out of 4 hospitals I think in your catchment area.

 As for pain relief I too was taking co-dydramol x 8 a day along with a full dose of brufen which caused me to have stomach pains. (Before that I was on Votarol which too gave me stomach pains) I am now taking twise a day one am one pm, tramadol 150mg. Some people don't get on with them as they can effect your breathing (it's like you need to take really deep breaths every so often) but I am finding them amazing. My stomach is fine and my knee pain is massively decreased.

I wish you all the very best in getting a diagnosis, don't give up and feel free to vent whenever you need to.

Hop ;D

Offline hopalongcasualty

  • Forum Faithful
  • ****
  • Posts: 277
  • Liked: 0
  • Today is a gift.That's why it's called the present
    • Left knee surgery
Re: nightmare OS appointment
« Reply #6 on: March 02, 2006, 11:53:57 PM »
Kat,

Thanks for the information, good history. 
Chondromalaicia of the patella, or the cartlige on the back of the patella is softening and freying a bit. 
This will often interfere with smooth tracking of the knee cap in the trochlea groove.  This can be uncomfortable.
Does your knee cap seem to stay "in the grove" or does it float to one side or the other when you relax your quads?
When you lock your knees at full extension, is your leg in a strait line or are they slightly flexed or slightly hyperextended?

Does the pain come more when the knee is extending or flexing?

About what angle does the knitting needle start?

You are onto the right track, I am not a doctor, I have not examined you, I am not diagnossing you.  I would explore patello-femoral disorders.  You may have a malignment problem contributing to the chondromalacia of the patella. 
I ended up having a TTT Maquet Procedure to relieve my PF problems (chondromalacia and pain from 18 degrees to straight where the patella was impinging on the fat pad and impoperly tilted) 

You do not sound like a malingerer too me.  Your knee hurts and it is not a simple take 2 pills and call me in the morning fix.  GP are not capable of preforming complex knee diagnosis.  You really need a KNEE SPECIALIST orthapedist to look at your knees. 

BTW I am allergic to NSIAD (non-steroidal anti-inflamatory drugs) so I can only take acetomeniphine products.

Good luck and nice corresponding with you.

Hopalongcasualty
R Knee
83-LCL,ACL&Medial Meniscus tear
86-Debridment
87-TTT Houser Manuver
89-TTT Maquet Procedure*
92-Meniscus Tear
04-Supartz Injections
05-Contusion
L Knee
05-tibia & patella dislocation w/MCL tear & large lateral condyle defect
2-15-06 Lateral condyle osteochondral Allograft ::)

Offline katuc

  • MINIgeek (20-50 posts)
  • **
  • Posts: 42
  • Liked: 0
  • Just wanna smile
Re: nightmare OS appointment
« Reply #7 on: March 03, 2006, 11:17:48 AM »
Hi Hop.

You may not be a doctor, but you sure know a lot about knees.
My kneecap I think stays in the groove.
I don't often lock my knees at full extension becuase straightening it really hurts, but when it's not so bad and i do, i get a slight hyperextended.
The pain is usually worse when my knee is extended, but to be honest it's just bad all the time
The knitting needle pain does seem to occur most when i move my knees from a right angle especially if they've been there for a while.
The doctor I saw on Wednesday was a knee specialist, He is aparantley one of the best knee specialists in the south west of England

thanks for all your help

Kat: )
Will anyone ever believe me :(

Offline Ferris

  • Forum Faithful
  • ****
  • Posts: 345
  • Liked: 0
  • User's Text
Re: nightmare OS appointment
« Reply #8 on: March 03, 2006, 01:33:49 PM »
I know that knitting needle pain sensation but its the first time that I've heard it described as that by anybody else but it fits the bill so well.  I used to get that pain before my ACL reconstruction in January 2005.  The pain was not from the torn ACL itself but as the knee got more lax over time, it gave me severe patellar-femoral pain and maltracking.  At best for 3 months before the reconstruction, I had a permanent ache around my left knee cap which was worse on the medial side and at worse I had regular bouts of that knitting needle pain again on the medial side of me knee cap (on really bad days it felt like the needle had been heated up!).  I couldn't sit on a chair with my legs at right angles for long before it began to hurt - the rush hour on the trains was torture as I couldn't stretch out my legs.  Luckily all that pain and discomfort went away once I had got over the initial stage of recovery from my reconstruction.

Rachel

Offline katuc

  • MINIgeek (20-50 posts)
  • **
  • Posts: 42
  • Liked: 0
  • Just wanna smile
Re: nightmare OS appointment
« Reply #9 on: March 03, 2006, 03:42:54 PM »
Oh my God, a kindred spirit.
How did they diagnose your problem, will it show up on my MRI scan, should it have shown on X-rays?
Sorry didn't mean to bombard you with questions there but boy it's nice to hear someone else describe my pain, much better than i do admittedly but it's still the same pain, and better than that you've recovered from it, it fills me with hope.
Thank you.
Will anyone ever believe me :(

Offline Ferris

  • Forum Faithful
  • ****
  • Posts: 345
  • Liked: 0
  • User's Text
Re: nightmare OS appointment
« Reply #10 on: March 03, 2006, 04:45:57 PM »
It didn't show up on the MRI and I didn't have X-rays until after my ACL was reconstructed (by which time, things were settling down).  My patellar-femoral pain and maltracking was diagnosed by both my physio and OS through my description of the systems, examination of the knee by both of them and by observing me and my reactions during exercises in physio.  My physio felt  that it was my lax knee due to a torn ACL that was causing the problems and referred me back to my OS at that stage who agreed.   

Rachel

Offline katuc

  • MINIgeek (20-50 posts)
  • **
  • Posts: 42
  • Liked: 0
  • Just wanna smile
Re: nightmare OS appointment
« Reply #11 on: March 03, 2006, 05:46:24 PM »
HI

I'm probably showing my ignorance here, but what is lax knee? And from what you are telling me am i right in thinking that basically you were really lucky to have it diagnosed, and it was physio that fixed it?

Kat
Will anyone ever believe me :(

Offline hopalongcasualty

  • Forum Faithful
  • ****
  • Posts: 277
  • Liked: 0
  • Today is a gift.That's why it's called the present
    • Left knee surgery
Re: nightmare OS appointment
« Reply #12 on: March 03, 2006, 07:10:50 PM »
Back in 89 the OS I saw did a series of plain old x-ray films with the knee in various degree of motion and a sunrise view at various degree of motion.  From this series of plain old x-rays he was able to see when the patella started to do things badly. 

My understanding: lax = loose. 

physical therapy, strength training and bulking up of muscle mass can compensate for this and resolve the issue as long as you keep the mass up.  If you reinjure your knee and have atrophy of muscle tissues, you will be back at square one.  This muscle mass build up is why a lot of docs send you to physio before scheduling a surgery. 
R Knee
83-LCL,ACL&Medial Meniscus tear
86-Debridment
87-TTT Houser Manuver
89-TTT Maquet Procedure*
92-Meniscus Tear
04-Supartz Injections
05-Contusion
L Knee
05-tibia & patella dislocation w/MCL tear & large lateral condyle defect
2-15-06 Lateral condyle osteochondral Allograft ::)

Offline Ferris

  • Forum Faithful
  • ****
  • Posts: 345
  • Liked: 0
  • User's Text
Re: nightmare OS appointment
« Reply #13 on: March 03, 2006, 09:24:47 PM »
In the case of an ACL injury, lax does mean loose.  I had an unfair advatage in that after a fall skiing in December 2002, examinations by a doctor and physio in France and then an examination, MRI and diagnostic arthroscopy confirmed a partial tear of the ACL.  However, during the arthroiscopy my surgeon decided that my knee was not lax enough to justify a reconstruction at that stage (February 2003).  Over the next two years, my tear spread due to general wear and tear like I was warned it might.  Therfore my physio knew what to look for when I went to them in December 2004.

Rachel

Offline WantToKick

  • Regular Poster
  • ***
  • Posts: 69
  • Liked: 0
  • Just seeking to be able to ignore my knee.
Re: nightmare OS appointment
« Reply #14 on: March 03, 2006, 09:51:05 PM »
Kat:
About five years ago, i had a partial tear of my achilles tendon.  Didn't have surgery, but was immobilized for a couple months, and in pt for what seemed like forever.  About four months after i hurt it, my knee started to hurt.  It was awful, worse than the tendon ever hurt!  As I got the ankle back into shape, the knee slowly improved.  It doesn't hurt at all now!  (It's the other one that's a mess).  Just a thought - if (and I really hope you do) you get a different doc, make sure they check on the tendon thing, because having a messed up ankle will at the VERY least not help things, and could actually be causing issues with the way you walk, stand, climb stairs, anything really, and that will hurt your knees.  Just a thought...
1998 - dog vs. human accident, torn MCL, subluxed patella
1999 - plica removal, chondroplasty. 
2002 - skating accident, subluxed patella, torn LCL, bone bruising
2005 - skiing accident, torn MCL, torn meniscus, stretched acl, torn medial capsule
2007 - plica removal, synovectomy