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Author Topic: Who has had a Patella Femoral replacement?  (Read 47971 times)

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Offline *Tiffany

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Re: Who has had a Patella Femoral replacement?
« Reply #15 on: May 09, 2006, 03:45:03 AM »
Hello Nancy,
I guess I should have posted my answers here.  I wrote to Janet on PM.

I had a PFR due to arthritis and damage of the patella and femoral groove.  I started having chronic dislocations when I was just 8 years old.  The dislocations damaged the patella, breaking pieces of till it was very damaged.  The damaged patella damaged the groove and of course arthritis set in.  I have had 13 knee surgeries.  There is a lot of nerve damage from that, which contributes to the ongoing pain.  There is also muscle damage due to the dislocations and the surgeries.  Because my knees have been through so much there is arthritis in all compartments, but the Patella femoral jointspace was the worst and caused the most problems. 

I know I will have TKR's but I am 33 now so we are hoping to put  them off at least 10 years.  The PFR's did help with the constant grinding under the kneecap, and the pain of going up stairs. My first PFR will be 1 year old next week. 

Did I answer all your questions?  If not, write to me again and I will try again.

Tiffany
Age 8/Bilateral -Lateral Release '85
Bilateral Patella Resurfacing '86
Bilateral TTT '88
Bilateral- Lateral Release '03.     
Bilateral PFJR '05
PRJ to TKR 1/16/07
PRJ to TKR 6/19/07
TKR Revision  8/17/10
Total Hip Replacement 11/5/15
Rt Elbow Reconstruction 4/27/1
Patellectomy 2/2020

Offline Quill

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Re: Who has had a Patella Femoral replacement?
« Reply #16 on: May 09, 2006, 04:10:35 AM »
Tiffany.

You have been through so much at your age! I am embarrassed to be complaining since my really painful knee woes started four years ago and I am 63. Of course I had pain and crunching etc. since I was in my twenties but it was fleeting and minor and I could do most things== no skiing, bike riding much, and finally dancing which I loved became out of the question. But at least I could walk. Now that is the big issue. I had a major dance injury when I was sixteen in the pfjr knee and the other has followed suit and is just about Rice Krispies at this point

The thing is, I still have a lot of soreness in the pfjr knee after over a year and pain running up the thigh and burning hip pain. I'm trying to discern if this is usual or if I am not doing as well as I should.

Are you dealing with constant pain every day? I hope not! But I have been getting it a lot and am trying to see what I can do. Any ideas?????

Hugs to you and wishing you speedy healing :-*

Thanks for your help.

Nancy
OA both knees, confined to patella. Arthroscopy 1998, cortisone both knees,  Halygan shots both knees. Had PFR 3/28/05. Recovery on schedule according to OS but lots of pain radiating up thigh and to lower back.

Offline *Tiffany

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Re: Who has had a Patella Femoral replacement?
« Reply #17 on: May 09, 2006, 10:48:06 PM »
Hello Nancy,

I don't have the answers but I will try and help if I can. 

I ASSUME a lot of the pain in my knees is due to so much surgery and my surgeon is thinking nerve damage.  I think my hip pain is a result of my gate, and walking poorly to accomidate the bad knees.  I probably have some arthritis in the hip too.

I am one year post-op of my first PFJR, I also had one august of 05, and I had surgery in Jan of 06 as well.  I am still taking oxyconting everyday.  I am discouraged about the amount of pain I am living with.  I have been to pain management, my os and my gp.  I don't think there is really is an answer other than to keep it under control how ever we can and hope it will lesson with time.  It sounds like we are dealing with the same thing.  Maybe it is just the way it is? 

I know what you mean about rice crispies, yuk.  I don't miss THAT at all.  My patella would slide laterally while I was driving and get stuck in a vertical groove making it impossible to move my leg.  Driving was getting really bad and stairs were just about out of reach.  Not that stairs are much better :-\

I guess I am still not great, but I am adjusting to it.  I am happy to be walking again ;D  I was wheelchair/crutches for about 2 years. 

Hoping you have a good day :)

Tiffany
Age 8/Bilateral -Lateral Release '85
Bilateral Patella Resurfacing '86
Bilateral TTT '88
Bilateral- Lateral Release '03.     
Bilateral PFJR '05
PRJ to TKR 1/16/07
PRJ to TKR 6/19/07
TKR Revision  8/17/10
Total Hip Replacement 11/5/15
Rt Elbow Reconstruction 4/27/1
Patellectomy 2/2020

Offline RebelsNMisfits

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Re: Who has had a Patella Femoral replacement?
« Reply #18 on: May 21, 2006, 02:46:41 PM »
Hi Folks,

It has been a while since I posted on this board. I had a PFJR in July 05 and am presently scheduled for a PFJR on the other knee in August. I have full range of motion but I am still in constant pain, although this pain is different than what I had before. The OS feels and I agree that it is due to the lateral tendon being too tight and causing maltracking of the knee cap. The pain is really concentrated on the lateral side and that is also where all the tightness I feel is located. He said that he needs to go back in and do a release to help. Up until 2 weeks ago he was still prescribing Lortab 7.5 and oxycontin, but now refuses to do so and sent me to see a pain management specialist who has put me on Avinza 30mg which helps but does not get rid of the pain. I had been on Lortab for a year and it was working great, the OS was just scared of his license being questioned for keeping me on pain meds for a year. I just can't wait till it is all over and I can get thru the day and night without pain and pain meds.
Earl
Multiple dislocations Rknee 1978
Diag. CMP, Pat. Maltracking 1981
Scope 1989-OA of both knees -told to live with it
PKR  7/21/05
Scope LKnee 11/08/05 lateral release and debridement
TKR August 28'06 - Revision of PKR to TKR May16 2008

Offline Quill

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Re: Who has had a Patella Femoral replacement?
« Reply #19 on: May 23, 2006, 10:10:16 PM »
Hi Folks,

It seems this whole knee business has no end. I do know a number of TKR people who are out playing tennis and all that. On the news last week I heard that they have a new TKR procedure which does not involve cutting tendons and is a far easier recovery. I will try to find out more about that and report back.

Good luck to all kneesies!!!!

Nancy
OA both knees, confined to patella. Arthroscopy 1998, cortisone both knees,  Halygan shots both knees. Had PFR 3/28/05. Recovery on schedule according to OS but lots of pain radiating up thigh and to lower back.

Offline Janet

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Re: Who has had a Patella Femoral replacement?
« Reply #20 on: May 24, 2006, 12:32:04 AM »
I had my visit with the joint replacement OS today to see if it was time for a replacement and to see if the patellofemoral replacement was a good choice. It was a great appointment, and I really, really liked the doctor. We spent about 40-45 minutes going through things and geting questions answered.

I went into the appointment thinking the "argument" would be whether my knee was bad enough for a PFR. Surprise! There's no doubt about that. The question became whether a PFR or a TKR was the right thing for me. There is no doubt that my patella is in bad shape. But my medial compartment now shows jus the beginning of a degeneration. He said if I was 35, there would be no question that the PFR was the right thing. If I was 60, there would be no question that the TKR was the right thing. But I'm 49, and right in the middle, and there's no clear answer. He gave me all the arguments for each surgery. He said he would prefer the TKR, but only by a 10% margin....and that I could convince him to do the PFR. But he wants me to consult with one of his colleagues who has just recently come from a hospital in Chicago that has done a lot of PFRs. He will ask this other doctor not to look at the notes from today's visit so as to have an unbiased opinion. Then if they disagree, the two doctors will consult and decide what would be best.

I feel really fortunate that the doctor cared enough about making sure he's doing the right thing. So now I have to wait for this other doctor's office to call me to set up an appointment, then make an appointment back with my doctor....then go from there. All in all, my head is spinning! I wasn't thinking about a TKR at this point. Wow! I'll keep you posted.

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline Janet

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Re: Who has had a Patella Femoral replacement?
« Reply #21 on: June 29, 2006, 09:05:29 PM »
I thought I'd post about the consultation I had today. My OS had asked me to see a colleague to help him decide between a PFJR adn a TKR. The consulting OS had recently come to the practice from a hospital that did a lot of PFJRs and my OS wanted to know how he had seen the patients do.

His answer was very interesting. He would not recommend a PFJR. He said that they don't have really good results, and often lead to maltracking issues. He said that he had seen really top-notch, facile, excellent surgeons have trouble with the PFJR, so it wasn't just ability that skewed his opinion. He admitted that he was conservative, and I appreciated his candor. So for me, it looks like the TKR is the way to go.

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline *Tiffany

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Re: Who has had a Patella Femoral replacement?
« Reply #22 on: June 29, 2006, 09:32:21 PM »
Interesting.

That seems to be what all os's say about PFR's.  Did you make any plans for your TKR?  HOpe it works out.

Tiffany
Age 8/Bilateral -Lateral Release '85
Bilateral Patella Resurfacing '86
Bilateral TTT '88
Bilateral- Lateral Release '03.     
Bilateral PFJR '05
PRJ to TKR 1/16/07
PRJ to TKR 6/19/07
TKR Revision  8/17/10
Total Hip Replacement 11/5/15
Rt Elbow Reconstruction 4/27/1
Patellectomy 2/2020

Offline Jules

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Re: Who has had a Patella Femoral replacement?
« Reply #23 on: August 26, 2006, 06:09:27 AM »
Hi All,
I am now 11 days post PFR on my left knee and 4 months post TKR on my right knee, I was so unsure about the PFR as my TKR has gone really well, and I had read that the PFR has had its problems, but my OS said he would consider either a PFR or TKR for the left knee once I was on the table and said that if there was any slight sign of deterioration other than the PFJ then he would do another TKR, but as it was it was fine and so he just went for the PFR.
I must say that its still early days but I would rather go for the PFR first than a TKR (as I've now had both) the recovery has been very easy at present (hope I haven't just cursed myself!), I have minimal pain and can walk up the stairs already, the bend is about 100 degrees and the moment, but still working on that.
Although I would say if the deterioration has started else where in the knee also, just go for the TKR, why put yourself through 2 ops?
I am glad I had both, but we will see how it goes, as I said I'm still in the early days of both at the moment.
Jules
Apr 01 - bi-lat debride
Dec 01 - bi-lat mircrofracture & LR
Nov 02 - bi-lat debride & LR
Oct 04 - bi-lat A'scopy & harvest
Nov 04 - R ACI
June 05 - R A'scopy/shave
May 06 - R TKR
Aug 06 - L  PFJR
Jan 07 - L open LR
Oct 08 - L open LR
Feb 09 - L A'scopy/shave
July 09 - L TKR......
20 ops in 13 years

Offline Jules

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Re: Who has had a Patella Femoral replacement?
« Reply #24 on: August 26, 2006, 10:10:03 AM »
Forgot to say as well, that I'm only 40 years young and after only 11 days post op can walk up the stairs properly, which I'm quite impressed with.
Jules
Apr 01 - bi-lat debride
Dec 01 - bi-lat mircrofracture & LR
Nov 02 - bi-lat debride & LR
Oct 04 - bi-lat A'scopy & harvest
Nov 04 - R ACI
June 05 - R A'scopy/shave
May 06 - R TKR
Aug 06 - L  PFJR
Jan 07 - L open LR
Oct 08 - L open LR
Feb 09 - L A'scopy/shave
July 09 - L TKR......
20 ops in 13 years

Offline Quill

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Re: Who has had a Patella Femoral replacement?
« Reply #25 on: August 28, 2006, 06:26:55 PM »
Hi All,

Sorry I've been out of touch. You know hhow life goes. But I want to add that it turns out I have a lot of bursitis in my thighs and lower back which I am getting shots for.  Doc says I may have bursitis in the bursa that connects to the femoral. that has to be confirmed (MRI?) and shots are tricky there. But there is no doubt that bursitis has been a cause of a lot of my pain in the thighs and hips, not the gait.  Something to maybe check out for those of you who are having continued pain.

all the best,

Nancy
OA both knees, confined to patella. Arthroscopy 1998, cortisone both knees,  Halygan shots both knees. Had PFR 3/28/05. Recovery on schedule according to OS but lots of pain radiating up thigh and to lower back.

Offline Jules

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Re: Who has had a Patella Femoral replacement?
« Reply #26 on: September 04, 2006, 02:26:04 PM »
Hi all,
Don't if anyone can put me straight and I don't know if I'm being paranoid, but on my PFR knee (3 weeks post op), I'm having the same arthritic pain on one certain spot under the patella or on the femoral joint (its hard to tell which) on walking like I did before? Don't know if its still in the healing process that why its doing it, or that there is something not quite right?
Only time will tell I suppose, have 4 weeks until my OS to find out any way.

If anyone has experienced the same thing I would be glad to hear from you to reassure me, and how long it lasted?

Regards
Jules
Apr 01 - bi-lat debride
Dec 01 - bi-lat mircrofracture & LR
Nov 02 - bi-lat debride & LR
Oct 04 - bi-lat A'scopy & harvest
Nov 04 - R ACI
June 05 - R A'scopy/shave
May 06 - R TKR
Aug 06 - L  PFJR
Jan 07 - L open LR
Oct 08 - L open LR
Feb 09 - L A'scopy/shave
July 09 - L TKR......
20 ops in 13 years

rusty1

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Re: Who has had a Patella Femoral replacement?
« Reply #27 on: September 13, 2006, 04:49:19 PM »
Hi, I am 39 and had a PFR on 16th Aug 2006 in UK. Im 4 weeks post op. Started Hydro yesterday and will be having this twice a week. Its still early days. I can bend my knee to 90 degrees. Still in some pain, but not all the time. I would like to hear from others who have had this op, and how they are coping, so please get in touch.

Offline Jules

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Re: Who has had a Patella Femoral replacement?
« Reply #28 on: September 13, 2006, 06:31:37 PM »
Hi Rusty,
You had your PFR the exact same day as me. Also I am only one year older than you.
Last Friday I had got to 120 degree bend so that was good.
Our hydro in our hospital has closed (due to saving NHS money) which is a shame, but stay with that as long as you can, its so helpful in rehab.
I have very little or no pain on resting, no external swelling, but can swell inside and become stiff to move if standing for more than 10 minutes or walking around for more than half an hour, but on resting is soon goes away and loosens up again.
At the moment I'm still getting this pain (feels the same as before on one spot, the same arthritic pain, on the femoral joint I think?) its not constant, but there more than before the PFR.
I hope its just that its still healing, but I don't know, see my OS in 2 weeks so will hopefully find out then.
I hope you are getting on ok, please keep in touch as its good to compare with someone at exactly the same stage.
Best wishes
Jules
Apr 01 - bi-lat debride
Dec 01 - bi-lat mircrofracture & LR
Nov 02 - bi-lat debride & LR
Oct 04 - bi-lat A'scopy & harvest
Nov 04 - R ACI
June 05 - R A'scopy/shave
May 06 - R TKR
Aug 06 - L  PFJR
Jan 07 - L open LR
Oct 08 - L open LR
Feb 09 - L A'scopy/shave
July 09 - L TKR......
20 ops in 13 years

Offline *Tiffany

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Re: Who has had a Patella Femoral replacement?
« Reply #29 on: September 13, 2006, 06:35:46 PM »
Hi,

I do not know why in the US we don't seem to do hydro, but it seems like a good idea. 

Post PFr  I made 110 as an altime high for ROM.  Now I am closer to 90. 

Don't have any answers right now.  Lots of pain issues and deterioration throughout the joint happening. 

gotta go now. 

good luck and......... what the heck happened to my avatar?  I think she ran away again. 

Tiffany
Age 8/Bilateral -Lateral Release '85
Bilateral Patella Resurfacing '86
Bilateral TTT '88
Bilateral- Lateral Release '03.     
Bilateral PFJR '05
PRJ to TKR 1/16/07
PRJ to TKR 6/19/07
TKR Revision  8/17/10
Total Hip Replacement 11/5/15
Rt Elbow Reconstruction 4/27/1
Patellectomy 2/2020