Banner - Hide this banner





Author Topic: Has anyone in the UK had a TTT?  (Read 2360 times)

0 Members and 1 Guest are viewing this topic.

Hop skip n jump

  • Guest
Has anyone in the UK had a TTT?
« on: January 25, 2006, 03:05:48 PM »
I have read diaries from knee geeks in the US, Canada and Aus but would like if poss to speak to a Brit.(What I have read to far has been very helpful) Because the NHS is so different to the insurance way of having surgery I have some questions I would like to ask? ;D


Offline Doc79316

  • SuperKNEEgeek
  • *****
  • Posts: 1766
  • Liked: 1
  • OSCAR
Re: Has anyone in the UK had a TTT?
« Reply #1 on: January 25, 2006, 09:15:36 PM »
Hi,

I live in Birmingham and had TTT surgery in August 2003. Any questions you have, please feel free to ask away or PM me.

Laura
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Hop skip n jump

  • Guest
Re: Has anyone in the UK had a TTT?
« Reply #2 on: January 26, 2006, 08:42:28 AM »
Hi Laura (How cold is it today! Frrrreeezing!)

Thanks for coming back to me. I trust this message finds you well. I have been reading that our friends accross the pond are only in as an outpatient or with one overnight stay then sent home with cryo-cuffs and the CPM (I think) machine for exercising.

I can only assume that I have been told I will be in hospital for 3-5 days because we don't get to take that sort of equipment home, so we get use of it whilst in?????

The other thing I'm really worried about is being made to stand up in hospital! When I had my last LR on this leg March last year it was so unstable that I couldn't get myself off the bed! (The nurses were proper hose beasts!!!)

Also what sort of meds did they send home home with and when did you start physio-therapy and what was the frequency?
oh and do we get the ccutches that have have the plastic cuff thing with a bit cut out that goes around the fore arm? So many questions.....


Offline Doc79316

  • SuperKNEEgeek
  • *****
  • Posts: 1766
  • Liked: 1
  • OSCAR
Re: Has anyone in the UK had a TTT?
« Reply #3 on: January 26, 2006, 10:30:00 AM »
Hi,

I was told I'd be in hospital for about 5-7 days. I was admitted on the Tuesday evening, had TTT surgery on the Wednesday afternoon and went home on Thursday just before lunch. Basically, I think they say 3-5 days just to make sure there's time for a little swelling to go down, to see how you react after surgery and to take out the drains that are usually left in for 24-48 hours.

I wasn't sent home with any equipment - i had some clean dressings and a pair of the grey plastic crutches like those you've described. I started icing straight away, although not for more than 10 mins at a time because it was so uncomfortable.

I was initially partial weight bearing which I found particularly painful. So I ended up putting my leg up more often which relieved swelling. At first, in hospital (at Solihull in any case) the nurses don't get you up and about. I had to wait for the physio terrorists to do it.  ;D

I've found a technique that worked for me though and it may work for you. It's my left knee - so I support the bottom of my left ankle with my right ankle. By doing this, I can keep both legs straight and inch myself to the edge of the bed, settee or whatever I'm sitting on to get up to a standing position. May be worth considering but you'll work out what's best for you anyway.

Bear in mind when you first stand up, that even if your OS tells you to put your weight on you leg, if it hurts too much then don't. It's your leg and forcing yourself to do something straight after surgery when you are not comfortable with it will only cause more problems. When you first stand up, bear in mind also that they've chopped away at the bone - so basically you'll be standing on a broken leg!

Unfortunate as it is, you have to stand up at some point but it almost certainly won't be the day you have surgery. To be allowed to go home yuou have to prove to staff that you can get to the bathroom etc by yourself. You only have to do it once and just remember that once you have a pair of crutches at the end of your bed - you have a means of escape! :P

I startd my physio 10 days after the surgery, 2 x weekly, which I thought was far too soon. I did regain some flexibility very quickly though and then just had to work on the muscle strength issue. After a few weeks I kinda hit a plateau and it didn't matter what  did, I couldn't progress any further. My surgery was successful in as much as my OS achieved what he wanted to at the time, but it didn't work for me because my kneecap continued to dislocate more frequently than before. That's why I'm still having more surgery and I'm now in the realms of experimental surgery according to my OS.
Having said that, TTT surgery is almost always successful and there are many people here who have success stories - it's not all bad and I think you should read as much as you can about it.

Anyway, hope this helps.

Laura
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Offline Doc79316

  • SuperKNEEgeek
  • *****
  • Posts: 1766
  • Liked: 1
  • OSCAR
Re: Has anyone in the UK had a TTT?
« Reply #4 on: January 26, 2006, 10:36:04 AM »
Oh yeah - one other thing -

You will get to speak to your OS and anaesthetist before surgery. You may find it worth asking for local anaesthetic to be injected or inserted into your knee before you wake up from surgery. Also something I've found very helpful in the past is a femoral nerve block. This doesn't stop you using your leg but will take the pain away for a day or two. You'd probably want to have this before you wake up too as apparently it can be painful to be awake.

I was sent home from surgery with Diclofenac SOdium (Voltarol) and Co-Dydramol. These worked fopr me until the severe pain kicked in, but gave me time to be able to get back to my GP to get something stronger.

After surgery 2 weeks ago, I'm now taking Meloxicam (aka Mobic - anti-inflammatory) and Meptazinol (aka Meptid - pain killer). Thses are having some effect for me athe moment so I'm sticking with them. They are very effective but the hamstring procedure I've had recently is known to be painful!

You can always ask for stronger pain relief. Don't be a martyr - it's just not worth it.


Laura.
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Hop skip n jump

  • Guest
Re: Has anyone in the UK had a TTT?
« Reply #5 on: January 26, 2006, 11:08:38 AM »
There's me moaning on and you've only just had surgery! Sorry! How are you feeling? What a nightmare that the TTT didn't stop your dislocations. Boooooo

I'm in Hampshire, but my dad is a fellow brum too!
Another question oh knee advisor! What was your brace like? Do you think it's worth me buying a cryo-cuff rather than usung bags of frozen peas!!!!  :o (You said surgery Wed out Thur, was that the next day or a week later?)

Think I may have to speak to my specialist about pain relief because I pop co-dydramol and brufen like smarties at the mo and something tells me they won't cut the mustard when I get the chop!

I never thought about the walking on a broken leg thing, but yea I suppose that's the case huh! Not looking forward to the physio, the last 2 LR's I have had I've only gone to the physio twise for each procedure because they hurt me so much! (wimp!)
Perhaps that's part of the reason I'm in such a pickle now! Oops! Actually how the hell am I going to get to physio! Taxi I suppose!

Offline Doc79316

  • SuperKNEEgeek
  • *****
  • Posts: 1766
  • Liked: 1
  • OSCAR
Re: Has anyone in the UK had a TTT?
« Reply #6 on: January 26, 2006, 11:20:07 AM »
Hey,

I'm OK in myself but my knee is still very inflamed and red hot at times - but I'm gertting there slowly. Thanks for asking.
After the TTT surgery I didn' t have a brace because there's no advantage to preventing your knee from bending. The last 2 surgeries, I've been stuck in a cricket splint to keep my leg completely straight for 6 weeks at least. Fantastic! :'(
Having said that, you could ask for a supporting knee brace from the hospital to help support your knee joint during recovery. They're usually made of neprene or airprene so your skin will still be able to breathe and some of the better ones have stabilisers t the side. They can feel a little restrictive but worth it.
I think it's best to ask your OS about this though and go with his advice as everyone's knees are a little different in some way.

I wouldn't run to the expense of a cryo-cuff, cos once you have that you also need the cooling unit that goes with it - unless it's one yuo can just put in the freezer. In which case, you may as well use frozen peas. You sholdn't ice for more that 15-20 minute at a time in any case and that's an absolute maximum with 20 mins off before icing again. Hopefully, your swelling will be controlled from the start so you shouldn't need to ice for long after the surgery.

You'll find that physio is very uncomfortable and at time quite painful. If it becomes so painful you can't bear to do your exercises, then stop - you're overdoing things. Other than that - if you dose yourself up on painkillers 1/2 hour before hand, it's not so bad.

Is there any chance that your physio could do a home visit? Or maybe you could just attend for physio sessions once a week or fortnight. If your physio can see that you're making progress they may allow you to reduce your sessions after letting you know what exercises to do.
This is what happens with me, anyway. Also, I've had physio on and off for 17 years so I know almost as much about knee physio as they do.

Laura.
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Hop skip n jump

  • Guest
Re: Has anyone in the UK had a TTT?
« Reply #7 on: January 26, 2006, 11:39:57 AM »
Laura I don't understand your last procedure, what have they done to you? (Wish we had a knee fairy that could simply wave her little wand!) Are you up and about of hobbling???

I'm having to have an LR at the same time as the TTT is that what happened to you? I've been told I will have a brace! Were you really in just for one night? You must be pretty hardcore!  ;D (Looking at feet in shame!)

Think I'll ask my dad to come over to take me to physio sessions, he lives an hour away but is fab! My fiance is going to take a week off from the day I get out of hospital so he'll be back at work by then! At least my daddy can hold my hand!!!!  :P

Hop


Offline Doc79316

  • SuperKNEEgeek
  • *****
  • Posts: 1766
  • Liked: 1
  • OSCAR
Re: Has anyone in the UK had a TTT?
« Reply #8 on: January 26, 2006, 01:40:03 PM »
Hi Hop,

YOU BIG WIMP! Nah - I'm not hardcore, I'm a winp too. I just wan tmy knee fixed.

I'm up and about on crutches wearing a cricket splint 24/7. If I go anywhere, my Dad has to take me after loading me into the car like a sack of spuds. Very dignified! Amusing for the neighbours to watch though! :P

Basically, my last surgery was a tendon transfer back in June 2005 where they used the pateela tendon and pulled it across my knee cap to prevent it flipping out sideways. It didn't work and more or less straight away after the spling was to come off, it started dislocating again.

The most recent surgery was where my OS opened up the front of my knee, went to the back of the inside of my knee, messed around with my hamstring (whether muscle or tendon I'm not sure) and used it to wrap it twice around my kneecap and reattached it somewhere on the medial side of my knee. This is supposed to stop my kneecap dislocating laterally.

Previously I had an arthroscopy with lateral release, then a lateral release with the osteotomy procedure.

Make use of your fiance but also make sure yuo do some things for yourself too.

Laura
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Hop skip n jump

  • Guest
Re: Has anyone in the UK had a TTT?
« Reply #9 on: January 27, 2006, 01:19:47 PM »
Hi Laura
Thanks for helping me out. I will be sure not to rely too muchon my other half and make sure I do what I can. I want to recover asap and I know I have to build my strenght for that.
From reading your history I have my fingers crossed for you that this last procedure is a winner.


Hoppy wimp!
 ;D

Offline Doc79316

  • SuperKNEEgeek
  • *****
  • Posts: 1766
  • Liked: 1
  • OSCAR
Re: Has anyone in the UK had a TTT?
« Reply #10 on: January 27, 2006, 03:14:52 PM »
Hey Hop,

Thanks for your good wishes.  I hope things go well for you.

Laura x
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Hop skip n jump

  • Guest
Re: Has anyone in the UK had a TTT?
« Reply #11 on: January 27, 2006, 04:11:11 PM »
Laura

Have just spoken to the admissions office, they've confirmed that it's a fulkerson and a 5 month wait!
Call me weird but I am strangely excited!!!!! Think I'll have a bottle of wine or two!

Hope you are doing good hon.
 ;D

Offline Doc79316

  • SuperKNEEgeek
  • *****
  • Posts: 1766
  • Liked: 1
  • OSCAR
Re: Has anyone in the UK had a TTT?
« Reply #12 on: January 27, 2006, 04:12:46 PM »
Hey Hop,

It's not wierd to feel a bit excited. I did about this last surgery I've had. I put it down to thinking my knee was gonna get sorted once and for all.

Laura x
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Offline UK Girl !

  • SuperKNEEgeek
  • *****
  • *
  • *
  • Posts: 5992
  • Liked: 0
Re: Has anyone in the UK had a TTT?
« Reply #13 on: January 29, 2006, 02:17:44 PM »
What is a TTT?

so many abreviations to work out on this site!
1978 - ruptured acl and all cartalidge removed.
several debridements over years
TKR 10TH JULY 2006 http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=28257.0  Aug 07 patellar maltracking - more physio! Still pain - but so much better !
BIOMET AGC  TKR  (with 10 yr warranty !)

Hop skip n jump

  • Guest
Re: Has anyone in the UK had a TTT?
« Reply #14 on: January 30, 2006, 09:48:41 AM »
Hi Anja

TTT stands for Tibial Tubercle Transfer, this is a type of open surgery (as apposed to arthroscopy, which is key hole) to correct alignment of the patella. (So it's stops slipping out!)
(I am no expert by the way!) There are a few different versions of the procedure some involving screws (Fulkerson) and some not. Have a look on
http://www.kneeguru.co.uk/html/steps/step_05_patella/realignment03.html

this will explain properly for you!

 ;D
« Last Edit: January 30, 2006, 12:44:43 PM by Hop skip n jump »