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Author Topic: I Knee-d some divine intervention  (Read 1940 times)

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Offline Mr Snowman

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I Knee-d some divine intervention
« on: November 01, 2005, 05:09:46 PM »
Hi all! I've dislocated my left knee twice, once when I was 23 (misdiagnosed as I somehow relocated it myself before the ambulance arrived - told to rest for a week and then walk off any pain - the Doc later apologised) and then once when I was 25 (misdiagnosed by hospital doctor due to bad English - correct diagnosis a week later by different doctor when I staggered back there in tears because of the pain!! - This was a bad dislocation - really hyperextended and ligament damage). Now, I'm of a mind that the misdiagnosis in both cases has left me with more damage than one would usually expect, as the problems that I've had since the second time of dislocating have been awful. The ligaments on the sides of my knee can give me excrutiating pain, and my knee sometimes just gives way like a merry monk with a barrel of mead.

I have been to see different doctors about this, but have always been told that 'physio will help' 'get more exercise' 'no need for surgery' etc. Now this wouldn't be so bad if it actually worked. All physio and exercise has left me feeling generally worse off (even when I've stuck it out for long periods), and the only thing which hasn't really hurt is cycling to work and back every day (10 miles) for the past four months. My muscles have certainly built back up, but as far as the knee goes, it hasn't had any effect whatsoever.

Now, on Friday the ligaments at the side went pop in a way that hasn't happened before. My kneecap feels as if it's a lead weight, and my calf is aching something chronic, although I can walk still, albeit with a limp. I'm going to the doc tomorrow, as I always a bit guilty turning up at A&E and seeing people with their arms hanging off and saucepans stuck on their heads  ;) How can I finally convince a doctor to give me a referral to see a specialist who can help me with this? I mean, just an MRI to give me some kind of peace of mind would be nice. After the 2nd dislocation where the 1st doc botched up the treatment, I've never felt that I've recovered properly, and the whole situation is starting, for the first time, to make me feel pretty down  :P If my leg was hanging off, then at least I'd know what the matter was, and if was just a little pain that went away with prolonged exercise, then again, great! But a chronic pain despite physio and regular non-impact exercise and a diet of ibuprofen is not good!

Has anyone else experienced anything similar but managed to win over their doctor somehow? I used to be told that most treatments would be pointless as I was too young, but the thing is, I'm 30 next year, and don't want to be getting a walking stick on my 40th  :-\

Offline matthew rhode

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Re: I Knee-d some divine intervention
« Reply #1 on: November 01, 2005, 05:28:29 PM »
hi there.  sounds like you have been through the mill a bit.  sorry about that.  any gp worth their salt would have sent you to see a knee specialist by now.  if you live in london? go see a guy called andrew williams at the chelsea and westminister.  you may have to pay about 150 for a private consultation but its well worth it.  this guy is the best knee dude in the uk.  if not look for a knee speacialist in your area.  if it puts you on the right track or gives you peace of mind, 150 will be a bargin.  it could be that your patella is mal-tracking or maybe you've done your ligaments?  if your knee gives way you may have an acl injury.  whatever it is, a knee that gives way is no good for your cartilage so the quicker you get it sorted the better.  good luck in your search for an answer.

Offline heather k from wales

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Re: I Knee-d some divine intervention
« Reply #2 on: November 01, 2005, 06:38:46 PM »
Im sorry you are having so much trouble with your knee.  I was brushed off by the GP's and A&E for over 4 years until my knee popped out and I couldnt pop it back in place myself.
If I were in your shoes right now, Id research the best Knee OS's in my area and get back to my GP and ask for an apointment with my choice of OS, if they say no, then Id demand one privatley.  There's obviously something bad going on inside a knee like that to give so much trouble.  If physio hasnt dont the trick then the next step should be pretty obvious to any GP.

Good luck and let us know how you get on,

Heather ;)
91 Mangled Right knee on trials motorbike
94 Meniscus Repair
95 ACL/LCLrec,notchplasty,bone graft
01 90% Menisectomy
02 Scope
03 ACLrec,LAD
OA,osteophytes
04 Ch'plasty, ACLdeb,Suprapatella mbr ex, haematoma
04 Scope
March 06 Scaphoid op/bone graft
Nov 07 Thyroid Cancer ops x 2, radiation

Offline Mr Snowman

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Re: I Knee-d some divine intervention
« Reply #3 on: November 01, 2005, 07:49:44 PM »
Thanks/diolch, the pair of you :) At least I know I'm not the only crocked one out there ;) I'm not sure about specialist OSes around here tbh (Nottingham). I think I'm going to go with the flow this time, and see if I can get to see someone at the QMC. If not, then -that's- when the research'll begin!

I used to be opposed to surgery and all that malarky, but it's getting to the point where I'll take -anything-. Perhaps even a peg-leg and parrot  :D

I'll let you know how I get on anyhow; thanks for the words  ;)

Offline dogwalker

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Re: I Knee-d some divine intervention
« Reply #4 on: November 01, 2005, 10:54:21 PM »
Hey Mr. Snowman, have you had an MRI?  I know thats how they diagnosed my torn knee ligs.  I also dislocated my knee..so I know the kind of pain it creates.  I tore my ACL,PCL and Lateral meniscus..also broke  my fibula.
When I dislocated my knee they took me to hospital in ambulance.  They then put me out to pop my knee back into place.  I was there for 3 days.  Pain was severe.  This happened July 31..I'm finally having knee recon. Friday.  I've been on Vicodin for pain which I'm not physically addicted to it.
I agree with others that you need to find an OS that specializes in knees.  A sports med. doc also understands knee injuries better.  Don't give up..you deserve to feel better.
Betsy   

Offline heather k from wales

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Re: I Knee-d some divine intervention
« Reply #5 on: November 02, 2005, 09:50:22 AM »
Bore Da Mr Snowman!!.
Below is the name of a knee specialist in the QMC.  I got his name off this site.  He is the only reccommended knee surgeon for Nottingham on this site.  You would need a referral from your GP to see him.  Whether you go NHS or Private, it is your right to ask for whoever you want to see.  A private consultation would vary from about 100-150 and in my opinion is a brilliant investment as you 'jump' a 6-12 month wait just to get a consultation.  If you need an operation, then you can just switch back to NHS.
Its an absolute 'must' to see someone who specialises in knees.  I was sent to see a hand consultant once for a locked knee.  She told me it wasnt locked and not to use crutches >:(, I demanded to see a knee OS, which took 3 weeks and was immediatley diagnosed as having a locked knee.  I was operated on within a few hours :o

Please let us know how you get on, best of luck,

Heather ;)


Professor Angus Wallace,
Department of Orthopaedic and Accident Surgery,
School of Medical and Surgical Sciences,
University of Nottingham,
Queen's Medical Centre,
Nottingham,
NG7 2UH
UK.

tel +44 115 970 9407
fax +44 115 849 3282
email [email protected]
91 Mangled Right knee on trials motorbike
94 Meniscus Repair
95 ACL/LCLrec,notchplasty,bone graft
01 90% Menisectomy
02 Scope
03 ACLrec,LAD
OA,osteophytes
04 Ch'plasty, ACLdeb,Suprapatella mbr ex, haematoma
04 Scope
March 06 Scaphoid op/bone graft
Nov 07 Thyroid Cancer ops x 2, radiation

Offline Mr Snowman

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Re: I Knee-d some divine intervention
« Reply #6 on: November 04, 2005, 11:35:19 AM »
Well, here we go down the same old road again. I've been put on a 13-week waiting list to receive physio, and then, if that doesn't work, my case will go before a panel and they shall judge whether or not I need to have a scan or not.

I did tell the doctor that all previous physio attempts were pretty much non-effective or counterproductive, but I get the impression that there isn't a great deal that he can do. I knew from his eyes when he was poking, prodding, flexing and stretching my knee and I was saying 'ow' a lot that he thought there was something wrong, but I suppose that if you can still walk without being in constant agony, then you're not an emergency. He told me that I should increase my ibuprofen intake as well which I wasn't entirely comfortable about having made them my staple diet for the last 4-5 years.

Gahhhhh.. is it medication and treatment from a Mexican website time?!!? Hah. I think I'm going to have to go private for a consultation, as NHS doctors do have their hands tied by procedure. This is driving me potty  :P Either that or throw my morals to the wind and turn up at A&E as soon as it goes the next time.

If only I'd have done this 4 years ago  :-[

Offline Mr Snowman

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Re: I Knee-d some divine intervention
« Reply #7 on: November 16, 2005, 11:58:38 AM »
An update! I went to the doctor again today (my GP as opposed to her colleague who was standing in) after my knee when *crunch* again on Saturday night, and she's signed me off for two weeks. She seemed to know a little more than the other chap, and after fiddling around a bit said it looked like that I've got a lot of fluid in, around and under the kneecap, and that there's a lot of grinding, which would suggest a cartilage problem. She wasn't happy with the other guy for just suggesting painkillers and carrying on as normal, as it's only made it worse, and has thus signed me off for two weeks with orders to get -total- rest.

It feels like a ray of hope, because at least someone has spotted -something-. She thinks that there's no ligament problem which is a great weight off my mind thank God, and after two weeks' rest and then the physio in a few weeks (which she says is mandatory if you're still able to walk) it'll be easier to assess.

It still hurts and I'm going to go a bit stir crazy probably, but at least she's made me feel that I'm getting somewhere at last. Thank God for the good doctors!!

Offline Natalie.D

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Re: I Knee-d some divine intervention
« Reply #8 on: November 16, 2005, 12:32:37 PM »
Hi,

I would still strongly suggest you push for a referral to an OS, your kneecap is dislocating and giving way for a reason - something is wrong and needs to be looked at by someone who knows what to look for - as a general rule GPs - even really good GPs don't have enough specialised knowledge to properly diagnose orthopaedic problems - the fluid in the knee is more than likely due to the damage being done to your cartilage and ligaments each time your knee dislocates/gives way.  Did your GP suggest RICE? (Rest Ice Compression Elevation), this will help to keep any swelling down and although rest will be good for you I don't think its going to completely solve your problem.  Good luck in getting a referral.

Natalie.
Dislocations since age 12
Trochlear Dysplasia
Maltracking
Hypermobile
LR/MR-failed
TTT, LR, MR L knee 95-Success
TTT, LR, MR R 02-Success
Screws out
Partial tear ACL
Severe end stage OA
4 Debridements
Partial Meniscectomy
Failed Microfracture
11mm Defect LFC
Bone Spurs, Kissing Lesions

Offline Mr Snowman

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Re: I Knee-d some divine intervention
« Reply #9 on: November 16, 2005, 01:36:44 PM »
Well, I've been doing the whole RICE thing when I've been getting in from work and I think I'll just do it for the next two weeks as there's little else to keep my occupied ;)

I did mention getting a referral to her, and she echoed what Dr No.1 had said i.e. I can still walk albeit with slight difficulty and get up and down stairs (slowly) and so any consultant at the hospital won't touch me until I've had their standard physio programme to see if that clears it up first. I told her about my negative reactions to physio in the past, but thass da rulez she said. It's annoying, but it's not the fault of either doctor if that's the procedure. Once I'm having physio and howling in pain though, perhaps it'll become apparent that a referral is needed!

Tbh after so long, a few more months isn't going to hurt, and the pain is tempered by the fact that at least I know I'm -on- the conveyor belt so to speak (and the fact that my whinges are nothing compared to what I've read about what some people have been through on here!), so here's to the near future and perhaps a future without home amputations and peg-legs :)

Offline Natalie.D

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Re: I Knee-d some divine intervention
« Reply #10 on: November 16, 2005, 01:40:52 PM »
Hi,

I really hope the physio works for you this time.  Good luck.  ;D

Natalie.
Dislocations since age 12
Trochlear Dysplasia
Maltracking
Hypermobile
LR/MR-failed
TTT, LR, MR L knee 95-Success
TTT, LR, MR R 02-Success
Screws out
Partial tear ACL
Severe end stage OA
4 Debridements
Partial Meniscectomy
Failed Microfracture
11mm Defect LFC
Bone Spurs, Kissing Lesions

Offline Mr Snowman

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Re: I Knee-d some divine intervention
« Reply #11 on: December 28, 2005, 02:36:44 PM »
Well, it's been a long time coming, but I finally saw a knee specialist today (had to pay in the end rather than a potential 8+ month NHS wait). His initial diagnosis is a partial tear of the ACL, and I've been referred for an MRI in the New Year to gauge the extent of it. He suggested that I may have been carrying it since I really did my knee in a few years ago, but no-one picked it up as they didn't think the injury could've been that bad! At least I can tell the ones at work who call me a whinger to hold their tongues now  ;)

I'm not sure if I'll need surgery post-MRI, as he wasn't too clear. He did say that if it was confirmed then he'd consider putting me under the knife, but I'm a bit apprehensive about such jiggery-pokery. Mind you, if it means the difference between being able to walk and not over the next few years, then so be it.

So here's some insipiration to people who've been through a similar thing : don't give up!  :D

Offline Audice

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Re: I Knee-d some divine intervention
« Reply #12 on: December 28, 2005, 04:15:49 PM »
Wow! What some of you have been through getting to see someone who understands knees. More power to you for enduring the pain & wait.

On the opposite end of the spectrum is what happened to me here in Connecticut. I called my internist & was seen the day after my injury. The doc took one look & recommended an MRI. I asked HIM to please wait so I could see what happened over the weekend.

By the following Monday I realized this injury wasn't going away on its own so called the office & they made an MRI appointment for me for later that week. Interestingly enough someone called from the imaging center to ask if I'd like to come in earlier as there was an opening. A week later I had results & an appointment with a recommended OS. I repeat that I can't believe what some of you have to deal with. Wishing you all the best & a very Happy pain free New Year...Ellie

April, 2005 - ACL rupture, medial meniscus tear within posterior horn to articular surface, abnormal signal within lateral meniscus, partial tear MCL, bone contusions tibia/fibula, Baker's cyst.
No repairs.

Offline Downed Soccermom

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Re: I Knee-d some divine intervention
« Reply #13 on: December 28, 2005, 08:46:04 PM »
Mr Snowman,
hats off to you. I'm writing from the US, horrified to hear what your health system does to you - or won't do for you! I referred my sorry old self, crutches and all, to an orthopedic surgeon within a week of the injury. Glad you got to see your specialist. After all, you do need that knee for many years to come. Just as a note on your terror of surgery - I think most of it is arthroscopic now, which means two little holes rather than a knife. Though your story about trying to get a referral makes me wonder what decade your health system is in...
Good luck, keep us posted!
100% ACL tear, possible meniscal damage
indoor soccer
Time to act my age?

Offline CMSNYC

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Re: I Knee-d some divine intervention
« Reply #14 on: December 29, 2005, 07:44:33 PM »
Mr. Snowman,

I'm also writing to you from the US and couldn't believe the problems you encountered.  I thought I had problems when I first injured my right knee 5 years ago.  I asked my Primary Care Physcian for a referral to an OS and she said, "Let me give you some exercises to strengthen your quads."  That didn't work.  So I switched insurance so I didn't need a referral anymore.  I made my appointment with my OS and he gave me PT for 6 weeks just as a formality to get the insurance to approve my LR 4 months later.

I've had no problem with him getting ready for my Fulkerson's so I'm sorry that you had to go through this.

I will say alot of my friends and family were petrified of surgery for me, but I honestly have to say it went as well as surgery can go.  If I had had a bad experience, I definitely wouldn't be considering Fulkerson.  I think the worst thing is the rehab not the surgery itself.

Good luck!
Former runner
LR Oct. 2004
Fulkerson's TBA in 2006