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Author Topic: Hard to remain optimistic  (Read 3952 times)

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burbn8r

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Hard to remain optimistic
« on: August 04, 2002, 08:43:46 PM »
  I am 3 months post patellofemoral joint rplc after a failed TTT 2 years ago. While the pain and grinding behind the knee are gone I now have intense pain in the lower lateral area of kneecap and surrounding area. When I saw my OS 2 months ago he had me stop all exercises, including PT, except to riding the bike. That does cause pain but maintains the ROM I have. I am still using 1 crutch to get around. I tried using a cane for a couple of days and that didn't work out too well. I spent yesterday on both crutches because the pain was too bad to put any weight on my knee at all.

 My surgeon had said it could take a year for me to fully recover. I have been trying to remain optimisitic but it is hard when the pain has not improved at all as the months pass. While the pain the surgery was supposed to eliminate is gone I worry that there is still something else wrong. The thought of having gone through all of this to need another surgery is extremely depressing.

 Thanks for listening,

Audrey

Offline Georgie

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Re: Hard to remain optimistic
« Reply #1 on: August 04, 2002, 09:35:00 PM »
Audrey~
I am sorry to hear you are having such a rough time.  I don't know much about you type of surgery but I really hope things start looking up.  I wish you the best! Keep us posted. Take care, Georgie

Offline Grace

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Re: Hard to remain optimistic
« Reply #2 on: August 05, 2002, 04:11:19 AM »
Audrey...i feel much the way you do.....when does pain end....wh doesn't therapy help...why does it hurt more ???  But we have to think positive.  I knkow i broke down earlier and put a pathetic post up about my pain and i didn't want to go back to PT....but it is obviously not the answer.
i too worry that there is something else wrong and know there are a few probs we havent' properly addressed.......
if your surgeon says one year....try to give it time....i know that is the last thing you want to hear!  But if he says one year...give your knee time...keep up with doctors appointments and call him and address you rpain and ask all the questions you can!!

I don't know if i have helped or harmed....but if i helped good ...if not, i am sorry.
try not to worry...its bad for you.  if you ever need to alk or vent....i am here....on AOL...grace921216

hope you are feelin' better soon!            - Gracie -
8 months of continuous physical therapy
plica excision/ shaving 6-10-02
5 months of agressive physical therapy
modified Fulkerson and lateral release 5-13-03
currently in limbo

Offline wendy

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Re: Hard to remain optimistic
« Reply #3 on: August 05, 2002, 04:38:12 AM »
I am so sorry things aren't getting better for you!!! I can understand the frustration and the fears of more surgery. The one thing I keep reminding myself is what my OS told me about the kneecap "No one knows a true cure for the pain. It is a mystery!" Knowing this reminds me that it isn't bc I am too dumb to see the real problem, but that it seems to be a lot of things that cause the problem and fixing one many times lets another show its face.

Try to be patient(I know it is impossible at times). Knees are very peculiar and take time to heal. Find something that will make you laugh even if it is just for a moment. I have found that going back to my loves of knitting and reading I can go an hour or so without even thinking that much about the pain and discomfort.

Find a spot that you can scream all you want  to let out your frustration and if need be write a list of questions and problems to ask your OS. Don't let the OS go without getting the answers you need and their true opinion on the matter.

Good luck and I hope tomorrow is a better day!!!

Wendy
began running long distances at age 7. Now I have two knees that have given in to my abuse! 3 scopes, LRs, Patella tendon repositionings, and years of pain. PKR on both. Diagnosed with RSD 3/4/2003.

Offline Cari

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Re: Hard to remain optimistic
« Reply #4 on: August 05, 2002, 05:08:05 AM »
 :'(

Audrey,

I do know how you feel and how hard it is to remain optimistic !!!!!!!!!!! Just make sure you are upfront with your os this week and tell him how you feel physically and emotionally !!!!!

Just rememebr you know how to reach me ALL THE TIME to scream and vent !!

Cari
open lateral release 10/85, various scopes 1994-1998 for debridement, medial release 11/98,  TTT(Fulkerson)& lateral release 11/30/99, screw removal 6/27/00, tibial repair 2/13/01, dx RSD 6/25/01

Offline rhea

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Re: Hard to remain optimistic
« Reply #5 on: August 05, 2002, 07:13:42 AM »
Audrey I can sympathise!  You have been through an awful lot, and after such experiences it is hard to imagine that the next day will be a brighter one.  After 6 yrs I am so fed up with drs who don't care and won't help, tests that don't show anything, long endless car rides, and months and months of waiting I sometimes feel like I'll never have a life beyond knees...and Im only 17!!  But there has got to be more to our lives than making it through each day...  I try to take things one day, hour, or minute at a time.  I set little goals, like getting out in the car once or phoning a friend or whatever for each day based on what I am capable of.  Its hard, and the days and nights are long, but you will get through this, and there will be better days ahead.  

Take care Audrey.  We are all here and understand!


:) :) :) :)
(((hugs)))
:) :) :) :)


rhea  
7 yrs of knee troubles (maltracking, maybe plica).  
Finally found wonderful OS(#4)!
Diagnostic scope+biopsy schduled for sept 23,2003  
HMS/EDS III
Chronic joint pain,subluxations,microtraumas...

burbn8r

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Re: Hard to remain optimistic
« Reply #6 on: August 06, 2002, 06:52:23 AM »
 I just wanted to thank everyone for the support and encouragement.


 Audrey

Offline enuff81020

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Re: Hard to remain optimistic
« Reply #7 on: March 14, 2003, 11:12:53 PM »
Hi Audrey,

Something else to think about is that we don't have to do it all at once--including being optimistic.  Find a few moments in each day that feel good--and work that amount up a bit at a time.  It is nice to let go oof it for even 5 minutes, and that might be a reasonable goal.

I, like so many others, struggle with these feelings.  the nice thing about this board is that it is a safe place to talk about it and there is generally somebody who isn't down under it at the moment that I am--so we get each other through.

Take care, Sylvia
Both kneesOA.
Scope on rt knee,9/00;2/01
scope w/ LR and debridement rt knee 2/02
left knee same5/02
Patellar problems
LeftTKR12/16/02
Right TKR7/14/03
Complications MUA 8/14/03
R TKR revisio

Offline wendy

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Re: Hard to remain optimistic
« Reply #8 on: March 15, 2003, 12:18:49 AM »
Audrey,

I know what you mean about the old pain being aleived, but now there being new pain. My OS really went into the chances of still being in pain after this procedure. I was well aware that I had more problems other than the PFjoint, but that was the worst.

Now we know we will have to go back in to make a few adjustments, but he won't until we get the RSD under control. I am stuck now between a rock and a hard place.

Keep your head up and keep trying to chug along. It is a slow process in recovering so don't give in yet!!!!

God Bless,

Wendy
began running long distances at age 7. Now I have two knees that have given in to my abuse! 3 scopes, LRs, Patella tendon repositionings, and years of pain. PKR on both. Diagnosed with RSD 3/4/2003.

Offline puffingirl

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Re: Hard to remain optimistic
« Reply #9 on: March 15, 2003, 09:02:42 PM »
Wow! I can really relate to what you are saying.  It IS hard tol remain optimistic in the face of all this.  But, that's ok, and nobody expects you to put on a happy face all the time.  I hope you feel like it's alright to feel all the ups and downs that do along with these difficult problems.  And when it's hard to carry the hope yourself, that's the best time to let someone else (family, friends, us) carry it for you, until you feel able to pick it up for yourself again.  Don't know if that helps, but I always find it a relief to remember that I can let go of everything, even optimism, for a while, until I'm ready again.  
Right knee
2000--lateral meniscus repair, partial medial meniscectomy
2002--subtotal lateral and partial medial meniscectomy
2003--diagnostic scope
2009--lateral meniscal allograft

Offline Dotty

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Re: Hard to remain optimistic
« Reply #10 on: March 16, 2003, 11:59:04 AM »
Hi everyone, I have posted most of my messages of encouragement on the lateral tibia spot thingy but reading some of the comments here I thought I would try and give you all some help.
Firstly, be kind to yourself and your injury - look on your pain as someone who is also hurting due to the damage, but who you really want to get to know and love.  Massage your pain areas with the most expensive cream you can afford and take time to "talk" to the broken/damaged bits vowing that you will both get through it together.
Secondly, don't be frustrated at your progress, your recovery time is not for anyone else but you to decide - take one little step at a time.  In my case it took me 43 years to be able to do all the things i can, and now after 4 months of recovery from my injury I expect to do it all??? not realistic, set yourself realistic goals - That little area has put up with so much that we forget we have now got to re-learn all those intricate movements again.
Thirdly, if you want to cry, then cry, but then put your arms around yourself and give yourself a really big hug, you are only going through all this because you are strong enough to do so!!! god (whatever you perceive it/he or she to be) doesn't let this happen to weak people! only strong people who one day will be able to pass on their words of encouragement and support to someone else.
Fourthly, it may help,  keep a diary and on each day try and think of at least one good thing that happened,  it may be something funny like being able to sit down on the loo without having to straighten the leg - but write it down, and then when you read back you will see what a marvelous recovery you are making.  
That is the key, dont expect LARGE differences, they are going to be like letters in a novel not chapters!!!
I could go on all day - but this should be enough.  I would say that lastly visit this site often - everyone on here has been through exactly the pain you feel so you are definately NOT alone, we may be thousands of miles apart, but how fantastic is that, knowing that someone on the other side of the world is sharing your pain and willing you encouragement xxxx take care all - if you feel the need then talk, we are all friends on here regardless of age xxx Dotty ;D ;D ;D
                           
had a row with a ford escort car in local supermarket, sustained comminuted fracture to tibia and fibular 021103 at the point where they join. Bone graft from hip, 3 pins and plate - pt now ongoing

Offline rcb

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Re: Hard to remain optimistic
« Reply #11 on: March 18, 2003, 09:21:31 AM »
Hello,

I understand your frustrations, and agree it's depressing. Try to keep your head up as much as possible, I agree with one of the previous posters. I know it's _extremely_ difficult at times, (it is for me too) but try to remain as patient, and as positive as possible since your doctor did mention it could take up to a year for a recovery. Give it a little time I know that's not exactly what you want to hear, but it's what my doctor told me recently, concerning a set back I had after a TKR too.  Hang in there, I hope things start to look up for you soon!!

Best Regards,

rcb
4-1994 L/knee bone graft
6-1994, & 1-2000 L/knee Arthroscopy
11-2000 L/knee Steroid injections
2-2001, & 8-2002 L/knee Hyalgan injections 
10-2002 L/knee TKR
12-2002 L/Knee Manipulation
1-2012 R/Knee Steroid injections
3-2012 R/knee Arthroscopy (loose Bodies)















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