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Author Topic: Knee pain spreading to other joints (????)  (Read 2562 times)

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Offline lautro

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Knee pain spreading to other joints (????)
« on: November 13, 2005, 04:50:51 PM »
I posted "Someone PLEASE HELP ME" yesterday.  Thank you to those who replied.

I am just wondering if anyone has had similar problems to what I am experiencing.  You see, as stated in my other post, I have been experiencing severe knee pain/problems for about a year now.  I can't squat, bend down, sit with my legs crossed, etc.... without severe pain.

About 5 months ago, this pain was no longer concentrated simply in my knees.  Slowly the pain started to spread to other joints.  Now my toes (baby toe/soutside of my foot), elbows (went bent or extended fully) and some fingers are experiencing the exact same symptoms.  Extreme pain went bent.  My feet and elbows are about the same as my kness.  And one of my middle fingers I can no longer bend at the knuckle.

I was just wondering if anyone knows what I'm talking about?  I'm getting worried that maybe it's not just a knee problem that I'm experiencing.  The doctors that I've seen don't aknowledge that there is a problem or suggest any tests.

Has anyone experienced this?

Offline Nick_Knack

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Re: Knee pain spreading to other joints (????)
« Reply #1 on: November 13, 2005, 06:01:57 PM »
I would go to a doctor. 

You may be having neurological, vascular, orthopedic, etc.... symptoms.

I don't know about Rheumatoid arthritis sympotms, but I know it affects joints.  Maybe get an opinion from a rheumatologist.


Best Of Luck.  I hope someone else has ideas,


Nick
Age: 35
1989 rt ACL (+25 degrees ext loss)
1994 rt ACL resection (+ 10 deg)
2001 rt ACL revision (+ 10 deg)
2003 rt med meniscus repair (+10 deg)
2004 rt LOA and post capsulotmy (zero degrees)
2005 rt LOA and tib bone plug removal (even w/ other leg)
2006 rt Fulkerson TTT & ACI Carticel

Offline maria1985

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Re: Knee pain spreading to other joints (????)
« Reply #2 on: November 13, 2005, 06:04:31 PM »
hi sorry to hear about what you are going through
i don't know anything about what might be wrong you say that its your joints that are causing you the problems, has you or your docter ever mentioned arthritis as i know that effects the joints. you should look into it.
also if you feel that your docter isn't doing everything he can to help you then go get a second opinion because if your suffering then it shouldn't be dismissed.

good luck

luv maria.xxx :)
chronic knee pain since 10 years old.
lateral release in 2000
goldwaithes in 2002
2 weeks intensive physio in 2005
nowhere near to finding the course of the problem.

Offline Doc79316

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Re: Knee pain spreading to other joints (????)
« Reply #3 on: November 13, 2005, 06:28:29 PM »
Hey Laura,

It could be any number of things really and I wouldn't like to take a guess and get it wrong. I think you need to go and see your doctor asap. If you get no joy from him, then you should see someone else and keep going until you find some answers.
Have you considered or been tested for arthritis or RSD? I don't have either condition as far as I know but I am well aware of how agonising, demotivating and demoralising chronic pain can be. It may be worth asking your doctor about these and he could arrange some tests for you.
Apart from that, I'd agree with the responses you've already had. You definitely need a quick medical diagnosis, if only for your own peace of mind so that you know what's wrong and can work at getting better.
Sorry I couldn't be of more help.

Take care,

Laura
Left knee surgery
08/06/02 - L/Release
13/08/03 - Fulkerson TTT
05/06/05 - Stabilisation & Medialisation/Tendon Transfer
13/01/06 - Proximal Hamstring Superior Stabilisation
06/03/06 - RSD/CRPS diagnosed
20/07/06 + 03/04/07- Excision of scar tissue
30/07/07 - PKR suggested by OS (no date yet)

Offline kath

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Re: Knee pain spreading to other joints (????)
« Reply #4 on: November 13, 2005, 08:51:23 PM »
Laura...I agree with the others that you really need to have some testing done to determine the cause of your pain.  It could be one of so many things...RA, RSD, fibromyalgia, lupus, lyme disease (have you been anywhere you may have been bitten by a deer tick?)

The only way to see what is going on is to find a good doctor who knows how to test for all the above and will refer you to a specialist if needed.  He will need to know your history..whether you've had an accident which may be causing problems in your back which is radiating to your extremities.

Good luck.  Please let us know how you make out!

kath
Bi-lateral unicompartmental Nov 2004

Offline DeeDee

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Re: Knee pain spreading to other joints (????)
« Reply #5 on: November 13, 2005, 09:01:11 PM »
Hi Laura, sorry to hear you are in so much pain at the moment, I know what you are going through, as I went through a similar thing myself, I have severe medial osteoarthritis, but I didn't know this at the time when I went to see my doctor.

If your doctor isn't listening to you when you tell him your symptoms, you should get a second opinion,

My doctor was the same, she wouldn't listen to me, then when I was out shopping my leg just collapsed, and I went straight to A&E, and they referred me to my present OS.  I have since changed my GP, and the one I go to now is very supportive.

I hope you get sorted out soon, take care,

DeeDee
*Severe Osteoarthritis, Left knee worn out
*I now need a Total Knee Replacement                             
*16/02/04 High Tibial Osteotomy
*14/11/05 Hardware removal plate and 4 screws
*Now suffers from leg length discrepancy of about an inch.
*15/10/08 Bad fall, ACL Tear & Baker's Cyst

Offline ChrisAngel

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Re: Knee pain spreading to other joints (????)
« Reply #6 on: November 13, 2005, 10:20:27 PM »
Sorry to hear you're in so much pain in there  :-

One of the worst things is a doctor, who doesn't listen. Second opinion might indeed come in handy.
I wish you best of luck to get things sorted out soon!!

Chris
*~
31 young :)
RemovePlica
-L 12/98+R 9/99
RemoveScartissue
-L&R 4/04
RemovePlica&scartissue
-L 8/06 ->R postponed for now (need to find a new surgeon..*sigh*)
*Fibromyalgia+CPS+Acid Reflux+Tietze's syndrome+CFS+depression*

Offline badkneedgal

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Re: Knee pain spreading to other joints (????)
« Reply #7 on: November 14, 2005, 02:31:04 AM »
Laura,
Sorry to hear of your pain.  Get to a good doctor who is experienced in diagnoising RA, Fibromyalgia, Lupus, etc.  My daughter suffered for a long time with pain that our doc ignored.  He made out that it was "in her head".  Finally she was diagnoised with Fibromyalgia, by a new doctor,  and it could be treated as such.  Her symptoms were not exactly like yours but the common denominator is the pain.  The new doctor found that she had ALL the trigger points and she is now seeing a pain management doc.  Find someone who will listen to you and take you seriously.  Good luck! I hope you feel better!
Paula
Osteoarthritis, patellar tracking prblems in both knees, in 1st round of physical therapy
Probable Meniscus tear right knee, Surgery scheduled for 2/3/06

Offline stgiles16

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Re: Knee pain spreading to other joints (????)
« Reply #8 on: November 14, 2005, 12:17:50 PM »
Hi Laura, I agree with all of the others, you need to see the dr. If your GP ignores your pain, get another opinion. I would reccommend that you sit down and write out your symptoms before you go to the dr. I was having strange symptoms and made a list for the dr. It turns out that I have fibromyalgia. Most of us get nervous in the dr's office and forget some of what we want to ask so make a list and include ALL of your symptoms.
good luck and keep us posted.
missy
2 ligament recons right ankle
2 arthroscopic,
5 open knee procedures
2 Plica removals
bone spur removal
2 microfractures
4 debridements
2 open LOAs all on left knee
Arthritis,both knees, ankles, shoulders, elbows, hands,spine
Fibromyalgia
Arthrofibrosis
LOA & PKR 2/15/06
RA
in pain mgmt
TKR JAN 2012

Offline fluttergirl

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Re: Knee pain spreading to other joints (????)
« Reply #9 on: November 14, 2005, 10:52:40 PM »
Definitely find a doctor that will listen to you!  5 or so years ago I had a lot of pain in my 'good' knee.  My GP was good enough to refer me to an OS over the phone.  The first thing he did was get some x-rays and run a bunch of blood tests to see if there were any systemic problems since I had pain in a 'good' joint.

I had a low positive with the ABA test (I think that's what it was called), which can be an indication of RA or lupus.  I also had early stages of OA in both knees.  He sent me to a rheumatologist right away.  That specialist repeated blood work and did a thorough exam.  Fortunately for me, my tests came back negative, and the specialist said the pain was from OA.

With just a simple blood test they can find out a lot of information!  Don't stop until you get answers!
Left Patella Dislocation:  1986, 1988, 1990, 1992, 1995, 2005
LR: 1/94
TTT: 9/23/05
OA in both knees

Offline kittent1211

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Re: Knee pain spreading to other joints (????)
« Reply #10 on: November 16, 2005, 03:53:16 AM »
My husband suffers from simular symptoms and his was diagnosed as gout, which is a form of arthritis.  This may be your problem (or may not) and if it is then it can be treated with medication and diet.  What happens is that we have an enzime in our systems that breaks down uriatic acid.  In some people ( no one knows why) but the body stops producing that enzime.  The acid builds up in the joints and forms crystals.  (If you take a bit of urin and put it in a cup and let it sit and evaporate until there are just crystals in the cup you will be able to see what the crystals look like.)  These crystals gather in the joints and like little pieces of glass, they HURT!!  The condition can be controled by avoiding foods high in acid and protene.  And there are meds that help a lot.  If the acid is not controled it can cause kidney stones.  It may not be gout, it might be something else but if your doctor won't listen to you then fire him/her and find some one else who will listen.  Gout is also way more prevelent in men then women.

Teresa