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Author Topic: Constant Pain after Plica removal--what to do?  (Read 9700 times)

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Offline Grace

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Constant Pain after Plica removal--what to do?
« on: July 26, 2002, 08:01:18 PM »
this is kind of an anatomy question....i will explain/ describe as best i can.  i am trying to identify what part of my knee/quad this is and why it could possibly be causing pain.

okay....the pain is where basically my thigh and my knee meet...jsut above the knee cap.

i had the plica taken out and i have mal tracking.  i have had pain on the medial side and now this...trying to figure it out as i have been discharged from pt.

please someone help me!!! i am pretty desperate....i am almost 2 months post op and i still have so much pain i can't really wolk around.  
Anyhting is apprecciated!                        - Grace -
« Last Edit: April 23, 2003, 08:27:53 AM by PFS_Mod »
8 months of continuous physical therapy
plica excision/ shaving 6-10-02
5 months of agressive physical therapy
modified Fulkerson and lateral release 5-13-03
currently in limbo

Offline Heather M.

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Re: i am disfuntional.. can anyone tell me this is
« Reply #1 on: July 26, 2002, 08:32:59 PM »
Grace,

You've got to see a doctor to do a hands-on evaluation.  There are lots of things in the space above the kneecap that can hurt.  For me, it's the thing called the 'suprapatellar pouch' which as near as I can tell is a part of the knee capusule that collects crap and fluid from swelling.  I've also had adhesions there that were broken up during a manipulation.  In addition, there is a fat pad up there, and there's a tendon that comes up from the top of your kneecap.  There are lots of possibilities, and I'd recommend starting with a complete workup with a new doctor.  You're too young to have this much pain from plica surgery....it's time to stop moping about it and do something to change the situation.  I know it's hard and it takes lots of energy, but at least you'll have some idea of what you're working with.

Heather
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Offline Grace

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Re: i am disfuntional.. can anyone tell me this is
« Reply #2 on: July 27, 2002, 12:07:30 AM »
Heather...i think my biggest prob is that i want them to decide about one prob before i tell them about another.  I have gotten no answer from my PT or OS on why i have the pain on my medial side...so i don't have a lot of faith in them figuring anything else out.  Want a list of what i know i have :
mal tracking
chrondromalacia
removed plica

these are the pains i have :
85% of the same pain as before the surgery
the painful popping
mysterious pain on the medial side (hurts more with   weightbearing)
pain above my knee cap, but under my quad (again, hurts more with weight bearing)

i have done what i know to do.  you say take care of it...how?  I saw my OS a little more than a week ago and he gave me no difinitive answer for my pain and i have a bumbbling idiot for a PT...so i got no help there.  There are points in the day ...usually around 2:00pm where i am in so much pain i am desperate enough to go straight to my OS and demand he figure it out right there and fix me.  

i fear my "good knee" is going bad now, but i will not say anything to them about it till i get relief in the post op leg.  i feel ike i am kind of bothering them...that is the feeling i get when i go in there....like "won't this woman just give up and aceppt her pain and leave me alone".  I am not scheduled to go back till end of aug to see the OS..tired of all this!

New Doc huh?  thanks for the advice! That is one i have been thinking about!                 thanks - Grace
8 months of continuous physical therapy
plica excision/ shaving 6-10-02
5 months of agressive physical therapy
modified Fulkerson and lateral release 5-13-03
currently in limbo

Offline Ross

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Re: i am disfuntional.. can anyone tell me this is
« Reply #3 on: July 27, 2002, 07:49:35 AM »
Grace, we're all disfunctional, it means not working right!  Here's a question out of nowhere, 2pm right?  What do you normally have for lunch?  Have you considered a food allergy aggravating the knee joint as well as the mechanical damage?

Pain is a lot of different things to different people.  Call your local football team, ask who fixes knees and does physio for them.  Get your GP (or change him too!) to refer you to people the footy team recommends.  They do this stuff for a living, an awful lot of other OSs seem to have the hobby mentality.

You want to talk to a couple of real professionals in the field, end of story.  You're never going to have faith in folks that have hurt you and show you no sympathy when you are hurt.  Change them!

Hugs mate, the franchise lives!
I'm a grumpy old bear with a busted knee.  The growling you hear is my tummy rumbling!

Offline Grace

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Re: i am disfuntional.. can anyone tell me this is
« Reply #4 on: July 27, 2002, 07:29:25 PM »
Okay Ross...you want this for a kick in the teeth....a lot of people have given the advice to see who is th e doc for the local football team.......MY OS IS THE DOC FOR THE FOOTBALL TEAM!  

I am looking into seeing a doc in new orleans...but  really do need to see someone else!

I have to wonder....about the food thing...i don't eat any kind of meat other than fish..and very occasionally i'll eat some chicken (white meat)...other than that i eat mostly fruit and vegetables and carbs.

could there be somethign that i am lacking because of my eating habits?  on any given day, this is what i would eat:
no breakfast...cup of coffee or a diet coke
lunch: rice bowl with vegies
snacks: fruit, jello, fruit snacks, or something like that
dinner: beans, pasta, salad, potatoes

i wonder if the lack of meat is may be contributing to my prob...if anyone knows, or has and idea..let me know!

thanks - Grace
8 months of continuous physical therapy
plica excision/ shaving 6-10-02
5 months of agressive physical therapy
modified Fulkerson and lateral release 5-13-03
currently in limbo

Iona_-Uk

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Re: i am disfuntional.. can anyone tell me this is
« Reply #5 on: July 27, 2002, 10:40:45 PM »
I'd be very reluctant to advise that it would be your diet causing your pain, too many things these days are blamed on food allergies and intolerances.

Firstly, you are not dysfunctional, you are in pain and that is your body's way of telling you somethings up.

You must go and get seen by another o/s or failing that, can you pay to see a pt before, I went to a pt before consulting a surgeon and they basically said everything that the surgeon said post-op!. A good pt will examine you and tae a history and try various manipulations before drawing a conclusion, a sports minded physio might also have a different take on your pain and may be able to offer pain management better than a surgeon.

I can understand why you are frustrtaed, no-one seems to be helping you with your problems, things seem to be getting worse yet you have no answers.

You really must find a good orthpaedic surgeon, ask around, ask here! a good recommendation is far better than any brochure or website.

If you are at all unsure about the surgeon to choose, ring their secreatries and ask for some details on their work or even better ask if they can put you in touch with someone of a simliar age who has had surgery and ask if they would mind sharing their experiences.

If you are continually in pain, Grace, what is going to be the worse case scenario for you? pain for the rest of your life or trying to find a decent o/s?, weight that up against a life of constant pain and the unceratinty.

Have you had tests for arthritis at all, and it could still be scar tissues as well and this is probably the worst thing to try to diagnose. It doesn't show on MRI's, it can sometimes be felt but often it is a silent and blind condition.

Get this sorted grace, we're all here for you whatever.

Iona

Offline Grace

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Re: i am disfuntional.. can anyone tell me this is
« Reply #6 on: July 28, 2002, 04:19:31 AM »
Thank you for the kind words and encouragement...the longer this goes on the more it seems i am being believed and helped less.

Heres a question:  is there really any good in trying to get an appt to talk to my old PT to dump every ache and pain on himand try to get him to figure it out?

i am at this point really tired of all this.  I went to the mall with my lil' sis today and i spent, no lie, 30 minutes on the floor of the Gap dressing room...trying not to cry and to convince myself to get up and walk back to the car.

can i get some advice on how to find another OS?  only ones on guru are in new orleans and i don't want to drive into the cresent city.   and my OS is the one for the big college here...LSU and the hockey team and everything else...

any ideas appreciated - Grace -
8 months of continuous physical therapy
plica excision/ shaving 6-10-02
5 months of agressive physical therapy
modified Fulkerson and lateral release 5-13-03
currently in limbo

Offline khaoskat

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Re: i am disfuntional.. can anyone tell me this is
« Reply #7 on: July 28, 2002, 05:57:27 AM »
Grace:


Try goint to the AAOS, they have a physician list.

Also try www.mdhub.com, many physicians have started using this service.  Just type in the state/city and see who's name pops up, then look them up in the phone book.

Also, on yahoo or google try doing the following search

     orthopeadic+surgeon+Baton+Rouge

Also, just trying letting your fingers do the walking through the yellow pages.  Starting calling all the OS, and seeing what they specialize in.



khaoskat

Iona_-Uk

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Re: i am disfuntional.. can anyone tell me this is
« Reply #8 on: July 28, 2002, 01:25:49 PM »
Grace, is there anyone you know personally who had had really successful knee surgery with a different surgeon?, personal recommendations are invaluable.

Ifyou are looking for an o/s make sure you ring plenty and get their literature if possible and maybe speak to them on the telephone before seeing one, the more confident you are in the surgeon the better the outcome will be.

You could indeed go back to your old PT and get a referral to a decent surgeon as they often work in partnership with an os or at least they could give you an idea of what might be worng and once you have an idea it might make it easier to find the os specialising in your problem.

I really feel for you Grace because I know how awful it can be to just be passed from pilar to post and not to have answers. You owe it to yourself to get this sorted to your satisfaction as no-one should have to cope with the amount of terrible pain you are having.

Iona

Offline Ross

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Re: i am disfuntional.. can anyone tell me this is
« Reply #9 on: July 29, 2002, 01:00:12 AM »
Grace, there has been a lot of literature about gluten and wheat allergies and I have first hand knowledge as two of the family are coeliacs with the classic swollen knees and pseudo-arthritic joint pain if they eat normal white bread.  If that doesn't  produce a result try taking the vegetables that you're eating out one by one to see if you may be affected by them, the nightshade group (spuds, eggplant, tomatoes and chillies) can also trigger pseudo-arthritic responses in some people.

I'm not for a minute suggesting that diet is the entire fix but it does seem coincidental that the pain comes on after lunch.  Try leaving the pasta/bread out and substitute rice as your carbohydrate for a couple of days to see if the pain in the afternoon is reduced.  I would doubt that the reduction in meat in your diet is a likely cause, actually it is probably a lot more healthy to eat less than more!  The Oz Cancer Foundation Cookbook that came out about five years ago suggested limiting protein/meat to about three ounces a day and making up the bulk of the meals with carbs and vegetables anyway.  

It may also be worth looking at the physical activities that you perform leading up to the onset of your pain to see if you can isolate anything that may be the trigger.

OK so you went to the footy team and they were as much use as an ashtray on a Harley, what about netball or basketball teams?  They bust a lot of knees too, don't give up on this!  You've put up with all sorts of discomfort already and there's no point in letting some case hardened sob brow-beat you into feeling guilty  because you're hurt and he can't fix it quickly enough to satisfy his bloody accountant.

Regarding the meditation and exercise thing, I tend to follow a routine of Zen breathing exercises that just let me focus on some other thing than being hurt.  The basic twenty short sharp pants like a dog, followed by twenty really deep breaths almost to the point of hyper-ventillation and repeat.  I wasn't suggesting assuming the lotus position!

I had a lazy day yesterday and walked/hobbled over to my daughter's place on the other side of the suburb.  I think that the isolation we all tend to feel at being immobilised by our bloody knees is another part of the tendency to focus all of our thought on this damned thing that used to work just fine but we are now forced to drag behind us.  

I know that a couple of reds and a really great meal with folks I love makes mine feel lots better!  Hugs mate!
I'm a grumpy old bear with a busted knee.  The growling you hear is my tummy rumbling!

Offline Grace

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Re: i am disfuntional.. can anyone tell me this is
« Reply #10 on: July 29, 2002, 01:28:47 AM »
Well...i think maybe the way you read the post may throw you off a little as to what i mean, Ross..... i think it is just a coincidence that the pain is after lunch....i mean the amount of walking around i am doing before then must have something to do with it.  

Admittedly i am doing very little walking.....for like 30 minutes, with breaks in between.....like getting up and showering and cleaning my apartment...things like that.  I can't really stand up very long (5 min. ) without pain.

I am in the midle of the search for a new OS.  I have found one and I need to contact my old PT about wether he thinks he is a good doc.....but then again, my PT was a bummbling idiot!  LOL

I think it is now just a matter of getting thing straight in my head first then going on to a new OS.  I am way too young for all this and i think i need to take on the attitude of "i'm payin' so lets play this game my way".
How rediculous does that sound??

Anywho.....i am going to try and do some breathing techniques people keep telling me to try.  As far as dinner out with friends...always helps.....and the reds...assuming you mean ciggy's ...i got to quit before my wedding in a year...

another thing i have to do is stop putting myself in the position to be in pain.  I know that if i do any walking i will be in pain, but i keep letting myself get suckered into things like shopping....going to friends houses...that sort of thing..

But to finally end this obscenely long post ... i finally fed up and really putting my foot down....not the post op leg, not on my fiances jaw, and not too hard!  I am turning over a new leaf...kicking butt and taking names.

thanks for listening.....Gracie
8 months of continuous physical therapy
plica excision/ shaving 6-10-02
5 months of agressive physical therapy
modified Fulkerson and lateral release 5-13-03
currently in limbo

Offline Ross

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Re: i am disfuntional.. can anyone tell me this is
« Reply #11 on: July 30, 2002, 06:11:52 AM »
Grace, go for it kid!  Life is just too short to put up with stupid people or drink bad wine!  The reds I referred to are of the Cabernet and Shiraz varieties.

I gave up cigarettes for the fourth time nearly fifteen years ago.  That is a serious addiction that makes my CH3 addiction look perfectly normal!   The monoxide in cigarette smoke is VERY bad for your circulation and may also hinder your healing, red wine on the other hand is full of all manner of minerals and anti-oxidants (it's good for you, honest!).  I know how hard it was for me to give up cigarettes, I was consuming forty a day each time I tried, like I said the fourth time it finally stuck!  Here endeth today's lesson, go and sin more appropriately.

I think I may have stumbled upon an appropriate definition of that mysteriously described carpet burn sensation, that's when the velcro on the splint straps rubs the skin off your leg, that's it right?

Be happy Grace, you're working to a deadline now so we can assume you have a plan and a goal, just remember that sometimes it is perception that makes the miracle rather than a clap of thunder and a blinding light.  

Cheers, Ross :D
I'm a grumpy old bear with a busted knee.  The growling you hear is my tummy rumbling!















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