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Author Topic: Any Peroneal Nerve recovery stories?  (Read 469454 times)

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Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #540 on: December 14, 2007, 04:48:31 AM »
Anyone still here?
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline NEWFIE

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Re: Any Peroneal Nerve recovery stories?
« Reply #541 on: December 14, 2007, 05:04:44 PM »
Hi Mom,

I saw your post and figured I would drop a few lines. By the way Mom I just started taking Omega 3 fish oil capsules and apparently there is a benefit from some of the ingredients. In the capsules there is Eicosapentaenoic Acid (EPA) and Docosahexaenoic Acid (DHA) which for me a minimum dose is 500 Mg of EPA and DHA. A friend of mine who is a Anistesiologist said he learned this at a seminar that taking this at the minimum 500 Mg doses of each can help in nerve repair. I am now taking a super concentrate 4 capsules a day which gives me 1600 Mg (EPA) and 800 Mg (DHA).

Hope this helps not only your little girl but anybody that is reading this.

God bless and a big "MERRY CHRISTMAS" to all!

Offline sil

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Re: Any Peroneal Nerve recovery stories?
« Reply #542 on: December 15, 2007, 03:30:45 AM »
Hi everyone,

I have noticed a lot of healing these past couple of months.  I no longer experience the pins and needles sensation and the heightened sensitivity to the nerve damaged area has gone away.  The area is still somewhat numb but I really only notice it when I shave my leg.  I have almost full ROM.  I can ride the recumbant bike and do the elliptical machine at the gym with no discomfort.  I can also lie on my back and bring my knee up to my chest with no pain. 

It seemed like nothing was happening for about 3 weeks at a time and then next week I would notice that it felt less numb and less sensitive.  Sometimes when I test out my knee with a squat it hurts and other times it doesn't.  The other day at the gym I slowly tried to sit on my heels to see if it would hurt and it started to so I stopped.  I asked the physiotherapist about this and she basically said it was because I hadn't been doing those movements and things had stiffened up and gave me an exercise to do to eventually get full ROM. 

I think of you all often and wish you successful recoveries.   :)

Rosa

Offline jcblank

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Re: Any Peroneal Nerve recovery stories?
« Reply #543 on: December 16, 2007, 04:40:20 AM »
I had an MRN study done which revealed nerve damage requiring surgery again post op meniscal transplant 6 months ago. Had had EMGs with no electrical activity and the md had no reason why the nerve damage had occurred.   I am to have surgery again to explore the nerve and free it up with possible nerve grafting this week.  I still have no dorsiflexion motion with no "dragons" or anything happening.  The MRN study was impressive--new technology so im told.  It shows exactly where the damage is.
1995 menisectomy
9/06 menisectomy with resultant blood clot
6/07 meniscal transplant with peroneal nerve damage
12/07 peroneal nerve decompression

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #544 on: December 18, 2007, 09:05:28 PM »
Just wanting to wish you all a Merry Christmas and happy New Year. 
I see the neurologist early next month.  I have made amazing improvements having had a real slow start.  I have my final physio appointment tomorrow.  In a way I feel somewhat dunted by the fact i am on my own now but I am sure that will soon pass as I get into my own routine.  I have good dorsifelexion in both feet now and need to justbuild up strength. 
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline sil

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Re: Any Peroneal Nerve recovery stories?
« Reply #545 on: December 19, 2007, 02:17:13 AM »
Congrats Jacky on your improvements.  I'm very happy for you. Wishing everyone a Merry Christmas and a great New Year.

Rosa

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #546 on: December 21, 2007, 01:14:36 PM »
Hi Everyone!

Wishing you all a very Merry Christmas and a Happy New Year!

Jackie, glad to hear things are going well for you as it has been a really hard year for you. Lets hope you go from strength to strength in 2008.

Hope everyone else is doing well.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #547 on: December 23, 2007, 01:37:59 AM »
Just wanting to wish you all a Merry Christmas and happy New Year. 
I see the neurologist early next month.  I have made amazing improvements having had a real slow start.  I have my final physio appointment tomorrow.  In a way I feel somewhat dunted by the fact i am on my own now but I am sure that will soon pass as I get into my own routine.  I have good dorsifelexion in both feet now and need to justbuild up strength. 

Congratulations Jacky!  Glad to hear of your recovery!  So how many months after the damage did it take for you to now have good dorsiflexion?

And Merry Christmas (US) and Happy Christamas (UK) to the rest of you.

You are still in all of our prayers.

My little girl is still chugging away with no dorsiflexion yet.  Only occasional dragon visits and now oddly the pain has moved to the BACK OF HER LEG.  Did any of you experience this?  We still drive her an hour and a half away to see a specialist in another city.  The specialist did some biofeedback work and thinks that she saw some ability for my daughter to contract her anterior tibialis muscles, just not dorsiflex yet.

Let me know how you are doing
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #548 on: December 23, 2007, 11:31:37 PM »
Jacky - Thats great news you have made awesome progress
To everyone else - hang in there and keep working hard
A very merry Xmas and happy new to you all I hope you all have a great day and hope one day that we all get what we really want for Xmas.
No change from me.
Amanda

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #549 on: December 28, 2007, 03:44:42 PM »
Thank you all for your wonderful messages.  Please never give up hope - I think at times I did, no I know at times I did and wondered whether all this would ever get better.  Mom - in answer to your question I have to say that this started in April 2006 - I have had two operations and differing degrees of foot drop in both feet.  There is now some debate as to what caused the foot drop in the first place.  I know that I have been very lucky and not everyone gets back dorsiflexion.  I was making good progress with the original foot but I slipped backwards when so immobile again.   I still wear a splint for my original leg as I dont always fully clear the ground and have had a few spectacular tumbles and bruises to match.  I use a splint for the other leg when out for long periods, like Christmas shopping.  I am more confident of loosing that splint than I am of loosing the original one but need to build up as much strength as possible. 

I pray for good recovery for you all.  I will let you know how the neuro appointment goes to see why my nerves in my legs object so much when messed with.

Happy New Year and here's a toast to all floppy feet
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #550 on: December 28, 2007, 09:58:24 PM »
Thanks for the response Jacky.

Happy New Year to everyone.

Please pray for my little girl, the next EMG appointment is January 2nd.  I scared silly.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #551 on: December 30, 2007, 07:18:02 PM »
HEY EVERYONE,

been M.I.A for awhile ...how is everyone doing?

Happy Holidays to you all...wishing everyone healthy recoveries in the new year.
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #552 on: January 02, 2008, 03:06:39 AM »
HEY EVERYONE,

been M.I.A for awhile ...how is everyone doing?

Happy Holidays to you all...wishing everyone healthy recoveries in the new year.

Hello Andre!

It's great to hear from you again.

Glad to see you are still checking the board.

Actually, I have a question for you...

I seem to remember you mentioning in a previous post that you used to get "dragon" feelings while you were massaging your leg and/or that you could almost "make the dragons pop out" by rubbing your leg.

I'm asking because my daughter has been having similar events lately, sometimes when we rub her leg she tells us that it's hurting her and that the dragon is back.

Tomorrow morning is another EMG and I'm terrified.  I'm afraid the doctor will be negative again.  It can take very long for nerves and muscles to heal yet the EMG doctor is always so negative with his input.

Just staying calm...

Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #553 on: January 02, 2008, 03:10:12 PM »
Hello all,

Please pray for us.

We just got the last EMG back and there are no more signs of improvement.  The last small bit of improvement was back in May.

I am just trying to stay calm and not cry.

Meanwhile, we are still doing threshold electrical stimulation.  We pray it helps some.

I don't know what to think or feel.  She is only four and a half.

What else can we do?

Did any of you have long gaps of time in your EMGs where no recovery was shown? 
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #554 on: January 02, 2008, 11:48:26 PM »
Firstly - Happy new year to everyone
Mom - I am very sorry to hear that the EMG test results were not positive, but please try not to get upset.  There was someone that posted earlier on that they had two EMGs that showed no recovery but they had actual movement coming back so maybe they are not 100% indicative of recovery???
It must be so hard for you - I know as a mother that you want the very best for your children and would do anything to protect them.  Your Daughter is young and young kids adapt very quickly to physical changes and limitations.  Never give up hope but know that your Daughter will live a complete and full life even if she has to live with the foot drop.  Keep up the treatement and hope for great things for your litte girl. 
I started riding my horse again a few days ago, my hip seems to be holding up OK and the foot drop dosent seem to be to much of a problem.
Is anyone out there thinking about tendon transfers?
Amanda















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