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Author Topic: Any Peroneal Nerve recovery stories?  (Read 469456 times)

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Offline John42

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  • Complete Ruptered Patella Tendon 9 Jan 2003
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Re: Any Peroneal Nerve recovery stories?
« Reply #480 on: August 05, 2007, 05:17:58 PM »
Hi

Well - at this stage, all we can say - be patient - listen to your knee and dont do anything stupid -  it`s going to be a long haul - but it should all turn out for the good at the end.

Best wishes

JohnK/ Manchester UK
Ruptured Patella Tendon January 9 2003
Slipped on black ice.  Manchester UK

Complete Ruptured Tendon

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #481 on: August 06, 2007, 01:56:30 AM »
Hey everyone,

Welcome to all the newcomers to the thread...i hope and know that you will find this thread very helpful in the recovery process and look forward to sharing our experiences with you.

I feel like a newcomer as well...and kind of disappointed in myself that i haven't been on as much as i feel i should. How are things with everyone? i think about everyone here all th time and pray for the best. momm444, i see that there is alot of positive results coming out of the therapy approach you are taking. i never lost hope and never will and i know that your daughter will overcome.

Hamish and Max how are you guys doing?

Jackie hope you are doing well...i read that you encountered some bumps in the road...how have you been?

I keep you all in my thoughts and prayers and hope that recovery is going well.

How is everyones progression? are we noticing Positive changes Negative changes? or nothing at all? i remember when i was going through the stages of recovery (which i still am) i used to try and keep track of of the all the changes and my feelings about each "change" i thought i was going through. so how have you all been viewing your recovery?

Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #482 on: August 06, 2007, 03:18:01 AM »
Hi Guys,

Andre, good to hear from you, I saw the TD the other night, looked great; I'm so proud of you man, congrats on all of your success.

Jacky, thanks for checking in, I know things are rough but you'll only get better, keep that in mind as progress continues.

All others, I'm so happy you're checking in and contributing, I draw a lot of strength from our common injuries and it's nice to know I'm not alone out there.  Eventhough I still have no dorsi-flexion I have started to train very hard again (including running, not jogging but running with my AFO).  I have set a goal to get back on the SWAT team by the fall so I'm forcing my body through the pain in hopes I can get back.  So far so good, I'm sore as hell but I was able to run for twenty minutes straight today, making it about 2 and a half miles.  No time or distance records but the only competition for me is the clock as I have to run a certain distance in a certain time.  It's obviously not easy but as we all know it's mostly a frame of mind.

Please keep checking in and sharing, no need to share progression as I haven't had any for months but share what's going on upstairs and when you feel down let us know, we all have those days.  Seems recently though when I've been trying to flex my shin gets tired, which is kind of new for me as I had no feeling in my shin before, I hope this is a sign of progress.

Take care, keep in touch!

~Max~

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #483 on: August 06, 2007, 10:42:48 AM »
Hi Everyone and welcome to SunnyK8,

Sunny sorry to hear about your injury and unfortunately you just have to be patient. This month I will be my 1 year anniversary of my injury and I am just starting to get some movement back. It is only a little bit of movement but is getting stronger all the time. Outward movement is getting quite good but dorsiflexion is very weak at the moment.

Jackie, sounds like you have had a hell of a time and the water damage on top of everything as well. I hope you are beginning to recover now and starting to make progress.

Andre, good to have you back, and I have been keeping tabs on you and was delighted to see your TD with the first touch of the ball. You got one last week as well but ddin't see that one. When are you guys going to start winning games again? My rehab is going very well and I have started running now. My running was pretty tentative to start with but now I am going great guns and almost up to a full sprint. The only down side at the moment is that the pins they put in to repair my fibula have moved. When I saw the surgeon last it was by about 6mm but I am sure they have moved more now. I see him again at the beginning of September so I will find out then what the story is. They are not giving me a problem at the moment but if they continue to move they will and they will have to taken out. Don't think it is a major op but could do without it.

Mom444, great to hear positive things are happening with your daughter and fingers crossed the improvements continue.

Gordon, Max and Newfie keep working hard and let us know how you are doing.

Amanda, any update on your hip? We are thinking of you.

Hamish



Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #484 on: August 06, 2007, 01:40:34 PM »
Hi everyone,

Thanks to you all for your kind wishes and I will no doubt be back in full swing again soon.  Good news is - I have actually ained some weight this week - I lost just over a stone in weight and really didn't have it to lose I have now put on a couple of pounds so that is going in the right direction.  Consequently I feel fitter and stronger.  I have been exercising my floppy foot to wake it back up again - as you know I had got tib ant movement and started to dorsiflex (and I had the shin skin stinging as well) - after the last three months the foot made the most of the vacation and dropped off to sleep again so it has rudely and abruptly been woken up again.  Actually there is a thing to think about - if laid up in bed the foot will quickly deterioate (I my humble experience)  so I can now stand on floppy foot and partially weight bearing on the othere recently operated leg.  Max - I like the target and I have no doubt you'll acheive it - I also wish to be back on operational duties but set the target for January 2008. 
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #485 on: August 06, 2007, 10:20:28 PM »
Hi All
Mom444 - I agree with you yes lets keep posting and supporting each other
Andre - Great to hear from you again
Jackie - You sound like you are tough so you will get through this and im sure you will make a great recovery
Hamish - sounds like you are doing great, hears hoping those screws stay in place for you.
Max - YOu to are making great progress and sound like you have a great desire to achieve your goals.
To everyone else keep working hard

Anyway no news for me feel like I have come to the end a bit - I know I havnt.
Have not been to the gym for three weeks now as have to rest the hip - hip is feeling better but as soon as I do to much it hurts again.  No one in New Zealand is willing to discuss the hip resurfacing operation with me as they claim im not bad enough yet and they say there is to much unknown about the procedure and its long term effects.  New Zealanders are very conservative.  So this leaves me unable to do much of anything active wise, I will not be able to ride, I cant run and I walk with a worse limp now than 4 months ago - feeling a little frustrated.

Anyway some good news the feeling in my leg is returning slowly - I now have feeling about three quarters way down my leg although it is still altered feeling but feeling so that positive sign

Keep working hard all
Amanda

Offline G_Bronson

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Re: Any Peroneal Nerve recovery stories?
« Reply #486 on: August 07, 2007, 04:35:12 AM »
Hello Everyone,
I hope you are all doing well with your recoveries. I had an EMG last monday and although it did show a very slight sign of life on my peroneal muscles(which i took as being very positive and still am) the Doctor was not positive and still thinks i need a nerve graft at this point. The last two showed nothing and my last EMG was on May 28 which wasnt that long ago. I also saw a surgeon on the same day and he told me that i shouldnt get a nerve graft. It is very frustrating, which i am sure you all know. Feeling wise and color wise I think it is healing, it has improved alot in the last few months.
I also may go to see another specialist in Ontario, i will find out in a few weeks.
The knee is coming along great otherwise its getting stronger everyday, i get out walking and swimming almost everyday in the last two weeks and i am curling 5 times the weight i started with. I just hope i get some signs of the nerve coming back soon
Andre- Good to hear from you again. HOw long before you stoped wearing a night brace? I hope you continue to heal!
mom444- It sounds like you are getting some good results with your thearaphy. I hope your little girl continues to heal.
Jackie- I am terribly sorry to hear of your struggles since your last surgery with the flooding and the infection. I hope the worst is behind you and you have two heathly legs sooner than later.
Hamish- it sounds like you doing well lately, i hope you keep working hard and keep seeing progression.

Everyone else i hope you are doing your best to remain optimistic even though it is not easy. my orthopedic surgeon told me of a woman who had an injury similar to mine and after 18 months she started to get function back. So it may take a while but we wer all reach our goals it we work hard and stay positive.
Take care Everyone! Your all in my thoughts everyday

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #487 on: August 17, 2007, 04:20:32 AM »
Hi everyone

Just a quick question - Hamish you have said your feeling is returning down the leg, is this totally normal feeling? I think I have some feeling coming back but it is not totally normal.

Any progress from anyone?
Thanks Amanda

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #488 on: August 17, 2007, 11:55:13 AM »
Hi Amanda,

Just done a bit of an inspection and can report the following:

1. Below injury site (just below knee) most bits are still numb. Feeling I described was doing the TAP test to indicate at what point I felt tingling in my foot when tapping down my leg. This had been moving down my leg as time went on. Does that make sense.
2. My outward movement of my foot has been getting stronger, and strapping 2 kg ankle wieght round foot to exercise, but not really noticable yet to show when walking without brace.
3. Dorsiflexion is still very weak and ankle weight too heavy to lift so balance my trainer on end of toes.
4. NEW THIS WEEK! Second biggest toes has moved for first time. I have quite perfectly formed feet so this is the one next to my big toe. I know some people have quite odd feet so second biggest toe can be somewhere else on their foot. This toes strangely seems to have normal sensation but big toe still numb and not moved yet.

In summary feeling has not really returned but sensation in my foot has been triggered at an increasingly lower point in my leg until some movement started to happen and this movement is still weak but working hard to strenghten.

Next week , 26th 7.20pm, will be my first anniversary of injury! going on holiday to stay with some friends in Paris for a couple of weeks. Cheap flight and no accommodation costs, think I might splash out on a cake!

Gordon - If there was an improvement between EMG test in May and your last one then that is surely a good sign of recovery so keep positive on that one. Good to hear your knee is getting stronger. have you managed to do any sort of running on it yet?

Hope everyone else is doing well.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #489 on: August 18, 2007, 03:33:43 AM »
Just stopping in to say hello.

Not much new here with us.  I'll admit we've been busy and have been slacking off on doing the "tickle stickers" (EMS) every night and we should be doing the heating pad, but we've hardly had a chance to.  Days are so busy and a four year old wants to just go to sleep at night.  But we are still going to physical therapy twice a week and having the point stimulator therapy, etc.

We have another EMG at the end of the month.  "Dragons" have been pretty much gone but the therapists do say there has been definite recovery and muscle contractions showing all the way along the top of my daughter's calf, but the nerve needs to grow more to get dorsiflexion.

Gordon, I'm glad your doc told you about a person getting recovery after 18 months, because again that seems like a more fair time frame than 12 months.

Hope the rest of you are all doing well.  Keep checking in with updates on your progress.  I still check the board all the time.
« Last Edit: August 18, 2007, 03:36:52 AM by mom444 »
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #490 on: August 19, 2007, 08:35:14 PM »
Hamish
Thanks for that info, I have altered sensation returning down the outside of my leg and when I do tap test I get that feeling in the foot, feeling stops about half way down bottom leg, this is also were I go totally numbe from.  I saw surgeon last week that did the surgeory and he thinks there are signs of recovery? to date he has been the only on with positive feedback. I also received a letter from my nurologist with an update that new research says up to 3 years for the peroneal nerve.  My hip has settled considerebly since stopped at the gym, rode a horse in the weekend, was OK but muscles struggled.  i then fell down  4 steps that afternoon, couldn't believe I do something so silly.  Am feeling very sore today.

Anyway better go clean house.
Good to hear from everyone and keep working hard.
Amanda

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #491 on: August 20, 2007, 10:52:10 AM »
Hi Amanda,

That sounds very positive with the rocovery and that is the same as happened with me. On a horse again and managed it ok, well done! Glad to hear that your hip has settled but please do be careful with steps!

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #492 on: August 20, 2007, 10:00:03 PM »
I also received a letter from my nurologist with an update that new research says up to 3 years for the peroneal nerve. 

Anyway better go clean house.
Good to hear from everyone and keep working hard.
Amanda

Best of luck to you again Amanda.

Did your neurologist say from where he or she got the information about the new research?  Three years for peroneal recovery?  That it interesting.  I would love to see the research.

Take care again,

Mom
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #493 on: August 26, 2007, 10:43:52 PM »
Hello All,
Also a quick sign in - I have just completed another 12 day stint at a rehab centre and due to return in three weeks time so just have enough time to settle at home before I am off again.  The lost movement in my floppy foot after being bed bound for so long is slowly returning back to normal levels.  Please remember that if you are confined to bed for any reason then make sure you wear your night splint to save the calf from tightening back up again and even wneh really poorly get someone to passively mobalise the foot to keep it going - lesson learnt on my behalf as it's hard work and demoralising seeing how quickly it can deteriorate.  I am now putting a good deal of weight through both legs so hoping to be weaning myself off crutches over the next few days.  God Bless you all and praying for good recoveries or the strength to deal with what you have.
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #494 on: August 29, 2007, 04:13:42 PM »
Please pray for us!

We had another EMG study and while it showed more improvement with the nerve itself the doctors is concerned for the muscle.  He says there has been no or little muscle reinnervation in the past four months since her last EMG.

Do any of you know of any other therapies to encourage muscle recovery/discourage atrophy?  Other than EMS?

Some of you have mentioned water therapy but our therapist does not offer that service. 

What about other more intensive muscle treatments?

Hope you all are well.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.