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Author Topic: Any Peroneal Nerve recovery stories?  (Read 469187 times)

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Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #405 on: May 31, 2007, 06:08:33 AM »
Welcome Ellis143
Hamish - Thanks for your post about your AFO, mine is very similar to this.

Do any of you know much about the tendon transfer operation?  I am not giving up on the nerve yet but am thinking I would like to explore my options if it does not heal.
Thanks Amanda

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #406 on: May 31, 2007, 09:38:20 AM »
Hi Amanda,

I found a website that had a summary of the procedure with diagrams etc. Can't remember where I found it but will have a trawl around to see whether I can find it.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #407 on: May 31, 2007, 04:01:26 PM »
Hi Amanda,

In the attached article there are details regarding tendon transfer and you can click on the images which give a idea of what is involved.

http://www.emedicine.com/orthoped/topic389.htm

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #408 on: June 01, 2007, 04:45:35 AM »
Hey Guys, this one too, very informative...

http://www.drnathfootdrop.com/

Hope all is well.


~Max~

Offline ellis143

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Re: Any Peroneal Nerve recovery stories?
« Reply #409 on: June 01, 2007, 03:29:22 PM »

can anyone tell me about the EMG? I think they are going to want to do one the next time I visit the surgeon's office - but I am not even sure of what it is, how it is done, and what it shows.
Feb. 5, 2007 herniated disk at L4-L5 causing foot drop

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #410 on: June 01, 2007, 07:38:32 PM »

can anyone tell me about the EMG? I think they are going to want to do one the next time I visit the surgeon's office - but I am not even sure of what it is, how it is done, and what it shows.

Welcome Ellis and good luck in your recovery!  I hope and pray that things soon get better for you.

I'm not a medical expert, but an EMG is a test where they check to see how much of your nerve is responding and how and where the nerve is responding.  They often do it by inserting a needle into the muscle/limb.  You could google EMG and find more info I'm sure.

We are still just kicking away here.  Not much change since last time, still no "dragon" lately.

I'm starting to worry about Jacky.  Has anyone heard from her?
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #411 on: June 03, 2007, 10:48:30 AM »
Hello All,

I am so sorry I have not been able to be in contact - this is my first few minutes on line and so you guys are the first to hear.  I had the operation at 8.30am on Friday 11th May.  After the operation, which went well and I was told it was a total success, I was on four days bed rest due to very low blood pressure.  From that point all went a bit hazy - I was very poorly.  Well any way I am back now - I was released from hospital after a fortnight and have spent two weeks at a nursing home but have been extended for a further two weeks to make sure I am well enough and safe to be at home.  I will catch up with the posts over the next few days and thanks all for your good wishes and prayers.  I am still on morphine for pain so not sure I will make total sense.  I have turned the corner and headed for total rehab now. 
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #412 on: June 04, 2007, 09:23:34 AM »
Hey Jackie,

Its good to have you back and it sounds like you have had a really hard time over the last month. Keep us posted on your progress and good luck.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline ellis143

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Re: Any Peroneal Nerve recovery stories?
« Reply #413 on: June 04, 2007, 06:51:52 PM »
Hello All :)

I am not sure whether to be excited or aprehensive -- or how I am supposed to feel. Had and appointment with my surgeon (the one that fixed the herniated disk and said that my peroneal nerve was CRUSHED) -- I see him every couple of months just for him to see how things are going. Anyway -- he told me today that he expected a full recovery for me!  ;D :o :o :o ;D -- I don't know whether to believe him or not ....He continue to say that I would have to stay in PT and the progress would continue to be slow -but he didn't see any reason that I wouldn't be back to TOTALLY normal in time. What do you think? I am happy -- but at the same time I guess I know how many times they tell you the badest of the bad and it turns out not to be as bad as they told you --so -- I guess I am just scared that this might work the same just opposite....
Feb. 5, 2007 herniated disk at L4-L5 causing foot drop

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #414 on: June 04, 2007, 08:56:22 PM »
Jackie - welcome back I bet you are glad the op is all over, now back onto the rehab road - you can do it.  Best of luck
Ellis143 - I dont think your specialist would have been so confident if he didn't belive it to be true - I can understand you feeling a bit aprehensive but positive thinking helps the body to heal so keep thinking positive.

Offline ellis143

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Re: Any Peroneal Nerve recovery stories?
« Reply #415 on: June 06, 2007, 05:36:48 PM »
Oh dear-- for the past 2 days I have had quite a bit of low back pain - which I haven't had since the surgery. I know all of you have had knee surgerys and such...so I was wondering if any of you have had the oddity of pain coming out of the blue like this. My surgery was Feb. 5 and have not had any pain (in my back) since then..Maybe it is being caused by the change in my gate as my nerve recovers and the muscles start to respond? I don't know just looking for reassurance I think....Dr is out of town for the next week -- so no luck trying to get info out of him.
 
Feb. 5, 2007 herniated disk at L4-L5 causing foot drop

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #416 on: June 06, 2007, 10:56:04 PM »
Hi Ellis,

I'm sure the whole machanics of the body are knocked out with these sort of injuries. Are you getting any PT as part of your rehab?

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #417 on: June 07, 2007, 06:33:36 PM »
Hey Guys,

I hope you all are well.

For Jacky, Andre and anyone else who as any input, I have some questions for you.

We are in a bit of a conundrum here.  We are in the US so we have a healt insurance plan and that means that we are limited as to the number of physical therapy appointments we can get.  We filled all of our appointments last year and now we have used up all of our availabel appointments for this year.  I'm not sure aobut all of the details, but it looks like we used all the appointments available to us for "this type of problem."

To qualify for more appointments, we'd have to petition for medical necessity and then see if we are approved.

The question is this:

My daughter has had SOME reinnervation but not total recovery.  She still cannot dorsiflex her foot.  The dragon still comes and goes she apparently is still healing and hopefully recovering.  (He made an appearance yesterday, thanks for the prayers!)

I'm wondering if it wouild be better to wait until she can dorsiflex again before we try for more physical therapy or if we should continue with it right away no matter what.

If we don't go back to PT right away, do any of you have advice for what we could be doing to help things along in the meantime?  Of course we are still doing EMS daily, but not much else.

I'm so confused.

Hang in there Ellis, Amanda and everyone else.  We keep thinking of you and praying.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #418 on: June 09, 2007, 08:55:07 PM »
Hi Everyone,

Just stopped in to say keep your hopes up and don't give up; I had a hard week convicing myself of that but I'm getting through it.  It's almost been a year now with the drop foot and no sign of dorsi-flexion, but I'm staying hopeful.

Jacki, great to hear from you and sorry it's taking so long to come around but you know as well as I do these things take time.  Everyone else, keep in touch I love hearing how everyone is doing.

Amanda - I found this article while surfing, seems that's all I do sometimes.  It's applicable to those of us that the affliction is a result of pelvis/hip issues.  Share it with your doctor and maybe he'll get you onto a good neurosurgeon that will clean it up for you.  I had it done and it's a big reason I'm hoping things come around.

http://www.ejbjs.org/cgi/content/abstract/78/6/863

Take care everyone, have a great weekend!

-Max-




Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #419 on: June 09, 2007, 08:56:49 PM »
Hi Mom444

Sorry I cant give you and advise about how the medical system works over there.

I have working with an ostiopath (sure thats not spelt right) and he tells me that the best thing for helping nerve damage in the leg is water theraphy in warm water.  We have a plunge pool in town, it is really deap and you put on a vest so you dont sink and you walk and run in the water, of course your feet dont touch the ground.  I find it very relaxing, good physio on the legs and for about 3 hours afterwards have no nerve pain, apparently it stretches out the nerve really well and the heat from the pool helps circulation with helps regeration as well.  Hope this helps.

Has your little girls muscles in her healing leg wasted away.  I didn't realise until the other day that my ankle is so skinny it is the same size as my wrist.
I had a bad week, I went of my Gavapentin drug and went into drug withdrawl, was very sick.  They started me on it again but it really upset my stomach, which I dont need as this is bad enough from my bowel operations.  I lost 5kg in 4 days it had taken me 4 months to put that weight on so am back to 20kg lighter than before my accident, I get sick of people commenting on how skinny I am. :(
Hope everyone else is doing well.

Thanks Amanda















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