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Author Topic: Any Peroneal Nerve recovery stories?  (Read 478618 times)

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Offline mrs_lady

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Re: Any Peroneal Nerve recovery stories?
« Reply #720 on: November 17, 2009, 06:24:14 AM »
I am supposed to have total knee replacement.  I am extremely knock kneed (GENU VALGUS).  The surgeon said my outer peroneal nerve is stretched and will have to be shortened (decompressed).  Has anyone had this done?  Did it heal?  Was there loss of sensation, movement?  This sould like something to worry about, is it?  I need all the encouragement I can get.  Mrs_Lady

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #721 on: November 22, 2009, 07:13:12 AM »
Hi all, Welcome Mrs_Lady sorry I dont know anything about your condition, usually a nerve is decompressed because there is sensation and movement loss to try and regain some nerve function.

I have in the last two months fractures 4 toes and joints in my foot with foot drop, it turns out that my archilles tendon has become so tight and shortened that when I walk it is putting severe pressure on my toes hence the fractures.  Am waiting to see specialist to find out how they are going to go about lengthening my archilles, I have tried every type of physio, stretching etc but due to the severity of both nerves been damaged I just am not able to stretch it.  Will keep you posted.

Hope everyone is doing well
Amanda

Offline dillman

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Re: Any Peroneal Nerve recovery stories?
« Reply #722 on: November 25, 2009, 07:48:21 PM »
i had an emg and nerve conduction test - the nerve is damaged but in tact.  my ankle is still jacked and i can dorsiflex or plantarflex beyond about 40 percent ROM.  getting an mri today to see what is up with my locked ankle.  ugh

Offline nucci13

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Re: Any Peroneal Nerve recovery stories?
« Reply #723 on: December 06, 2009, 10:30:41 PM »
Hey eveyone, Im new here!!! 

I just had the peroneal nerve release done in my right knee..I have had three surgeries previously that were all meniscus related on my right knee.  In August I was golfing and felt something tear in my knee.  I immediately had pain and limited weight bearing.  Since I have been thru this before I automatically assumed another meniscus tear or cartilage.  I waited two weeks to see if the pain went away but as expected it got worse somedays and better others.  It took me another month to get into my Ortho.  I explained my current symptoms which at the time were pain in the lateral and postlateral right knee.  He suspected peroneal nerve entrapment because I was also getting numbing and tingling in my foot and toes.  The MRI was negative for tears but the EMG showed degression in the right knee verus left knee.  So we scheduled surgery.  I am now one week post op from decompression surgery and have extreme brusing on the back of my knee and more numbing sensation than before.  I have not experienced foot drop at any time.  Can anyone relate to this? ;D

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #724 on: January 02, 2010, 04:51:26 PM »
Happy New Year everyone!

Please keep this thread alive.

Update on my daughter, she is now six and a half and still periodically gets the "dragon" pains.  Still no complete dorsiflextion, but some muscle contractions and tiny movement.  She was just fitted for a new AFO and now complains about having to wear it, so that's stressful.

How are all of you doing?
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #725 on: January 02, 2010, 06:15:36 PM »
Mom444
Sorry to hear that your daughter is struggling with her AFO, I really feel for her they are horrible uncomfortable things to wear.  Thats positive that she is continuing to experience changes and improvements.  I will keep praying for her and everyone here.

Happy new years to you all
Amanda

Offline alanbennett

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Re: Any Peroneal Nerve recovery stories?
« Reply #726 on: January 10, 2010, 09:14:04 PM »
I just(4 days ago) had peroneal release surgery in San Francisco:one night in the hospital, a 12 inch incision, and the surgeon reports that he removed scar tissue on the nerve above the knee and an osteophyte on the tibia-both of which should help. I have to keep the knee up for most of the day for two weeks with an inmobilizer on, but I can manage to walk around the house. I have minimal incision type pain and the nerve kind of pain seems to be reduced, but I am not sure and am also
told operation itself excites the nerve and it will take a while to settle down. We will see. That's the peroneal surgery report of the day!
Alan

Offline Debbie B

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Re: Any Peroneal Nerve recovery stories?
« Reply #727 on: February 01, 2010, 03:04:37 AM »
My peroneal nerve was decompressed on May 20, 2009 - almost a year after the initial injury.  I started physical therapy about a month afterwards when the incision was well healed - this included friction massage, fibular head mobilization, NMES, and a variety of exercises.  I was discharged from PT the end of 2009.  Just prior to my discharge, my PT did biofeedback on my legs and the anterior tibial function in my injured leg had gone from 0% at the start of PT to 81%.  Initially I used and AFO which is at best miserable.  I suggest any dr. that thinks it is a reasonable way to get around try one for a few days - it was horrible.  When I started to get some dorsiflexion back, I quit using the AFO siince it was less obtrusive to trip over my toes once in awhile than to have to walk with the device.

I feel very fortunate that I now have my life back - I am doing all the things I could prior to the injury.  My activity level has gone up dramatically which has allowed me to lose quite a bit of the weight that I gained when I was on the high dose or prednisone (when they thought I had RSD.)  From PT, I have learned a variety of exercises that have improved my balance as well.  I do a home program for leg strength and to continue to improve my balance.

It has been a long and trying road back to normal.  I was persistent and pushy, otherwise I may not have gotten the correct diagnosis and treatment.  So I continue to encourage anyone with a challenging problem to keep pushing for answers and not simply accept that there is nothing that can be done.  Had I accepted that response from my original surgeon, I would be disabled now.

I do dog therapy visits at one of the local hospitals and have gotten to be friends with an orthopedic surgeon there.  He has been intrigued by my case and has taken the time to follow my progress.  He has been quite stunned by the progress and improvement that I have made, apparently not all patients respond to the decomrpession.  Of course PT was a huge part of my recovery as well - it is hard work, I spent at least 6 hours a week not counting what I did at home.  And there is now actually a visible anterior tibial muscle rther than a grand canyon along the tibia.

So depending on the cause of your nerve injury, you can recover.  The hardest part was not giving up.

Debbie B

Offline alanbennett

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Re: Any Peroneal Nerve recovery stories?
« Reply #728 on: February 06, 2010, 10:33:20 PM »
Hi all-
I am 5 weeks out from the decompression surgery and, after a minor complication due to a hematoma,the incision is healed with no problems. I think that I actually have a significant reduction in the original nerve pain and it seems to be improving.There is another type of mild nerve pain that the surgeon says is probably just due to the "beating"the nerve took during the 2 hour operation and it should go away.He says make a judgment after the fourth month. So I am very cautiously optimistic. We shall see!
alan

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #729 on: March 21, 2010, 01:59:06 AM »
Hello All,

I'm just checking in with you.  Still keeping you all in my thoughts and prayers.

My daughter is now almost seven years old!  Still no complete dorsiflexion but some movement.  Still doing TES and surfage emg biofeedback.  Still some dragons.

We are looking into tae kwan do lessons as a possible summer activity for her.  The tae kwan do instructor has worked with kids with neuromuscular issues before and is willing to be adaptive.  Some physical therapists even suggest it.  My mother in law is heartbroken that my daughter isn't a ballerina but we looked into it and they say that with her leg issues ballet is not a good idea.  My MIL and I were sparring a bit over it, because it's her only granddaughter and she wants her to be a real girly girl...  I however want her to not be pushed into any situations that would be inappropriate or awkward.

Ah well...  Still hoping for the best.

How are all of you doing?
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline jcblank

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Re: Any Peroneal Nerve recovery stories?
« Reply #730 on: June 24, 2010, 08:03:31 AM »
has anyone else had any other problems due to limping from there foot drop?  i have had numerous problems in ankle, hip and back after my initial peroneal nerve injury in my knee.
1995 menisectomy
9/06 menisectomy with resultant blood clot
6/07 meniscal transplant with peroneal nerve damage
12/07 peroneal nerve decompression

Offline Designeer

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Re: Any Peroneal Nerve recovery stories?
« Reply #731 on: June 27, 2010, 12:46:44 AM »
My problem may seem minor:

I am sorry it is not peroneal but the people in this thread seem far more knowledgeable than any thread I found in last 2 years!!!

My foot was smashed against concrete, bones, ligaments fixed but nerve damage lingers after 2 years, has grown into a neuroma, I do not want surgery so my question is:

Is the best thing to let nature run its course which is time, nutrition, exercise

OR

should I seek electrical stimulation, and other tests I read about here.  I am afraid of ending up with permanent damage, I have to walk on this foot and the bottom has stabbing pains, two toes feel numb, is swelled up and burns all the time.  Add to that crunching sound of neuroma benign tumor mass as it slides past ligament.

Thank you for any advice.

Offline Debbie B

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Re: Any Peroneal Nerve recovery stories?
« Reply #732 on: June 28, 2010, 04:05:22 AM »
I had quite a few problems associated with the drop foot -  my ankle and big toe were constantly bruised because I kept tripping and injuring them.  And if I had to walk alot, my hip would get very sore from having to compensate for the floppy foot.  The foot surgeon who did my decompression told me that it that they do see other injuiries, primarily ankle injuries, in people with a drop foot.

I have known a few people with neuromas on the bottom of their feet who initially did not want surgery, but nothing helped the pain and when they finally did got to surgery, they got immediate relief.  The longer a nerve is trapped or compressed, the longer it takes to heal and at some point in time the damage may become irreversible.

I am happy to say that my life is back to normal, I don't have 100% function back, but it is pretty close.   I doubt anyone would notice the mild persistent weakness.  The big toe has been the slowest to return to normal.  I can walk and run normally and actually wear shoes again, not just ultra-lite shoes.  It was so miserable to try to put on a shoe and not be able to uncurl my toes! 

Debbie

Offline tmdaniels

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Re: Any Peroneal Nerve recovery stories?
« Reply #733 on: June 28, 2010, 05:09:24 AM »
Hi Jamie,
Our son is 3 months old and was born with a club foot and peroneal palsey in his left foot.  We have met with a pediatric nuerologist and orthopedist.  It is my understandign that the plan is to brace and possibly cast his foot so that it does not grow into a deformity and then wait and see if the nerve regenerates.  I don't know of any of these cases other than your posting.  do you know how I can find out more about this?
Many thanks,
Melissa

Offline rivergirl

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Re: Any Peroneal Nerve recovery stories?
« Reply #734 on: July 17, 2010, 08:19:33 PM »
Can you tell me what you looked for in a doctor.  My son has foot drop and I am not sure where to go to find a good surgeon.. Maybe you could share your doctors name, and I can contact him for a referral in my area.  Anything will help.  Thank you,  Gail