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Author Topic: Any Peroneal Nerve recovery stories?  (Read 469136 times)

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Offline G_Bronson

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Re: Any Peroneal Nerve recovery stories?
« Reply #525 on: October 18, 2007, 10:27:24 PM »
Hello everyone!
I see there are a few new faces here since my last post. I'd just like to say welcome and i wish you all good luck in your road to recovery. I havent been on here in a while. I had a consult with a specialist about a possible nerve graft. I had to travel a half way accross the country to see him but it was well worth it. He was very positive about my signs of regeneration and told he in his opinion he did not think i needed a nerve graft. Needless to say i waas releived. It has not stopped improving but it is a very slow process as you all know. I am still working hard at my physio and this week at my phsyio appointment i actually saw my foot move. it was slight but it moved. Before my physio therapist saw it move but he had to get down really close to see it. The feeling is alot better as well.
The tenile test(tapping) is down as far as my ankle now. I have an EMG on the 29th of this month so hopefully i will see some improvment from my last one.

For all the newcomers My advice is to be patient and find your self the a good physiotherapist.

Mom, Max, Hamish, Amanda and Jackie and everyone else stay strong and my thoughts are with you.
   

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #526 on: October 25, 2007, 02:26:25 PM »
Good luck Gordon!

Yes I wouldn't recommend a nerve graft either if you do have some signs of regeneration.  (But I'm not a doctor, of course).

My daughter has been having some midly painful dragon visits, but not as bad as they were a few months back.

Her physical therapist says that he sees her foot everting outward a bit more and big toe movement during point stimulation.

Still no dorsiflexion (yet, we hope) however the pain and the little extra movement is good we guess.

We still pray for all of you.

Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #527 on: November 10, 2007, 07:18:36 PM »
Hey Everyone ...

Can anybody move anything yet? ... Me, no but just wondering about everyone else.

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #528 on: November 13, 2007, 07:12:26 AM »
Hi Max,
Ten days ago my little toe started to move.  As none of my toes move at all this has been exciting for me.  My physio explained that this movement is controlled by the tibial nerve not the peroneal nerve but this is still a good sign that the nerve is responding from the recent operation.
Hope everyone else is doing well.
Amanda

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #529 on: November 13, 2007, 12:19:15 PM »
Hey Guys,

Great news Gordon and Amanda!

Glad to hear that movement has started to happen. Mine is slowly improving but it is so slow you hardly notice it. Couple of little problems, last week I was bounding over little hurdles at the gym and went over on my ankle and there was a real crack! Seems Ok though but at the time I was almost in tears. It seems to have weakened it as I have almost gone over on it again a couple of times. Also broke my Foot-up and have had to order a new bit. This did however mean I had to do without it for a session at the gym and this sort of highlighted the progress I have made. I still need it but the control of my foot has improved.

Gordon, how did you get on with your EMG test?

Max stick in there!

Hope everyone else is doing ok!

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #530 on: November 13, 2007, 06:22:07 PM »
Hamish excellent news but please be careful as you dont want to undo all the good work!  I call my toe off splint Ethal and I have broken two in 18 months well broke one within two weeks but I think it was a manufacturing fault and the other wore out so I think that is just something that happens - only problem is the NHS doesnt let you keep one in spare.   glad to see you are OK otherwise.  hang in there
Hope everyoone else is OK
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #531 on: November 14, 2007, 12:47:35 AM »
Hi Jackie,

Ethal! LOL! Hope everything is going well with you. I have decided to call my Foot-up Philip.

Philip the Foot-up sounds good.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline G_Bronson

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Re: Any Peroneal Nerve recovery stories?
« Reply #532 on: November 14, 2007, 04:18:42 AM »
Hello everyone,
Hamish i am glad to here that you are still improving. I know exactly what you mean by it being such a dam slow process.
My evertion has not really changed much and the signs of life from the tib ant are still very slight, but there. My EMG did not show anything new. my knee however is greatly improving each week. I am not giving up hope that i will gain close to normal movement back in my foot as will all of you.

Take care everyone!

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #533 on: November 15, 2007, 12:35:43 AM »
Hello All,

Our insurance coverage ran out for the year so we haven't been taking my daughter to PT.

We are taking her to see the pediatric physical therapy specialist from out of town next week.  (Who incidentally is suffering from a rare form of cancer.  Please pray for this woman too.  She's a specialist who deals with injured children and she is a sweetheart.  We pray that she can keep her health.)


The other physical therapist mentioned that there may be a little bit more movement in other parts of the foot, no dorsiflexion yet.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #534 on: November 29, 2007, 05:06:31 AM »
Anyone still here?
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #535 on: November 29, 2007, 11:58:05 AM »
Hi Mom,

Yes still here! Had a bit of a disaster on Tuesday when I sprained my ankle pretty badly. Got an Xray yesterday and no break but my ankle is up like a balloon. Pretty annoyed as things where going quite well and really could have done without this. Was just walking on uneven ground and my ankle folded in under me. Just rest Ice and elevation for the moment.

Hope everyone else is doing well!

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #536 on: December 03, 2007, 02:27:13 AM »
Hamish - thats disappointing for you, hopefully it wont slow you down for to long - glad there is no serious damage.
Mom - Yes we still here, thats sound promosing that the Physio thinks theres a bit more movement, any movement improvement is better than none.
Gordon - I think its funny when these EMG's results come back as no change etc when there is obvious recovery happening, there seems to be alot of people had similar results on this site.

No change from me, I think that sensations are changing slightly but its so hard to tell.  My archilles tendon which has contracted significantly is slowly and painfully getting stretched out with Physio, stretches and maniplulation.  I saw a nother specialist about my hip last week, need a hip replacement but they wont consider it until I have another baby or decide not to, he said that my nerve needs a year also to settle down before they attempt to go in again.

Hope everyone is doing well and keeping there spirits up.
Amanda

Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #537 on: December 03, 2007, 04:24:47 PM »
Hi Mom (and everyone else),

I'm here too and check the site regularily but don't post because I'm showing no improvement over the past many months and I feel I don't have much to add these days.  This time of year I feel a bit disadvantaged because I was an avid hockey player and loved the fall and winter because it meant being on the ice.  If I didn't have the drop foot I'd be back no question.  Although the hip is still healing it would hold up in a pick up game of friendly hockey.  It makes me think about the things I can't do rather than the things I can.  Therefore, I thought it would be a good idea for us (if you'll play along) to make of list of things you can and can't do (as well as things you wonder if it can be done).  This way we can kind of gauge how we are all doing and perhaps someone is doing something we thought impossible.

Can Do (when wearing afo): walk, run (kind of), dance, jump, climb stairs, bike, elliptcal trainer, swim (w/o afo that is), Christmas shop, housewok (unfortunately).
Can't Do : jog long distance, ice skate
Wonder about : downhill skiing (will boot work as afo?), SWAT-ing

I'm sure there are others I'l think of as soon as I post.  If you can think of something please add it so we can all see what can be done and maybe we'll be surprised!

Hammy - I can feel your pain with the ankle, I think we push ourselves a bit thinking that we'll be OK and snap.  Your story is a reminder that we'll have to be vigilant in our recovery.  Luckily it sounds lilke a spain and will heal well.

Have a great week everyone and let us know how you are doing.
-Max-

Offline NEWFIE

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Re: Any Peroneal Nerve recovery stories?
« Reply #538 on: December 04, 2007, 02:34:26 AM »
Hello everyone,

Just figured I would stop in and update you all on whats happening. Well since my nerve graft in May I am getting alot of feeling sensation and tinel sign back on the lower leg about midway down. I had a EMG done a few days ago and they did find a small response from the tib anterior so I have to say its a start. The neurologist said it is very early (6 months) but he was very happy and I was just elated just to get something positive. My physio told me today that she thinks she can feel something when I try to evert so after the past few days I am just smiling from ear to ear and my hopes, prayers and hard work seem to be working. I know what everyone is going through and when this all started after my crash I thought my life as I knew it was over. Well these past couple of months I have been working very hard on my recovery and have been looking up instead of down concentrating on my foot. Doctors told me I probably would not walk again but now I walk without any aid for the exception of my foot-up and with very little limping. The ortho that I go to now said after looking at my MRI's and X-rays that the only thing keeping my leg together was the skin and he is amazed that I am able to walk. My injuries were ACL, PCL, MCL, Tibia Plateau, Complete tears to my hamstrings and complete tear to my Perroneal Nerve and they said I was very close to severing the artery in which they would have amputated my lower leg. I now have 135 degress of flexion in my knee and my aim is 145 to match my good one.

I now take lots of vitamins and am keeping focused on a full recovery. I spend alot less time concentrating on my foot-drop as when I did i got depressed and I know this took away from my healing.

EVERYONE! I know its hard but keep focused on life and not "what ifs"

My Prayers are with you all!

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #539 on: December 04, 2007, 02:44:41 AM »
Thanks for the prayers Newfie and everyone else. 

It's comforting to check in with you guys because from time to time I still get sick with worry for my little girl.

We are still doing the overnight TES (threshold stimulation) unit and hoping and praying for the best.

We will see the therapist one town over this Friday. 

Keeping you all in my prayers and count your blessings and don't get discouraged.

Remember also, a lot of those research studies I found about this injury said full healing could take YEARS.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.