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Author Topic: Any Peroneal Nerve recovery stories?  (Read 469148 times)

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Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #510 on: October 01, 2007, 03:55:49 AM »
Hi Everyone,

No real news here; SWAT put on hold as I've been advised by doctors to wait a few more months, which is discouraging but I'm learning that some things are just out of my control.  The drop foot is still at the same stage it was months ago, and although I remain hopeful; things again are discouraging.  If only I could get a little glimmer of hope every now and then but alas, no dorsi-flexion no matter how hard I grunt and try.  Went and tried a number of different AFO's the other day in an effort to find something that fits in my shoe a bit better but the AFO I have now seems to be the only answer for a close to normal gait.  I've run out of research material and am beginning to research the tendon transfer as it may be  my only hope of losing the AFO next year sometime.  Doctors remind me to be patient but its been 16 months with the drop foot now and no signs of recovery other than a decrease in that dragon (which still bites every now and then).  If I don't see a marked improvement by Christmas  / New Year's I don't think it'll come around.  Frustrating as hell because the origin or my troubles (right hip) feels better every month and I'd be doing everything I ever wanted to but the drop foot prevents me from feeling and acting normal.

Well I Better let you go.  Drop a line tell us how you are, we've been letting go of this thread and it's been a good outlet.  Hope everyone is hgaving a good fall and you're having a little more success than me ............

-Max-

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #511 on: October 01, 2007, 04:43:50 AM »
Max,

Look into the TES stimulation to condition the muscle while the nerve hopefully grows back.

Google "therapeutic muscle stimulation"...  Sometimes the T is threshold.

Our American insurance doesn't want to pay for it but maybe Canada and the UK are better.

Also, do the vitamin B supplements.

Best to you all.

With love...
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #512 on: October 01, 2007, 02:30:45 PM »
Hey Guys,

Glad to hear from you. Things with me are going well and I continue to see inprovements with the movements in my foot although it is very slow and fustrating. I still wear my AFO  as my dorsiflexion is very weak. Max, I started to see movement coming back after about 11 months from the time of injury and my injury site was my knee. I also have the added benefit of being very short so regeneration didn't have to go that far. I have spent my life thinking of good things about being short and this is another one. Your recovery has to travel a bit further so don't give up yet.

Hope everyone is doing well and keep us posted.

Cheers
Hamish

Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline sil

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Re: Any Peroneal Nerve recovery stories?
« Reply #513 on: October 02, 2007, 02:07:26 AM »
Hi Mom444, Max Pwr, Hamish & everyone else:

Not much new at my end.  Still have to wait until middle of March before I can get in to see the knee specialist.  Area to left of knee still numb.  I read in another posting of someone who had an ACL reconstruction and ended up with about 5 inches of numbness on shin.  They noticed that no goosebumps formed in the numb part.  Also their numbness is down to about 2 inches now so that is encouraging for us that the nerves did regenerate.  I decided to check my knee the next time I was cold and noticed that goosebumps formed even on the numb part so I hope that is a good sign.

A few weeks ago when I went for a walk I quickly lifted my left knee up as high as it could go a couple of times.  It hurt each time.  Last nite my cat attacked my foot while I was sleeping (maybe thought it was a mouse LOL).  As a reflex reaction, I quickly yanked my left leg up to get it under the covers and prevent further bites and scratches.  And to my amazement it didn't really hurt.

In another bulletin board someone mentioned that one of the top doctors in the US for peroneal nerve damage is Dr. David Klein in New Orleans.  I know nothing about him as to recommend him or not recommend him but I just put the name out there if someone is interested to do some research on him or contact him.

Max - sending you healing thoughts and hoping you see improvement soon
Mom444 - hope your daughter gets good results with the TES
Hamish - so glad to hear of your ongoing progress

Anyone:  I am wondering the numb areas of your foot or leg do you feel any sensation at all (say for example if you rubbed your fingernail over it) or is feeling just dead to the world?

Rosa

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #514 on: October 07, 2007, 07:37:58 PM »
Hello All,

So sorry about the very long delay but i have been back into rehab away from home and very inyensive - good news is that i am getting stronger and off crutches and on sticks outside only now.  Bad news is I have a splint for both feet at the moment although the other leg is moving and has dorsiflexion and is only numb along the outside of my leg but i do have feeling on the top of my foot. I think it may just be weak muscles at the moment.  I see a neurologist fairly soon to find out whats going on.  Also my reflexes in my knee and ankle are very weak - does anyone else have this as a symptom?  Best wishes to you all
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline Progressive

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Re: Any Peroneal Nerve recovery stories?
« Reply #515 on: October 15, 2007, 02:52:19 AM »
Hi.  I'm new to this forum and am in need for answers.  I suffered a hang gliding accident on July 7, 2007 where I nose dived in from 150 feet and broke my tibia plateau and had a plate installed.  I broke my pelvis in five places and have plates put in on the entire front and left buttocks.  I have a compression fracture on my L1.  Broke my ribs.  Punctured my lung and lacerated my liver.  I have paralysis below my knees with some feeling.  I have nerve damage, but no spinal cord injury, per my EMG.

Question:  What can I do to regerate, or repair my nerves in order to walk again without AFOs, or foot drop, and have feeling back in my calves and feet?  I do have needles and pins type of feeling on the bottom of my feet from time to time, especially after having sex, or going to the bathroom.  Strange.

Pete

Offline sil

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Re: Any Peroneal Nerve recovery stories?
« Reply #516 on: October 15, 2007, 03:32:27 AM »
Welcome Pete,

Wow, you've been through a lot.  About all I can tell you is that nerves heal approximately 1 mm per day or 1 inch per month and possibly even slower if further away from the blood source.  My doctor told me that physiotherapy wouldn't speed up or help my recovery and that it should heal on it's own.  Told me not to sit cross legged, wear tight boots or apply pressure to the area i.e. have it resting up against a wall, etc. and be very careful not to bang it.  Told me not to rub damaged nerve area for example don't rub moisturizer into the area.

You may find it helpful to read the posts from page 1 especially from Andre as he has given a detailed description of his treatment and progress.  I wish you well in your recovery.

Rosa

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #517 on: October 15, 2007, 04:42:15 PM »
Hi All
Sorry it has been so long since I have been in contact but do I have story for you all.
Firstly welcome Pete - I thought I had been through alot but nothing compared to you.  Hang in there the body is an amazing thing at healing.  In regard to your questions I have both tibial and peroneal nerve damage, tibial is the nerve that is giving you the pins and needles feeling under your feet I believe and it is also the nerve that controls your bladder and your sexual organs hence the feelings after sex and using the bathroom.  I have foot drop on my left side as a result of broken pelvis and hip joint 14 months ago now.  Hang in there it is a long road and I wish I could find away that we didnt have to wear that terrible AFO´s I look forward to the day I can burn mine.

Anyway I am currently in Germany Cologne hence my absence from the forum for a while.  I have been here for 1 month and am due to fly home Thursday, cant wait to see my little girl.  I have friends here that put me onto a Professor Pennig who specialises in nerves, I sent him my records and he said he thought he could help.  After several long weeks I made the decision to spend the money leave my family and come give it a shot as I could not find anymore help in NZ.  It is 2 weeks since my surgeory.  He performed surgeory on my sciatic nerve, repositioning, decompression and microscopic neurologist sorry about the spelling.  When he went in he found that my sciatic nerve at the hip was stretched around one plate in my hip and then rubbing on the second plate so every time I flexed my hip it was getting compressed agains the plates.  His opinion is if I had not had the surgeory in time I would have lost full use of the sciatic nerve not just the two parts that are already damaged.  Since the operation my nerve pain has reduced significantly and I have more feeling returning.  They have been doing electronic physio everyday and my foot and big toe are moving with the shocks.  I saw the professor today and he thinks he can feel a little flutter from the muscle when I try and move my foot up - early days yet.

So now I will return to NZ with my photos, reports and experience and do battle with my medical insurance to get some money back.
I will be back in NZ Saturday so will be back on line.

To everyone else I hope you are all well and I am thinking of you all everyday.
Kind healing thoughts to you all as always
Amanda

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #518 on: October 16, 2007, 12:13:36 AM »
Just saying hello.

Welcome Pete.  As was said, reading over old posts on this board should be helpful.  Good luck in your recovery.  Take vitamin B supplements and try electric muscle stimulation if your therapists think it will help.

Not much new here.  We are still doing TES.  I haven't had time to call our insurance company to protest their denial of treatment.  Oh well...  There IS a lot written about it in the medical literature.

My daughter still cannot dorsiflex but the dragon pops in now and then still so I hope that's a good sign...

How is everyone else?
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline Progressive

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Re: Any Peroneal Nerve recovery stories?
« Reply #519 on: October 16, 2007, 04:57:38 AM »
Thanks for the input.  Nothing new here.  I forgot to mention I also broke my shoulder in two places as well.  When they life flighted me into the U of U hospital, in Salt Lake City, Ut, I remember looking up at the doctor and he simply said, "Your Humpty Dumpty, and we're going to put you back together again."  I was so doped up on Morphine, that when I heard this, I realized very clearly that I was seriously messed up and I was going to be there for awhile.

Thank God I survived!

Pete

Offline jcblank

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Re: Any Peroneal Nerve recovery stories?
« Reply #520 on: October 16, 2007, 06:11:23 AM »
I too have peroneal nerve injury from knee surgery in june resulting in drop foot with no dorsiflexion.  I have eversion and inversion but have been told that I am wired differently so that is why I can do those motions.  I have severe pain everyday/all day.   I am currently waiting for doctors to decide about surgery to explore the nerve and fix if needed i presume.  Has anyone had their nerve reattached or grafted?  I am hoping to get rid of the pain.
1995 menisectomy
9/06 menisectomy with resultant blood clot
6/07 meniscal transplant with peroneal nerve damage
12/07 peroneal nerve decompression

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #521 on: October 18, 2007, 01:58:25 AM »
Welcome again Pete and welcome JC.

I see Pete is American, that makes two of us now  ;)

Where are you from JC?

There could be a chance you may only need neurolysis (removal of scar tissue from the nerve) if your nerve was not completely ruined...  Grafting or reattaching, from what I have read, is only for extreme cases.

If you read the earlier post you will see that myself and the others have done a lot of research on this.  There are a few articles about people who had these problems after knee surgery.  If it just happened this past June, have them explore the nerve ASAP!  There is a better chance for recovery if they catch it sooner.

Good luck to all.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline sil

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Re: Any Peroneal Nerve recovery stories?
« Reply #522 on: October 18, 2007, 03:28:20 AM »
Welcome JC,

I had severe bad pain due to an injury years ago.  It was so bad I couldn't sleep at nite.  I thought it would never go away but eventually it did.  I am hoping and praying your pain will go away also as I know how it can wear you down and drive you to the brink of insanity. 

Rosa

Offline jcblank

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Re: Any Peroneal Nerve recovery stories?
« Reply #523 on: October 18, 2007, 06:36:52 AM »
i am from the US.  i have my ortho doc and emg doc both agree that i need the nerve explored.  they will probably send me out of state to have it done by a specialist.  i am waiting for the phone call.  we are not sure if the nerve was cut or what as i had knee surgery and woke up with the nerve damage.  i am having excruciating pain most hours of the day and walking is almost unbearable.   according to the emg i have no muscle nerve innervation to pick my foot up.  i just cant wait until the pain is gone --or i will be happy if it eases up.  i cant work as i was on my feet most of the day and lost my job because of it as my medical leave was up.
i was just wondering what an exploratory surgery entails.  i dont want further surgery but i may have to to help.
1995 menisectomy
9/06 menisectomy with resultant blood clot
6/07 meniscal transplant with peroneal nerve damage
12/07 peroneal nerve decompression

Offline sil

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Re: Any Peroneal Nerve recovery stories?
« Reply #524 on: October 18, 2007, 06:28:37 PM »
Hi Mom444 and everyone else,

Amanda good to hear from you.  I was worried about you cuz you hadn't posted in a long time.  So glad your surgery is giving you some positive results and pain relief.

I went to physio yesterday as mid March just too long to wait to see specialist.  She had me lie on my back and then she pushed in on the outside of my left foot and asked me to resist her pressure.  She said it had improved from 2 months ago.  Then she did the right side which was stronger than the left but it's encouraging that left is stronger than it was before.  Gave couple of exercises to  do to further improve strength.

She also tested my left knee and said I almost had full ROM.  When she pushed for the last bit it felt wierd.  It's not a sharp pain just feels like the knee is going to give out.  Physiotherapist said it most likely is the superficial peroneal nerve over the head of the fibula which hurts and then the muscles just relax as a defense mechanism cuz they don't like it when it starts to hurts.  This is what is causing the feeling that my knee is going to give out if I was to squat, sit on my heels, when I start to stand up when I get out of the tub or if I pull my knee to close to my body.  Physio said this is not causing any damage which is very reassuring and puts my mind at ease to finally know what it is.

I've also noticed that the numb area is less sensitive than it used to be.  Physiotherapist said I should notice an improvement in the numbness over the next 3 months.  Yeah!!!  I hope these are words of encouragement to you all and that improvement can happen but that these nerves are just so darn slooooooooooooooooooooooooooooooooooooooooooow that if you focus on day to day, improvement may slip by unnoticed but if you look back weeks, months ago progess has been made.  I believe Andre kept a day to day journal so he could look back and see how far he had come with all of his hard work.

Rosa