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Author Topic: Any Peroneal Nerve recovery stories?  (Read 469137 times)

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Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #465 on: July 16, 2007, 11:11:14 PM »
Welcome Newfie and good luck on your road to recovery!  We are very supportive on here with both information as well as moral support and spiritual guidance.

Still no movement with my daughter's foot but the therapists do get muscle contractions during stim therapy.

Congratulations on the movement Hamish!

Hang in there Amanda, Max, Gordo and everyone else.  We are thinking of you and praying!
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline NEWFIE

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Re: Any Peroneal Nerve recovery stories?
« Reply #466 on: July 17, 2007, 03:17:28 AM »
Hi all,

Amanda  -  Try to keep focused and don't give up! Yes, life does go on and trying for another baby I think would be a great idea. Me and my wife are going to start again in the near future and I'm not going to let this foot drop put our lives on hold either.

Hamish  -  Great to hear you got some movement, I am so happy for you!

Gordon  -  Looking forward to the end of the month when you get your EMG! If you want the phone number for the plastic surgeon in Halifax give me a call ,I know he is in his clinic every Monday.

Mom  -  Please say hello to your little girl and let her know we are all thinking about her.

I pray and have faith that everyone on this forum will have positive returns as long as we keep focused on success!

NEWFIE

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #467 on: July 23, 2007, 01:52:45 AM »
Hamish - Thats great news, I am sure you will get it back as you are working so hard
Newfie  -  Thanks for your words on encouragement

I had X-Rays last week on hip and pelvis and neither was good news, I have considerable wear on the hip joint already and my pelvis bones in the front have moved a noticable amount, am waiting for report to come back once all my previous X-Rays have been reviewed, I am sure I must be due for some good news soon.

Keep working hard everyone
Amanda

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #468 on: July 25, 2007, 03:28:43 AM »
We'll keep you in our prayers Amanda  :)
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #469 on: July 25, 2007, 09:28:28 PM »
Amanda,

Good luck and let us know how the results come out.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #470 on: July 25, 2007, 09:52:32 PM »
Hamish & Mom
Thanks for your encouragement, I got results back yesterday and it has been confirmed as athritus, because of the short time frame that it has happened in it is quite serious, waiting to see a specialist at the moment, apparently the unstable pelvis is not a huge concern at this stage.
Will keep you all posted.
Hamish - anymore movement?  I hope so.
Amanda

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #471 on: July 25, 2007, 10:14:32 PM »
Hi Amanda,

Thats not great news but hopefully they can do something for you. On the movement front outward movement is improving slowly but dorsiflexion is just a flicker at the moment. Can't move it sitting as gravity is too much for it but lying down I can get a little movement.

Good luck
Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #472 on: July 25, 2007, 11:36:22 PM »
Hi Everyone,

Amanda, I went through the same thing so I know how frustrating it can be.  Hang in there and they can do amazing things to pelvis' and hips these days.  A quarter of my pelvis is some dead guy's that I'll meet in the next life, I'm sure he'll want it back. 

Ham, Mom, Gordon, Andre, Newf and anyone else I've miised  - I think of you often and include you in my prayers.  No dorsi-flexion here at all still but am still getting by one day at a time.

Jackie - haven't heard from you in a bit, how's recovery going?

Take care all, will write more when I get a chance.

~Max~

Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #473 on: July 26, 2007, 03:56:31 AM »
Hey Guys,

I saw a news article the other day on the effect of injecting botox into the calves of people with stroke symptoms and MS.  Interestingly enough studies have been done for those with foot drop as well (common symptoms of MS and stroke sufferers).  I've pasted a study, interesting reading ...

" Ten patients with spastic drop foot were treated by local injections of botulinum toxin A (botulinum toxin A haemagglutinin complex). The purpose was to improve stance and gait and/or to facilitate physiotherapy and patient care. Various calf muscles were injected using EMG guidance. The average dose used was 23 ng. Prior to and 4 weeks after treatment, positions of the upper and lower ankle joint at rest and the corresponding end positions of passive and active movement were determined. In addition, changes of spasticity and pain, the transmission phenomenon and stance and gait were evaluated. Most patients showed improvement of some aspects of the spastic drop foot. Positions of the upper and lower ankle joint were improved in most of the patients, as were the other para meters examined. Except for weakness of the injected muscles no side-effects were observed. The results appear promising and may be optimized in further trials by using higher doses of the toxin."

Thought I'd share.

-Max-


Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #474 on: August 01, 2007, 05:16:49 AM »
Just checking in...  Noting new to report here.  Worried about Jacky, she wasn't in the flooded part of England, was she? 

If you're out there, let us know... 
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #475 on: August 04, 2007, 04:53:49 PM »
Please guys, let's keep this thread alive!  Post away and let us know how you are!  Please  :)
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #476 on: August 04, 2007, 08:20:16 PM »
Hello All,

I am so sorry I have not been on line for such a long time - after I last posted I said I had an infection - well I had a real bad infection and it literally knocked me off my feet and confined me back to bed. Consequently I have alot of muscle wastage on both legs and now really have some hard work in front of me.  I have been very fortunate to get the the physiotherapist and hydrotherapist I had last time back again - I am really happy about - although I am not sure they share my enthusiasm!  Still I got into the hydrotherapy pool and had a right shock as I honestly thought the water would be enough to stabalise me so I could walk in the water.  I had a rude awakening!  Still I have been that far back before and can get back to where I was before.  Mom444 - I was in an area affected by the flooding 15ft in the High Street in the town but I escaped any real damage although I have had a water leak whilst in hospital that pulled the dining room ceiling down (which was to be my temporary bedroom) so have had that to contend with as well.  The works on that were delayed because of my infection.  Still all that is now behind me - next week I have two weeks R&R at the nursing home again to try and build up my strength and body weight again so I can start physiotherapy in earnest.  Sorry about the long post  - but that is my update.  I am pleased to here hamish's news and that everyone continues to look in. 
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #477 on: August 05, 2007, 05:39:37 AM »
Jacky,

We missed you!  Glad to know you are still around  :)  So sorry to hear about your infection and also the flood damage.  Hopefully things will improve soon and you can relax.

The latest news with us:  Well it has now been exactly a year since my daughter's surgery and her therapists seem to think that the roughly "one inch a month" theory of regeneration is true.  During point stimulator therapy, they say they see muscle contractions on the front of her leg going about 10 INCHES down from the point of the injury/surgical site.  So that's good!  No dorsiflexion yet.  The one younger therapist says that it will still take probably at least six months until the nerve could recover onto the top of her foot and then allow for dorsiflexion.  So let's pray that things progress.  The dragon, sneaky little bugger, not as obvious lately.

Hope you all are well!  Post!  Post and tell us!   :)
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline SunnyK8

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Re: Any Peroneal Nerve recovery stories?
« Reply #478 on: August 05, 2007, 07:01:15 AM »
Thank god for this website.  My sympathy goes out to everyone who is suffering and I pray for all of you to recover. 

About 2 weeks ago I went through my own injury-stretching and high sugar led to left foot drop.  I just went to get my EMG yesterday and the results say that it will take 6 months to a year for recovery-that I actually had a mini-stroke of the nerve and that it was heavily damaged.  Needless to say I'm terrified in my own way of having to be patient and the whole "one inch a month" theory still is hard to believe-sometimes i wish I had broken my leg rather than done something like this.  I have a temporary ankle brace but will be getting a custom one in the upcoming week or so-walking is a challenge but it could have been worse im sure. 

Any advice from anyone out there?  anything would be appreciated...

Offline NEWFIE

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Re: Any Peroneal Nerve recovery stories?
« Reply #479 on: August 05, 2007, 02:37:11 PM »
Hello all,

I am so happy to have found this forum and like Mom444 said, DON'T LET THIS THREAD DIE!

I just want to update everyone and start by saying I am 2 1/2 months post nerve graft surgery and I am getting the dragons in my foot and the right font of my right leg sometimes feels like it is on fire. My peroneal nerve graft was done with 10cm piece of harvested sural nerve from my injured leg and grafted on the outer side of my knee on May23/07. I am know able to tap on the underside of my leg almost halfway down my calf muscle and feel sensation down in my foot which lasts for about 5 - 10 seconds. I sometimes feel a bug bite or needle sensation at the top of my tib anterior muscle and I was wondering if this was some sort of sign that the nerve is trying to conect the muscle.

I go for my EMG aug 21 and I am quite nervous.

I pray and hope all is well with everyone and look forward to hearing from anyone with any input.

Thanks, NEWFIE