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Author Topic: Any Peroneal Nerve recovery stories?  (Read 454620 times)

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Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #330 on: April 10, 2007, 06:37:12 PM »
Don't worry Hamish - this is a perfectly normal sensation and is very common where the nerves have been disturbed - well that was what I was told by my GP.  You can sometimes get that sensation when not icing - I still get it. 
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline Max Pwr

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Re: Any Peroneal Nerve recovery stories?
« Reply #331 on: April 15, 2007, 08:36:40 PM »
Hello Everyone,

I'm wondering what are the most comfortable shoes to wear when donning the AFO? I've been transferred to robbery/homicide and I will soon have to wear dress shoes to work everyday and I'm wondering what kind to buy.  I have good days and bad days with the shoes I wear now, seems my big toe just gets sore as hell when I wear a certain type of shoe, does anyone else have this issue or am I unique?  Any suggestions would be great?  By the way, how is everyone doing?  Me, I'm doing well, still a bit sore from the recent surgery but getting better, no sign of dorsi-flexion yet but I just have this tiny voice telling me it won't be long now, I'm hoping it's not lying to me. 

Hope everyone is having a great spring!

~Max~

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #332 on: April 15, 2007, 09:16:41 PM »
Hi Max,

Most comfortable for me when wearing my AFO is trainers but these are obviously no use for work. I too get the soar big toe thing but this is generally because the AFO takes up room in the shoe and therfore puts pressure on the toe. I remembered I had bought a pair of shoes that were too big for me and had thrown them in the closet and never worn them and they are perfect for the AFO as they give my foot a little extra room in the shoe. Have to be lace up shoes.

Not sure if any of that helps.

Things with me are slowly improving as far as my knee is concerned and now at the gym every day and now able to pedal away on the bike. No movement in the foot yet but like you I have that little voice telling me something will ahppen soon.

Gordon.  Have you had any more movement after the twitches you had?

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #333 on: April 16, 2007, 12:30:29 AM »
Hello All,

I'm still here for now...

Hope you all are well.

Just a question...

I have noticed that my daughter's dragon is coming at more regular intervals, like almost every three or four days now as opposed to his former schedule of coming every two weeks.

Did any of you experience the dragon coming by at more close intervals and if so how did this line up with your healing?

Thanks.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #334 on: April 16, 2007, 04:53:38 PM »
Hey All,

Mom444 i sent you a reply to your question.

Hey hamish ..how are things with recovery going? i to was worried about the ice water feeling.....i was told as well that this was a normal feeling and had nothing to do with circulation problems or anything as i originally thought it was. As for shoes to wear wit the AFO....i wore running shoes whenever i went out ..low cuts normally. and my dress shoes were pretty wide and a half size bigger to make space for the brace. Max the toes sorness is awesome.....anything you can feel in the foot and toes is a good thing so that voice in your head is telling you good things.....good to see the confidence and glad to see healing is doing very well.

Hopefully Everyone is doing Well ...i have been very busy with the draft and training camp right around the corner...so my posts wont be as frequent but i will be poping in to see how everyone is doing. i had an assessment the other day and my flexibility in my calf and hips (reconstructed leg) have been unacceptable. the inactivity and the hip hiking i did for the past year has thrown off my mechanics so in oreder to reset this correctly im back in therapy doing Core,Yoga and Strength training. also my knee is fine now...but i still load my right more then my left (compensation and protective) which could result in more damage to my other leg if i keep doing this. So Getting Football Ready is going to be a very hard task. But a task that i am determined to complete.Wish me luck and Keep up te recovery Everyone.

Andre
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #335 on: April 16, 2007, 09:14:21 PM »
Hey All,

I am not in the hospital yet, so I'm still here.  (By the way, I notice that Canadians and people from the UK say "in hospital" but for some reason we Americans say "in THE hospital."  ???)

Hamish, my daughter says there are two dragons.  There is an "ice dragon" and a "fire dragon."  Maybe you have an "ice dragon."

Also, she felt the dragon last night after dinner and then woke up at two a.m. crying in pain and I had to give her Motrin.

Thanks to those of you also who sent me such sweet private messages.

We hope and pray you all do well.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #336 on: April 16, 2007, 09:41:51 PM »
hello all,

Well another good week - I have been horse riding which was just fantastic.

Mom - I have sent a pm to you.  The ice is also a good sign in my experience and I still have that sensation today.

Shoes - let me tell you as a lady this is much more of a problem than for you guys.  My AFO chews shoes and has them for lunch.  I, like Andre, too wear trainers when possible but found Hotter shoes (Hotter shoes are the ones that your Grandmother wears)  to be the most accomodating for the AFO once the insole had been removed.  Work provided me with combat boots (Magnums) - not very fetching but practical.   I have found Dr Martin shoes also take the AFO but are very heavy. 

Had a few trips and falls recently as my foot tires then the ability to lift deminishes.  Still I will persevere - this weeks achievemnet was to build the confidence to ride my 125cc scooter without my splint.

Still on the waiting list for the next operation with no date - this is starting to become more of a marathon than waiting for the foot to wake up properly.  I know that once the surgeon does the operation I will have no knee pain and to have to wake up every morning still not knowing when that will happen is getting very wearing - sorry bounded off into a major whinge! and wanting the op but also being very scared in case the same thing happens is so difficult that it will be best just to get it done and over with.  I am one of the victims of no money left at the end of the financial year so the op has been delayed. 

Hope you are all OK and good to hear all your news.  Chins up guys and girls


2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #337 on: April 16, 2007, 10:57:06 PM »
Imagine trying to wear an AFO with high healed shoes, you would have to walk at a funny angle. Not that I have to worry about that of course, I don't have high healed shoes. Honestly I really don't! ::)

I get both dragons as well. It just seems to be when I ice my knee that I get the cold dragon.

On the knee front I am beginning to pick up some speed with this now after a very poor start. I think the problems were of my own making because I spent too much time on my feet too soon that caused a lot of swelling. However that has pretty much all shifted now and I am back to my daily routine of going to the gym and my leg is getting stronger and flexion and extention are improving.

Hope everyone is doing well.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline G_Bronson

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Re: Any Peroneal Nerve recovery stories?
« Reply #338 on: April 17, 2007, 04:57:47 AM »
hey Everyone,
from Reading your most recent posts it seems like you are all keeping your spirits up. i am glad to see that. Not much new here, still going hard at the physio, i got on the bike last week, it felt really good. I am doing well with physio as far as the knee goes. I got extension today of -5 degrees and flexion of 115. My Physio Therapist is really impressed with my recovery. I find it hard to see because all i am worried about is my foot. But i can see a difference when i think back to how bad it was. It has only been three months since surgery i guess. I have gained some strenght aswell.
On the nerve front, not much new. However i am almost positive i am getting a contraction of one of my peroneal muslces when i do my EMS. Although it is very hard to tell which muslce it is and i do not want to get my hopes up. My PT said it may be my solex(or solius not sure of the spelling). How ever the contractions have gotten stronger over the last week. I will continue to watch it closely.
I still get the dragon's both hot and cold.
As far as the shoes i wear, i also wear cross trainers i had to get size larger than normal and really wide to fit my AFO. I am used to them now.
I am kinda excited this week, i am  finnaly getting my truck sent to me. All my belongings are on the other side of the country except what i brought on Christmas vacation. Needless to say it has been stressful to take care of it all. But i cant wait to see my truck again. Alberta to Newfoundland is a long journey thought, so it may take a while.lol.
 Hope all is well with everyone and you continue to work hard and heal. Not many days go by that you are not in my thoughts. Stay Strong!

All the Best!!
Gordon

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #339 on: April 21, 2007, 10:56:40 PM »
What a releif - I have my date for the final surgery on 11th May - eeeks that is just three weeks away!  The waiting has been hard as I know that as soon as the op has been done I will have no knee pain and the thought of that is excellent - the three months recovery to feel normal again is the not so great bit.  Well I wish you all the very best for your recoveries.  I am sure by the time I am well on the way to recovery all of you will have moved on leaps and bounds.  I look forward to hearing about your progress.  Keep smiling and the world will smile back.

I will endevour to call in but I have one week left at work, which will be hectic to ensure I hand all my work over in an orderly fashion and then two weeks of dentist, pre-op assessment, Dr's appointment for meds, OT appointment to get the aids ordered and ready for discharge from hospital and get the downstairs dinning room converted to a make shift bedroom again. 

Take care xx
« Last Edit: April 21, 2007, 11:04:56 PM by j_smi001 »
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #340 on: April 23, 2007, 03:47:21 AM »
I am new to this fourm, I have been chatting with Hamish in one of the other topics and he suggested I join in if that is OK with everyone.  I had a serious accident in September 06,was crushed by a horse.  I broke my pelivis ring in 4 places and shattered my left hip joint as well as serious internal trauma to my bowel.  I had life saving surgeory immediatley to remove alot of damaged bowel and was air lifted to a different hospital 4 days later for the pelvis and hip reconstruction.  During this surgeory the surgeon had to stretch my sciatic nerve which has resulted in total foot drop of my left leg, I apparently have damage to the L5 and S2 nerve.  I have no movement and no feeling in the leg from the knee down.  I have read alot of posts about   degrees of  dorsiflexion is this been able to lift the ankle?  I had a MRI scan 3 weeks ago, due to the amount of hardware in my pelvis and hip the images were unreadle.  Any success stories out there?  It has been 7 long long months but I am walking now, very badly.  I am swimming and and at the gym.  My entire left leg is very very week and very painful with nerve pain.  Any ideas how long this nerve pain will last?  It gets you down living with pain day after day.  Look forward to hearing from anyone that wants to chat.  I have read some of the latest posts on the forum and it sounds like there are alot of you out there suffering with this condition. 

Mom - I read your post and really feel for you little girl, it is bad enough a adult having to deal with this but for a young child is just dreadful.  I have a little girl, turning 2 on Saturday

Look forward to talking and hoping we all have full recovery stories in the future.
Amanda

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #341 on: April 23, 2007, 08:05:27 PM »
Hello Amanda,

I have been reading your posts with Hamish on your other thread.  Welcome to this thread and you are in good company with very supportive and caring people here.  We tend to be a positive bunch too but recognise the very real ups and downs of dealing with nerve palsy resulting in drop foot.  No one here can tell you what recovery is likely or possible and I am sure you have already experienced the very vague suggestions of possible recovery from your medical team.  As you know Andre has made terrific progress so there is always hope and the possibility.  You are right that dorsiflexion is moving the ankle, specifically it is the ability to raise the foot upwards.  I have come to realise that there are differnet degrees of foot drop.  I had near complete foot drop but can now dorsiflex although I still have weakness in the foot and continue to exercise to strengthen the muscles up.  What have you been told by your medical team?  Have you discussed the nerve pain with your neurologist?  I took amiltriptyline for nerve pain and found that to be very effective.  The nerve pain can be very bad and it is important to take the meds to keep it in check.
Best wishes
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #342 on: April 23, 2007, 08:12:40 PM »
Thanks for your reponse.
The surgeon who performed the surgery gave me a 80% chance for recovery, I never saw him again as I was transferred to another hospital, the specialist at the next hospital gave me a 0% chance is not back in 3 months, we are now up to 7 months.  I take Nurontin 3 times a day for the nerve pain and it does help but the pain is still there 24/7 as I imagine you all know.  Has your pain eased now that you have some movement back?  I am going for a EMG soon, do you know if they are painful.  How long have you had movement for?  Thats great and I guess it will continue to improve.  How long did you have foot drop for before you got movement back.
Thanks Amanda

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #343 on: April 23, 2007, 08:25:04 PM »
I had no movement for quite a few months, I have had movement for about four months, I suppose - initially it was a twitch of the little toe, then a flick of the foot inwards with no control, then I could move it inwards but not hold it, then I could move it in and hold.  I suppose a diary would have been good.  A friend of mine yesterday said she was please I had real movement as I would say look it is moving and she could barely see anything but felt the need to agree and make suitable positive comments. 

It is important to remember that we all of us here have very dfferent causes of foot drop and to varying degrees so our recoveries will naturally be equally personal.  It is your sciatic nerve in the spine, whereas mine is lower at the peroneal nerve by the knee. 

I had an EMG booked for May 14th although my final operation is scheduled for the 11th May so the EMG will not now go ahead although it does seem a little late now, considering my recovery.  Take care
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline AmandaC

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Re: Any Peroneal Nerve recovery stories?
« Reply #344 on: April 23, 2007, 08:44:00 PM »
Thanks for your answers, mine was damaged at the hip, not the spine.  They stretched the sciatic nerve which connects to the pereneol nerve so there is the possibility for regeneration but it is a long way to regenerate from.  I can now move my foot inwards and occassionally outwards but this is very unregular.  Good luck for your operation and for a speedy recovery afterwards.
Amanda















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