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Author Topic: Any Peroneal Nerve recovery stories?  (Read 454587 times)

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Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #270 on: March 13, 2007, 11:09:23 PM »
Hi Guys,

Thats an awesome article on Andre thanks for finding it for us Mom444. I've always wanted to go to Canada so I'm up for a trip to see Andre play and have the ceremonial brace burning.

Hope everyone is doing well.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #271 on: March 14, 2007, 02:57:55 AM »
Hey Mom, thanks so much for posting that, just when I was having a 'down day' there's some hope in sight yet.  I'm still suffering myself, nine months after surgery and I still can't pull up my toe whatsoever.  When I can't find inspiration I try to tell myself 'don't look for inspiration; be inspirational'  but that's hard sometimes too.  Reading about Andre and what he's been through brings hope to us all.  I hope that one day we'll get back to walking without this damn brace, perhaps running and catching bad guys too, maybe even SWAT. 

It never hurts to be curious and research as much as you can, but every article seems to blend into the other.  The one underlying theme in the peroneal injuries...time.  Unfortunately none of us have the patience for this.  It would be a lot easier if someone were to say "You'll be just fine, give it 12 months".  I could be patient and perhaps life would be more enjoyable but no one has said this, no one wants to say this and although I hope for the best, I concentrate on the worst.  When we wait and worry and there's no change day after day and week after week and month after month despair takes over.  It's through support groups like this, reading articles like the one you've posted, and the power of believing in myself that I get up every moring and hit the gym everyday, eventhough I still get wierd looks at people staring at my brace.  I believe I'm going to get better , I believe I'm going to get back to SWAT, I believe your little girl is going to walk without her brace too.  We need to be patient and we need to get up everyday and deal with the present all the while believing we're going to be OK in the future.

Hope this note finds everyone well and I think it's obvious Andre did awesome.  I pray I'm going to be cheering for him in the stands one day.  Maybe, in a year or two, we can all get together at one of his games and toast him.  Bring your braces and we'll have a cerimonial brace burning!  Then we'll all walk away...normally.



Wow Max Very well written as it evokes so many memories and emotions of what i have went through and probably what we all have been going through. It is amazing how our mind states are just as similar as our injuries. you are definately in the right state of mind in wanting and believing you will get better..but what about feeling? do you feel that you will get better?....i dealt with this in my head for so long...i would try and figure out why i felt certain ways and why people say Dragons are good. Not sure if this is fact but it seemed as if the Dragons were the nerves trying to sense the outter stimuli going on whether it was the wind against my leg or a touch..it just seemed like the nerves were trying to regain it senses. i told myself this and not only did i have something to believe but everytime i felt it..it would give me a feeling of reassurance and a feeling of healing. And thank you for the ind words and support and man if you all came to a game ...that would make my year......and hopefully oneday it could happen. That would be great to meet all of you and we could discuss or experience while we ditch or braces.....i still have mine for some reason i cant throw it away..almost as if i keep telling myself i may need it again''knock on wood''.

Hey Mom444 i dont mind at all that you posted the link. also i have a question for you Mom444...can you influence Dragons? when you touch her in cetain areas or rub her leg does she get any sort of dragons? just ...this was another thing we did to retrain sensation and promote regeneration was to get the nerve something to feed off of i guess you can say...hope everyone is well ... Hamish how are things hope ecovery is looking more postive from the last time we spoke.

Take Care all
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #272 on: March 14, 2007, 01:32:47 PM »
Hey Mom, thanks so much for posting that, just when I was having a 'down day' there's some hope in sight yet.  I'm still suffering myself, nine months after surgery and I still can't pull up my toe whatsoever.  When I can't find inspiration I try to tell myself 'don't look for inspiration; be inspirational'  but that's hard sometimes too.  Reading about Andre and what he's been through brings hope to us all.  I hope that one day we'll get back to walking without this damn brace, perhaps running and catching bad guys too, maybe even SWAT. 

It never hurts to be curious and research as much as you can, but every article seems to blend into the other.  The one underlying theme in the peroneal injuries...time.  Unfortunately none of us have the patience for this.  It would be a lot easier if someone were to say "You'll be just fine, give it 12 months".  I could be patient and perhaps life would be more enjoyable but no one has said this, no one wants to say this and although I hope for the best, I concentrate on the worst.  When we wait and worry and there's no change day after day and week after week and month after month despair takes over.  It's through support groups like this, reading articles like the one you've posted, and the power of believing in myself that I get up every moring and hit the gym everyday, eventhough I still get wierd looks at people staring at my brace.  I believe I'm going to get better , I believe I'm going to get back to SWAT, I believe your little girl is going to walk without her brace too.  We need to be patient and we need to get up everyday and deal with the present all the while believing we're going to be OK in the future.

Hope this note finds everyone well and I think it's obvious Andre did awesome.  I pray I'm going to be cheering for him in the stands one day.  Maybe, in a year or two, we can all get together at one of his games and toast him.  Bring your braces and we'll have a cerimonial brace burning!  Then we'll all walk away...normally.



Wow Max Very well written as it evokes so many memories and emotions of what i have went through and probably what we all have been going through. It is amazing how our mind states are just as similar as our injuries. you are definately in the right state of mind in wanting and believing you will get better..but what about feeling? do you feel that you will get better?....i dealt with this in my head for so long...i would try and figure out why i felt certain ways and why people say Dragons are good. Not sure if this is fact but it seemed as if the Dragons were the nerves trying to sense the outter stimuli going on whether it was the wind against my leg or a touch..it just seemed like the nerves were trying to regain it senses. i told myself this and not only did i have something to believe but everytime i felt it..it would give me a feeling of reassurance and a feeling of healing. And thank you for the ind words and support and man if you all came to a game ...that would make my year......and hopefully oneday it could happen. That would be great to meet all of you and we could discuss or experience while we ditch or braces.....i still have mine for some reason i cant throw it away..almost as if i keep telling myself i may need it again''knock on wood''.

Hey Mom444 i dont mind at all that you posted the link. also i have a question for you Mom444...can you influence Dragons? when you touch her in cetain areas or rub her leg does she get any sort of dragons? just ...this was another thing we did to retrain sensation and promote regeneration was to get the nerve something to feed off of i guess you can say...hope everyone is well ... Hamish how are things hope ecovery is looking more postive from the last time we spoke.

Take Care all



Thanks Andre, Max, Hamish and everyone!

First of all Andre I just have to mention how very lucky you are to have been given the opportunity to work with such wonderful and experienced therapists and rehabilitation specialists.  You truly are blessed to have found such help! 

Thank you also for all of your expertise and knowlege in this area.  What you have been through not only helps you but helps so many others who are rehabbing also.   :D

In regard to influencing her dragons, it's a little hard to tell because she is so young and can't always explain exactly what she feels.  However if you say this works I will definitely start trying to "wake up the dragons" by rubbing her leg.  We do give her massages just about every day, as directed by the PT, and sometimes after a while she says, "Stop rubbing my leg now."  This might mean that maybe she gets some discomfort?  Again, it's so hard for us because she's so young and can't explain everything.

Also Andre, I just wanted to ask you about this quote from the news article,


"Durie attended rehab five times a week, undergoing sessions as long as four hours. Eleven months after the injury the nerve damage persisted. He limped badly. Unable to control his left foot, it flopped when he walked.

Then early last September he felt a twitch in his toe. A few days later he could flex his foot. Shortly after that, for the first time in a year, he could feel hot and cold. "


Forgive me if you already explained this in a previous post and I missed it (my mind is so boggled lately!!!) but from what the article is saying you were injured in September of 2005 and then almost exactly a year later you still had nerve damage...  But then literally about a month or so later you regained functiion and sensation and that it started as a "twitch in your toe?"

I'm just obsessing over the time frames again, which I know I shouldn't because everyone's different, but it does help to know that you too were given "threats" about time frames by doctors and rehab people and still got better after their time frames.

Also, in regard to time frames the most recent articles I found coauthored by a doctor from our city mentioned that many peopl in the study had peroneal nerve palsies (brought on by knee surgery and many other problems) and that time frames for recovery were anywhere from a few weeks to over four years!  The article even mentioned studies done where people had NO SURGERY and eventually recovered, sometimes many years later.

IT IS ALL SO CONFUSING...  But I just want to thank all of you on this board and tell you how much of an inspiration you've been with so much...  I really get sad and anxious and I cry a lot from time to time worrying about my little girl and you have all in many ways helped me to stay sane and stay positive.

And I'm not too far away from Andre being here in Upstate New York!  Andre, if you ever play a game in Upstate maybe we can come and see you...  Bring Max, Hamish, Jacky and everyone and maybe we'll all go to Niagara Falls...   ;D

Bless everyone and keep up the positive energy.
« Last Edit: March 14, 2007, 01:35:33 PM by mom444 »
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #273 on: March 14, 2007, 01:59:12 PM »
Hi Guys,

Max. I have to agree with Andre, the post you put up hit so many nails on the head and really sums up the emotions we go through. I have been pretty low lately as my progress after my ACL op has not gone smoothly and I have not been able to go to the gym. Although I still have a fair bit of swelling and still on one crutch PT has given me the go ahead to start going and doing some easy stuff. So I am a little happier now that I can get out of the house. The other good news is that it looks like the Scottish Rugby Union are going to give me some financial help. The timing of the injury couldn't have been worse as I had started a new job just 4 days prior to the injury and lost the job as a result.

Gordon how are you getting on? Are you in the ACL brace now? It makes life a lot easier once you are out of the restriction of the full straight brace and your mobility will improve quickly. You will be able to step up the rehab once you are in a hinged brace and the recovery will start to speed up. Hang in there and be positive.

Thinkng of you all.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline G_Bronson

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Re: Any Peroneal Nerve recovery stories?
« Reply #274 on: March 14, 2007, 02:48:19 PM »
Hello everyone,
I have really enjoyed the last few posts. Good show Andre it must feel so good to get back doing the thing you love the most. I am so happy for you. My sister lives in Barrie and is trying to talk me into going up with her just for a change of scenery, so if i get there during the football season i will have to go cheer you on at a York game. although by then i do hope to be back in Edmonton.  I keep thinking how good it will feel to run again. I just hope its a possibility.

Hamish,
I am doing progressively better since physio started to get intense. sessions are two hours long and then i will do some more things at home. I notice the muscles coming back in my legs, so that a start. That was the same AFO i have. I still have a full leg hinged brace that prevents hyperextension. I have decent mobility with it. it locks so you cannot staighten your leg passed a certain degree setting. When i left the hospital it was set at thirty, and my last appointment it was set at 10 degrees. I have to see my Surgeon on friday where i am hoping to get fitted for that smaller ACL brace. Hang in there bud, with your recovery. My old rugby coach was from scotland. So i know you must be a tough guy to play that sport over there where it is so big. 

Sorry i have not been posting more you guys. Like you all do I am sure i have quite alot on my mind. I was two months of work away from getting my cerification and pinky ring when i got hurt and just got a great promotion. I never thought somthing like this would happen on my Christmas vacation. I will get it all once i get back on my feet i guess. I just hope the doctor doesnt crush my spirit like the last post op trip a month ago. I have been doing pretty well as of late though.
I like what you said Andre "do you feel you'll get better". You'd be surprised how much a positive outllook can affect your recovery. I truly feel i will heal with time. although i know it will not be easy.

Hope you all are keeping your chin and your spirits up. I am hopeing for you all to pull through this.

Regards
Gordon

 

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #275 on: March 14, 2007, 08:04:51 PM »
Great posts everyone and a pleasure to read.  The thought of meeting up and burning those splints sounds wonderful.  I have always wanted to go to Canada as my Grandfather (my mother's father) was from Toronto and emmigrated to the UK just before the war.  I remember he had cauliflower ears because of frost bite.  he died when I was 7 but would love to go to Canada and watch Andre playing - altough someone will have to explain it all to me!

Well I managed half a day at work in normal shoes walking about with NO splint - how pleased am I.  I am desperately practising the heel toe walk movement although it is still nearer the heel slap than the heel toe but we will get there.  Once you get that twitch you believe you are invincable, you know it will just get better and go from strength to strength (well I do).  I am amazed at the speed of recovery for Andre after that initial twitch.  I have got quite a bit of feeling back but there is still a large area over the outside of the knee and down the side of the leg that is still numb but that could just be surface nerves from the operation, perhaps?  Still I can lift my big toe also on command, now and foot flexion and hol becomes more convincing every day.  Of course you will all understand the significance and the enormity of this improvement so when I went to work and was asked by a colleague if I could assist them on a job, I leapt at the chance, only to have my enthusiasm cutailed by the occupational health nurse who still will not permit any conflict and potential confrontational situations......urhhhgggg  still more patience required.  Also a major break through i have taken and passed my response vehicle authorisation - so although I still can't yet break free of the office once I do I will be permitted to drive to respond to emergency calls. I am not sure how you all feel about me sharing my weekly acheivements but for me I am at the most significant and exciting time of my recovery and writing about it helps me to keep my feet on the ground (excuse the pun!), although I am not so sure I would have appreciated hearing about all that perhaps 6 months ago. 

Bless you good all of you.
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline G_Bronson

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Re: Any Peroneal Nerve recovery stories?
« Reply #276 on: March 14, 2007, 08:12:51 PM »
Thats great news Jackie,
I can imagine how good you must feel that you can lift your toe on comand. I am happy for you.
Keep up the hard work. Reading posts like that gives us all hope that recovery is possible.

All the Best
Gordon

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #277 on: March 14, 2007, 09:05:30 PM »
Jackie,

I am soooooooo jealous...i have been dying to get the big toe moving for months now.that is awesome you are doing amazing ...its great to hear your progression and we all love hearing about it....cause not only does it give us hope as well but it brings a smile to my face just knowing that you are happy in your recovery...and that s the feeling you need in order to keep progressing. and i agree with the invincablitiy part...i  feel that this experience has made me mentally invincable and my approach to life has changed...so for that i am thankful...too bad it had to come with so much sleepless nights and pain...lol. but again ...glad to hear things are going well and you all have given me new motivation to get back into the game with all the talk of coming to watch. now i have to get back and play because that would literally be a dream come true hopefully it can happen.Take Care all
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #278 on: March 15, 2007, 01:03:32 PM »
Congratulations everyone on your progress so far!   :D

Last night my daughter woke up crying (I get so excited when that happens!).  She didn't come right out and say that her leg hurt at the time...  My husband slept in her bed with her to comfort her.  In the morning I asked her why she was crying, careful not to push her into any answer...  I asked if it was the dragon and she said yes.

However...  Get this...  When I asked her where the dragon was biting her, instead of pointing toward her knee, she pointed to the spot down lower on her leg, on the lower shin...  Could this mean something?  Again, she's three and she may be just babbling.

Jacky and Andre, did either of you notice the dragon moving further down your legs as you were recovering?  Did the pain progress to other areas?
« Last Edit: March 15, 2007, 01:06:58 PM by mom444 »
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #279 on: March 15, 2007, 07:23:58 PM »
Thank you all for your kind words.  Andre best you get back to playing - we are all looking forward to our Canadian holiday!  Best you put your best foot forward and make it happen. 

Mom - It is fair to say that the recovery for me was not a straight down the leg affair.  I seem to have had recovery from the toe upwards and the knee downwards.  I still have numbness at the back of my thigh and at the top and to the side of my knee.  If I think back I remember that it was my toes that ached first and I had quite painful feeling at the end of my big toe but then that disappeared for a while.  It has been throbbing again but with me moving it all the time (because I can!).  I can only speak from my experience but I think my nerve has regenerated from both directions, but that is a gut feeling based on no medical diagnoses.  Even now I have stinging along the route of the nerve, more so at the ankle and lower shin.  Hope this helps.  My four toes all started to twitch then move long before my big toe put in an appearance.  I am sure all the senstions your daughter is feeling is all for the good.  I was also told that the sensations I was feeling was not necessarily nerve regeneration and seeing as it is almost twelve months give a couple of weeks then I suppose that is probably right.  I feel I have to stress that this has not been an overnight success and recovery story and has been a very gradual return.  First it was an involuntary movement then a movement that I could make happen but not always (and never when the physio was looking on!) then I could make it happen alot but it would get tired and just decide not to do it any more to now where I can do the movement almost unconsciously, however, I still cannot fully dorsiflex my foot but it is enough to walk without a splint, until it gets tired, that is when I have to put the splint back on to save me from a fall.  My leg aches and stings quite a bit and tells me when I have done enough.  This is a very long road and teaches patience.  Andre says he is thankful for the menatlly invincability, I am thankful for foot drop teaching me patience and tolerance and most importantly has made me slow down and take stock - something I would not have done without this happening and would probably just burnt myself out.  Sorry very long post..................  Looking forward to the weekend! 
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #280 on: March 16, 2007, 02:30:50 PM »
Hey Mom444,

In response to your Dragons question....they ran down my leg...it would start from the injured area just behind my knee and breathe fire down my leg. Pain pain generally stayed in the same pathway of the Dragons it never really detoured to another part of the leg..but the Draons felt very fatiguing once they had settled down. Are you noticing changes in her Dragons? hope everything is well..Take Care


Andre
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #281 on: March 16, 2007, 04:51:55 PM »
Hey Mom444,

In response to your Dragons question....they ran down my leg...it would start from the injured area just behind my knee and breathe fire down my leg. Pain pain generally stayed in the same pathway of the Dragons it never really detoured to another part of the leg..but the Draons felt very fatiguing once they had settled down. Are you noticing changes in her Dragons? hope everything is well..Take Care


Andre



Thanks Andre. 

Another thing about her dragons is that they seem to come at literally almost TWO WEEK INTERVALS.  They started at the end of January where she would feel the pain for one night and then not feel it at all again for two weeks.  Two weeks later she'd feel them again...  Then nothing.   Then two weeks later, again.  I may have already asked you this but you did say your dragons would sometimes come and go too?

Also, on a different note, my research persistence has paid off!  Remember how I said I found an article about peroneal nerve injuries and how it was coauthored by a doctor from my own city?  I had called his office earlier in the week to ask about maybe having a consult iwth him but his secretary said he does not treat children?

Well, the doctor himself called me personally today!  That was so nice of him.  We talked for almost 20 minutes.  He also of course was not able to give me any definite answers but he was very friendly.  He told me that his secretary gave him the message and  he felt that I deserved a response.  He also said that from time to time people would find articles that he coauthored and would come from other parts of the country to see him, so sometimes I guess it's okay to look up someone's research and to go ahead and contact them directly.

The doctor is an orthopedic surgeon who specializes in knee surgery yet he is not a "nerve expert." He did say that he had done probably about 11 peroneal nerve decompressions and that he often saw people recover "quickly."  Yet he stressed that sometimes those nerves were simply compressed rather than damaged or injured. 

I kept trying to ask him if it was true about not being able to put a set in stone time frame on nerve recovery and he more or less did agree.  I told him that the article he coauthored said in its abstract, "At a mean of thrity six months (range, twelve to seventy - two months) postoperatively, thirty (97 per cent) of the thirty-one patients reported subjectiv eand functinal improvement and were able to discontinue the use of th4e ankle-foot orthosis." 

Note:  PM me if you want the citation to the article, I don't want to post it here for privacy's sake and to avoid putitng the authors "on the spot."

He did coauthor the article with at least five other doctors so his input may not have applied to the entire theory.

So, it made me feel a little better to know that this doctor cared enough to call.  I also stressed how pediatric specialists do not as often see this type of injury.  I thanked him and he wished me well.

Now...  We just have to wait.

But we are all different.  The EMG did show SOME improvement and that there was a

"response from the peroneal nerve above and below the fibular head."

Do any of you maybe know what this could mean?  Does that mean the nerve has healed through the fibular head and now we are just waiting for it to reinnervate the anterior tib muscles? 

Jacky and Andre, did you remember hearing about your nerve getting "a response above and below the fibular head?"

Thanks for your help and good luck to all.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #282 on: March 17, 2007, 03:10:06 AM »
Hey Mom444

For me both of my EMG tests can back with no response one at 4 months and 9 months i believe. so the fact the you got a response is very good in relation to my experience and recovery. also i have no idea what the reading means...it sounds like there is communication going on and the signal may still be to weak to power a muscle. i was told that the EMG can pick up nerve regeneration before your muscles do..even if there seems to be no sign of it communicating....thats why at my 9 month check up i was told i would probably never get my functions back due to the lack of response in the given time frame. i was also told (by the Doctor doing the tests) that once the nerves start to regenerate they usually continue so any bit of response from the nerve is good. And What a great guy the Doctor is to take time a discuss your questions. you did the right thing by soaking up as much information as possible out of him ....you are very inspiring and the way in which you hanlde and have been handling this unfortunate situation has been amazing. you are great and i wish you the and your family the best. have a good weekend.
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #283 on: March 17, 2007, 09:26:01 PM »
Hey Mom444

For me both of my EMG tests can back with no response one at 4 months and 9 months i believe. so the fact the you got a response is very good in relation to my experience and recovery. also i have no idea what the reading means...it sounds like there is communication going on and the signal may still be to weak to power a muscle. i was told that the EMG can pick up nerve regeneration before your muscles do..even if there seems to be no sign of it communicating....thats why at my 9 month check up i was told i would probably never get my functions back due to the lack of response in the given time frame. i was also told (by the Doctor doing the tests) that once the nerves start to regenerate they usually continue so any bit of response from the nerve is good. And What a great guy the Doctor is to take time a discuss your questions. you did the right thing by soaking up as much information as possible out of him ....you are very inspiring and the way in which you hanlde and have been handling this unfortunate situation has been amazing. you are great and i wish you the and your family the best. have a good weekend.

Thanks Andre,

Her PT says he does notice her peroneal innervated muscles contracting (I am assuming or hoping he means anterior tib) when he is doing the electrical muscle stimulation on her, so I hope that's good.  I also asked him if the fact that there is a "response below and above the fibular head" could mean that the nerve has in fact healed throught the fibular area and that we are now simply just going to have to wait for the nerves to innervate the muscles.  He thinks that may be the case. 

And Andre and Jacky you guys are still an inspiration to us! 

It's good to know that you are proof that everyone is different and that everyone heals differently.  Time frames are relative.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #284 on: March 19, 2007, 05:25:40 PM »
Well just found out that the operation on my left leg, due in March but delayed due to lack of funds (I have been sent out of area and so the health authority where I live have to pay the health authority where the hospital is), is now delayed due to a serious backlog and April is now out and May is not looking too hot either.  I know I should be totally overjoyed at having some dorsiflexion back in my foot, and I am, but feel I am on totla hold until I get the other leg sorted and out of the way so that all rehab is towards full fitness and back to my proper job.  Whinge over.  Hope you are all OK and keep willing that foot.  try this, (with your good foot, obviously)  rotate your foot anti-clockwise, continue to do that then draw the figure eight eight with your finger in the air, the bigger the better, umm what's happened to your foot?
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!