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Author Topic: Any Peroneal Nerve recovery stories?  (Read 469143 times)

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Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #150 on: January 28, 2007, 05:10:28 PM »
Dragons,

I love the description and I am with Andre on this.  I too had significant sharp electric shock pains and burning sensations (could that be the fire from the dragon?) both whilst in plaster and out.  I took Quinnine to stop the cramps in the leg and Amiltriptyline (sp?) to stop the shocks and nerve pain.  This lasted for about four months decreasing steadily until it just disappeared altogether.  I have had no sensations for about three/four months and now have been steadily getting more stinging sensations when exercising but also when resting.  I get this on the outside of my leg at the back of my knee down the outside of my calf.  I also get twitches, like Amdre not as sharp as the original electric shocks.  I also have a dull ache at the bottom of my ankle, the bit between the sticky out ankle bone and the heel.  Since this has hapened I now have quite noticeable dorsiflexion and can lift the foot a bit but most importantly I can now see the anteria tibilas tendon, which has been conspicious by its absence up till now.  I am pleased to have pain and sensation plus movement, I wasn't so happy to have pain and no movement.  I am hoping that this is the start of the nerve recovering and awakening from its long sleep. I don't know whether this description of where I am at, at this moment is of any use.  (I don't get any pulling or cracking feelings, and as for balancing on my bad leg I have only just mastered this trick in hydrotherapy in deep water, next trick is to do a knee bend whilst maintaining my balance, presently I only manage to stick my bum out and knee stays put - needs a bit more work.)
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #151 on: January 28, 2007, 06:09:11 PM »
Let's hope for more healing dragons!  LOL!   :)

Today after church my husband and I asked our daughter if her leg still hurt her and if the "dragon" was still there.  She said yes, but we are all aware that sometimes three year olds say yes to everything...  But we still hope this is true and a good sign...  When we asked her what the "dragon" was doing she said it was insider her leg.  "Which leg?" we asked.  She held up the leg with the damage. 

She then said, "The dragon is inside my leg.  Sometimes he just scratches me and sometimes he bites me."  Then we said, "Where is the dragon scratching and biting you?" and she said, "Now he is in my toes...  My toes are hot."

Again, I don't know is she is making it up to be silly but it does at least sound like what most of you described as recovery.  You also mentioned that some of you felt pain in your toes...

I really hope this is a good sign.
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #152 on: January 29, 2007, 12:53:11 AM »
Hey all


Jacky thats awesome news ...your "TIB ANT" has joined the party!!!!!!!!!....seeing it move makes all the hard work you have done and going to do so much more gratifying. keep on moving !!!!!!!!!!!!!

Mom444 your daugther deserves some kudos...and i need to be the first one to give them to her...when the dragons were biting me ...i was crying and whining like a three year old(most people would say) but she at 3 is taking the pain far better then i did and iam 25...lol. i believe the words of my wife were.."i already have 2 children i dont need another"..lol. so again i am glad there is a brighter side to her recovery.
 

Hope you all had a good weekend
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #153 on: January 29, 2007, 01:08:45 AM »
Jacky and Andre,

Yes, I still hope there really is a "dragon!"  It is now exactly six months past her neurolysis surgery, does that sound about right for the recovery to start?

Also, were your "dragons" or the feelings of pain constant or intermittent?  Did you feel it nonstop all day or did the pain come and go?

One thing about my daughter is that she never complained of any pain back when she originally got the nerve damage (although I have read that sometimes there is "painless footdrop.")  If her pain was intense I think she would in fact be crying more or complaining more...  But kids have a high tolerance for pain, at least mine does.  Even directly after her surgery she did not have any terrible pain...    And she had the entire back and side of her leg cut open!  I remember being so scared before her surgery that she would be whining in terrible pain for days and the little trooper was fine.  One of the doctors actually said that maybe she has a high tolerance for pain or maybe she is genetically predispositioned to injuring herself...  I hope not...  But if you think about it the peroneal nerve that was operated on had no feeling because it was damaged so maybe that's why there was little or no pain?

Thanks again to all of you for your messages, thoughts, prayers and support.  We will all keep supporting each other!

Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #154 on: January 29, 2007, 03:35:01 PM »
Hey Mom444,

I am not sure exactly about Jacky's experience...but mine were intermittent.
Ill go into specifics....Mine were very hyper sensitive as well. at the begining(after injury) they would try to touch my leg and before they would put there hands on me
the sparks would and shock in the leg would increase while their hands would just be hovering over the injured area. it seemed like any energy they were conducting was setting my leg on fire... and i say fire because when your daughter said Dragon i can totally relate to that analogy as it seemed like such an intense heat that could be described as sparks or scorching hot surges. it was hyper sensitive like that for about the first month and there after it became unpredictable,uncomfortable and yes painful..and id say painful more from the sense th at you cant do anything about it...i tried drugs and they didnt work ..just made me fall asleep and i would usually wakeup from the sparks at night.(percocet,i refused the gabatentin)....they told me that i should take pain killers so i dont ruin my pain thershold/or sensors by trying to take pain that i cannot manage...and that by taking too much pain could leave me very weak in the areas of the injury.(not sure if i explained it properly). After a about three months it stopped and i was left in a state of nothingness...no sensation no movement little sensation and still numbeness. After about a month of that they kicked back in...not as frequent and not as sharp. and to this day i still get them no and then but it seems like when i get them now i get stronger activity and muscle response ..so i kinda look forward to them now...lol. From my recovery experience she sounds on track ..the first movement i got back was eversion at this point...do you know if she feels like she can move it out words?

I do believe she will get better and just from hearing the similarities in all the posters gives me so much more confidence ...just to have an idea on where she may be in her stage in recovery. that was one thing that i loved about this site and the people in this thread especially is that we keep eachother hopeful and informed when all you get is estimates and unknowing from "specialists"...being here gave me a sense of knowing and peace of mind.(even if nothing is factual ...similarities keep our minds open for possibility)

Thank you all ...and when you do you recover please stay comitted to the Site/Thread for others. Wish you all the best in Recovery.
« Last Edit: January 29, 2007, 03:55:45 PM by amdre »
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline stabso

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Re: Any Peroneal Nerve recovery stories?
« Reply #155 on: January 29, 2007, 04:11:58 PM »
Andre,

Why did you refuse the Gabapentin?


Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #156 on: January 29, 2007, 05:48:27 PM »
Stabso,

I don't know why Amdre refused the Gabapentin, but my GP told me it was a heavy duty drug for epilepsy and if I can tolerate it without the Gabapentin, then to do so, as there were some not good side effects (weight gain for one, being female that is disasterious!).  I hate taking tablets and got off the ones I was takig as soon as possible.  I am and have been for months, completely drug free.

Andre and Mom444,

Same as Andre regarding the description of the pain return.  My foot was so swollen and off colour that there was some discussion that I might of had a condition called CRPS type 2, particulary as it was so sensitive I could not bear anyone to touch it and the burning was so intense.  Through a vey dedicated hydrotherapist and physiotherapist did I learn to put weight on the foot and thereby desensatise it and reduce the swelling.  And I cried lots with pain at that time and not worried about saying it as nerve pain is without doubt one of the worst I have ever experienced in my life.
I had physiotherapy today and showed my new tib ant movement, which does elicite stinging, like stinging nettles.  I don't have this all the time but it does come and go through out the day 9and nigt, unfortunately) Walking backwards posed more difficult than expected without the splint on! but not sure if that is because of the foot drop or hamstring weakness. 
The physio thinks the postponement for the other leg operation is a blessing in disguise as it will give more time to recover although she thinks I will need a wheel chair after the operation to get around as my right leg is too weak to support a non weight bearing left leg.  I feel like I am now in limbo land, I really would like to just get on with the other op  so I can rehab and put all this behind me.  Looks like I will be around for quite a while yet, probably till this time next year!  Got hydrotherapy tomorrow but on holiday on Thursday - yippee
« Last Edit: January 29, 2007, 05:52:46 PM by j_smi001 »
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #157 on: January 29, 2007, 10:29:38 PM »
hey stabso

Basicallt J_smi001 summed it up....the meds are not geared towards settling the nerve pain and are not even nerve pain related...they would have been giving me a drug that was made for a totally different purpose and to me i didnt think that the benefits of using the drug out weighed the negative side effects. so i just stuck with the percocet for awhile then T3's which did absolutely nothing i guess because i was so used to the percocet.
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #158 on: January 29, 2007, 10:39:53 PM »
Hey All

Just blogging.....i had an awakening day to day in our session today. it was a good developmental workout but i found out that i am subconsciously affraid of reinjuring myself. I have tried to prepare my mind and body for this and worked so hard to tell myself that injury happens in a sport like this and thought i was over beinging scared...but today as we tried to do some lateral explosive movments i was just so protective of the left leg...so protective that i didnt even know ....and thankfully my therapist knew and made me figure out why i kept losing balance...and admit my fear.i tried to ignore it but ignoring doesnt fix or correct the things i truly need to work on. so we decided to take a step back and do some mental preparation due to the extreme demand i will need from my body in march for the combines. Im gald we noticed this now as i feel i was jumping the gun alittle bit and not progressing slow enough to site these problems earlier and correct them ....and then move on to the next stage. The goals are still the same and performing in march is the goal but a better progression is needed to truly become strong stable and ready.

Andre
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #159 on: January 30, 2007, 09:30:58 PM »
Here's my blog.

My daughter woke up crying last night and my husband went up to check on her.  When he came back I asked him what was wrong and he told me she said "the dragon woke her up."  If she wasn't just being silly we think she meant that the pain in her leg somehow woke her up overnight.

Today however she has barely mentioned it.  She even says "no" when I ask her if she has any pain in her leg today.

Did any of you have pain wake you up from sleep?  But on the other hand did you ever have days at a time when you felt no pain at all?

Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline stabso

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Re: Any Peroneal Nerve recovery stories?
« Reply #160 on: January 30, 2007, 09:41:42 PM »
Mom444

From my own experience and from what I have read about peripheral neuropathy, it's at night that the pain seems to be at it's worst and yes it most definitely does wake you up.
But as mentioned by others too, it does eventuallly ease up.



Offline amdre

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Re: Any Peroneal Nerve recovery stories?
« Reply #161 on: January 30, 2007, 09:59:13 PM »
Hey Mom444

Like Stabso said....the pain was most intense at night and often asissted my knee pains in giving me sleepless nights...and when i finally would fall asleep the "sparks" seemed to increase just so i wouldn't sleep. some days were more bareable then others but at the begining the only times i could bear the  feeling of the "sparks" was during regular day and evening hours.
Dislocated knee in a Football game
Damage: Posterolateral Compartment,MCL Partial,IT band Tear,Popliteus tear,Hamstring and Peroneal Nerve Damage (Foot Drop)

Reapired in Surgery: Posterolateral Compartment Sept 17th/05
Scope Nov 20th/05, ACL Recon Sept 26th/06

Offline Hamish9

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Re: Any Peroneal Nerve recovery stories?
« Reply #162 on: January 30, 2007, 11:54:10 PM »
Hi Mom444

I have found when your mind is active you tend to forget about that dragon in your leg. It is those times when your mind is in neutral that it wakes up and reminds you that it is there. I have gone through a quiet time with not much happening but am now 5 months since my injury and I have noticed over only the last few days that things might be starting to wake up. I had the most horrendous pains when it first hapened but then it settled. The sensitivity seems to have moved down my leg just a little and have started to get a few more shocks of pain. My fingers are crossed for myself and for your daughter that this is part of the nerve recovery.

Hamish
Broke fibula and dislocated knee rugby training
Fibula repair and Posterolateral Corner reconstruction Sept 06
Footdrop
ACL reconstruction Feb 07

Offline mom444

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Re: Any Peroneal Nerve recovery stories?
« Reply #163 on: January 31, 2007, 12:22:27 AM »
Thanks everyone so much for you input. 

Again, I am so happy to have found this board!

We'll see how well my daughter sleeps tonight.  If she has the pain again I may want to call and just report it to her neurosurgeon's office.

Tomorrow she has her "psychological evaluation" that she must go through to see if we qualify for PT through the school district.  She'll then have another PT evaluation next week.  It's a lot of hassle but because we're in the US and our health insurance charges us copays and puts restrictions on how many PT appointments we can have it would be nice to have PT for "free" from the district.

We're still praying for all of you! 
Mother of a now six year old daughter with unexplained peroneal neuropathy/injury to the peroneal nerve resulting in footdrop.  Had surgery 7-06 including neurolysis to remove scar tissue/neuroma.  Wears AFO wtih dorsiflextion assist and is using EMG triggered biofeedback and TES awaiting recovery.

Offline j_smi001

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Re: Any Peroneal Nerve recovery stories?
« Reply #164 on: January 31, 2007, 04:35:17 PM »
OK Off on holiday in the morning for a few days, at a great hotel that has a pool, gym, sauna the works - having a massage, going horse riding and basically going to pamper myself.   I feel that I need it to celebrate the small movements and have a good pampering before I am incarcerated in my dining room come bedroom again for a few months.  You all enjoy yourselves and speak later next week.  Don't do anything I wouldn't do and keep the good news coming.  By the way - I think you are all great and an inspiration to all.
2002 plica removal, chrondoplasty both knees and LR right knee. Derotational tibial osteotomy rt leg 07/04/06.  Awaiting for left leg to be rotated and have no more knee pain!















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