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Author Topic: great help and support listserv for EDS  (Read 2097 times)

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Offline Shazinoz

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great help and support listserv for EDS
« on: January 17, 2003, 05:04:10 PM »
This is a Canadian based support group that has members all over the world and even some medical people who help and answer questions (the ones I have met have EDS them selves) Bonus for Us I guess asd they know 1st hand what it is like. They are very friendly and have heaps of information under there files heading.


The web address is http://www.ceda.ca/list.htm and then join the 1st one CEDA you can also join any others you wish including the spouse support and for kids and teens for parents of kids or teens with EDS etc etc etc they have heaps.

Just thought I would share, as they have been a help to me
2 ACL 'reco's', 3 'scopes', Pain, JRA, EDS, RSD, CMP, osetochondral defect & #, synovitis, adhesions, nerve damage, foot drop, MCL damage, tendonitis, fibrosis, ligament damage AGAIN, dislocations +++















support