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Offline monoxidesgirl03

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Re: Questions
« Reply #15 on: March 31, 2005, 08:39:52 PM »
Hello again!
Well, had the mri done last night.........that machine is loud!!!!!!!!!!!!!  Anyhow, I'm really hoping that my doctor can figure it out so we can deal with this knee.....I never realized how much I depend on my knees until this happened!  I'm in the process of finding a new specialist, again much thanks to Janet.....I've called a few, just to see who takes my insurance, and how soon I can get in.  A friend of my father's also has an awesome knee doctor....so we shall see.  I was just wondering, how would I go about getting a copy of the mri report?  I'm not sure if I ask my doctor for that.  Anyhow, thanks again for all of your help!

--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!

Offline Janet

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Re: Questions
« Reply #16 on: April 01, 2005, 04:54:16 AM »
I've always gotten the MRI written report from the doctor who ordered it. I think some people have been able to get them from the MRI center, but they would never release the report to me, only to the doctor who ordered it. But it never hurts to ask!

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline monoxidesgirl03

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Re: Questions
« Reply #17 on: April 01, 2005, 06:00:15 AM »
Just me again......
The pain.....I can't describe it.  All I know is that it doesn't take very long to set in lol.  It doesn't matter what I'm doing......working, trying to bowl, driving my car (I drive a 5-speed...and where I live requires a lot of shifting most of the time) laying down on the couch, trying to sleep.........I can't handle the pain!  The knee pain...I'm becoming used to that, and I guess I deal with that ok, it the shooting burning pain that goes up my femur to my hip, gets worse when I'm moving around a lot, and even the muscles hurt, feels like a charley horse.  I have nooooooooooo idea why that's happening, if it's because my muscles are getting weak due to the fact I haven't been using my leg like normal, haven't been working out like normal, just because it hurts so dang bad.  I don't know.........I'm at a loss for words with it.  When the Ultracet I was given for the pain (which I only use when it's unbearable) doesn't help to knock the pain out, just relaxes me to a point where its a little easier to tolerate.........what's next?  I just need to relax and wait for the MRI results, but I'm really afraid that they're going to say....Oh Holly, we don't see a damn thing wrong with your knee, just take these pain drugs and chill out.  Then I am going to go crazy lol!  I'm just bumming out....tried bowling tonight and really didn't do well at all, felt let down, and I let my team down.  They have been really supportive, saying well your knee is hurting bad, we can see it in your face, in your approach, but that doesn't matter to me.  I know how I should be bowling, and when I can't get near my average..........I know I need a break.  Its so hard to give up something that you love sooooo much.  I had to stop dancing because of this........and I don't want to give up bowling too.  Golf season is right around the corner, and I already have a bad feeling about that.  Anyhow, I guess I just needed to vent, getting bummed out all alone sucks lol!!!!  My boyfriend is coming home from Mexico tomorrow, so I'll be able to vent to him, I just feel bad about it.  I hate having to be a sad sista lol..........I'm usually the upbeat and happy one, and it's hard dealing with this.  I honestly never knew this would affect my whole life like it has.  Either way, thank you guys for just listening to me............it's nice to know that you all are here for me.  I'll let you all know what the MRI says when my doctor get's the report......I'm going to find a way to get a copy of it.  Thanks again.

--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!

Offline monoxidesgirl03

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Re: Questions
« Reply #18 on: April 07, 2005, 12:33:18 PM »
Well.......................finally got the MRI results, and it said just what I was afraid to hear:  every damn thing looked normal.  So where do I go from here?  I'm happy that it looked normal, but where is this pain coming from?  What in the hell is causing it?  I'm soooooooooooooooooooo frustrated at this point!!!!!  My family doctor, when he got the report, calls me to tell me good news, its all normal, nothing wrong in that knee.  I asked him, well then whats causing this pain and what do we do next?  He just said, well kiddo I have no idea.  Aren't doctors supposed to have SOME idea?  I don't know.........I'm majorly bummed out.  I know this sounds bad, but I was kind of hoping something abnormal would be on that report, just so I could say "Ok, so that's what's causing my pain.  That is what's causing my sleepless nights, that is what's causing me to not be able to be a normal 22 year old."  So...................I don't know what to do next.  A good friend of my family (who works for a good OS) set me up for an appointment to see him next week.  She told me that there have been times where an MRI report reads completely normal, but the OS does a scope and finds a problem.......and that he may want to do that for me.  But she did tell me that this doctor will usually try other things before surgery, but if he feels it's necessary he will tell me so.  I guess I'm just frustrated.......I'm sick of crying about this stupid knee lol.  Its just hard thinking that I'm 22 and the pain is like this...........has been since September.........and if there is nothing wrong with it, am I just supposed to take pain pills forever and deal with it?  That's basically what my family doctor said, so who knows?  He doesn't...................I'm just hoping this OS can figure something out.  Also, my family friend who works for the OS said that another reason the MRI showed up normal could have been because they did it without contrast, which I'm not too sure what difference that would have made, but she told me sometimes that's all it takes for something to show up.  Grrrrrrrrr!!!!!!!!  Has anyone else had this happen, where you're hurting like hell, can't do half the things you used to be able to do,  but the doctors keep telling you that everything looks normal???????  Does anyone have any kind of recommendations on to what I should do now?  I'm at a loss on this one........totally stumped.  Thanks for listening, I'm very bummed out right now...............
--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!

Offline cat

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Re: Questions
« Reply #19 on: April 07, 2005, 05:24:14 PM »
Holly,
Except for some effusion, my MRIs came back normal too. Made feel me like a head case. Fortunately most of my doctors were nice and found something to attribute the pain to (even if their diagnosis wasnt' totally correct.) I went through 7 doctors before finding out I had miserable malalignment. Most of the doctors had never looked at me standing or walking. It seems so obvious now. I guess I'm telling you this so you wont feel alone and to motivate you to continue to look for a GOOD KNEE specialist. Dont' settle for the first one to tell you that they can do an exploratory scope. Dont' settle for the first one to offer you a lateral release surgery. I know one can get desperate to find someone who will do something for you. But there are lots of great docs for meniscus and ligament problems who are terrible with patella femoral problems. And the wrong surgery could make you be so much worse. What kind of 'specialist' did you see?
cat
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline monoxidesgirl03

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Re: Questions
« Reply #20 on: April 07, 2005, 08:18:46 PM »
Cat,
Thank you so much for that information, I was beginning to think I was losing my mind!!!  This has been a frustrating experience for me.......all this pain!!!!!!!  I just wanted to say thank you, and I'm going to call this specialist that I'm supposed to see next week and see what he specializes in.  I will keep you all updated. 

--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!

Offline Janet

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Re: Questions
« Reply #21 on: April 07, 2005, 09:28:43 PM »
Holly:

You are not losing your mind. MRIs are notorious for showing nothing....or showing something that's not really there. It's just a tool for the doctor to use along with x-rays and a physical exam. That's why you need to go to a knee specialist. GPs just don't know much about knees. And a good specialist will have a pretty good idea by exam and other tests. But even then they sometimes need to "look inside" to see what's really going on.

I have had three MRIs and none showed much because my issues revolve around scar tissue and articular cartilege damage on the back of the patella. Neither of these show well on MRIs....although I understand there are some new machines (techniques?) that allow these areas to be seen more clearly. Others have had meniscal tears show that weren't actually there, or no tear show when there was one. Don't let a doctor tell you there's nothing wrong just because of an MRI. That's a sure sign you need to see another doctor!

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline cat

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Re: Questions
« Reply #22 on: April 07, 2005, 10:44:12 PM »
Hey Holly,
I remember my MRIs. I was afraid they would find something and yet I was more afraid they wouldn't. :-\ Anyway, have you tried looking your OS up on the net? Sometimes the hospitals will have profiles of their MDs and what they specialize in. You might also inquire as to whether or not the OS does Fulkerson type procedures - tibial tubercle transfers/ osteotomies and how many. If he doesnt' do those, you might look elsewhere. I'm not saying you need one of those procedures. It's just that an OS who doesn't do those types of surgeries may not be very adept at dealing with patella femoral issues.
cat
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline JenSinclair

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Re: Questions
« Reply #23 on: April 08, 2005, 01:18:35 AM »
I agree with Cat -- research not only your smptoms but your surgeon as well.  Mine came highly recommended from a friend, but I did my own research as well.  I'm an academic snob and much prefer to have all my docs be at teaching facilities...and have professorships.  Except for OB/GYN...in that case, I'm an "earth mother" snob and much prefer my midwife to an MD.  But that's another story for another board.

Start by looking for your OS on this site -- they do, from what I gather, a lot of research before they list an OS as a knee expert on here.  Mine is listed, as are a few of his colleagues here in Pittsburgh.  Not nearly as many as one might think, seeing as we have a fantastic med school and a whole boatload of world-class hospitals...so do some background work to be sure.

You can also see whether your guy/gal writes/peer reviews articles and textbook chapters by going to www.orthosupersite.com.  You have to register, but I think it's well worth it.  I only got that link here in the past few days, and it has been the source of a TON of information...as well as allowing me to waste countless hours when I should be grading and prepping for tomorrow's class sessions!!!

Peace,
Jen
LR/TTT 3 August 2006, RK
LR/TTT 16 June 2005, LK
CPMs are evil.

Offline monoxidesgirl03

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Re: Questions
« Reply #24 on: April 14, 2005, 05:51:39 PM »
Well.................went to the new OS today.........he did more x-rays, did a lot of manipulation on my knee, and came to the conclusion that I have patello-femoral syndrome and my IT band is tight as hell lol.  He set me up for PT and said if that doesn't help then he might want to go in and see what else may need to be done.  I really clicked well with this doctor though, I told him about my past experience with the other OS, told him about how frustrated I am with everything that's been going on, how much pain I'm in, and he actually understood!!! Holy hell, maybe I'm not crazy after all!!!!!!  But he also reassured me that he understands my pain is real (especially the shooting pains that run up my femur....those can be the worst sometimes) and he told me that it frustrates him that people call themselves OS's when they treat people the way they do.  So at least now I have somewhere to start, something to start reading up on, and hopefully I don't have to go under the knife for anything.  I'm sure down the road something will come up, but who knows.  I finally breathed a sigh of relief.  My knee hurts really really bad right now, but at least I (kind of) know why lol.  Oh well, just thought I'd keep you all posted of the new happenings over here.  Thanks again for all of your support!!!!

--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!

Offline monoxidesgirl03

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Re: Questions
« Reply #25 on: April 21, 2005, 04:26:00 PM »
Boy..................I never knew how much PT hurts like hell!  Thats about all I can say at this point....................my knee is throbbing lmao....................I think I should just get used to having knee pain because I don't think I'll ever be free from it.  Anyhow..........hope all of you are doing well, better........than me. 

--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!















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