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Author Topic: I have baffled the specialists!  (Read 2183 times)

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Offline Karlar

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I have baffled the specialists!
« on: April 15, 2005, 09:00:54 AM »
Dear all

I hope someone can give me some advise as  am desperate.

Basically I have had knee pain in both knees since I was 17. I am now 30. I have been bundled off by GP's with diclofenac for years and told it was chondromalacia and to stop doing any exercise (!) It flared up everynow and then but I learnt to live with it. I controlled the pain when it flared up.

18 months ago I decided no more. So went to see a specialist. He did exploratory key hole on both knees as the MRI showed nothing. Bascially, the patella was really smooth and not damaged so it is not chonromalacia. He removed some plica but said otherwise he could find nothing wrong. So once again I learnt to live with it. But now, I am getting married in Sept, am desperate to tone up, upped my gym sessions from 2 to 4 times a week and what happens - my knees flare up again. I know losing a few pounds would help (could do with losing 2 stones - mind you I had this pain when I was a slim 17 year old) but I can't lose it without exercise and I can't exercise without my knees flaring up! Can anyone please help me? Am willing to try anything holistic/alternative too. Reiki helps me a bit but not enough. Wish I just knew what it was but if a specialist can't find it, then..... :(

Thanks
K

shadehawk

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Re: I have baffled the specialists!
« Reply #1 on: April 15, 2005, 10:51:40 AM »
Karlar,

Hi, just read your post.  What kind of exercise equipment are you working with?  I really do not know what kind of knee pain you have, but if the exercising hurts then you have to find some kind of equipment that will work for you.

I have weight-bearing knee pain and the only equipment that I have found works for me is a recumbent bike.  It is the best investment we have ever made.  The pool is another place where you can shed pounds quickly and safely.  Some other's also recommend hot tubs.

Hugs,  ;)

Shade

Offline Linds

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Re: I have baffled the specialists!
« Reply #2 on: April 15, 2005, 11:06:19 AM »
Hi and welcome to the kneegeek board. ;D  I'm sorry you have to be here, but if anyone understands what you are going through it's the Geeks around here. ::)

First of all, back when you were 17 Chondromalacia was a pretty catch all type diagnosis, Surgeons and doctors used it interchangabely with Anterior knee pain syndrome and Patello Femoral Syndrome/dissorder.  Your pain could be caused by a number of things, one of them being Chondromalacia which they've decided it isn't.  The first thing I would do would be headed to a Physiotherapist who can help set you up with some exercises that shouldn't agravate your knee too much, and some of them even know how to do Accupuncture and that sort of thing to help with the pain.  I also find that sometimes they are better at knowing what's going on with their patients than the doctors and surgeons as they are hands on with their patients more so than a doctor or surgeon who may only see you once.  Shade made a good suggestion with the pool exercise,  some places even have special therapy pools that offer classes for people with joint pain.   I would be careful around the hot tub thing though as I know my Mom and Dad have one but I can rarely use it as it REALLY flares up my knees from the heat.

I see up above this you've posted another message regaurding glucosamine.  I'd say it's worth a try, it may do nothing for you...but it can't hurt.  *** Unless you are allergic to Shellfish or Sulfa Drugs in which case DON'T take it without consulting your doctor***  Glucosamine is a naturally occuring substance in the body that helps with the production of the synovial fluid (the viscous liquid that fills our joint capsules) and also helps in the repair of the colagen matrix that makes up our articular cartilage. ::) Worth a try if you ask me. I take  a Glucosamine, MSM and Chondroiton combo I can't say for sure that it's helping but i've taken it for 2 years and I'm of the mind that it probably is, just i'd be worse off if I were not taking it.

It is hard to deal with extra weight when you have joint pain I know... i've been trying to lose  a few pounds by eating better and gentle exercise like walking. It's a long process but I think will be worth it. I've read studies suggesting that for every pound you are over weight that's another ten pounds on your knees.... ::o that kind of scared me...  So it is a good idea to try to lose extra weight when you can. Congrats on your wedding in September... i'm getting married in September too.   ;D

Hope this has helped... before you exercise you should ice your knees and then as soon after as you can..this should help with the flare up.

Goodluck

Linds
« Last Edit: April 15, 2005, 11:14:23 AM by Linds »
1997 Scope RK
2002 LR RK
2002 Scope and hematoma evac RK
2004 LR LK
May 06 Fall from Horse, partial ACL tear and meniscus injury, Tibial plateau injury
2007 Scope, Plica Excision and Debride LK
2009/2010- Possibly Ankylosing Spondylitis?

Offline Karlar

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Re: I have baffled the specialists!
« Reply #3 on: April 15, 2005, 11:54:34 AM »
Thanks Shade and Linds

(Congrats on your wedding too Linds!)

I am currently doing 15 mins on upright bike (what's a recumbent bike?), 15 mins on cross ramp and 15 mins on walker. Then move to weights. I went to a physio before after my op but to be honest was disappointed as one just kept putting a machine on them to pass an electrical current through, and the other just said to do the leg press (which I do regularly). She also taped up my knees which I do when they are really bad. Otherwise I wear supports at the gym but I think I could do with some better supports to be honest.

What's this about hot tubs? Do you mean like the jaccuzi at the gym?

Do you think these cadio machines are doing me more bad than good?

Will try the glucosamine.

Thanks again for replying.

K

shadehawk

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Re: I have baffled the specialists!
« Reply #4 on: April 15, 2005, 12:50:59 PM »
Karlar,



http://www.bodybuildingpro.com/recumbent_bike.jpg

This looks just like my bike and you can purchase them at chain stores like Zeller's for a reasonable price.  It takes all the stress off your knees.  The people that use the hot tubs seem to find pain relief - I personally have not tried this out yet, but I really find hot baths very helpful.

Good luck to you,

Shade
« Last Edit: April 15, 2005, 01:32:27 PM by Shade »

Offline KarenS

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Re: I have baffled the specialists!
« Reply #5 on: April 15, 2005, 12:54:43 PM »
I'm just curious -- has any doctor ever suggested seeing a nerve specialist? I'm in the midst of a long recovery from some type of injury I incurred from overuse at the gym. I've spent six months thinking I'm recovering from a bone bruise, which I do have, but now the doctors think what I'm feeling isn't necessarily related to that. I called my OS office yesterday and spoke with one of the doctors who has examined me (I'm basically baffling everyone there), and she suggested I see a doctor who deals with peripheral nerve disorders. She said the MRI shows that I have a condition where my patellofemoral joint tends to rub against my thigh bone. She said it's not something to worry about, although the inflammation could have caused some scar tissue which could be interfering with a nerve and thus causing this pain/inflammation, which tends to flare up from anything other than sitting around with my legs out in front of me (fun, fun!). She said that lots of patients who have "undiagnosed knee pain" have been helped by this doctor. I'm calling today to get an appointment, because I'm SO done with sitting around! Maybe time heals all wounds, but at this rate I'll be old and gray by the time I'm back to normal! I can't imagine dealing with this for as many years as you have -- you need answers, and I wouldn't stop until I get some if I were you!

What exactly do you feel when they "flare up," by the way? With mine, my knees are warm almost every morning when I wake up, but after I ice them down I can do what I have to do (get my kids off to school, straighten up the house, and then sit and ice some more). Some days I can do a lot more than others before they feel like they're getting inflamed. I just went through a period where they seemed much better -- I started going to the grocery store again, and as long as I iced them and rested for short periods during the day, I seemed to be getting around MUCH better than four months ago. But I think I got carried away and now I'm having a setback. :(
« Last Edit: April 15, 2005, 01:01:47 PM by KarenS »

Offline Karlar

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Re: I have baffled the specialists!
« Reply #6 on: April 15, 2005, 01:24:28 PM »
Shade
Thanks for the reply but I can't view the pic. I'll have a looksee on the net though.

Karen,

Thanks for your reply. This nerve treatment sounds interesting. I think I wil go back. Sometimes I have no pain at all for months at a time. (Your pain sounds much more severe) Then as soon as I step up the exercise (or sometimes if I am somewhere humid) my knees flare up and hurt for about 2 weeks. Even sitting down onto the loo for example hurts. It trobs at night. Sometimes I can almost touch the pain, sometimes I can't pin point it. Sometimes it's a dull ache but never a sharp pain. Ice helps for a while but it some comes back and feels like burning/grinding. Sorry I can't describe it very accuratlely but it does change. Someone has told me cross ramp in reverse is good. So will try that. Diclofenac doesn't touch it! You are right though. I need to get a referral again. I can't put up with this for ever.

:-\

shadehawk

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Re: I have baffled the specialists!
« Reply #7 on: April 15, 2005, 02:20:20 PM »
Karlar,

Here is the site:  http://www.bodybuildingpro.com/recumbent_bike.jpg

Shade
 

Offline Karlar

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Re: I have baffled the specialists!
« Reply #8 on: April 15, 2005, 05:13:42 PM »
Hi Shade

Am relieved to say that we have those at the gym, I have just done 15 mins on it (I ususally use the upright bike) and then 15 mins on the cross ramp going backwards as someone at work told me this was better for your knees and it didn't hurt when I was doing that. I have come home and iced them so hopefully it will not swell.  I have also just bought a knee book and it says there that broad hipped women (moi!) may have a wide Q-angle. (Quad angle?). It tells you how to meaure it so when my other half comes home later I shall be drawing on my legs to see if the angle is over 15 degrees which could explain some things! Apparently it means you are more likely to suffer bouts of patellafemoral syndrome.

Let me know if anyone wants the measurement method!

K

Offline Leigh-Anne

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Re: I have baffled the specialists!
« Reply #9 on: April 15, 2005, 07:34:01 PM »
I had dislocated my knee when I was 16.  I went to the dr and he told me I didn't know what I was talking about.  Over the next 9 years no dr would listen to me so I quit going to them.  About 6 months ago I went in for serculation problems in my legs. The dr asked if I had injured my knees. I told him I did 9 years ago and have injured it 7 more times sence then.  He was suprised that no one had done anything about it.  He sent me to a specialist. 2 months later I had the Fulkerson Osteotomy surgery.  It took him a whiile to figure out what was wrong with my knee, but he realized that in one position my knee would slip. After the surgery he told me that while in surgery he had a difficult time making it slip until in the one position.  I had knee pain for those 9 years and I didn't wear shoes with any kind of heal because it would agrovate my knees every time.  I also used alot of ice and heat.  I hope someone can give more advice than me but this helped me. I started physical theropy and that has also helped.  The surgery was in Dec. and sence physical theropy a month agp I have had pain only one or twice.  It wasn't even that bad. A little ice and I was back up.

Hope things work for you as they did for me,
Leigh-Anne
« Last Edit: April 15, 2005, 07:40:57 PM by Leigh-Anne »

Offline Karlar

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Re: I have baffled the specialists!
« Reply #10 on: April 15, 2005, 09:42:07 PM »
Wow Leigh-Anne, poor you! That is terrible the Dr told you you didn't know what you were talking about! Mine OS just gave up and said there was nothing else he could do. I think my patella sometimes slips out of it's runner so have ordered some special knee  braces today to see if it helps. If not, am going back to my OS to tell him if he can't find it out, send me to someone who can!!

I hope you continue to recover well.

;)

Offline Leigh-Anne

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Re: I have baffled the specialists!
« Reply #11 on: June 30, 2005, 07:35:21 AM »
It's been almost 7 months sence I had my knee surgery. I'm feeling great. :)  The Dr said I can have the screws taken out if I decide to because I have healed so well. But only if they bother me.  Physical theropy was hard but worth it. It didn't only get my knee in shape but it also got me in shape.   :D

Hope all is well with all of you! :)
Lots of luck!!

shadehawk

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Re: I have baffled the specialists!
« Reply #12 on: June 30, 2005, 08:32:23 PM »
Leigh-Anne,

Great to hear from you again.  It is wonderful that this surgery has helped you so much.  I can tell that you also have a great frame of mind also. 

Thanks for sharing with us.  It is so good to hear that someone has had such a great recovery.

Good luck,

Shade[/color]

Offline jillo

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Re: I have baffled the specialists!
« Reply #13 on: July 02, 2005, 10:02:49 AM »
That sounds a lot like the bursitis I get in my hip.  Can you get knee bursitis?