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Offline monoxidesgirl03

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Questions
« on: March 16, 2005, 04:58:25 AM »
Hello..........I am new to this board, but I have so many questions about my knee........and my doctor doesn't seem to want to help.  I've had a lot of problems with my left knee since I was 12, I used to race dirtbikes, play softball.......was a very active kid.  Within the last year, the pain has gotten worse, with my leg giving out on me on occasion.  I went to my family doctor, he referred me to a specialist, and all the specialist told me was that women are more prone to have issues with their knees, then he said "and I'm not trying to say that it's all in your mind" sooooooo basically he made me feel like I was full of crap.  He also ordered a brace for me.  Recently, within the last 2 months, the pain gets unbearable.  It starts out as the normal burning pain behind my knee cap, but then it sends really bad shooting pains up my femur.....all the way up to my hip.  My brace doesn't help with the pain anymore, and I'm beginning to build a tolerance to the pain meds my family doctor prescribed for me.  I don't want to get addicted to pain meds, but its hard for me to work, to drive my car..........to do much without any pain.  If anyone has any advice.....please feel free to pass it on.  Thank you.

Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!

Offline Nettan

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Re: Questions
« Reply #1 on: March 16, 2005, 06:42:46 AM »
Hey !!

Welcome here !!
What did the doc give you for diagnose ? Did he exam your knee, where Mri or x-rays taken ? Have you bee refered to a phys or are you doing any pt at home ?
It's common to hear thing like that, that we females have kneeproblems. But it doesn't help you to hear that.In my opinion if this doc doesn't give you any feed back at all why not get a second opinion ?
What painmeds are you using and how much ?
Are you having pain while beeing still or only when you use your leg ? Are you having pain both day and night ?

Hugs Nettan  ::)
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline monoxidesgirl03

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Re: Questions
« Reply #2 on: March 16, 2005, 07:03:45 AM »
Hi!
Well, my knee gives me almost constant pain.  My family doctor has me on naprosyn for anti inflammatory, and ultracet for pain relief.......of course, my knee hurts more and more when I'm doing something (work, bowling.......just walking, driving.....) and it's getting to the point where my bosses have said things to me about it affecting my work.  They don't understand how hard it is to put on a straight face and do my job when all I want to do is cry because of the pain.  The specialist did some x-rays, told me that he didn't see any arthritis, so that was good, he did a 20 second exam (I'd be suprised if he looked/felt my knee for longer than that.) and when I said something to him about that (I work at an animal hospital.........and veterinarians spend way more time in a room than any human doctor I've ever seen) he just told me that he was extremely busy and that there were other serious patients to attend to.  He really gave me the impression that I was faking everything.  He told me to go to a special store to get fitted for a brace, and the guy who fitted me for my brace spent more time with me, and told me that I had a lot of play in both knees, the left being worse.  I contacted the specialist after three weeks, because the pain was getting worse and worse, and he again told me that it wasn't serious enough to do much of anything about.  Now, like I was saying.......the pain goes up my femur to my hip, I'm very stiff when getting up from a laying/sitting position, its so hard for me to get comfortable.......and I'm only 22, and very depressed because of how fast I've had to give things up one by one.  It's pretty sad when my three year old nephew can beat me up the stairs because "Auntie go slow cause of big brace!"  as he says.  I don't want to go back to this specialist........but I'm going to have to call my insurance first to ask them where else I can go.  This specialist is a good friend of my family doctor, but I still told him I think he's a piece of junk who has no bedside manner, and I told him that I didn't think he should be a doctor..........but what else should I do?  The specialist told me that I was probably thinking I had a cruciate ligament injury, but he hasn't done a damn thing to tell me for sure.  Any info would be appreciated.  Thanks again.

--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!

Offline cat

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Re: Questions
« Reply #3 on: March 16, 2005, 01:58:45 PM »
It's a shame when we want and should be able to trust our doctors but can't.  You need to take charge of the situation. It's your knee. I would get another opinion from a KNEE specialist- not just any OS or even any sports med OS. Even if you have to pay out of pocket for your apt, it will be worth it. It's awful when you are made to feel like a head case. I'm sure with a little looking you will be able to find someone who can help you.
Good luck,
cat
"Miserable malalignment"
 Lateral release, medial reefing, VMO advancement, and TTT-  3/2/04
Screw removal- 5/24/05
Cortisone injection to pes anserine- 7/27/05
Femoral derotation osteotomy, TTT revision- 10/18/07

Offline smiley196

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Re: Questions
« Reply #4 on: March 16, 2005, 02:40:28 PM »
Welcome to the board Holly!
I think you should maybe get another opinion from a different doctor. Ask around your neighbourhood, and I'm sure you'll find one that is well knowen for doing a great job. Thats about all the advice I can give to you, but I hope you find the answers your looking for, good luck!
Krista
*16 years old*
Left Knee:
Torn:PCL, ACL, MCL
SEVERAL dislocations
Grade 3 Chondromalacia
Medial & Lateral Meniscus tears
Plica Syndrome
Sept 14th 2005-(LK)ACL recon, TTT, menisectomy,plica removal

May 26th/06-Torn ACL(RK)

June 14th/06-(LK)ACL graft recon, screw removal, menisectomy

Offline Nettan

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Re: Questions
« Reply #5 on: March 16, 2005, 03:55:31 PM »
Hey !!

After reading the story about you Holly there's only one option for you and that is to see a Os specialized on knees.I would not trust a doc at all who had looked at my knee for only 20 seconds.Sorry I have no idea what's going on with your knee, but if there's pain you really have pain, don't forget that.
Try to look around for other docs.Please let me know how it goes.

Hugs Nettan  ::)

If you wonder anything or need support you know where to find me.
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline harmer

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Re: Questions
« Reply #6 on: March 16, 2005, 04:08:27 PM »
Hi!

Agree with the others - DO NOT see that doc again. Knees are so complex (as i'm gradually and frustratingly discovering) that any number of things could be wrong. A knee specialist or well reputed OS is definately the answer. If the brace is not relieving any of the pain then you may well have cartiledge damage (among other things). I am 4 months post op for an ACL recon and meniscus tear removal. Saw my OS yesterday and turns out that the pain i am now experiencing (up the leg to the hip!) is due to the fact that he did not remove enough of the damaged cartiledge and now i'm due an arthroscopy next month.

So get yours properly diagnosed by a decent OS. Good luck and hope you get some decent help.

Dan

Offline robinred

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Re: Questions
« Reply #7 on: March 17, 2005, 12:55:56 PM »
Hi Holly, I am so sorry you are going through what you are going through.I think it is terrible when someone doesn't take the time to understand what you are going through, especially a dr.I agree with everyone else and would definitely get a second opinion.I know I am also looking at that option.When I went to the ortho. he didn't spend much time with me either, and even though I have an ACL tear and a tear in my meniscus, it was pretty much like well your 47 and not a professional athlete so you don't need surgery you'll be okay as long as you don't do this, this or this.I personally don't want to live my life constantly having to avoid doing things I have always enjoyed doing and worrying if my leg is going to go out again.I have been going to PT for the last two months and it has helped but there is still a lot of pain going up and down stairs or if I accidentally turn my leg the wrong way etc.Even my PT was very surprised that they did not recommend surgery.I don't necessarily want to have surgery but I would rather do it now if I need it, than wait down the road when I might possibly be in as good of shape.Sorry I rambled on, but I can definitely relate to how you are feeling because it is so frustrating not to be able to do the things you have always loved to do.Keep us posted on your outcome.Good luck.Robin

Offline yogibear2b

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Re: Questions
« Reply #8 on: March 17, 2005, 04:24:48 PM »
Please do like everyone has suggested and get a second, or even a third, opinion. I suffered for over two years with terrible pain in my right knee and was dismissed by the doctors.They treated me as if I was just some crazy lady.They even told me at one point that it was in my head and refused to see me anymore. They even refused to order a MRI.(Why I don't know)
 Anway, to make a long story short, I had a rheumatologist oder a MRI. I had been walking around who knows how long with a torn meniscus. Surgery was done shortly after  and the knee has never bothered me since! ;D DON'T GIVE UP!

Offline monoxidesgirl03

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Re: Questions
« Reply #9 on: March 20, 2005, 02:27:28 PM »
I gave the specialist one more chance, I called him to talk with him about how bad the pain is getting, and I asked him why he hadn't ordered up an MRI.  He told me that my insurance would be paying for an unecessary MRI, and he asked me if I was questioning his diagnosis.  I flat out said yes...................if there was nothing wrong with my knee, it wouldn't hurt this bad.  And I also said sorry you think I'm a mental case, that I'm making up my pain, but I'm taking my issues elsewhere..........and I will make sure my family doctor knows what a piece of crap (not the word I used) you are so he doesn't keep referring patients to you.  I did talk to my family doctor, told him about what was going on, and even he was suprised about how bad that specialist was.  So, I'm back to the drawing board.  I'm doing some quick research to see who is a good knee doctor around here (I live in Southeast Michigan) and once I find a good one, I am making an appointment.  I will keep you all posted, and thanks again for your support and help on this.

--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!

Offline smiley196

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Re: Questions
« Reply #10 on: March 20, 2005, 02:35:38 PM »
Holly-
I think it was really good of you to be straight up with your OS. Sometimes you only get what you fight for, and you clearly weren't getting enough help. I hope you'll find another OS with alot more insight.
Krista
*16 years old*
Left Knee:
Torn:PCL, ACL, MCL
SEVERAL dislocations
Grade 3 Chondromalacia
Medial & Lateral Meniscus tears
Plica Syndrome
Sept 14th 2005-(LK)ACL recon, TTT, menisectomy,plica removal

May 26th/06-Torn ACL(RK)

June 14th/06-(LK)ACL graft recon, screw removal, menisectomy

Offline knigann

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Re: Questions
« Reply #11 on: March 20, 2005, 10:53:02 PM »
You definitely need to see a specialist. My guess based on what you have said is that you have knee cap problems. If they didn't take an x-ray to look at how your knee tracks or what the space between your knee cap and femur look like then they wouldn't see a problem. I have this problem which has resulted in arthritis under the knee cap. Mine is bone on bone and I know the pain it causes. I am currently looking at a patellofemoral knee replacement. I would like to find someone who has one. Luckily my doctor has been very understanding and patient with me. We have tried a lot of different treatments. Most have worked temporarily but then I get sensitized to the treatment and react with swelling etc. Any way enough about me. Good luck. anytime you want to vent, just do it.

Offline robinred

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Re: Questions
« Reply #12 on: March 21, 2005, 01:00:10 PM »
Holly, glad you stuck up for yourself and that you are going to get another opinion.Keep us posted and let us know what happens.Good luck.Robin

Offline Janet

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Re: Questions
« Reply #13 on: March 23, 2005, 02:06:12 PM »
Holly:  I sent you a private message about some doctors in southeast Michigan.

Knigann: There are several threads on this board from people who have PJFR. Look down through the sections or search to find them.

Janet
« Last Edit: March 23, 2005, 02:08:21 PM by Janet »
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline monoxidesgirl03

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Re: Questions
« Reply #14 on: March 27, 2005, 12:45:21 AM »
Hi y'all!
Just wanted to first...........thank you all for your kind words of encouragement!!!!  It really means a lot to me.  I was starting to get really depressed about not being able to do things the way I've been doing them........like bowling.  I've been a bowler since I was three..........my parents have always bowled and so have I.  I've gone from bowling 6 nights a week to two, and those two hurt me soooo bad!!!!  It's upsetting me sooo much to think that even if I get my knee fixed, I might not be able to bowl again.........I'm afraid of that happening.  Anyhow, I have an mri scheduled next Wednesday, and I will let you all know what happens from there.  Janet, you've been extremely helpful, and I cannot thank you enough for that alone.  You all have been so helpful!   We took some x-rays of my knees at work today, different views than the doctor has done (I work at an animal hospital)  and even though I'm not a doctor, there are a few things that look funny to me, especially where my kneecap was at on the x-ray of my left knee.....on all the views it was very high compared to my right knee, and it sits pretty far from my knee, now like I said I have no idea why, maybe that's completely normal, but...........it just looked weird!  So, either way, hopefully the MRI will help the doctors figure out what's going on..............I just want to be able to bowl 6 nights a week again.  Thank you all soooooooooooooooo much for all of your help.  I will keep you posted!

--Holly
First MRI 3-30-05....hope to find out what's wrong with this knee!!!!!!
Don't blame the breed.............blame the deed!!