Banner - Hide this banner





Author Topic: mal-alignment -can anyone fix me?  (Read 1050 times)

0 Members and 1 Guest are viewing this topic.

Offline belle9

  • Regular Poster
  • ***
  • Posts: 135
  • Liked: 0
  • User's Text
mal-alignment -can anyone fix me?
« on: February 25, 2005, 07:48:21 PM »
please help - i'm so frustrated!
i live in the uk in the midlands.  I've been suffering from patella mal-tracking issues for about 10 years now and have now seen countless pt's and 2 consultants.  I've had 2 MRI's and don't seem to be getting anywhere.  The OS i'm seeing at the minute is really good - at least i thought he was until i went to see him monday.  I went back for the results of an MRI i had done in november 04.  It took the hospital 20minutes to locate the results!  After reviewing the results my OS confessed that the scans had no measurements on (which was the whole point of me having them done) as the specialist he requested to do the report hadn't - someone else had. He took another look at my knees and said the mal-aligntment was one of the worst he's ever seen.  When i saw him before the scan he was fairly confident he could operate but it appears he has now  - for reasons unknown to me - changed his mind.  He told me that he will send my scan back to imaging to get the measurements calculated and will contact other surgeons in the country to discuss what he should do.  In the mean time - bearing in mind this is uk nhs and things take a hell of a long time - he's referred me back for more physio.  The physio guy i'm going to be seeing is the same person as i saw last time who told me there was nothing more he could do for me.  Is it normal to be passed from pillar to post?  As i understand it i'm going to end up having to see an even more specialist knee OS at a hospital anywhere in the uk that will see me.  Has anyone else in the uk experienced this or does anyone know of any good and experienced knee OS's in the uk?
The frustration is getting to me - its making me feel depressed.   i've also lost some range of motion since a suspected dislocation 6 weeks ago and this is bothering me too.
thanks x  any advice is much appreciated
« Last Edit: February 25, 2005, 07:51:59 PM by belle9 »
*Mal-alignment issues due to torsion or both femur and tibias
*Derotation osteotomy of right distal femur and distal tibia 12/04/11

shadehawk

  • Guest
Re: mal-alignment -can anyone fix me?
« Reply #1 on: February 26, 2005, 09:31:06 AM »
Belle,

Sorry that everything is taking so long.  Many of us on this board are having the same problems as you and it is very frustrating and you do get depressed.  But, you have to have a good cry over it and then pull yourself up and get on with it again.

Get your GP to get you some meds for pain.  Keep up with your PT exercises at home on a daily basis, it keeps everything moving. 

Your best bet is with an OS who is specialized in knees for your particular knee problem - even though you might have to wait longer. 

Good luck,  ;)

Shade 
« Last Edit: February 26, 2005, 09:32:46 AM by Shade »

kneesknees

  • Guest
Re: mal-alignment -can anyone fix me?
« Reply #2 on: February 26, 2005, 12:59:58 PM »
Hi belle,

I can absolutely relate to what you're saying...I've been sent to Orthopaedic Consultants, back to physio, to the doctor, back to physio despite my physio also saying that there was nothing more she could do for me!  Its SOOOO frustrating but it helps knowing
that there are other people here who are going through the same.

Just stay positive, although I know thats really hard and something I'd definately suggest when going to NHS Appointments  - make sure u take someone else with you because you never know when somethings going to come down to your word against theirs!  I know that this is really negative but seriously, I'm speaking from experience - even now a consultant is trying to deny something happened when both me and my mum were there (If i'd been on my own I'd have been even less able to prove it)

Good Luck and I hope something starts happening for u soon!

Offline belle9

  • Regular Poster
  • ***
  • Posts: 135
  • Liked: 0
  • User's Text
Re: mal-alignment -can anyone fix me?
« Reply #3 on: February 27, 2005, 05:32:10 PM »
thanks for your replies
i always take my mum with me - shes my back up.
I think the thing that gets to me the most is that i feel like i don't know where i stand - the consultant appt.s are so short and after the point of 'there's nothing i can do today' comes up the rest of the appt becomes a bit of a blurr as you contemplate how you are going to get through till the next appt.
on the subject of pain relief - my gp is useless - its taken him 8 years to admit i have a knee problem even though it was staring him in the face.  He told me to rub some gel into it after my recent dislocation!!!!!!!!  No perscription or name for this substance!  - just gel!
a result at the moment for me would be to get an appt with the physio and for him to be able to get my knee functioning better so that i am able to manage the stairs better again.  I am doing my exercises every day and have been for over a year.
*Mal-alignment issues due to torsion or both femur and tibias
*Derotation osteotomy of right distal femur and distal tibia 12/04/11

Offline DeeDee

  • Forum Faithful
  • ****
  • Posts: 454
  • Liked: 0
Re: mal-alignment -can anyone fix me?
« Reply #4 on: February 27, 2005, 07:04:20 PM »
Hi belle,

I am really sorry you are having such a bad time.

I relate to you totally, I have had malalignment for 24 years, I was also left with no treatment what so ever.  (another GP I saw told me to go away and do exercise, this was not my normal GP)

Until I had a bad fall in July 03, and had to go the A&E department, they gave me strong painkillers and x-rayed my knee, and refered me to an OS, who told me I had Premature Degenerative Joint Disease, and that I needed a TKR, but was too young and was offered an HTO instead,

This is where they cut a wedge of bone out just below the knee and put a wedge in to re-align the leg, which I had in February 04, not doing so good at the moment though, my bone has not healed, so I will have to have Keyhole and more surgery to correct the failed HTO.

Hang in there, and take care.

DeeDee
*Severe Osteoarthritis, Left knee worn out
*I now need a Total Knee Replacement                             
*16/02/04 High Tibial Osteotomy
*14/11/05 Hardware removal plate and 4 screws
*Now suffers from leg length discrepancy of about an inch.
*15/10/08 Bad fall, ACL Tear & Baker's Cyst