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Author Topic: Anyone taking Clinoril (sulindac) Nsaid - medication?  (Read 3368 times)

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shadehawk

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Anyone taking Clinoril (sulindac) Nsaid - medication?
« on: February 25, 2005, 04:48:27 PM »
Hi,

My doctor is thinking of trying this medication on me now as the Mobic just isn't working for me anymore.  I was just wondering if anyone has had any luck with Clinoril (Sulindac - generic name) for Nsaid pain relief of knee pain - my GP doesn't want to put me on narcotics.

Any comments would be appreciated.

Thanks,  ;)

Shade
« Last Edit: February 25, 2005, 07:57:46 PM by Shadehawk »

shadehawk

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Re: Anyone taking Clinoril (sulindac) Nsaid - medication?
« Reply #1 on: February 26, 2005, 07:11:05 AM »
Heather G.

Well, I got the Clinoril and as you see it does not help me sleep, does not help with the pain & I am not impressed.  I'll go back on the Mobic tomorrow night and not take anymore of this - I only took a few of the pills from the pharmacist to see if it would work so I would not have to get the whole prescription and then have to throw it away if they did not work. 
 
I have alot of trouble with meds......so my doctor will not be surprised by this at all....I'll ask about the Darvocet and I also read about Ultram (tremadol) it seems to be another pain medication, I'll talk to my GP again, thanks.  There must be something that will help until I can get my knees fixed.

Hugs,  ;)

Shade
« Last Edit: February 26, 2005, 09:16:11 AM by Shade »

Offline rozzzie

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Re: Anyone taking Clinoril (sulindac) Nsaid - medication?
« Reply #2 on: February 26, 2005, 05:24:30 PM »
Shade,

I have not taken Clinoril, but I do take Ultram along with Bextra. When my knee is really acting up I have taken as many as 8 a day, 2 every 6 hours or better 1 every 3.  Really, really bad days I add Tylenol 500 mg every 6 hours -  simulates Ultraset, but cheaper since Ultram is out in generic ( tremadol).   Since I had the cortisone shot most days I can do with 2.  They gave me Ultraset when I was in rehab after the IM rod surgery.  For me it's pretty good stuff.

Good luck, I know that there is a drug or combination out there that will work for you!


 8)   H U G s   8)

Rozzzie
OA of knees since 85 
93 scrambled ankle - PE
98 PE
99 anlke fusion
04 hit by car broken leg, ribs AC joint seperation
RTKR  Dec 1 2005
LTKR. IM rod removal March 16, 2006

shadehawk

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Re: Anyone taking Clinoril (sulindac) Nsaid - medication?
« Reply #3 on: February 26, 2005, 09:52:24 PM »
Rozzzie,

Thanks that helps a lot.  I'll talk to my GP about this.  I have not had a night and day of pain like this before - wow, that clinoril really did a number on me.  I can hardly drag my right leg around today.  Pharmacist wants me to wait until tonight until I take any Mobic to get that clinoril out of me as much as possible.  I hope that this never happens to me again.  It sounded like such a good thing trying to change meds and get something that might work better - boy you can sure get into a mess doing this - if you are not careful.

I never realized how bad the knee pain would be without any medication whatsoever - it certainly is not pleasant.  I am counting down the hours now until I can take some Mobic again....this is such a pathetic way to live...oh well, tomorrow will be another day and maybe the sun will shine brightly...

Hopefully, I'll get some shut-eye tonight.  ;)  Sorry for the whining...

Shade
« Last Edit: February 26, 2005, 10:22:09 PM by Shade »

Offline Heather M.

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Re: Anyone taking Clinoril (sulindac) Nsaid - medication?
« Reply #4 on: February 27, 2005, 05:20:28 AM »
Shade,

It really frustrates me to read your words, "There must be something that will help until I can get my knees fixed!"  It frustrates me because there are plenty of drugs out there that can help you.  Probably at least a dozen.  It is your doctor's stubborn refusal to treat you that is getting in the way.  I mean, correct me if I'm wrong--but aren't you on a SURGICAL waiting list?  For crying out loud, what more does it take to get your doctor to understand that you are in agony each and every day?  Your doctor has the means to treat you, and yet refuses to.  There are several medications and devices that could help you today:  a home TENS unit, lidoderm patches, a good anti-inflammatory, acupuncture, and mild narcotics.  The refusal to prescribe you some kind of regimen is truly mind-boggling.  There's a great Chinese saying:  To know, and not to do, is not to know.

Honestly, if I were you I'd find a new GP.  Their job is to help their patients get better; if that is outside their area of expertise, they can provide the patient with supportive care while he/she seeks the appropriate specialist.  I can't comprehend a refusal to help a patient with pain management when that patient is on a waiting list to undergo surgery.  If your knee is bad enough to warrant surgery, I would think that would imply that your life is being very negatively affected.  I mean, you're not having surgery for the fun of it, right?

Sorry, you just hit a nerve with your post.  I had a similar OS who cut off my medication after my LR surgery.  He kept saying I shouldn't be having that much pain..  When he did a recheck by scope, he found the scar tissue.  And apologized.

Heather
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
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shadehawk

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Re: Anyone taking Clinoril (sulindac) Nsaid - medication?
« Reply #5 on: February 27, 2005, 11:26:14 AM »
Heather,

Thank you, but really my GP has been a life-saver for me through all this process that I have been going through.  We just tried this medication to see if it would give me more relief from the knee pain.  She was worried about giving me this - guess she knows my body - I tried it and wow, it did not work.  I did learn something about my knee pain through this - my knee pain is really bad without meds. & I really do not want to go through this again.

Heather, I have real problems with meds - guess I am one of those funky people that get really bad reactions from pills.  I can take Mobic, but I could really use more pain relief than it can give.   Since I do not know when my surgery will be she really does not want to put me onto narcotics until we have a surgery date.  I understand that, maybe she will try the Ultram (tremadol) and see if that will do the job for me.  She probably should be giving me something stronger, but she really has been so good about everything else, if she had seen me yesterday she might have changed her mind about narcotic meds......

This was just one of those unfortunate experiences that I am now glad is behind me.  I got to take my Mobic last nite and did get some sleep again and feel much better today.  Yes, I can still feel the pain, but it is like a dull ache compared to yesterday.  If you dump your doctor here, then you can not get a replacement - you have to go to nite clinics and get whoever is on duty - that would be a disaster for me right now.  I know the system here sucks, but that is what it is.  Every province seems to run their own show and since we have to stay here for now that is just the way it is.  Linds has many of the same problems in the province she lives in also - although frustrating we seem to manage to work around it somehow - with the help of the right GP.

The Tens unit is something that I am still looking into - last trip was so short we did not have time to pick one up, (they were out of stock where we were), but we plan on getting one when we are in Toronto (we are going to stay awhile this trip).  I appreciate the information you have given me about this unit - I really think one of these units would help me immensly.  Thank you.

If it was not for this GP, I would never have been able to see the good knee specialists that I am now dealing with.  People from this area just do not get to go out of province to see OS who specalize in knees, she is bucking the system and I am absolutely in awe of her. 

Thank you,  ;)

Shade
« Last Edit: February 27, 2005, 12:22:46 PM by Shade »