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Author Topic: hypermobile patella/dislocation/where to start  (Read 7827 times)

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Offline ElleCarumba

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hypermobile patella/dislocation/where to start
« on: January 08, 2005, 01:40:08 PM »
I am a 19yo British female. Over the last 10 years, I have regularly dislocated or partially dislocated both knees (not at the same time!) while hill walking or just plain walking. For the first 8 years, it occured a couple of times a year, but for two years I have had no major problems. Just a sense of weakness/instability in both knees.

I have seen physios intermittently and have been told I have a a hypermobile patella made worse by flat feet and poor muscle development in the muscles directly above the knee. The patella apparently does not sit in the correct place, but is positoned to the outside. I have have insoles to try and couteract the flat feet for about 4 years now.

Yesterday, I was walking down the stairs and the right knee gave way and the patella slid outwards (not as far out as i has been before) and I popped it back in. The pain wasn;t as bad as it has been in the past but as I have been surfing for info today, I see that it is common for pain to be reduced in later injuries but that I'll still have further messed up my knee.

Anyway, I am really looking for advice on what yo do next. Physio doesn;t seem to have solved the problem. I have been told that my knees will never be "fixed" and will always be unstable but how good can they get?
I am going to see my GP this week and see what he thinks. Should I be pressing for a referral to some specialist (if so, what?) or should I just head back to the physio?

My parents have some vague memory of me getting referred to an NHS bio-mechanical guy at some point but we didn't go  for some reason. I think they thought I'd grow out of it. Perhaps I should have been paying a bit mroe attention when I was younger!

I just want to be able to climb stairs, walk up and down hills, go the gym and run for the bus without worrying my patella will shoot out!

BTW. I am a student and this is all going to be on the NHS.

Thanks!

shadehawk

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Re: hypermobile patella/dislocation/where to start
« Reply #1 on: January 08, 2005, 04:53:24 PM »
I hear you, sounds like you subluxed your knee the last time.  Are you using ice for swelling and heat for muscle relaxation on you knees.  This usually helps and make sure you take time to elevate those legs and give them some rest.

You should have a knee specialist assess your knees, too bad the first was cancelled way back when.  It might have given you some answers, but it is not too late you can do it now.

Pt exercises should be done daily to keep your legs and knees mobile.

Good luck to you.  ;)

Offline squeezeevans

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Re: hypermobile patella/dislocation/where to start
« Reply #2 on: January 08, 2005, 05:49:57 PM »
Hey!

Im 18 and in UK and have had similar problems of dislocations/subluxations for about seven years or so now.  Have tried PT and everything and whilst it has improved my knees in some ways they still dislocate very painfully and often even when just walking along.

I have therefore been advised to have a TTT and LR on my right knee which is worse ... whilst it is a painful and very invasive operation I think it is worth a try.  Only bad thing is being poor student on NHS the waiting lists are horrendous ... 18 months! and even waiting to get an appointment with a consultant can take ages.

Anyway good luck ... I'd definitely get it looked at even if it just means stopping it gettin worst.  

Keep us updated

Louisexxx

Offline mhsflute07

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Re: hypermobile patella/dislocation/where to start
« Reply #3 on: January 09, 2005, 09:43:24 PM »
Hi,
I think you should see a specialist too. Don't accept that there's nothing to help fix your knees. I have very similar problems with my knees and have been told that I need a TTT, LR, and MR.
Good luck!
~Erin~
June 2, 2005 TTT/LR  R.
July 26, 2005 TTT/LR  L.
June 6, 2006 Microfracture R.
June 5, 2007 Microfracture & Screw Removal R.
March 12, 2009 Scope and ACI Biopsy R.
May 12, 2009 TTT, Trochleoplasty R.
December 15, 2009 ACI (patella) & bilateral hardware removal
December 21, 2010 LOA and LR

Offline Natalie.D

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Re: hypermobile patella/dislocation/where to start
« Reply #4 on: January 11, 2005, 03:33:47 PM »
Hi,

I was in the same situation as yourself, I tried PT for years and years but had no effect.  I went to see a specialist and he recommended a TTT, LR and MR, I have not looked back since!  My kneecaps stay where they're meant to be, I'm not scared to walk down steps or off the curb which I was before as that was all it took to dislocate the kneecap.  I would definitely recommend seeing a specialist and seriously thinking about surgery to correct your dislocations.  Do more research on TTTs and similar procedures so that you can go armed with loads of questions to see if this would be the best course of action for you.  

I was also an NHS victim (em, I mean patient!), waiting lists for me at the time were about 9 months to 1 year (think it depends where in the country you are - I'm in Scotland).  So I would try to get referred as soon as possible.

IM me anytime if you want to chat further or if I can answer any of your questions.  Hope all goes well for you.

Natalie.
Dislocations since age 12
Trochlear Dysplasia
Maltracking
Hypermobile
LR/MR-failed
TTT, LR, MR L knee 95-Success
TTT, LR, MR R 02-Success
Screws out
Partial tear ACL
Severe end stage OA
4 Debridements
Partial Meniscectomy
Failed Microfracture
11mm Defect LFC
Bone Spurs, Kissing Lesions















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