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Author Topic: TKA at 37  (Read 1224 times)

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Offline cgmayes

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TKA at 37
« on: November 07, 2004, 12:09:28 AM »
 ???
Story: almost 3 years ago simple scope for lateral retinacular release. Overzealous with recovery, popped incisions open, results 4+ staph infection with resulting 2 I&D's in 3 days, a manipulation 3 months later, scope with chondroplasty, debridement a year later, continued pain/gaurding resulting in changing job (discover this is not what I want to do, want to get back to clinical care of patients in surgery not be the manager who sits and does the other work) and my activity level at least walk normally, to see a specialist and almost no joint space.

Recommends another scope (less than a year from last one) and synvisc (steriods didn't help and synvisc less success rate than steroids) then a TKA later or just a TKA at 37-38. My gut is telling me, wait as long as you can based on when could return to a clinical position then go for the TKA. My pain doesn't seem as bad as a lot of people's but am totally frustrated, spending way too much time trying to figure this out, being limited in job satisfaction/outside activities (live in the country and can't walk in the grass comfortably/easily/etc). What do you all think?

Am totally frustrated. Decsion is up to me but can't stand the thought of another palliative surgery.

Offline aussiejulie

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Re: TKA at 37
« Reply #1 on: November 08, 2004, 01:24:34 PM »
 ::) Hi I can fully relate to your frustration, I'm sitting here with a tens machine on my leg becuase I have nerve damage from an operation I had to avoid a TKR in the future. I had a chondrocyte graft ( re grew cells in a test tube then transplanted them back into my knee ) tibal osteotomy and a lateral release. Two years later the MRI reveals the graft did not take in the knee and I'm back to square one but this time with nerve damage from the original procedure which was supposed to fix the problem in the first place  >:(

My OS ( a new one ) has recommended a patella femoral replacement and when this wears out ( 5-10 yrs ) a TKR

I saw him today and he said I should consider a scope in the meantime to clean up the knee and rip out the scar tissue. The knee is full of scar tissue. Trouble is I don't want to risk making things worse right now because I'm just starting a new job. So I share your frustration. He felt synvix would not do anything

So what do we do.  ??? ??? These OS generally say you recover OK from a scope, but I cannot afford more complications because I have had so many in the past.

So I'm investigating other pain management techniques for the nerve and joint pain and have decided to try and hold out another year and get the new job under control first. ( tens machine, heat, arthro creams, I take B 12 and B 15 and DHEA for fatigue ( constant pain make you fatigued ) stretching, ultra sound, exercise ( endorphines ) red wine !! panadine forte

I think when I doubt do nothing in the way of surgery, go for a less invasive solution then surgery depending on your life situation. I have found you need to set aside lots of quality recovery time to mazimize results. Despite this my own surgery failed, but if the cells had grown and I had no nerve damage it may have succeeded. Hope this helps

Julie from Australia

Offline marley

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Re: TKA at 37
« Reply #2 on: November 08, 2004, 04:13:34 PM »
hi im new to this site, i only found it yesterday  :-/ i cant believe my luck.
my story is back in 1986 i had my first palletectomy, i was having some very bad problems with my knees since i was 11, the doctors said that they were going to coat my knee cap with plastic, as i had previously told them i wanted to carry on with all the sport i was doing at the time.....but when i came round after the op i was told that the kneecap was removed!!!!!
i thought everything was going to be ok after that i thought the pain would at least be easier... how wrong was i.. :o
after 18mths of physiotheropy i was still suffering with my knees.... i had many arthroscopes after the op but to no avail nobody seemed to know what to do next.  Any way roughly about 8 years later i was told my other kneecap needed to be removed!!!!! i couldnt believe it i was in absolute pain though almost constantly, so i thought that maybe to have the other one removed would solve my problems....... again how wrong i was...
i am now 10 years post op and i am still suffering very badly, i am registered disabled and am in constant pain.  i was so relieved to find this site as i have never spoken to anyone who has had this operation done so its nice to know im not on my own.  
i did try and go back to work, i was a carer for the elderly for 18mths but had to be signed off sick as im having such problems with my legs....  im awaiting an x ray at the moment because not only are my legs hurting constantly, my hip and lower back are now!!!! can u believe it, i think this opain has come from trying to put my weight elsewhere other than my knees. :( anyway i thought i would briefly share my story as im so pleased to find that im not the only one suffering or to have had kneecaps removed, i would say to anyone who has been told they need this op to think very hard, you aren't warned about the after effects...i would never have believed that at the age of 36 i would be registered disabled!!!!! if there is another option i would go for it the painful life your left with afterwards is never worth it.....
marley

Offline maxfactor

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Re: TKA at 37
« Reply #3 on: November 08, 2004, 08:15:38 PM »
Hi Marley,

I've had bilateral patellectomy (23 yrs ago) and just the past 3 or so yrs have been in chronic pain. I'm seeing another O.S. today who I'm hoping can help me. Most of them say I'm out of luck. I'm on strong narcotics, but still working. I have pretty good range of motion, but lot's of pain. Hope you get the help you need. I know how you feel. I'm 42. Don't hesitate to contact me, even if just to vent. I found this site a few months ago and am so grateful. If you key in "patellectomy" in search, you'll find others who have had this done.

jane
12 knee surgeries. bilateral patellectomy 22yrs ago. chronic pain, major narcotics. Still looking for help with pain. 42yrs old.

Offline aussiejulie

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Re: TKA at 37
« Reply #4 on: November 09, 2004, 12:49:52 AM »
Chronic pain is a really interfering with my life. Yesterday the OS pulled and pocked at my knee then told me it was a mess amnd I really needed to do something about it. Last night the pain was worse from him touching it so I hate to think what its going to be like if I have the scope scrape and he takes out the scar tissue.

I also have nerve damage from the failed Chrondrocyte Graft operation so that was terrible last night. So I took a sleeping tablet then neurotin. This morning I could not wake up and felt cloudy. I'm recovering from a massive car accident and sustained a head injury so my ability to toletate drugs is far less than before the accident. I'm starting a new job next year where I'll be on my feet half the day. Does anyone know if acapuncture is good for nerve pain. ????

Julie

Offline marley

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Re: TKA at 37
« Reply #5 on: November 09, 2004, 10:57:20 AM »
hi jane
nice to hear from you, i haven't spoken to anyone before who's had this op..... i had my lft pattella removed 10yrs ago and i must ive been in this pain practically ever since  :-/ ive tried i dont know how many painkillers and for a while they do work, they dull the pain but i suppose as with everything you become immune to them.  im now waiting to see another os but not quite sure what they can do for me.  every os ive seen in recent yrs have just told me to make the most of a bad job!!!!!
#Its great to have found this site and i hope that you get some kinda help from yr new os i will be interested to see what he says...
ive now got to have xrays on my hip and back because im getting alot of pain from them now also my gp is thinking that the bottom of my spine is twisting.... :-[ there just doesnt seem to be an end to it does there...but i will post on when ive been and look forward to hearing if anyone gets any joy from there os post op..... ??? sometimes i wonder...lol

marley
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